New user. Usually wake 8am, with mask 5am

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Bugbarb
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New user. Usually wake 8am, with mask 5am

Post by Bugbarb » Fri Oct 31, 2014 5:56 pm

I have used my cpap only twice. Each time I woke up at an ungodly early hour, for me. One day 5am the next 530am. I usually wake at 7-8am. All I want to do all day is sleep. Both days, I have taken naps. I need more than five hours of sleep. Is this normal? When will I get a good, long night's sleep?
I'm counting the hours until I dare lie down again to sleep with the machine. I don't want to go to bed too early and wake up even earlier. I don't want to stay up too late and be even more tired the following day.

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Wulfman...
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Re: New user. Usually wake 8am, with mask 5am

Post by Wulfman... » Fri Oct 31, 2014 6:09 pm

Bugbarb wrote:I have used my cpap only twice. Each time I woke up at an ungodly early hour, for me. One day 5am the next 530am. I usually wake at 7-8am. All I want to do all day is sleep. Both days, I have taken naps. I need more than five hours of sleep. Is this normal? When will I get a good, long night's sleep?
I'm counting the hours until I dare lie down again to sleep with the machine. I don't want to go to bed too early and wake up even earlier. I don't want to stay up too late and be even more tired the following day.
Were you expecting a "miracle"?
This therapy can take MONTHS to start feeling the benefits......even after everything is tweaked to the optimal settings.
It's "baby steps" and one night at a time.

You haven't posted what your settings are either.


Den

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Tatooed Lady
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Re: New user. Usually wake 8am, with mask 5am

Post by Tatooed Lady » Fri Oct 31, 2014 7:02 pm

On the upside...you won't be late for appointments.

If you require another 2-3 hours of sleep, why not hit the bathroom if needed, then try to get back to sleep? You're starting something new, your body will need time to be retrained. When I started back in May, I shot for using the machine for the required 4 hours per night. After that was done, I could take off the mask and sleep a bit more. Then I worked up to longer sessions. Now I've had a couple nights of 12 hours. Whatever it takes is what it takes.

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Sheriff Buford
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Re: New user. Usually wake 8am, with mask 5am

Post by Sheriff Buford » Fri Oct 31, 2014 7:39 pm

As "The Wolfman" said, it takes a long time for your body to respond to the years the damage this disease has caused. Give it time and know your sleep habits and hygiene will probably change. Go with the flow...

Sheriff

guest1

Re: New user. Usually wake 8am, with mask 5am

Post by guest1 » Sat Nov 01, 2014 11:24 am

I started therapy 5 weeks ago. I was compliant from day1 and wore the mask 100% of the time. I realized for the first time in my life, that I was waking up in 4-5 hrs and feeling refreshed. And my energy level was good throughout the day.

But over the course of these weeks, the length of time to wakeup has increased to about 6.5 hrs. I am hoping it will get to my normal 7hrs soon.

So hang in there and give it time.

Amenite

Re: New user. Usually wake 8am, with mask 5am

Post by Amenite » Sat Nov 01, 2014 11:41 am

The first night I woke up 1/2 hour before my alarm clock went off. My body & brain were used to getting very little if any quality sleep. Now 5 month later I find I need at least 6 hours to not be a zombie and 7-8 hours to really feel "normal". In my case I was waking up with nasal congestion some nights but that's less common now, I seem to have the humidity dialed in pretty well. Give it a few weeks and try to keep a normal routine. Maybe you'll notice a trigger for waking up. Check out using sleepyhead, maybe there's info in there that will help.

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Julie
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Re: New user. Usually wake 8am, with mask 5am

Post by Julie » Sat Nov 01, 2014 12:38 pm

You may just not need as much sleep now because you're using Cpap... kinda the idea in the first place. But if you still feel as if you need more, then you'll have to address things as others have said - just do each thing one at a time for a few days so you'll know which works and what doesn't.

purple
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Re: New user. Usually wake 8am, with mask 5am

Post by purple » Sun Nov 02, 2014 6:41 am

So do you have leaks? With both OSA and centrals this is better spoken to by your sleep doc, who usually wants to see patient a month or so after starting treatment. Might be, if you have a good DME, ask them as well.

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ChicagoGranny
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Re: New user. Usually wake 8am, with mask 5am

Post by ChicagoGranny » Sun Nov 02, 2014 8:26 am

Maybe your CPAP therapy has not been optimized and you are still having breathing events. Are you monitoring the efficacy data? What does it say?
I have both central and obstructive sleep apnea.
What was the index for each type when you had a diagnostic study?

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ChicagoGranny
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Re: New user. Usually wake 8am, with mask 5am

Post by ChicagoGranny » Sun Nov 02, 2014 8:32 am

Six people gave advice without asking about the effectiveness of Bugbarb's therapy. The guests I can ignore. But you members should (and do) know better.

Bugbarb could be having some long REM periods around 5:00 a.m. when she is waking up. She could be having serious apneas in REM if her machine settings are not appropriate or if there are mask issues. Of course this is just speculation.

Cardinal rule: Ask new members about their efficacy data before you provide advice.

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Wulfman...
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Re: New user. Usually wake 8am, with mask 5am

Post by Wulfman... » Sun Nov 02, 2014 12:10 pm

ChicagoGranny wrote:Six people gave advice without asking about the effectiveness of Bugbarb's therapy. The guests I can ignore. But you members should (and do) know better.

Bugbarb could be having some long REM periods around 5:00 a.m. when she is waking up. She could be having serious apneas in REM if her machine settings are not appropriate or if there are mask issues. Of course this is just speculation.

Cardinal rule: Ask new members about their efficacy data before you provide advice.
Yeahbut.......
I have used my cpap only twice.
She's hardly even taken one "baby step" at this point. She probably doesn't know about (or even have) any software or any way to "evaluate" two nights of data.


Den

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(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
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ChicagoGranny
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Re: New user. Usually wake 8am, with mask 5am

Post by ChicagoGranny » Sun Nov 02, 2014 3:42 pm

Wulfman... wrote:She probably doesn't know about (or even have) any software or any way to "evaluate" two nights of data.
She can look on the display and report this info to the forum,
The AirSense™ 10 AutoSet will display the following advanced therapy data on the machine display through the "More Info" option in the "Sleep Report" menu:

Usage Data
Events Per Hour
Average Usage
Leak Rate
AHI
and she should do that before anyone starts telling her:
Wulfman... wrote:This therapy can take MONTHS to start feeling the benefits
or
Sheriff Buford wrote:As "The Wolfman" (sic) said, it takes a long time for your body to respond to the years the damage this disease has caused. Give it time and know your sleep habits and hygiene will probably change. Go with the flow...
No use waiting to feel better and finding out MONTHS later the settings or the leaks were making the therapy ineffective.

Bugbarb
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Re: New user. Usually wake 8am, with mask 5am

Post by Bugbarb » Mon Nov 03, 2014 8:19 pm

Thanks y'all for the info. I'm definitely an uninformed newbie. Today, I left he mask off for the last two hours of my sleep and slept till 730am. I think you are right. I have to get used to the machine. And are the settings right?
I just looked at the machine and all I can get off of sleep report menu is the following for the most recent sleep episode:
>usage hours
>mask seal (has a happy face icon)
>humidifier (happy face icon)
There is nothing else. I've clicked and scrolled on the machine and get that fairly useless set of data.
I'm not sure which data in my sleep study you want, but here goes:

Diagnostic portion: 258 minutes. Total sleep time 177.5 minutes. 11% in Stage 1, 56.95'% in stage II, 29.3% in stages III and IV, and 0% REM. Total wake time 82 minutes for a total wake percentage of 23.3%. Sleep latency was 19.3 minutes. Rem wasn't observed. Sleep efficiency was 68.7% Sleep maintenance efficiency was 72.6%

Treatment portion: 229 minutes. total sleep time 211 minutes. 6.9% instage I, 62.6% in stage II, 14.7% in stages III and IV and 13.7% in REM. Sleep latency was 6 minutes. Rem latency was 182.5 minutes. Rem rebound was seen. Sleep efficiency was 92.1%. Sleep Maintenance efficiency was 9405%. Total wake time was 7 minutes for a total wake percentage of .4%

Respiratory events
Diagnostic portion: 11 obstructive and 10 central apneas resulting in an apnea index of 7.3 events per hour. There were 33 hypopneas resulting in a hypopnea index of 11.5 events per hour. The combined Apnea/hypopnea/respiratory disturbance incex was 18.8 events per hour. Baseline o2 saturation was 94.3%. The lowest O2 saturation was 84.6%.
Treatment portion:The patient was titrated at pressures ranging from 4.ocm/H20 up to 6.0 cm/H20. At final pressure of 6.ocm/H20 revealed an apnea/hypopnea index of 8.7 events per hour. Baseling 02 waturation was 93.4%. The lowest saturation was 84.6% At a final CPAP presssure of 6.ocm/H20 the lowest oxygen aturation in NREM sleep was 84.8% and in REM sleep was 88.5% Snoring was eliminated at the final presssure.

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Pugsy
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Re: New user. Usually wake 8am, with mask 5am

Post by Pugsy » Mon Nov 03, 2014 8:35 pm

There's more information available on the LCD screen but it sounds like the DME has not turned that feature on so you can see it.
Do you have the provider/clinical manual for your machine? If not go here and request it.
http://www.apneaboard.com/adjust-cpap-p ... tup-manual

I think you have to go into Options in the clinical setup menu (the manual will tell you how to get there) and change maybe Essentials to "Plus" to see the data.

Perhaps someone using this machine can explain just what is needed to be done. I can't find it for sure in the manual I have.

But SleepyHead software shows even more details than what you are now missing on the LCD screen and I suggest that you get it (links in my signature line) and see in more detail what is going on.

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Bugbarb
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Re: New user. Usually wake 8am, with mask 5am

Post by Bugbarb » Mon Nov 03, 2014 10:40 pm

The manual stated that the healthcare provider must set these options. So, I guess they figured I wouldn't understand or would be confused by the data. Who knows. There is no info in the manual on how to set the data options. I wonder, can they change the options via the data card? Or do they connect to the unit somehow?
Thanks for the info.

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Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: I have both central and obstructive sleep apnea.