I failed the Sleep Study

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Enchanter
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Re: I failed the Sleep Study

Post by Enchanter » Sun Apr 26, 2015 10:19 am

palerider wrote:*PLEASE* put aside what you think you know, and LISTEN, REALLY LISTEN to Robysue.

everything she's telling you is correct.

you may not want to believe it, but it is all 100% correct.
Yea but isn't it possible for the brain to be asleep, but the mind to be fully awake? Or are they the same thing?

All I'm gonna say is that I remember being awake the whole time. After all, the guy did say that the test was no good and there was barely any sleep.
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Re: I failed the Sleep Study

Post by Enchanter » Sun Apr 26, 2015 10:24 am

Pugsy wrote:
palerider wrote:*PLEASE* put aside what you think you know, and LISTEN, REALLY LISTEN to Robysue.
I third it.

If they put you on a cpap machine during the night then you met whatever criteria that lab uses to initiate cpap therapy....and you need it. There are strict guidelines and criteria that have to be met before changing to the cpap machine therapy. You may not think you slept enough to meet anything but you did and it's documented in the data that all those wires and sensors collect.

I'm not saying I know everything. But what I think is maybe he thought I slept because my oxygen was lower. Maybe my oxygen was just lower while I was awake and he assumed I napped. I'm just saying maybe.
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Hopefullady
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Re: I failed the Sleep Study

Post by Hopefullady » Sun Apr 26, 2015 10:32 am

I could have sworn up and down that I did not sleep one bit on my back during my study. I was stunned when I read the results of my test, which showed the exact number of minutes in supine (back) position! I had told my doc I didn't sleep on my back - I was so sure about this - and he said what others here are saying - that it's his experience that people don't really remember certain things about those hours in bed at night. I had been angry because I felt no one was giving me the respect I deserved of knowing everything, when the truth is, I wasn't giving the doctors respect for knowing some things I might not know.

I am realizing this is a mutual effort between them and me and I have to keep an open mind even though this is all scary.

My test was also incomplete because apparently, Medicare needs to see 6 hours of sleep in order to pay for it and I only slept 4. So I also have another test set up, although the techs really should have put mask on me when I was experiencing hypopneas.

One last comment. Sedating medications have a side affect of acting like muscle relaxers on the throat, closing our airways even more. If you don't take meds every night and only during the sleep study, you could get an untrue picture of your true sleep at home (and maybe even titrated wrong or given the wrong machine (?)

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Re: I failed the Sleep Study

Post by robysue » Sun Apr 26, 2015 10:36 am

Enchanter wrote:
robysue wrote:
Enchanter wrote:
And if he put you on a CPAP, that meant the O2 levels were dropping precipitously as soon as you were asleep. Which is what you've been saying was happening all along. So now that there's hard evidence that you have a problem with your O2 levels during sleep, you want to claim you didn't sleep a wink?

Robysue. You have to understand what I'm trying to say. I remember being wide awake the whole time.
You have to understand what I'm saying: People with insomnia problems cannot reliably tell when they are asleep and when they are awake. This has been documented in a number of scientific studies.

The studies that document this have been run as follows: The subject is asked to sleep in a lab. They are monitored with much the same equipment that an ordinary sleep test involves. Periodically a tech will come into the room and "wake" the subject up and ask one question: Were you awake before I came into the room to wake you up? The subject's answer is compared to the EEG data from just before the tech went into the room to "wake" the subject up. Sometimes the EEG data indicates the subject was awake before the tech entered the room. And sometimes the EEG data indicates the subject was in Stage I or Stage II sleep before the tech entered the room.

People without insomnia consistently told the tech the right answer: If the EEG data indicated the noninsomniac subject was asleep before the tech came in, they usually answered the question with, "I was asleep." If the EEG data indicated the noninsomniac subject was awake before the tech came in, they usually answered the question with, "I was awake." (Note: Even people without insomnia typically wake up for very brief periods of time periodically throughout the night; most of these wakes are post-REM and most last less than 5 minutes and the noninsomniac does not remember them in the morning.)

People with insomnia consistently got the answer wrong. As in they would have done better with random guessing in terms of answering the question. When the EEG data indicated the insomniac was asleep, they pretty consistently said, "I was awake". When the EEG data indicated the insomniac was awake, they often said "I was asleep." In other words, the data showed that people with severe insomnia problems have a very difficult time distinguishing between whether they are awake or asleep during their "sleep period".
I mean I guess it's possible that my brain was technically asleep according to the test, but part of me was awake.
Yes, your brain was technically asleep. Which means you were asleep. But as an insomniac, your brain has a harder time than normal distinguishing between what it feels like to be asleep and what it feels like be awake. And, like most insomniacs, when there's any doubt in your conscious mind about whether you were asleep or awake, you assume/decide that you must have been awake.
But if you had me swear to tell the truth, I'd say I was 100 percent awake the whole time, much in the same way I'm awake most nights until really late. I remember everything and don't remember being asleep at all. Remember, what it says and what I feel are 2 different things.
Yes. And in this case, the data are correct about your sleep status and your subjective interpretation of what you were doing is likely to be incorrect.
I didn't sleep a wink according to me and I remember being up all night 100 percent, but who knows maybe the test says I was asleep for 1 or 2 seconds. If I was asleep it was so small, that I didn't notice. It could have been less than a split second. You have to believe me. I felt wide awake the whole time.
I believe that you felt wide awake the whole time. I also believe that you were totally unaware of small bits of sleep that you got here and there. But I also suspect that the sleep time was longer than a "split second" here and there. My guess is that you fell asleep for 10-15 minutes several times during the night. And that as soon as you fell asleep, the events started to happen and the O2 levels went down, and that woke you right back up, but because you are an insomniac, your conscious brain mistook the 10-15 minutes of light sleep for staying awake the whole time.

Please understand: I see this in my own CPAP data from time to time: There are nights where I subjectively have real trouble getting to sleep. I toss and turn and the BiPAP makes my stomach unhappy so I turn the dang machine OFF and back ON one or more times (to make sure the pressure is at my minimum pressure of 6/4) before I finally drift off to sleep. But when I look at the data the next day, what I see is clear evidence (judging from the way the flow rate curve looks) that I fell asleep for 10-15 minutes and then I woke up uncomfortable and turned my machine OFF and back ON. And then I fell asleep for another 10-15 minutes and woke up uncomfortable a second time. (On a bad night, I might even have a third repeat of this pattern.) This pattern of falling asleep for 10-15 minutes while feeling like I'm awake also happens on the bad middle of the night wakes that I subjectively remember as my being awake for a long time: I might think I was up for 30 minutes straight in the middle of the night while turning my machine OFF and back ON several times, but the regularity of the flow rate data implies that I most likely fell asleep for 10 minutes or so, woke back up and turned the machine OFF and ON again and fell asleep for another 10 minutes or so, with this cycle repeating for the duration of what felt like one long, bothersome wake period.

And this pattern has also been present on most of my sleep studies. On my last two studies, according to the data I actually fell asleep within 15 minutes of Lights OUT, but I also woke up about 10 minutes later. And was unable to get back to sleep (according to the EEG) for a prolonged period of time. My own memories? I was 100% awake for the entire first 3 hours of the sleep tests. But the data just didn't show that to be true.

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Re: I failed the Sleep Study

Post by Pugsy » Sun Apr 26, 2015 10:37 am

Enchanter wrote:
I'm not saying I know everything. But what I think is maybe he thought I slept because my oxygen was lower. Maybe my oxygen was just lower while I was awake and he assumed I napped. I'm just saying maybe.
And I am telling you that I KNOW that you slept at least some or the tech wouldn't have put the cpap mask on you.
These techs have the EEG data in front of them and they know exactly when you are asleep. They don't just pull out a thought from their ass and put you on cpap without documented need. It simply doesn't happen/work that way.

Why are you resisting so much? You have a potential answer to your problem....OSA.
You have a face and a name that you can actually fight to try to improve how you feel.
You are going down the "what if" road and you have made a wrong turn. There is no "maybe" in this situation...there's documented need per the data collected for the cpap machine trial.

Wake vs asleep is easily seen on the EEG data...it doesn't lie.

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Re: I failed the Sleep Study

Post by palerider » Sun Apr 26, 2015 10:49 am

Enchanter wrote:
palerider wrote:*PLEASE* put aside what you think you know, and LISTEN, REALLY LISTEN to Robysue.

everything she's telling you is correct.

you may not want to believe it, but it is all 100% correct.
Yea but isn't it possible for the brain to be asleep, but the mind to be fully awake? Or are they the same thing?

All I'm gonna say is that I remember being awake the whole time. After all, the guy did say that the test was no good and there was barely any sleep.
no, it's not.

for heavens sake, listen to yourself, quit desperately clawing at anything to justify what your mistaken ideas are.

before cpap, I used to fall asleep watching TV, I wouldn't remember falling asleep... (nobody remembers falling asleep, no matter what YOU think), and my friends would yell at me "WAKE UP, YOU'RE SNORING!" and I'd *swear* that I was awake the whole time, yeah, so I closed my eyes.

funny thing though, when I'd watch that show again, there'd be big chunks of it that I didn't remember BECAUSE I'D FALLEN ASLEEP!

if you start recording something a movie on your phone, and you pause it, and then start recording again, DOES IT REMEMBER being paused? no. and if you were recording something that was still, like a wall, you'd not be able to tell, looking at the playback, that it'd ever been paused. but if you were recording a clock, you'd see the time jump forward.

your memory of being awake/asleep is *LESS* reliable.

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Last edited by palerider on Sun Apr 26, 2015 11:19 am, edited 1 time in total.
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Re: I failed the Sleep Study

Post by Bill44133 » Sun Apr 26, 2015 10:49 am

Pugsy wrote:
Enchanter wrote:
I'm not saying I know everything. But what I think is maybe he thought I slept because my oxygen was lower. Maybe my oxygen was just lower while I was awake and he assumed I napped. I'm just saying maybe.
And I am telling you that I KNOW that you slept at least some or the tech wouldn't have put the cpap mask on you.
These techs have the EEG data in front of them and they know exactly when you are asleep. They don't just pull out a thought from their ass and put you on cpap without documented need. It simply doesn't happen/work that way.

Why are you resisting so much? You have a potential answer to your problem....OSA.
You have a face and a name that you can actually fight to try to improve how you feel.
You are going down the "what if" road and you have made a wrong turn. There is no "maybe" in this situation...there's documented need per the data collected for the cpap machine trial.

Wake vs asleep is easily seen on the EEG data...it doesn't lie.
+1

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Re: I failed the Sleep Study

Post by palerider » Sun Apr 26, 2015 10:50 am

Enchanter wrote:I'm not saying I know everything. But what I think is maybe he thought I slept because my oxygen was lower. Maybe my oxygen was just lower while I was awake and he assumed I napped. I'm just saying maybe.
you know all those wires that were on your head? THAT'S what he was looking at the TOLD HIM you were asleep.

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Re: I failed the Sleep Study

Post by 49er » Sun Apr 26, 2015 10:55 am

One last comment. Sedating medications have a side affect of acting like muscle relaxers on the throat, closing our airways even more. If you don't take meds every night and only during the sleep study, you could get an untrue picture of your true sleep at home (and maybe even titrated wrong or given the wrong machine
I can't speak to the technicalities of the medications as a non medical professional but as far as I know, most sleep doctors don't have a problem prescribing ambien for a sleep study with suspected apnea when the person won't be using a machine so I can't imagine it would be a problem when having a titration. In my own situation, since ambien never worked for very long (only 3 hours of sleep during the sleep study), I took Temazepam which I was taking on a PRN basis (no longer do) for the titration which enabled me to sleep nearly 6 hours for a bipap titration.

I still felt I needed a higher pressure due to nasal obstruction issues since alleviated by a septoplasty but that had nothing to do with the med in my opinion. Also, keep in mind that many people who don't take meds for their sleep study/titration end up with an inaccurate titration pressure.

Anyway, I did advise Enchanter in a previous post to ask for 5 pills so he/she can test the medication out ahead of time to make sure there aren't any problems with it.

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Re: I failed the Sleep Study

Post by Julie » Sun Apr 26, 2015 10:57 am

If you had ANY idea how many people who take PSG's SWEAR on their mothers' graves etc. that they didn't sleep... and found out later that they did, many times for different amounts, however many minutes/hours they remember being awake, you wouldn't believe it (then again you don't believe anything else). It's a fact of scientific life, whether or not you like it. Gawd!

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Re: I failed the Sleep Study

Post by robysue » Sun Apr 26, 2015 10:59 am

Enchanter wrote: Yea but isn't it possible for the brain to be asleep, but the mind to be fully awake? Or are they the same thing?
The activity in the cortex of your brain is very similar, but NOT identical, between REM and Wake. The EEG data, however, is very different between WAKE and non-REM sleep. The sleep test uses a variety of data in addition to the EEG data to determine whether you are physiologically awake or asleep.

But as I said before: It has been documented that an insomniac's mind has a hard time distinguishing between being awake and being asleep. So it's common for an insomniac to say:
All I'm gonna say is that I remember being awake the whole time.
even when the EEG data, the muscle tone data, and the respiration data all indicate the insomniac was actually asleep.
After all, the guy did say that the test was no good and there was barely any sleep.
"Barely any sleep" and "no sleep" are not the same. If you were in fact awake 100% of the test, the tech would have had no reason to put the CPAP mask on you because you would not have met the lab's guidelines for a split study.

My guess is that you may very well have gotten very little sleep after having the mask put on your nose, and that would mean the titration part of the test was no good and would need to be redone. And you might well have gotten less than two hours of highly fractured sleep during the diagnositic part of the test, and they really like to have at least 2 hours of Sleep during the diagnostic part of the test; if you slept for no more than an hour, then I can see why a tech might recommend to the doc that the test might need to be repeated. But even if you only got 45-60 minutes of sleep broken into 2-4 naps of 15-30 minutes in length that you don't remember as sleep, there's some real data there. And some of that data was significant enough to meet the criteria for a split study.

You spent the last week telling us how the OSA was "sucking the oxygen" out of your brain at night. Now that you've got hard data that says you are experiencing some serious O2 destats during your sleep, you want to ignore the data and say ""I was awake the whole time so it doesn't count". And that doesn't make any rational sense to me.

Enchanter wrote: I'm not saying I know everything. But what I think is maybe he thought I slept because my oxygen was lower.
The O2 levels are NOT used to determine whether you are asleep or awake. If the tech sees O2 drops while you are awake, then you've got a WAKE (daytime) breathing problem that must be investigated.

If the tech says you were asleep, he was basing that statement on the EEG data and the muscle tone data.
Maybe my oxygen was just lower while I was awake and he assumed I napped. I'm just saying maybe.
The tech doesn't make any assumptions about your sleep state: He has the EEG data and the muscle tone data to determine when you enter Non-REM sleep. He has the EEG data, the muscle tone data, and the eye movement data to determine when you enter REM sleep. This is hard data and he is NOT "guessing" or "assuming" that you are asleep when that hard data indicates you are asleep.

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Re: I failed the Sleep Study

Post by Madalot » Sun Apr 26, 2015 11:05 am

Enchanter - you've had several people, EXCEPTIONALLY smart and knowledgeable people, tell you that you HAD to have slept, at least a little bit and explained the reasons why. Please, please, please -- accept it as fact and move on from the point that you DID sleep at least a little.

If you don't, you will lose the help and support of some of the best people on this forum. Because NOBODY can be helped if they ignore evidence and insist on things that the evidence suggests are incorrect.

And I'd like to see you get help from these people down the road.

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Re: I failed the Sleep Study

Post by yaconsult » Sun Apr 26, 2015 11:41 am

I will just add that while the sleep lab folks are NOT allowed to discuss the results with you, because they are technicians, not doctors, your doctor's office is expected to discuss the results with you. They can bring the report up on their screen and see everything that happened throughout the night - breath by breath, brainwave by brainwave.

If the doctor tells you that you slept and exactly how much you slept, will you believe him? Or will you continue to deny the reality of what happened?

Sometimes, we just have to admit that our beliefs were mistaken, move on, and learn from it - it's part of life! There is no shame or disgrace. Open your mind! None of us can be experts in everything.

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Re: I failed the Sleep Study

Post by Enchanter » Sun Apr 26, 2015 11:44 am

palerider wrote:
Enchanter wrote:
palerider wrote:*PLEASE* put aside what you think you know, and LISTEN, REALLY LISTEN to Robysue.

everything she's telling you is correct.

you may not want to believe it, but it is all 100% correct.
Yea but isn't it possible for the brain to be asleep, but the mind to be fully awake? Or are they the same thing?

All I'm gonna say is that I remember being awake the whole time. After all, the guy did say that the test was no good and there was barely any sleep.
no, it's not.

for heavens sake, listen to yourself, quit desperately clawing at anything to justify what your mistaken ideas are.

before cpap, I used to fall asleep watching TV, I wouldn't remember falling asleep... (nobody remembers falling asleep, no matter what YOU think), and my friends would yell at me "WAKE UP, YOU'RE SNORING!" and I'd *swear* that I was awake the whole time, yeah, so I closed my eyes.

funny thing though, when I'd watch that show again, there'd be big chunks of it that I didn't remember BECAUSE I'D FALLEN ASLEEP!

if you start recording something a movie on your phone, and you pause it, and then start recording again, DOES IT REMEMBER being paused? no. and if you were recording something that was still, like a wall, you'd not be able to tell, looking at the playback, that it'd ever been paused. but if you were recording a clock, you'd see the time jump forward.

your memory of being awake/asleep is *LESS* reliable.

Then they could be right. But I'll tell you I felt as awake as I feel at any point in the day. There may have been some yawns, but I feel as if I remember EVERY moment and was never truly asleep. I remember all the tossing and turning. I remember struggling to fall asleep. I believe that other people do fall asleep and think they woke up. What I'm saying is this.. I was really alert the whole time. I don't think that I was even close to being asleep. How can this be? I think that it might come down to semantics. Being technically asleep might be something different than what I think sleep is. I was just technically asleep based on the numbers or patterns. My brain reached a certain status that showed up on the computer, but I was still there. Maybe I'm wrong, but it sure doesn't feel like it. Like I don't believe I was awake. I know I was. I'm not saying the tests were wrong. I think it just comes down to semantics and what the definition of sleep really is.
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Re: I failed the Sleep Study

Post by Julie » Sun Apr 26, 2015 11:52 am

"What I'm saying is this.. I was really alert the whole time. I don't think that I was even close to being asleep. How can this be?"

It can 'be' because humans are a lot more complex and terrific (and sometimes lousy) than you understand. Yes, you were alert and aware of everything ... when you were, but when sleep overtook, you just went out, no warning, no nothing, so when you awoke, you did not realize you'd been out at all. IF you'd been looking at a clock for literally every ''awake' minute otherwise, you'd have to attribute gaps to something, if not sleep, but I doubt very much if that was the case, or in fact if there was even a clock in the room. You're not alone, we all think like that when it happens, but the brain is far more agile and nifty than you know, so just (for once already!) accept it. No big deal, but it is getting tiresome to keep repeating things in the face of denial based on ignorance. There is a difference between what you feel (subjective) and what others can see and record (objective), and that's just how things are.
Last edited by Julie on Sun Apr 26, 2015 11:54 am, edited 2 times in total.