Dori,
You and Mike have been a very special part of a very special group of people.
Your love for him, your determination to see that his care was all that a great and wonderful warrior deserved, is an inspiration to all of us.
A dear friend of mine, Anne McCaffrey, wrote the following in her book, Dragonsong:
The tears I feel today
I'll wait to shed tomorrow
Though I"ll not sleep the night
Nor find surcease from sorrow.
My eyes must keep their sight
I dare not be tear-blinded
I must be free to talk
Not choked by grief, clear-minded.
My mouth cannot betray
The anguish that I know
Yes I'll keep my tears till later
But my grief will never go.
I think that is fitting for you and Mike. Please stop in again from time to time.
Update on Mike
Re: Update on Mike
_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece |
Additional Comments: Sleepyhead software, not listed. Currently using Dreamstation ASV, not listed |
-- Kiralynx
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Re: Update on Mike
Dori,
My deepest sympathy for your loss. You and Mike shared a very special relationship which was evident in all your many posts about Mike. Please know that you are in my prayers.
Robysue
My deepest sympathy for your loss. You and Mike shared a very special relationship which was evident in all your many posts about Mike. Please know that you are in my prayers.
Robysue
_________________
Machine: DreamStation BiPAP® Auto Machine |
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Additional Comments: PR System DreamStation and Humidifier. Max IPAP = 9, Min EPAP=4, Rise time setting = 3, minPS = 3, maxPS=5 |
Re: Update on Mike
Sorry to hear of Mike's passing. Think on this. The depth of sorrow and grief you feel is a direct measure of the depth of love you two shared. You loved deeply, you will hurt deeply, and I'm sure you already have for many months. But time does heal all wounds. I think the best words I can share are those in the paper in the announcements section, viewtopic/t61785/Especially-for-newly-d ... hange.html. Even though it's written for new CPAP users the thoughts are based on my experience and learning about losing a loved one.
I give you a heartfelt THANK YOU for all you have shared here the past few years, and THANK YOU for allowing us to be a part of your difficult journey.
God bless.
I give you a heartfelt THANK YOU for all you have shared here the past few years, and THANK YOU for allowing us to be a part of your difficult journey.
God bless.
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Hose management - rubber band tied to casement window crank handle! Hey, it works! S/W is 3.13, not 3.7 |
- codinqueen
- Posts: 445
- Joined: Sun Feb 13, 2011 12:14 am
- Location: FL Panhandle
Re: Update on Mike
Dori- I am saddened to hear of your loss. I know you loved him dearly and gave him your very best care. May God wrap His loving arms around you and give you peace during this sorrowful time. Please take time for you now, to remember the GOOD times you both had before illness ripped him from you. You know how much we love you, please come back to visit us when you can. Praying for you and your family in this difficult time. May Mike rest in peace.
_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Clear by Pur-Sleep to keep nose open at night, Cozy Hose-Boss by Pur-Sleep |
Pressure 6-10 cm
Re: Update on Mike
Dori,
I don't check in as often as I used to so I'm just now hearing of Mike's passing. I am so sorry that you have lost your life partner, but he did fight the good fight and you were by his side the whole way. I hope you feel the love of this forum and that, in some way, it gives you comfort.
Hugs,
Bev
I don't check in as often as I used to so I'm just now hearing of Mike's passing. I am so sorry that you have lost your life partner, but he did fight the good fight and you were by his side the whole way. I hope you feel the love of this forum and that, in some way, it gives you comfort.
Hugs,
Bev
_________________
Mask: Mirage™ SoftGel Nasal CPAP Mask with Headgear |
Additional Comments: 3M MediporeTape, Respironics Premium chinstrap, CMS 60D Oximeter |
Diagnosed 9/4/07
Sleep Study Titrated to 19 cm H2O
Rotating between Activa and Softgel
11/2/07 RemStar M Series Auto with AFlex 14-17
10/17/08 BiPAP Auto SV 13/13-23, BPM Auto, AHI avg <1
Sleep Study Titrated to 19 cm H2O
Rotating between Activa and Softgel
11/2/07 RemStar M Series Auto with AFlex 14-17
10/17/08 BiPAP Auto SV 13/13-23, BPM Auto, AHI avg <1
Re: Update on Mike
Sweet sweet Dori
OutofSync took the words right out of my mouth. She said exactly what I was going to say. You're a wonderful lady God bless you.
OutofSync took the words right out of my mouth. She said exactly what I was going to say. You're a wonderful lady God bless you.
_________________
Mask: Wisp Nasal CPAP Mask with Headgear - Fit Pack |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: SleepyHead software, mouth guard, Respironics chinstrap, 3M Medical tape |
Good Better Best, Never Let It Rest
Until The Good Is Better And The Better Is Best
Until The Good Is Better And The Better Is Best