too sensitive??

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
StephenR
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too sensitive??

Post by StephenR » Mon Sep 29, 2014 5:29 pm

Had a sleep study last night, could not sleep with all those wires and probes, 24 in all...had to take a Zopiclone after 4 hours of laying there...
anyway, apparently I have "serious" sleep Apnea...Have not see results yet, seeing my dr next week.

I spent two months on CPAP, could not sleep, felt worse every day on it. Took myself off, and have been sleeping so well...

I am wondering if I am just too damn sensitive for CPAP/Sleep tests. That on an unconscious level I am freaked out by these machines and just cannot relax??

What do you all think??

be polite now, lol...

Stephen

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The Baby Crow
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Re: too sensitive??

Post by The Baby Crow » Mon Sep 29, 2014 5:36 pm

I had the same thing with my Sleep Study 3 weeks ago.

The tech came in at 1:30 (I had lights out at 10:30) and I said I hadn't slept yet. Took a half of a Zopiclone and slept well until she woke me again at 5:30 to go home.

I've been on the CPAP for almost 3 weeks and I take half of a Zopiclone every night. I feel great!!!

Zopiclone is non-addictive so no problem taking them until you feel you are used to the mask, etc.

StephenR
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Re: too sensitive??

Post by StephenR » Mon Sep 29, 2014 5:40 pm

The Baby Crow wrote:I had the same thing with my Sleep Study 3 weeks ago.

The tech came in at 1:30 (I had lights out at 10:30) and I said I hadn't slept yet. Took a half of a Zopiclone and slept well until she woke me again at 5:30 to go home.

I've been on the CPAP for almost 3 weeks and I take half of a Zopiclone every night. I feel great!!!

Zopiclone is non-addictive so no problem taking them until you feel you are used to the mask, etc.
umm,
http://non-benzodiazepines.org.uk/zopiclone.html
http://www.pointofreturn.com/zopiclone_withdrawal.html

Stephen
Last edited by StephenR on Mon Sep 29, 2014 5:44 pm, edited 1 time in total.

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palerider
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Re: too sensitive??

Post by palerider » Mon Sep 29, 2014 5:43 pm

StephenR wrote: I am wondering if I am just too damn sensitive for CPAP/Sleep tests. That on an unconscious level I am freaked out by these machines and just cannot relax??
I think that if you couldn't relax, you wouldn't have apneas... presuming you don't stop breathing while awake.

just my thought though

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StephenR
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Re: too sensitive??

Post by StephenR » Mon Sep 29, 2014 5:46 pm

actually I do stop breathing during the day sometimes...am seeing a repirologist in November...
I am very high maintenance...lol

Stephen

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Re: too sensitive??

Post by Pugsy » Mon Sep 29, 2014 5:48 pm

Being nervous and not being able to sleep during the sleep lab...it has a name..."first night syndrome"..
You aren't the first and won't be the last to have a problem sleeping in a foreign environment with a bunch of crap stuck on your body.

Your poor sleep while using the cpap machine was likely because of the centrals that popped up with the addition of cpap pressure therapy. If you didn't have those centrals messing things up you wouldn't have felt so much worse. If you have what I think you have...cpap therapy created more of a problem than it fixed.
Those centrals really complicate things in terms of cpap therapy but there is a machine that is designed especially to deal with them so it prevents them from messing up your sleep and in the long run the obstructive sleep apnea gets treated in a manner that doesn't cause the centrals to be a problem and you end up getting good sleep.

No med is ever perfect. Risk and rewards for anything..even a little aspirin but it's common to need a sleep aid during the sleep lab study to get past the first night thing...and even later if the doctor is okay with a person taking it.

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StephenR
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Re: too sensitive??

Post by StephenR » Mon Sep 29, 2014 5:57 pm

Thanks Pugsy, am going to argue that I need to be titrated with a CPAP, so they can see all my centrals on CPAP. I tried to show my data to sleep doc, he did not want to know...

S

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Re: too sensitive??

Post by Pugsy » Mon Sep 29, 2014 6:28 pm

Yeah, I remember your sleep doc blowing you off.... I have another person here on the forum who also got blown off by their doctor too just the other day. Idiots. And we wonder why so many people put their machines in the closet or sell them on craigslist. It wouldn't happen if people got the kind of care that they need and deserve...it isn't that difficult.
What they need to do is start the titration with a cpap machine...that's what they would do anyway but be prepared to go to the bilevel ASV machine if needed. Most likely though...they will do cpap first and make you come back for the ASV if you have what I think you have. They won't do it the easy way.

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StephenR
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Re: too sensitive??

Post by StephenR » Tue Sep 30, 2014 1:20 pm

I see my GP next week, as well as an ENT.
I am going to try to find an outfit that will at least consider looking at my Sleephead data, at the present only my GP is on my side....
Seeing a respirologist in November...

I know I will need to go back on some version of the machine, but need to work with someone who will consider the idea that I have pressure caused centrals...

S

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Re: too sensitive??

Post by Pugsy » Tue Sep 30, 2014 1:28 pm

The docs aren't familiar with SleepyHead and will want to blame the anomalies on the software and not your body.
You need the brand specific software reports for ultimate proof. You and I know that the reports will be identical but the docs won't know about SleepyHead.

Did we ever get that brand specific software for you? I don't remember what machine you had or if you were using a Mac that prohibited us from using either ResScan or Encore.
If you are using a Mac...I know of a way to get those reports for you if you still have that SD card. I can help.

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StephenR
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Re: too sensitive??

Post by StephenR » Tue Sep 30, 2014 2:14 pm

Pugsy wrote:The docs aren't familiar with SleepyHead and will want to blame the anomalies on the software and not your body.
You need the brand specific software reports for ultimate proof. You and I know that the reports will be identical but the docs won't know about SleepyHead.

Did we ever get that brand specific software for you? I don't remember what machine you had or if you were using a Mac that prohibited us from using either ResScan or Encore.
If you are using a Mac...I know of a way to get those reports for you if you still have that SD card. I can help.
I have a Mac laptop,using Sleepyhead, which I took to my GP...I have Encore basic on my Windows desktop machine....I can print reports out from Encore I guess...

Not sure what machine I will use next, all part of the adventure, lol...

Thanks Pugsy..

S

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Re: too sensitive??

Post by Pugsy » Tue Sep 30, 2014 2:42 pm

For sure take the Encore reports...you can take the SleepyHead reports if you wish but the docs and DMEs don't know about Sleepyhead and will tend to pooh pooh off any results that come from software they aren't familiar with as known proven software.

Take at least 7 nights of most recent detailed data graphs along with the summary trend reports.

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StephenR
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Re: too sensitive??

Post by StephenR » Wed Oct 08, 2014 8:49 pm

Saw the ENT doc, she was great, I described the sleep doc appointment and the study, plus gave a description of my 2 months on CPAP. She has referred me to another sleep doc, who actually knows that some people get centrals from CPAP therapy. See him in November.

Not sure I will return to the first sleep doc,little point as the sleep study was not accurate as I had to sleep on my back due to all the wires, apparently I had an AHI of 37 with only a few centrals...and he wants me to do another 2 month trial on CPAP, I don't think so...

Still sleeping well, I have noticed that my body has a hard time falling asleep and waking up, but I average 8 hrs a night with a max of 2 bathroom breaks...as the ENT pointed out, there are over 80 different sleep disorders, we are at early days yet...

onwards...

Stephen

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Re: too sensitive??

Post by Pugsy » Wed Oct 08, 2014 8:53 pm

And you are on the road that you need to be on. You will get there.

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StephenR
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Re: too sensitive??

Post by StephenR » Wed Oct 08, 2014 9:08 pm

Pugsy wrote:And you are on the road that you need to be on. You will get there.
Thanks for helping find that road...

Stephen