There are lots of entities which are trying to get the word out. This is one of them: http://www.reggiewhitefoundation.org/ One problem is that so many people are in denial. Heck, we've seen it here thousands of times......even AFTER they're diagnosed and have their equipment. They don't want to us...

There is another side (or few). There may be the image thing of an older, fatter, snoring-with-mouth-open guy who people don't want to relate to. There's the mass of people who don't want to think about dying in their sleep or even on the road - other ways are more interesting, and being a sleepy d...

Cpaptalk IS a support group, and even though its formal mandate's about Cpap, the number of issues brought up here is huge. I think what would be needed are the kinds of little posters stuck in MD's waiting rooms for patients to look at while waiting... preferably with Uncle Sam pointing to them sa...

One solution that comes to mind is that we as individuals or groups of individuals within a certain area should start a support group, then publicize it, perhaps let doctors know that there is a support group for those who've just been diagnosed and they can give patients that info in case they wan...

The minute you formalize what we do at this forum, the liabilities incur. Then it has to be moderated, and most of the free exchange of information will be quashed. That's the reality in our litigious society. I did get a referral to this forum from the sleep lab tech I worked with at Kaiser. But I...

What about the American Sleep Apnea Association ? [ quote from website snipped ] They don't even have a "working" website anymore. Did you actually click on the link you provided? And, when they did, they were supported financially and controlled by the manufacturers. Their actual "support" was vir...

Yeah, the key is to get the information to the prospective patients BEFORE they need it........but, the patient information is protected by HIPAA. Do you really think the doctors and DMEs are going to help alert the prospective patients that they're about to be royally screwed? Den . I'm not talkin...

Do you think anyone's hiding things from potential patients? Soliciting them is not ethical, and there is so much info out there these days for people to see, but you can't make them be tested or treated unless they choose to, even with the best advice there is. It's a good idea, but I think it's t...

Bump. Does anyone think an outreach effort makes any sense, whether you wish to participate or not? 20% of the US population in need of diagnosis and treatment, with 90% currently undiagnosed? Who else can better tell these people what they need to look out for in seeking treatment?

The knowledge contained in this forum is an invaluable resource for people suffering from OSA and related conditions. Pretty much a unique resource. There are some places like cpaptalk, but none quite as open and honest. None which cuts through the ignorance and indifference of the majority of the m...

Well, amazingly, after being assured several times by American Home Patient that my order had been approved by my insurance company, I just got a notice from my insurance company that the order was NOT approved, as AHP is not on their list of approved suppliers. So, back to square one.

They do need an RX for the mask, and I don't think the law requires a separate RX for the tubing and filters but your insurance may require it for reimbursement. Our hosts would contact your doctor on your behalf to get the prescription. Will they? No, my insurance does not require a prescription f...

I contacted American Home Patient well over a month ago to order a new mask. I had a prescription for the mask and submitted it to them. I also requested a new tube and filters. They submitted the request to my insurance company and received authorization. No supplies were sent. When I asked why, th...

Wow, I thought this thread was dead weeks ago. A lot to read, and most of it was bewildering to me. 1- Why is everyone conflating myapnea.org and the ASAA? I know they're affiliated, but they're completely different efforts. Myapnea.org is a research project. The ASAA is supposed to be a patient adv...

If you want to breathe through your nose instead of your mouth, practice, practice, practice. It's as beneficial to breathe through your nose when awake as it is when you're asleep. You can't consciously control what you do when you're asleep, but you can when you're awake. Also, try to train your t...