JohnBFisher wrote: "Papit, I think it is time to request a referral to a neurologist that specializes in sleep medicine. You need someone that can help sort out the central apnea issues. I don't know if the increased gastric problems have anything to do with the central apnea. It's possible that it is confusing some chemo-receptors. Additionally, even if you have sleep onset central apneas, if they are long enough they should be addressed.
“That the amount you sleep has decreased is a warning sign that you are not sleeping well. (Been there, done that!)
“Since you continue to have untreated central apneas and they are most of the events, it should be treated. You will need to insist on this. Not all doctors understand that a central apnea is just as bad - if not worse on the cardiovascular system. The O2 desaturations cause serious problems including (but not only) high blood pressure, cardiac problems, stokes, etc. . . . "
Thanks, John/Avi/Pugsy, for your directness. I will take that advice. The cross-talents of a neurologist and sleep medicine MD doc could be just the ticket. Here's why I think that too:
As I related in earlier posts, I have polymyalgia rheumatica. That and my "severe overall obstructive disordered breathing (RDI 68) that is associated with . . . oxygen desaturations to 80%,” were both diagnosed in Nov. 2011 (by separate docs). They are each aware of both conditions.
I have been treated for the polymyalgia (with prednisone). One of the reasons why I love this site is the open sharing of personal medical information by so many contributing members. Late today I came across another thread about " Central Sleep Apnea - More info?,” started by Morfenmom, viewtopic.php?f=1&t=76618&p=700479&hilit=fibromyalgia#p700479
. He reports in his thread that, “The fact that I have central SA surprised the doc but then as he was taking my history (Fibromyalgia . . .) he said it made more sense.” A lookup of my and his “myalgia’s” suggests some neurological commonality. So that may be a promising track to ask the neuro/sleep doc about. Thank you, Morfenmom.
Additionally, the doc is trying to wean me off the prednisone now that the symptoms (aching joints and fatigue) have disappeared. This “weaning” is a tricky business that is not always successful. The symptoms began returning when I got down to a very low dosage level on our first attempt to get off the drug, a potent steroid. We’re now deep into the second attempt. My body/brain may once again be rebelling as I again approach those low weaning levels where the symptoms returned. Could my recent rising trend in central apneas be reflective of that ongoing rebellion? Wouldn’t surprise me. We’ll see.
Readers who have elevated central apnea may be interested in reading two articles posted by Teachcsg, one from Respironics, http://www.healthcare.philips.com/us_en
... efault.wpd and one from ResMed, http://www.resmed.com/us/documents/CSA- ... -sheet.pdf
Also, they should know that Maxdarkside's posts persuaded me to get a pulse oximeter. I believe all of us should have one to at least check their oxygen saturation levels with an overnight data report from time to time, which is how I was using it until recently when I began seeing a worsening trend. Now I record the data nightly and get a full report like the one shown earlier in this thread.