Going without medical advisory

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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chunkyfrog
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Re: Going without medical advisory

Post by chunkyfrog » Sun May 13, 2018 9:30 am

It looks like you need to LEAVE YOUR MASK ON.
[[[___SMH___]]]
Just a tiny question: why did you not use YOUR OWN THREAD,
Instead of hijacking this one?

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palerider
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Re: Going without medical advisory

Post by palerider » Sun May 13, 2018 10:53 am

chunkyfrog wrote:
Sun May 13, 2018 9:30 am
Just a tiny question: why did you not use YOUR OWN THREAD,
Instead of hijacking this one?
Trolls gotta troll.

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marceltcm
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Re: Going without medical advisory

Post by marceltcm » Sun May 13, 2018 7:13 pm

I would like to thank everyone for the support.
I'll keep searching the forum and threads to learn more!

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zoocrewphoto
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Re: Going without medical advisory

Post by zoocrewphoto » Mon May 14, 2018 2:06 am

Mogy wrote:
Sun May 13, 2018 7:46 am

Weight loss is only part of the program. The part that I have struggled with the most.
Even so I have made very good progress. My AHI has been reduced from 19.5 to 5.
The other 2 parts of the program, those that have made the biggest difference for me are the exercises.
Tongue/throat exercises have demonstrated that they can reduce your AHI by 40 to 50%. Some people have been cured by these exercises alone. And they're easy to do.
General/cardio exercise has been shown to reduce AHI by approx. 30%.
Using the 3 methods of reducing my AHI, I plan to 'cure myself.
So far so good.
Sorry, but I really don't believe this. There are no studies that prove your claims. Just a few people that think it worked for them. And by that, I mean they don't feel like crap, so they must be better.

Sleep apnea is often made worse by weight gain, but the weight is not the cause. Often, the weight gain is the RESULT of sleep apnea. I have a friend who is barely 100 pounds, extremely skinny, and she snores way worse than I do, and I have severe sleep apnea. There are many people on this forum who are slender and have sleep apnea. There are children, even babies, with sleep apnea.

There is no cure for sleep apnea. You just don't want to use the cpap.

And then you come here and give bad advice that could hurt other people long term. Clearly, you don't like cpap. Why are you hanging out on a cpap forum?

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Mogy
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Re: Going without medical advisory

Post by Mogy » Mon May 14, 2018 4:11 pm

Hi zoocrewphoto,
I posted the links to some of the studies that support my program earlier in the thread.
I am here posting on CPAP forum because I have sleep apnea. I also have a CPAP and an APAP which I use.
I don't dislike my machines. What's there to dislike?
Because my experience using my APAP isn't as good as your experience doesn't invalidate my experience. Some people do well on xPAP, others do not. You can't just sweep 50% of people who have sleep apnea under the carpet and pretend they don't exist.
There needs to be alternatives for the 50% of people with sleep apnea that don't tolerate xPAP.
Using weight loss, general exercise, and tongue/throat exercises I managed to get my AHI down to approx 5.
Not using a machine currently.

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LSAT
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Re: Going without medical advisory

Post by LSAT » Mon May 14, 2018 4:23 pm

Mogy wrote:
Sun May 13, 2018 7:46 am
zoocrewphoto wrote:
Sun May 13, 2018 2:41 am
LSAT wrote:
Sat May 12, 2018 1:12 pm
This is the person giving everybody advice on how to benefit with CPAP....
http://www.apneaboard.com/forums/Thread ... leep-Apnea
Interesting read. If only people could expect a cure with weight loss..... I guess he hasn't met all the skinny people with sleep apnea, or those who needed MORE pressure when they lost weight.
Weight loss is only part of the program. The part that I have struggled with the most.
Even so I have made very good progress. My AHI has been reduced from 19.5 to 5.
The other 2 parts of the program, those that have made the biggest difference for me are the exercises.
Tongue/throat exercises have demonstrated that they can reduce your AHI by 40 to 50%. Some people have been cured by these exercises alone. And they're easy to do.
General/cardio exercise has been shown to reduce AHI by approx. 30%.
Using the 3 methods of reducing my AHI, I plan to 'cure myself.
So far so good.

Your AHI has been reduced because you are using the CPAP... Unless you have an overnight sleep study without CPAP you don't know what your AHI is. Everyone's AHI is reduced when they use CPAP whether they exercise or not.

Mogy
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Re: Going without medical advisory

Post by Mogy » Mon May 14, 2018 6:22 pm

My untreated AHI has been reduced from 19.5 to approx 5.
These AHI numbers are from Home Sleep Tests. I have used the Resmed Apnealink Air Level 3 tester.
Using weight loss, general exercise, and tongue/throat exercises I managed to get my AHI down to approx 5.
Not using a machine currently.

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chunkyfrog
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Re: Going without medical advisory

Post by chunkyfrog » Mon May 14, 2018 6:41 pm

Accuracy of any test depends on administration by impartial,
competent technicians.

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Goofproof
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Re: Going without medical advisory

Post by Goofproof » Mon May 14, 2018 7:17 pm

chunkyfrog wrote:
Mon May 14, 2018 6:41 pm
Accuracy of any test depends on administration by impartial,
competent technicians.
Maybe better than a Wild Ass Guess, more likely not. Jim
Use data to optimize your xPAP treatment!

"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire

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chunkyfrog
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Re: Going without medical advisory

Post by chunkyfrog » Mon May 14, 2018 8:27 pm

Often, a patient is told to discontinue using cpap for several days prior to a PSG. There is some discussion of cpap "carry-over". Maybe this is proof.

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palerider
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Re: Going without medical advisory

Post by palerider » Mon May 14, 2018 8:52 pm

Mogy wrote:
Mon May 14, 2018 4:11 pm
Hi zoocrewphoto,
I posted the links to some of the studies that support my program earlier in the thread.
You can find links to bullshit "studies" to support any kind of crap you want to if you look hard enough.

Someone posted a link to a paper the other day that recommended not even bothering to treat mild apnea.

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palerider
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Re: Going without medical advisory

Post by palerider » Mon May 14, 2018 8:56 pm

chunkyfrog wrote:
Mon May 14, 2018 8:27 pm
Often, a patient is told to discontinue using cpap for several days prior to a PSG. There is some discussion of cpap "carry-over". Maybe this is proof.
I don't think anything mogy alleges could be considered 'proof' of anything.

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zoocrewphoto
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Re: Going without medical advisory

Post by zoocrewphoto » Tue May 15, 2018 2:33 am

Mogy wrote:
Mon May 14, 2018 4:11 pm
Hi zoocrewphoto,
I posted the links to some of the studies that support my program earlier in the thread.
I am here posting on CPAP forum because I have sleep apnea. I also have a CPAP and an APAP which I use.
I don't dislike my machines. What's there to dislike?
Because my experience using my APAP isn't as good as your experience doesn't invalidate my experience. Some people do well on xPAP, others do not. You can't just sweep 50% of people who have sleep apnea under the carpet and pretend they don't exist.
There needs to be alternatives for the 50% of people with sleep apnea that don't tolerate xPAP.
You are not making sense. You claimed that your ahi went down due to your exercises. Were those numbers ON cpap? If so, those are TREATED numbers. You can't say you are curing sleep apnea if the good numbers are WITH cpap.

And while a lot of people fail to have success with cpap, it is not because they can't tolerate cpap. It is because doctors and DMEs fail to set them up properly and help people succeed. So many people get a machine set at 4-20, and they are doomed to fail if they don't find a forum like this one. MOST people, with good settings and help, can do quite well with cpap.

And the facts are still the same. There is no cure for sleep apnea. Skinny people get sleep apnea. Losing weight may reduce pressure needs, but most people who lose weight, still have sleep apnea.

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Who would have thought it would be this challenging to sleep and breathe at the same time?