UPDATE:
In a quest to cure this dreaded non stop cycle of fatigue and asthma, I have undergone tongue base reduction surgery and purchased a custom fitted oral appliance. all up 7k worth. nearly 3 weeks post op and first night with appliance, woke up feeling absolutely crap, like id been run over by a truck. Funny, a week ago a did a test before i got oral appliance and slept with a tongue retaining device and wokeup feeling absolutely fine....
So I guess its back to CPAP...whats funny is every time i never use the cpap yeah i feel mentally shit. but my extreme body fatigue goes away and breathing becomes a bit easier. This is so annoying its like i cannot find the connections and causes for anything its just non stop fatigue no matter what i do. all i want is energy. 7 months with this cpap, all its done is clear my headaches, thats basically it. It made me extremely body fatigued to the point where i can no longer go to the gym. I used to run 5 times a week and lift 5 times a week even with the sleep apnea being non treated. I would honestly just love some sort of miracle answer or cure. Im trying to be hopeful that my throat/tongue is just inflammed/swollen and that i will be able to sleep with my oral appliance and wakeup without a headache. at least then i can try and persue a real life that consists of having goals. because at this stage taking on any responsibilities accept the bare minimum is a struggle. Ive seen so many doctors, no help. My next step is to get another sleep test and a good sleep doctor. Im still waiting for the newly refered asthma specialists to give me a call as the last guy did all he can with no help. Its just a shitty mixture of asthma, suspected stomach issues gerd maybe low eos, allergies...who knows. tried just about every supplement/medication. sometimes prednisolone works a little bit, but sides are awful in terms of making me feel weak. my physicial health is just gone, and I used to be so fit. Every now and then I'll just randomly have a great sleep and have lots of energy. like once every 3 weeks to a month. Then ill re create everything i did to feel like that again and no luck. It sounds like some sort of nightmare but luckily i have great emotional support living with my girlfriend and my mother.
details: resmed s9 7 pressure no epr, no humidifer - tried all settings w/ humidier
use cpap 100% of the time. always wakeup about 3 times a night feeling alert. my fitbit sleep stats always indicate low level of deep and rem sleep.
tried all asthma meds. sleep hygiene all fine. See other posted threads for further details..
At my wits end with this sleeping business.. :(
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Re: At my wits end with this sleeping business.. :(
Why have you posted this twice - once in the old thread and now this on its own?
I replied to the other.
I replied to the other.
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- greatunclebill
- Posts: 1503
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Re: At my wits end with this sleeping business.. :(
I suggest finding a good board certified Pulmonologist who is also board certified in sleep medicine. ENT's tend to start with surgeries and dental appliances, more in their best interests than yours. Good Pulmonologists order a sleep study in the lab, then if necessary order a an APAP, BPAP, CPAP or VPAP, depending on need.
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Mask: Quattro™ FX Full Face CPAP Mask with Headgear |
Additional Comments: myAir, OSCAR. cms-50D+. airsense 10 auto & (2009) remstar plus m series backups |
First diagnosed 1990
please don't ask me to try nasal. i'm a full face person.
the avatar is Rocco, my Lhasa Apso. Number one "Bama fan. 18 championships and counting.
Life member VFW Post 4328 Alabama
MSgt USAF (E-7) medic Retired 1968-1990
please don't ask me to try nasal. i'm a full face person.
the avatar is Rocco, my Lhasa Apso. Number one "Bama fan. 18 championships and counting.
Life member VFW Post 4328 Alabama
MSgt USAF (E-7) medic Retired 1968-1990
Re: At my wits end with this sleeping business.. :(
Sometimes we post things over again because we have not read other posts, (no one reads everything) or maybe we even forgot, or are new here and dont know what to do. This is not crime, and not a reason to respond in negative tones.
Suggest the best help for you is a good sleep doc and a test.
Suggest the best help for you is a good sleep doc and a test.
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Re: At my wits end with this sleeping business.. :(
Must be a slow day for you...12 posts already by noon. Almost as good as the alphabet boy...remember him? He also tried to answer every post.AMESS wrote:Sometimes we post things over again because we have not read other posts, (no one reads everything) or maybe we even forgot, or are new here and dont know what to do. This is not crime, and not a reason to respond in negative tones.
Suggest the best help for you is a good sleep doc and a test.
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: Fisher & Paykel Vitera Full Face Mask with Headgear (S, M, or L Cushion) |
Additional Comments: Back up is S9 Autoset...... |
Re: At my wits end with this sleeping business.. :(
Friends. Romans, Country Med, lend me AMESS's INS. Not really they will be Belly Up, before they find her a Cure. JimAMESS wrote:Sometimes we post things over again because we have not read other posts, (no one reads everything) or maybe we even forgot, or are new here and dont know what to do. This is not crime, and not a reason to respond in negative tones.
Suggest the best help for you is a good sleep doc and a test.
Use data to optimize your xPAP treatment!
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
- chunkyfrog
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Re: At my wits end with this sleeping business.. :(
Back to the OP's situation:
A cautionary tale about the worst case scenario due to denial .
About our busy little airhead: it could be infinitely worse.
It could be the Korean spambot or the alphabetical hate-bot
A cautionary tale about the worst case scenario due to denial .
About our busy little airhead: it could be infinitely worse.
It could be the Korean spambot or the alphabetical hate-bot
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
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Re: At my wits end with this sleeping business.. :(
Do you mean the OP or the poster that "updated his old thread". lol.AMESS wrote:Suggest the best help for you is a good sleep doc and a test.
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ N30i Nasal CPAP Mask with Headgear Starter Pack |
Instead of Sleep apnea it should be called "Sleep deprivation, starving of oxygen, being poisoned by high CO2 levels, damaging the body and brain while it's supposed to be healing so that you constantly get worse and can never get healthy Apnea"