Could this be UARS? Any advice?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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LSAT
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Re: Could this be UARS? Any advice?

Post by LSAT » Mon Oct 09, 2017 8:48 am


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Rumbert
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Re: Could this be UARS? Any advice?

Post by Rumbert » Tue Oct 10, 2017 3:50 am

FoggedOut wrote:My app is a simple, non-scientific iPhone app that I use just for some baseline sleep quality data. It’s called SleepCycle (https://www.sleepcycle.com/how-it-works/), and it uses the phone’s internal accelerometer if placed on the mattress, or the microphone to detect sound if placed on a nightstand. Here are some example results I get...
Thanks for the pictures. The pattern you noticed is interesting. Do you think the app will be able to help you evaluate whether the cpap machine is helping?

Let me show you an example of the kind of data I got from my cpap machine when I started to use it five years ago. I just clipped this from a several-hour-long recording. The clip is about three minutes wide. The waveform shows airflow in and out of my lungs.

Image.

I like the amount of detail in that picture. For example, we can see that after my breathing started up again, the breaths were deeper for a short time to compensate for the period without breath. If we had an EEG trace in sync with that one, I think it would show that I partially woke up during the breathing pause. It would be interesting to see whether my sleep got deeper right before the pause.

I keep mentioning EEG because as far as I know, that's the most direct way to observe stages of sleep.

I used to take those graphs from my cpap machine and scan the whole nightly wave form visually from beginning to end to evaluate the pressure setting and various masks I was trying. That may sound time consuming but it's not really since halts in breathing stand out very starkly against the background steady rhythm. I could look at a whole night's wave form from one end to the other in seconds. I found it much more useful to look at the actual waveform visually instead of worrying about named "events" inferred by algorithms.
I also love data. I’m a web developer, so data and tech gadgets are fun for me.
I'm a web developer too and also a programmer. Have you ever thought about making and selling an app for people with UARS? Maybe the cheap phone-connectable EEG devices are good enough now for that. About 17 years ago I was part of a start up that planned to make a cheap portable EEG device for biofeedback. Back then the problem was electrodes because the amount of current from the brain that is perceptible through the skull and scalp is so tiny that in order to get a decent measurement, we had to glue electrodes to the scalp with conductive paste like technicians do in doctors' offices. Electrodes are better now but I don't know if they are truly good enough to provide useful measurements without conductive paste. A couple of years ago I bought one of the newish toy EEG devices and experimented with it but as far as I could tell it didn't really work at all, which disappointed me but didn't surprise me since it used non-glued electrodes.
Here is an example of the data I got from a bad night/day: https://www.dropbox.com/s/ijmuvizv0xtcf ... 6.pdf?dl=0. Note that the oximeter must have fallen off or was disconnected for a bit before I woke up and put it back on (gap in data shortly after the extended drop in oxygen levels just after 2am that night).
My apologies if I mentioned this earlier in this thread, but I've noticed that in general many people in those forum don't understand what I'm about to say so I'm going to say it again. This isn't addressed to you in particular but other folks. People can have horrible UARS and maintain steady high levels of blood oxygen. I have extremely bad UARS but my blood oxygen is a steady 98% all night even without cpap. The reason for this is that UARS people often wake up (including unconscious partial arousals) almost instantly when they stop breathing. The damage is done mainly by chronic sleep deprivation over periods of years, not by oxygen deprivation.
Last edited by Rumbert on Tue Oct 10, 2017 4:24 am, edited 1 time in total.
I have two sleep disorders: UARS and Non-24. Until recently I got considerable relief from UARS with humidified CPAP (I tried APAP but found no advantage), a Swift FX nasal pillow mask, and Micropore tape over my mouth. Nothing has helped my Non-24.

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Rumbert
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Re: Could this be UARS? Any advice?

Post by Rumbert » Tue Oct 10, 2017 4:13 am

LSAT wrote:Great UARS info from Dr Park......

http://doctorstevenpark.com/tired-of-be ... e-syndrome
I agree competely, that's a truly excellent article. As I've mentioned a few times recently here, Dr. Park is my doctor, and in my humble opinion, he really knows what he's talking about. One of the reasons why he knows is because he has examined thousands of UARS patients.

I learned more about UARS by watching my throat open and close on Dr. Park's endoscope screen, than I've learned from anything I've read.
I have two sleep disorders: UARS and Non-24. Until recently I got considerable relief from UARS with humidified CPAP (I tried APAP but found no advantage), a Swift FX nasal pillow mask, and Micropore tape over my mouth. Nothing has helped my Non-24.