How many of you have changed your prescription on your own??

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
zoocrewphoto
Posts: 3732
Joined: Mon Apr 30, 2012 10:34 pm
Location: Seatac, WA

Re: How many of you have changed your prescription on your own??

Post by zoocrewphoto » Thu Sep 21, 2017 10:12 pm

chunkyfrog wrote:I believe that in SOME clinics, overtitration is the rule.
CYA fails to consider comfort.
At the very least, we need to be able to check our ever-changing pressure needs--if only at home.
Absolutely!

My sleep study was a split study, and during the titration, I only did short stints on my back. So, they knew what worked well on my side, but had to guess for my back, hence the 11-17 range. But I was lucky, and it works well for me. My ahi is almost always under 1.5, and the spikes past 15 are 2-3 a night max, maybe totalling 5 minutes. I do believe that if my pressure were topped at 14, I would stay on my back longer and have a lot more events. The pressure going up bothers me a little bit, so I tend to roll over, so it prevents events in a different way.

There are also times when we may need different settings. Medication change. Cold/cough/allergies, etc. Position change in sleep due to injury/illness. Weight gain/loss. Rather than waste time and money on sleep studies, it is nice to be able to look at data, make educated choices, and then test our choices and see how well they work.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Resmed S9 autoset pressure range 11-17
Who would have thought it would be this challenging to sleep and breathe at the same time?

User avatar
Goofproof
Posts: 16087
Joined: Mon Dec 05, 2005 3:16 pm
Location: Central Indiana, USA

Re: How many of you have changed your prescription on your own??

Post by Goofproof » Thu Sep 21, 2017 11:23 pm

Around 5 times in 12 years. Mostly when I got my second a APAP, I played around with the settings, new toy and such, got in trouble changing too many settings at one time, I got lost in what was happening. A friend Den (Wolfman) helped set me straight. All in all I've been 14 cm to 15 cm for 12 years, went back to my orgional CPAP (A Tank), trying to wear it out, it won't wear out. The APAP new from cpap dot com, sets in the wings to take over still almost New, plus another one to back it up.

A lifetime supply! Jim
Use data to optimize your xPAP treatment!

"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire

Phil1827

Re: How many of you have changed your prescription on your own??

Post by Phil1827 » Sun Sep 24, 2017 8:20 am

I recently started changing the clinical settings. It helped a lot. My auto sense machine self adjusts to about 9, so I set it to start there. Also Adjusted the EPR (exhaust pressure relief) until I could breathe well. Adjusted humidity to eliminate water droplets in mask.

I have been using a Resmed Air Sense 10 Autosense with an Amaraview full face cushion for about a year.
I was getting up about once an hour all night.

Then realized that the real problem is that the mask forced me to sleep on my back.
I have bronchitis and produce thick fleghm which I cannot clear from my throat when on my back. Actually, I can't swallow even saliva when on my back. I was in the hospital a while back, and the nurses said I would stop breathing for up to 3 minutes.

About 6 months ago i bought a Swift FX mask. It works great, but the air exhaust is very annoying. Slept great some nights, hardly at all on other nites.

Tried a dreamware mask. The side tubes kept me awake.

Bought a Resmed P-10 mask. Works great. I can even push my face into the pillow.

My insurance only supplied me with the mask and no extra pillows for the first 6 months. After about 2 months, the pillow collapsed, and the head gear became stiff, and uncomfortable. Possibly because I am now using a SO Clean machine.
I found pillows and head gear on eBay.

Now, my cpap machine fan went crazy. Since it was under warranty, they replaced it for free. I asked if the ozone from the So Clean could have caused the problem, and my supplier said no.

I have now made an adapter for the end of the hose, and disconnect the hose from the cpap in the morning, and connect the hose to the So Clean. Then I wash the water chamber by hand. That way no ozone goes thru the cpap.

Using the So Clean for the hose has had a dramatic improvement for my breathing.

User avatar
Julie
Posts: 19898
Joined: Tue Feb 28, 2006 12:58 pm

Re: How many of you have changed your prescription on your own??

Post by Julie » Sun Sep 24, 2017 8:43 am

I challenge you to stop using SC on your hose x a week and see if you feel any worse. Ever hear of the placebo effect? Do you realize that a great number of people here never clean their hoses at all - in decades - apart from maybe a twice yearly rinse, etc? You've brainwashed yourself into thinking the SC has some profound effect on things, but you're just wrong.

User avatar
Julie
Posts: 19898
Joined: Tue Feb 28, 2006 12:58 pm

Re: How many of you have changed your prescription on your own??

Post by Julie » Sun Sep 24, 2017 10:27 am

Because a placebo isn't 'working', it's just feeding an expensive delusion.

User avatar
TASmart
Posts: 1071
Joined: Wed Jan 04, 2017 7:23 pm
Location: Eugene, OR

Re: How many of you have changed your prescription on your own??

Post by TASmart » Sun Sep 24, 2017 10:35 am

Julie wrote:Because a placebo isn't 'working', it's just feeding an expensive delusion.
And you feel it is your role in society to keep people from spending their money how they wish and using things they believe are beneficial, no matter what your opinion of their selected device is?
All posts reflect my own opinion based on my experience and reading.
Your mileage may vary
Past performance is no guarantee of future results
Consult with your own physician as people very

User avatar
chunkyfrog
Posts: 34377
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nebraska--I am sworn to keep the secret of this paradise.

Re: How many of you have changed your prescription on your own??

Post by chunkyfrog » Sun Sep 24, 2017 10:44 am

SC is not a placebo.
It is a SCAM.
Good placebos alleviate psychomatic symptoms,
but must be AFFORDABLE, and cause NO HARM.
SC fails on both counts.
Any patronage they receive is wasteful.
Waste is not harmless.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

User avatar
Goofproof
Posts: 16087
Joined: Mon Dec 05, 2005 3:16 pm
Location: Central Indiana, USA

Re: How many of you have changed your prescription on your own??

Post by Goofproof » Sun Sep 24, 2017 10:56 am

chunkyfrog wrote:SC is not a placebo.
It is a SCAM.
Good placebos alleviate psychomatic symptoms,
but must be AFFORDABLE, and cause NO HARM.
SC fails on both counts.
Any patronage they receive is wasteful.
Waste is not harmless.
They may have stopped feeding their pets, to pay for that new billfold cleaner. Not many have that kind of money to waste, but they still do. Jim
Use data to optimize your xPAP treatment!

"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire

User avatar
TASmart
Posts: 1071
Joined: Wed Jan 04, 2017 7:23 pm
Location: Eugene, OR

Re: How many of you have changed your prescription on your own??

Post by TASmart » Sun Sep 24, 2017 11:07 am

Crap. I find myself agreeing with xx... I fear that I will lose my libtard staus. That ought to wreck my sleep
All posts reflect my own opinion based on my experience and reading.
Your mileage may vary
Past performance is no guarantee of future results
Consult with your own physician as people very

User avatar
Goofproof
Posts: 16087
Joined: Mon Dec 05, 2005 3:16 pm
Location: Central Indiana, USA

Re: How many of you have changed your prescription on your own??

Post by Goofproof » Sun Sep 24, 2017 12:04 pm

TASmart wrote:Crap. I find myself agreeing with xx... I fear that I will lose my libtard staus. That ought to wreck my sleep
NA! It's a lifetime membership, read the card, right hand bottom. no expiree, no learn! Jim
Use data to optimize your xPAP treatment!

"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire

SewTired
Posts: 1737
Joined: Thu Apr 16, 2015 8:33 am
Location: Minneapolis area

Re: How many of you have changed your prescription on your own??

Post by SewTired » Sun Sep 24, 2017 2:10 pm

First, I am no expert on aerophagia, but did find that I get it when my chin hangs down towards my chest while I am sleeping. Adjusting the pillows so that this does not happen (it was suggested by other forum members) resolved that problem.

As to changing the settings on the machine, I think most people on this board have done it to improve therapy. Many people abandon cpap long before their doc appointment because they need their problems resolved NOW, not in 2 months and they get no help over the phone (because the office can't bill for the time, usually).

As mentioned, there are no cpap police checking what you are doing because you and your family members can freely change the settings.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: Sleepyhead
Diabetes 2, RLS & bradycardia
Airsense For Her; Settings: range 8-12, Airfit P10 (M)

User avatar
chunkyfrog
Posts: 34377
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nebraska--I am sworn to keep the secret of this paradise.

Re: How many of you have changed your prescription on your own??

Post by chunkyfrog » Sun Sep 24, 2017 3:08 pm

My sleep doc entered my self-modified settings into my permanent record.
I like him--he's a keeper.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

Lucyhere
Posts: 1949
Joined: Sun Oct 18, 2015 2:45 pm

Re: How many of you have changed your prescription on your own??

Post by Lucyhere » Sun Sep 24, 2017 9:10 pm

TASmart wrote:Crap. I find myself agreeing with xx... I fear that I will lose my libtard staus. That ought to wreck my sleep

I was about to say the same thing when I saw your post. Ya beat me to it.
Resmed AirSense 10 Autoset for her w/humid air/heated Humidifier
Bleep/P10

Lucyhere
Posts: 1949
Joined: Sun Oct 18, 2015 2:45 pm

Re: How many of you have changed your prescription on your own??

Post by Lucyhere » Sun Sep 24, 2017 9:21 pm

If a placebo works, IT WORKS! It's a great word and is used in many different ways about many things. It's called the placebo effect -- if it works, IT WORKS!

I listen to relaxing music when I decide it's time to sleep. It works for me. Would some call that the placebo effect? Who cares! And it costs money that I feel I can afford... and it WORKS! Is it the placebo effect? Who cares!
Resmed AirSense 10 Autoset for her w/humid air/heated Humidifier
Bleep/P10

User avatar
49er
Posts: 5624
Joined: Mon Jan 16, 2012 8:18 am

Re: How many of you have changed your prescription on your own??

Post by 49er » Mon Sep 25, 2017 5:46 am

Julie wrote:I challenge you to stop using SC on your hose x a week and see if you feel any worse. Ever hear of the placebo effect? Do you realize that a great number of people here never clean their hoses at all - in decades - apart from maybe a twice yearly rinse, etc? You've brainwashed yourself into thinking the SC has some profound effect on things, but you're just wrong.
Julie,

Phil may be wrong about the effect of SC has on his various situations but I am curious as to why you reacted the way you did. People simply view situations differently. Also, he didn't advocate his experience applied to everyone as he was just sharing his situation.

49er