Mom Needs Help!

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
Georgio
Posts: 581
Joined: Thu Aug 28, 2008 5:34 pm
Location: Jacksonville Beach, Fl

Mom Needs Help!

Post by Georgio » Mon Dec 31, 2012 2:02 pm

Good Afternoon, Mom hasn't been feeling well and her compliance shows it!

I'm going to try and get her compliance up, she's about 87% for this past year, and try a large pillow size and remind her to snug her straps a little to address the occasional large leak.

Any other observations will be greatly appreciated, as she hasn't seen sleep dr. for several years now.

Thanks, Georgio



Image
Last edited by Georgio on Wed Sep 13, 2017 12:45 pm, edited 1 time in total.
M-Series W/Aflex, Swift LT, Encoreviewer

User avatar
Sir NoddinOff
Posts: 4190
Joined: Mon May 14, 2012 5:30 pm
Location: California

Re: Bad Mother!

Post by Sir NoddinOff » Mon Dec 31, 2012 3:00 pm

There's not much to add to your comments, except a doctor's visit might sharpen her resolve. Hope it works out great for your mom and you in 2013

_________________
Mask: AirFit™ F10 Full Face Mask with Headgear
Additional Comments: Sleepyhead software v.0.9.8.1 Open GL and Encore Pro v2.2.
I like my ResMed AirFit F10 FFM - reasonably low leaks for my ASV therapy. I'm currently using a PR S1 AutoSV 960P Advanced. I also keep a ResMed S9 Adapt as backup. I use a heated Hibernite hose. Still rockin' with Win 7 by using GWX to stop Win 10.

User avatar
chunkyfrog
Posts: 34378
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nebraska--I am sworn to keep the secret of this paradise.

Re: Bad Mother!

Post by chunkyfrog » Mon Dec 31, 2012 3:07 pm

Take her shopping for a new mask; she might find something she likes better than the LT.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

User avatar
jencat824
Posts: 1442
Joined: Sun Oct 14, 2012 5:06 pm
Location: Jeffersonville, Indiana

Re: Bad Mother!

Post by jencat824 » Mon Dec 31, 2012 4:11 pm

I may be understanding this incorrectly, but the compliance rate is based on the dates at the bottom graph? Are you saying she only used it on the dates below?

If I were reading this (and I am NOT good at reading graphs yet), I would read each as a 30 day mark & it looks to me like she is using it from months to month with good numbers. Help me to understand where the bad compliance is showing. I just want to learn to read this data correctly, but from my former background, I would have read this as compliant with good AHI's & some leaks. Obviously I need to learn how to read this data.

As for your Mom, I vote to take her mask shopping. We women like to have options & variety in masks.
Jen

_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Pressure Auto 12-20cm CPAP compliant since 2000
Other masks I've tried: *=liked, #= no way
Piliaro, SleepWeaver Elan*, Swift FX w&w/o Bella Loops#, OpitLife#,Simplicity*, Mirage Vista*, Go Life for Her#, IQ (original hg only)*, Quattro FX (barely)###, Wisp*, Nuance#, Swift LT for her**

SleepyToo2
Posts: 1005
Joined: Sun Sep 11, 2011 7:55 am
Location: North of Philadelphia, PA

Re: Bad Mother!

Post by SleepyToo2 » Tue Jan 01, 2013 5:40 pm

jencat, the gaps in the bottom graph show non-compliance, as in not using the CPAP. The key question for Mom is why not use it. The numbers when she does use it look good. Definitely look for a new mask, and reinforcement from the sleep doc/any other doc, and the R/T that CPAP is needed for life. I have just read an article that clearly links the hypoxia that often occurs with sleep apnea with cancer. The authors believed that getting more exercise is beneficial because it increases the flow of oxygen around the body.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: Use SleepyHead software.
Not a medical professional - just a patient who has done a lot of reading

User avatar
Georgio
Posts: 581
Joined: Thu Aug 28, 2008 5:34 pm
Location: Jacksonville Beach, Fl

Re: Bad Mother!

Post by Georgio » Sun Jan 06, 2013 11:05 am

Thank you all for advice. We're going to try a different generic ambien to hopefully knock her out enough the therapy with less bothersome.

We both have used the Swift LT for years. I have and tried the Swift FX but like it less since the silicone straps stick to your face.

Any suggestions on a nasal cushion mask she might like?
M-Series W/Aflex, Swift LT, Encoreviewer

User avatar
squid13
Posts: 2299
Joined: Fri Jul 15, 2011 3:47 pm
Location: Pensacola, FL

Re: Bad Mother!

Post by squid13 » Sun Jan 06, 2013 11:49 am

Georgio wrote: I have and tried the Swift FX but like it less since the silicone straps stick to your face.
Get some strap covers from http://padacheek.com/PAC_SwiftFX.html and they won't stick to your face.

_________________
Machine: ResMed AirCurve 10 ASV Machine with Heated Humidifier
Mask: Evora Full Face Mask - Fitpack
Additional Comments: AirCurve 10 ASV, Oscar V1.0.1-r-1
US Navy Retired 1973,AirCurve 10 ASV, Mode: ASV Auto, Min EPAP: 7.2, Max EPAP: 15.0, Min PS:4.0, Max PS: 15.0, Mask ResMed Airtouch F20, Backup: (2) AirCurve 10 ASV

Guest

Re: Bad Mother!

Post by Guest » Mon Jan 07, 2013 8:34 am

Georgio wrote:Thank you all for advice. We're going to try a different generic ambien to hopefully knock her out enough the therapy with less bothersome.

We both have used the Swift LT for years. I have and tried the Swift FX but like it less since the silicone straps stick to your face.

Any suggestions on a nasal cushion mask she might like?
I started with the FX but I'm using the respironics Optilife now and I like it better. I can leave it quite loose compared to the FX and still have less leaks and I'm finding the pillows seem to hold up better. The only negative is the strap on the back of the head seems to slide up but then so did the FX but with the FX I needed a separate chin strap that I wore over the mask straps and that held it in place. The Optilife has an integral chin strap so nothing to hold it down.

User avatar
Georgio
Posts: 581
Joined: Thu Aug 28, 2008 5:34 pm
Location: Jacksonville Beach, Fl

Mom Needs Help!

Post by Georgio » Wed Sep 13, 2017 12:43 pm

Hello, I'm out of town and need to read my mom's encore card. I have her encorepro card and a infineer card reader, but that's all and it's been so long I don't have a clue what is needed to read the card! Please help!
M-Series W/Aflex, Swift LT, Encoreviewer

User avatar
Pugsy
Posts: 63942
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Mom Needs Help!

Post by Pugsy » Wed Sep 13, 2017 12:58 pm

Georgio wrote:Hello, I'm out of town and need to read my mom's encore card. I have her encorepro card and a infineer card reader, but that's all and it's been so long I don't have a clue what is needed to read the card! Please help!
Do you have one of the Encore software versions on your computer?
If so...
All you have to do is go to the patient list and click on "add patient".
Put her name in and save it.
Open the therapy page for her account (it may just do that for you) and look at the little orange box that expands and look for
"Download from Device"...click on that.
You will get a prompt that says "media doesn't belong to patient" just ignore it (that's because the card hasn't been assigned yet) and tell it to "card is to be returned to patient" and click on download.
It will download and at the same time assign the card to the patient name.

If you don't have Encore on your computer...you are in trouble...the only version I know where to download is a Pro version that needs to install over an already installed version.
You can go here and request Encore Basic.. You have to register and log in and look for the instructions for requesting Encore via email.
http://www.apneaboard.com/adjust-cpap-p ... tup-manual

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

If you want to try the Eclipse mask and want a special promo code to get a little off the price...send me a private message.

User avatar
Georgio
Posts: 581
Joined: Thu Aug 28, 2008 5:34 pm
Location: Jacksonville Beach, Fl

Re: Mom Needs Help!

Post by Georgio » Fri Sep 15, 2017 1:27 pm

Thanks, I'll take it home with me and should be able to read on my computer.
M-Series W/Aflex, Swift LT, Encoreviewer