Not new to CPAP; mixed apnea and desperate for correct equip

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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palerider
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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by palerider » Fri Jun 16, 2017 6:15 pm

xxyzx wrote:
Pugsy wrote:
TASmart wrote:
I have done so. Does not keep xxzyx from insulting me in threads I have not even posted in.
I know...he's done it to me too.

Really all the Foe thing does is take the offenders post out of direct sight. Then we have to use self control and not read it and thus be able to better resist the urge to poke back.

We have no control over what he says or does. We only have control over what we do or say. I have chosen to not stoop to his level no matter how tempted I am to poke back. It's hard not to want to poke back when someone slanders us or is just being a general asshole ...and sometimes we succeed and sometimes we don't.

It's not perfect by any means but it is the best I can do with what I am given.

Nothing we say to him or about him is going to matter anyway. He's not going to change except for the worse. Why bother at all...just because we want to poke back...well, yeah some people like poking back. I don't particularly like poking back because a long time ago I learned that the only person who really gets hurt with the poking has been me...upset me or my blood pressure. For me just having his rantings out of sight and not quite so easy to read and provoke me works best for me.

Other people...hey, do whatever works best for you guys.

It took me quite some time a while back to learn to resist the urge to "peek" at what is hidden. It's gotten easier as time has gone by and I learned that I just feel better in general if I ignore the assholes like him which in turn keeps my blood pressure down.

I pick my battles carefully...I see no sense in entering one where there's no chance that I will win and with people like him all you end up doing is slinging mud right back at them...you can't win because they are unreasonable and when I sling insults back I am stooping to their level and really doing what they want and I just refuse to do that. I am better than that...at least most of the time. I am human though and sometimes I go to the battle with a big 2 X 4 swinging the whole time. It's not pretty and not something I am particularly proud of but hey....I am human after all.

Assholes who make my Foe list...aren't worthy of my time reading or responding...plain and simple.
=======

you all started it with your stalking and insults and lies

when you decide to quit then i guarantee i wont have to respond in kind any more

its your choice
keep being bullies and trolls stalking and insulting me
or stick to the discussion of sleep apnea and xpap machines
Yeah, I'm pretty sure that Pugsy has never... EVER started ANY kind of conflict on this board.

do flowers and greenery spring up where you've walked because of the hugely abundant fertilizer that you spew forth?

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

Guest09

Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by Guest09 » Sat Jun 17, 2017 11:20 am

xxyzx wrote:
Okie bipap wrote:It is much easier to blame someone else than to look at our self, determine what is wrong, and make the effort to fix it.
========

that is the libtard strategy

you are just trying to use it in a judo like attempt to do what direct bullying fails to do
You never responded. You are the childish Leftist Libtard, as you more closely align with their Victimhood and Virtue-signaling politics, I am sorry to report to you. Man up, or Libtard up, boy. Will you be a childish Libtard-like troll your entire life? Or will you take what's given to you as food for thought, and perhaps become a man. The choice is yours. Baby Libtard or Man. Which will you be?

Guest09

Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by Guest09 » Sat Jun 17, 2017 12:36 pm

xxyzx wrote:
Guest09 wrote:
xxyzx wrote:
Okie bipap wrote:It is much easier to blame someone else than to look at our self, determine what is wrong, and make the effort to fix it.
========

that is the libtard strategy

you are just trying to use it in a judo like attempt to do what direct bullying fails to do
You never responded. You are the childish Leftist Libtard, as you more closely align with their Victimhood and Virtue-signaling politics, I am sorry to report to you. Man up, or Libtard up, boy. Will you be a childish Libtard-like troll your entire life? Or will you take what's given to you as food for thought, and perhaps become a man. The choice is yours. Baby Libtard or Man. Which will you be?
============

there you go lying again and being the epitome of a bullying libtard

i responded your logical fallacy attempt to silence me again

you are a libtard being a bully like the cowardly troll that you are
trying to silence people you dont agree with

shove your PC back up your bleep
we dont care about that any more
Water off a duck's back as they say.
Enjoy your Leftist-like Libturd Trolling.
You will find me on Breitbart from time to time, setting other Leftists straight.
Please grow up, then be welcome to join us.
Until then, you are giving the other side a very bad name indeed.
Have a great weekend, and Happy CPAPPING!

aspen
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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by aspen » Tue Jun 20, 2017 12:40 pm

Update pertaining to the original issue

First -- thank you for the incredible help amongst the craziness!!! SleepyHead has allowed me to figure out under what circumstances I wake up. My ahi is low but it's because I wake up for every clear airway event, obstructive event longer than a certain length, and after any series of hypopnea episodes.

Analyzing which meds I've taken that allow me to sleep (increasing ahi to worse levels) has potentially confirmed that I have a problem in the sleep/wake area of brain. I have MRIs proving this so it all matches up. I tested out one night with a med I shouldn't take -- slept through almost all the events and had an ahi of 8. Wonderful sleep. Still not awful ahi, but since I can't/won't take it regularly, it's not a help.

This morning I called respironics directly and spoke to an RT. He was very helpful. I explained the whole situation to him and asked for help tweaking the Dream Station. His only tweak? "No CPAP, including auto, will work for you. You need a auto bipap". Turns out he has lots of friends with similar health issues and it's standard. I wish I could remember everything he said, but he was able to describe what the BipAp would do in each of the areas I still struggle with the Dream Station. He suggested I ask to trial one. CPAP company can't do that without an rx, but they are contacting my sleep specialist to try to convince him.

Which will be the road block. In his opinion, without COPD, I don't qualify for one. I'm returning the ResMed; CPAP company is letting me trial the Dream Station until they need it. Thank goodness. It may not be perfect but it's way better than the System Obe..he.

At least you guys helped me figure out that settling for an APAP would have been bad all around. Thanks to all, and especially to Pugsy who helped me get going with the SleepyHead software!!!!

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Pugsy
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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by Pugsy » Tue Jun 20, 2017 1:00 pm

As we discussed...now the next hurdle is getting all this okayed through the medical system in Canada if you want to get a different machine that way.
Your doctor has to get on board first.

Now if you have a money tree in the back yard.....you could probably buy one from secondwindcpap.com without an official RX because they don't seem to require RX for international buyers. I know people in other countries who have done just that.

At least you are making some progress even though sometimes it's one step forward and two steps back.
It does help a little to have reasons and explanations for our difficulties even if we can do anything much about them at the present moment.

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aspen
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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by aspen » Wed Jun 21, 2017 4:38 am

No money tree. In fact, Due to fatigue, I've lost my only income source. It's actually pretty serious. My health has been taking a hit with the long term sleep deprivation and I am frustrated with my sleep doctor. I believe the CPAP company is going to make a good case for me; if they are unsuccessful, I will have to get some legal counsel at this point I think. Perhaps not legal right away, but I will definitely address this through patient services.
Pugsy wrote:As we discussed...now the next hurdle is getting all this okayed through the medical system in Canada if you want to get a different machine that way.
Your doctor has to get on board first.

Now if you have a money tree in the back yard.....you could probably buy one from secondwindcpap.com without an official RX because they don't seem to require RX for international buyers. I know people in other countries who have done just that.

At least you are making some progress even though sometimes it's one step forward and two steps back.
It does help a little to have reasons and explanations for our difficulties even if we can do anything much about them at the present moment.

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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by ajack » Wed Jun 21, 2017 5:10 am

it sounds like you had reasonable advice from the rep, if your insurance doesn't come to the party, it might be best to buy it yourself

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aspen
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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by aspen » Wed Jun 21, 2017 5:21 am

ajack wrote:it sounds like you had reasonable advice from the rep, if your insurance doesn't come to the party, it might be best to buy it yourself
Absolutely impossible. We don't have it. Or the means to pay back a loan. Has to go through provincial channels.

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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by ajack » Wed Jun 21, 2017 5:43 am

there is a second hand market and you can keep it as a spare machine or resell it.

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Question about the Apnea Hypopnea index graph (SleepyHead)

Post by aspen » Wed Jun 21, 2017 7:29 am

Ideally, what should this graph look like while using an APAP?

I'm hypothesizing that it should hover fairly close to zero if the machine is working properly. Set me straight, please .

Reason I'm asking: My ahi has slowly tanked since I started with the Dream Station. Last night it was 2.18 (low, but 4x the earlier numbers). On the graph last night, the AHI goes as high as 9, which is when I woke up. My range is 11-15.

I don't quite understand why it should get that high. Sleep situation: I had awakened from a series of CA events and was awake for quite some time. Passed out exhausted at around 4:00 a.m., and I know fatigue worsens one of my issues (throat weakness). Except that I had 1 obstructive, 3 hypopnea, 4 clear airway events, and way more snoring than usual after falling asleep for that hour. Woke up when the ahi hit 9 on the graph.

Any ideas? Bit by bit I'm going to figure this out lol.

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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by Pugsy » Wed Jun 21, 2017 7:33 am

The AHI graph...is that where you are seeing the 9?
The AHI graph is just a per hour average..each 60 minutes it starts over. So a person might have several hours with no events and then a couple of hours with some events and the overall average is brought down by the several hours with no events.

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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by aspen » Wed Jun 21, 2017 9:43 am

Pugsy wrote:The AHI graph...is that where you are seeing the 9?
The AHI graph is just a per hour average..each 60 minutes it starts over. So a person might have several hours with no events and then a couple of hours with some events and the overall average is brought down by the several hours with no events.
Yes that seems to be what happens. Mostly the few events are spread out (and may wake me up) .. but when they cluster, it takes more oomph re: pressure. IN that hour it just went up and up and up ... woke up at 9 so it didn't have a chance to get any higher.

Hmmmmm.

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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by Pugsy » Wed Jun 21, 2017 9:50 am

aspen wrote:woke up at 9 so it didn't have a chance to get any higher.
9cm pressure or 9 AHI per the AHI graph?

I thought you were talking AHI from the AHI graph. AHI doesn't "hit" anything...the AHI graph numbers over below the flow rate are nothing more than a 60 minute segment and the number of events that happened within that 60 minutes. A person could potentially have 10 events at the first 10 minutes part of that 60 minute segment and nothing else and end up with the AHI hour graph showing 10 from that very first cluster.
When looking at the AHI graph...you also need to look at the events and flow rate graphs during that 1 hour segment to see when the events happened.
Timing starts from the time the machine is turned on...60 minute segments.
Woke up when the ahi hit 9 on the graph.
Random isolated events of any kind are unlikely to cause wake ups but clusters of anything can do it.

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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by aspen » Wed Jun 21, 2017 11:27 am

Sorry for being unclear. AHI was 9, pressure was 12.5 at this point (and had steadily jumped up from when I fell asleep). Shouldn't the pressure have gone higher? Or did I preempt that by waking up. It was one of those icky wake ups .. dragged from the depths and slow to function.

And yes, one obstructive and four clear airway events in a cluster, along with snoring which I don't normally do, and 3x hypopnea over about half an hour (now that I'm looking more carefully). Wonder what happened? I had been awake for a while (2:30-3:45) and literally passed out again. Maybe over tired.

At this point, I'll take the sleep I get ... at least out of every seven days I have a couple more good days than with CPAP alone. I was lucky to get a good day in two weeks with CPAP. I've had a few now. Just he last few days haven't been so hot ...
Pugsy wrote:
aspen wrote:woke up at 9 so it didn't have a chance to get any higher.
9cm pressure or 9 AHI per the AHI graph?

I thought you were talking AHI from the AHI graph. AHI doesn't "hit" anything...the AHI graph numbers over below the flow rate are nothing more than a 60 minute segment and the number of events that happened within that 60 minutes. A person could potentially have 10 events at the first 10 minutes part of that 60 minute segment and nothing else and end up with the AHI hour graph showing 10 from that very first cluster.
When looking at the AHI graph...you also need to look at the events and flow rate graphs during that 1 hour segment to see when the events happened.
Timing starts from the time the machine is turned on...60 minute segments.
Woke up when the ahi hit 9 on the graph.
Random isolated events of any kind are unlikely to cause wake ups but clusters of anything can do it.

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Re: Not new to CPAP; mixed apnea and desperate for correct equip

Post by Pugsy » Wed Jun 21, 2017 12:21 pm

aspen wrote:Sorry for being unclear. AHI was 9, pressure was 12.5 at this point (and had steadily jumped up from when I fell asleep). Shouldn't the pressure have gone higher? Or did I preempt that by waking up.
Don't know why it didn't go higher. Might have been it would have if you hadn't woke up...or maybe whatever it was sensing that caused it to increase wasn't going on...maybe it was in the process of increasing. Remember the machine has an algorithm that dictates the response it can't go and make sudden changes in pressure. It will increase at a certain rate and that's all it will do. The fix for this is more baseline pressure to better prevent whatever is going on with the airway in terms of the obstructive stuff but you are already at the limits of what is comfortable for you and for the centrals we can't do anything about them with this machine and even if it could the treatment for the central is a much higher brief pressure increase which might not be so comfortable either and it might wake you up. Damned if you do and maybe damned if you don't.

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