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General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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OboeVet
 
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Joined: Fri Jan 17, 2014 11:53 pm
Location: La Mesa, California
Gender: Male

Re: Newbie would like to hear success stories, please.

Postby OboeVet on Mon Apr 10, 2017 7:10 pm

Thank you all for sharing your successful journeys! When I started in 2013 this virtual community definitely helped me through the hurdles.

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_________________
Mask: Simplus Full Face CPAP Mask with Headgear
Humidifier: PR System One 50 Series Heated Humidifier
Additional Comments: I only look at little screen on machine, let doc analyse details. Now machine set up for me.
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wajg55
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Re: Newbie would like to hear success stories, please.

Postby wajg55 on Tue Jun 13, 2017 8:51 am

I started on CPAP 20 years ago. Getting used to the mask, the noise, and the pressure took a bit of stubbornness over a few weeks. I don't really remember how long that adjustment period lasted, but I do remember what happened a few weeks later...

As I walked down the hallway at work, I suddenly realized that I was awake. I remember looking around and thinking that everything looked different (clearer? brighter? crisper?). It became obvious to me in that moment that I had been a walking zombie for many, many years. My commitment to CPAP crystallized in that moment.

I have occasionally gone without CPAP for a night or two. After the first non-CPAP night, I am noticeably dragging and irritable. I feel very tired. After a second consecutive night without CPAP, I become totally useless. I cannot think, I cannot stand being around people, my overriding desire is to curl up and go to sleep. Fortunately, I have only experienced this a few times (maybe 10-20 times over the 20 years), just often enough to know what CPAP means to me.

I had another sleep study done recently. For those who like numbers, my oxygen saturation (O2sat) is under 90 half the time when I do not use CPAP; it occasionally drops to the 70's. With CPAP, it hovers around 97 and never drops below 95. Unlike most people, I consider O2sat to be the most important number to look at. If your blood doesn't have enough oxygen, that means your brain, heart, and other organs do not have enough oxygen. If this is chronic, it can lead to all kinds of medical issues. In my case, it led to atrial fibrillation and metabolic syndrome. Normal O2sat is somewhere in the upper 90's.

Arlene1963
 
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Re: Newbie would like to hear success stories, please.

Postby Arlene1963 on Wed Jun 14, 2017 12:23 pm

I've already posted to this thread and now, almost a year later, want to update.

My AHI is pretty consistently less than 1 most nights, most of those being central SWJ events, and finally, my flow limitation chart has been tamed, this is due to increasing my CPAP pressure to 9cm. Also, EPR 3 works wonders for me and transformed my CPAP use.

Thanks to advice I read here I learned to use a soft cervical collar to reduce mouth leaks and to help tame flow limitations.

I think it was Chunkyfrog who recommended to a poster that keeping a supply of wipes next to the bed to wipe off a nasal pillow (and face and nose too) during the night can be useful, and this has proved to be very helpful advice, as I would often wake up at night with what felt like a hot and sweaty nose. Snippets of advice like this has made adjusting to CPAP so much easier.

Honestly, any success I have in my treatment is largely due to finding several online Sleep Apnea forums that I've read and followed closely.

I am sleeping much better, feeling healthy and happy. My grateful thanks to those who provide advice and encouragement day in and out.

Maxtrixbass
 
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Re: Newbie would like to hear success stories, please.

Postby Maxtrixbass on Mon Jul 10, 2017 5:06 pm

I am one of the lucky ones who noticed substancial changes after the first night. I felt like I had actuallyslept for the first time in many many years (at least 15). My biggest change is that it feels the mental fog has lifted.

Long story, but did it without any help from the medical profession. This board was tremendously helpful.

If you are new to it and don't see results right away, stick with it. If you delayed outcome is even close it will be very much worth it.

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Re: Newbie would like to hear success stories, please.

Postby JimmyJ on Sun Jul 16, 2017 11:16 am

Not sure that I have a dramatic success story. But I use my mask religiously, even for short naps during the day. It only took me about a week to get used to the Mask. When I dont use my mask (get drunk and fall asleep without it) i do feel terrible the next day. I didnt have health insurance for a while so I didnt get started as soon as I wanted. But a couple of years before medicare kicked in I had an osteopathic surgeon just look at me as say I couldnt do day surgery because i had sleep apnea (no testintg, he just knew). So I generally feel better when i use the mask, but its wasnt life changing.
But I do have a story. A good friend at work described symptoms that were exactly sleep apnea but he didnt have medical insurance either, and he couldnt afford the sleep test (mine was $5k) I had been on the machine for about 8 months, and during that time I changed secondary insurance providers (went from AARP to Humana) and ended up with two machines. So I gave the first machine to my friend. It was night and day for him, he was ecstatic about how good it was for him. Then a couple of months later the insurance companies figured it out and demanded we give back the extra machine. We did so and he said it was horrible, couldnt sleep, felt miserable, etc, horrible, etc. I had an appt with my pulmonary specialist, told him the situation with my friend and he wrote me a prescription for a machine (the pressure setting I had worked very well for my friend). Then I ordered a Respironics system one on line for $330 for my friend. He was a very happy camper, he didnt turn into a nice person (he was something of a curmudgeon) but the machine made a very real difference in his life.

So even though you might have trouble adapting, just keep trying various things to make you comfortable with your machine (you have a humidifier right?)
And as a test just stop using it for a couple of days and you will realize how much better is is with the mask.

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