OT Terminal Melanoma
- 2 B Sleeping Soundly
- Posts: 822
- Joined: Sat Nov 05, 2011 2:24 pm
- Location: Southern California
Re: Terminal Melanoma
Stormy,
I bumped this thread to the top for others who have not yet heard of your husbands illness. Also to keep our thoughts, prayerful words, and support in one thread to make it easier for you to find for viewing and updating, should you find that helpful. Hopefully, I have not over stepped on your behalf, as my desire is to help make things easier for you, not make things more confusing or difficult.
Remember you have a big PAP family here and some have gone through the same journey you are on. Please let us be there for you as you have been there for others; it is your time.
John
I bumped this thread to the top for others who have not yet heard of your husbands illness. Also to keep our thoughts, prayerful words, and support in one thread to make it easier for you to find for viewing and updating, should you find that helpful. Hopefully, I have not over stepped on your behalf, as my desire is to help make things easier for you, not make things more confusing or difficult.
Remember you have a big PAP family here and some have gone through the same journey you are on. Please let us be there for you as you have been there for others; it is your time.
John
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Mask: EasyLife Nasal CPAP Mask with Headgear |
Additional Comments: 11-09-11 Start PAP therapy. Current settings: APAP 13cmH2O - 17cmH2O / Ramp, off / A-Flex, off / Respironics Premium Chin Strap / Sleepyhead Software |
One time a cop pulled me over for running a stop sign. He said, "Didn't you see the stop sign?" I said, "Yeah, but I don't believe everything I read." -- Steven Wright
Re: Terminal Melanoma
Prayers for you both!
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: DreamWear Nasal CPAP Mask with Headgear |
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm
- Stormynights
- Posts: 2273
- Joined: Wed Mar 10, 2010 7:01 pm
- Location: Oklahoma
Re: Terminal Melanoma
Thank you to all for the prayers and support. Today I just couldn't do a thing to please him. I know he is stressed but I am not used to him being that way. It was a rough day. I hope tomorrow is better.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV |
- chunkyfrog
- Posts: 34390
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: OT Terminal Melanoma
He may be in a bad mood now, but it is a sign he has the energy to complain.
Not a totally bad thing.
Not a totally bad thing.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
- Stormynights
- Posts: 2273
- Joined: Wed Mar 10, 2010 7:01 pm
- Location: Oklahoma
Re: OT Terminal Melanoma
Thank you for reminding me of that. I know I can't let any stress get to me. It is just so hard. I love him so much and I know he love me.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV |
- Stormynights
- Posts: 2273
- Joined: Wed Mar 10, 2010 7:01 pm
- Location: Oklahoma
Re: OT Terminal Melanoma
I made him try some natural remedies. I started with the baking soda treatments and he perked up and is now acting like his old self. The difference is amazing. It is giving us hope. I would recommend this to anyone with cancer.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV |
-
- Posts: 294
- Joined: Mon Sep 17, 2012 6:29 pm
- Location: Upstate New York
Re: OT Terminal Melanoma
I have a similar problem. My wife has just about quit eating and has been losing weight for several months. She is down to 91 lbs. So I've been feeding her high caloric, fatty food. Then recently she has had gallstones and all the pain that comes with that. The diet for that condition is exactly the opposite for trying to gain weight -- no fatty foods. I went to a nutritionist our doctor recommended and she she gave me some good ideas, so I have been coming up with a new diet. (My wife had a stroke so I do all the cooking). Also, I've been searching the Web and found a bunch of ideas. Some are junk, but those are soon obvious.Stormynights wrote:My husband has been battling Melanoma for a couple of years and found out Tuesday that it is terminal. . . . I have been trying to look up diets and useful information.
So I urge you to find a good nutritionist and also keep searching the Web. Then merge the information, using your own good sense.
We wish you, and him, the best.
_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: ResMed VPAP Auto, Series 9 device, with H5i Heated Humidifier; RedMed Mirage Quattro full-face mask. |
- Sir NoddinOff
- Posts: 4190
- Joined: Mon May 14, 2012 5:30 pm
- Location: California
Re: OT Terminal Melanoma
Many prayers going out for both of you and your husband.
_________________
Mask: AirFit™ F10 Full Face Mask with Headgear |
Additional Comments: Sleepyhead software v.0.9.8.1 Open GL and Encore Pro v2.2. |
I like my ResMed AirFit F10 FFM - reasonably low leaks for my ASV therapy. I'm currently using a PR S1 AutoSV 960P Advanced. I also keep a ResMed S9 Adapt as backup. I use a heated Hibernite hose. Still rockin' with Win 7 by using GWX to stop Win 10.
Re: Terminal Melanoma
Please message me. I can offer advice as my Father is currently battling Stage 4 Melanoma, and I have spent years researching. There are many more options for Melanoma than there were five years ago! So sorry to hear this, but hope is not lost.Stormynights wrote:Thank you to all for the prayers and support. Today I just couldn't do a thing to please him. I know he is stressed but I am not used to him being that way. It was a rough day. I hope tomorrow is better.
Re: OT Terminal Melanoma
Fat doesn't help you gain weight. High carbs does. Unfortunately, the fatty food is likely what brought on the gallstones.wardmiller wrote:I have a similar problem. My wife has just about quit eating and has been losing weight for several months. She is down to 91 lbs. So I've been feeding her high caloric, fatty food. Then recently she has had gallstones and all the pain that comes with that. The diet for that condition is exactly the opposite for trying to gain weight -- no fatty foods. I went to a nutritionist our doctor recommended and she she gave me some good ideas, so I have been coming up with a new diet. (My wife had a stroke so I do all the cooking). Also, I've been searching the Web and found a bunch of ideas. Some are junk, but those are soon obvious.Stormynights wrote:My husband has been battling Melanoma for a couple of years and found out Tuesday that it is terminal. . . . I have been trying to look up diets and useful information.
So I urge you to find a good nutritionist and also keep searching the Web. Then merge the information, using your own good sense.
We wish you, and him, the best.
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Sleepyhead |
Diabetes 2, RLS & bradycardia
Airsense For Her; Settings: range 8-12, Airfit P10 (M)
Airsense For Her; Settings: range 8-12, Airfit P10 (M)
-
- Posts: 120
- Joined: Sun Aug 20, 2006 3:19 pm
Re: OT Terminal Melanoma
FUN! Try to have some fun! An essential and much underestimated emotional nutrient. Does he like to hike? Hike, even in a wheelchair. Did he always want to write the great novel.... take dictations or get him a volunteer secretary. Does he want a cruise? I met a 31 year old woman whose cancer returned, and she set off on the cruise she had never taken before. She had no regrets! I met the pulmonary hypertension patient who had to be evacuated by private plane from a cruise to Antarctica because he had never been, and wanted to go (expensive mistake for the company that provided emergency evacuation insurance) but he was so proud and content for the two weeks he lived after his return.
Laughter is the best medicine. And it is so special to share with someone whose days are numbered.
And always bravely share with other people, most of the human race is nice!
Laughter is the best medicine. And it is so special to share with someone whose days are numbered.
And always bravely share with other people, most of the human race is nice!
Re: OT Terminal Melanoma
This life is but a vapor. With Jesus we all can have enteral life.
May he be found in the saving love of our Lord and Savior, Jesus!
May he be found in the saving love of our Lord and Savior, Jesus!
- Stormynights
- Posts: 2273
- Joined: Wed Mar 10, 2010 7:01 pm
- Location: Oklahoma
Re: OT Terminal Melanoma
I just wanted to report that Hubby is doing amazingly well. It is just unbelievable. We are so happy. The huge place on his leg is drying and healing. I don't know when he will have his next Pet scan but he appears to be doing so much better. He finished his first round of treatments yesterday. He had Opdivo home remedies and prayer.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV |
- chunkyfrog
- Posts: 34390
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: OT Terminal Melanoma
Wonderful!
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
Re: OT Terminal Melanoma
The power of prayer is an amazing thing, but good meds are a big help. Glad things are going well.
_________________
Mask: Mirage Activa™ LT Nasal CPAP Mask with Headgear |
Additional Comments: pressure 10-12 |