Sleep Apnea and an Autoimmune disease

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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kaiasgram
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Re: Sleep Apnea and an Autoimmune disease

Post by kaiasgram » Fri May 29, 2015 3:18 pm

KSparkles wrote:I've got Ankylosing Spondyalitis. It isn't restricting my chest movements / breathing. I was more trying to work out if I'm going to be more tired than someone else with the condition as I have SA too. I'm treated for SA but I wasn't sure if you ever feel as refreshed on CPAP as normal sleeping folk.
Thank you for clarifying and hopefully folks will stop suggesting that you have additional respiratory problems.

There are many, many people who sleep beautifully with CPAP (meaning just as good as "normal sleeping folk". Just the fact of being on CPAP does not mean your sleep quality is somehow compromised. If your PAP therapy is sub-optimal then that's another story.

_________________
Machine: AirSense 10 AutoSet with Heated Humidifer + Aifit N30i Nasal Mask Bundle
Mask: Aloha Nasal Pillow CPAP Mask with Headgear
Additional Comments: SleepyHead-now-OSCAR software on Mac OSX Ventura
Last edited by kaiasgram on Fri May 29, 2015 4:02 pm, edited 1 time in total.

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avi123
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Re: Sleep Apnea and an Autoimmune disease

Post by avi123 » Fri May 29, 2015 3:47 pm

As I understand this sentence: the stiffness of the thoracic ribs results in ventilation being mainly diaphragm-driven, so there may also be a decrease in pulmonary function, is that AS, in time, causes ossification of the rib joints and then only the diaphragm is responsible for ventilation by pushing directly against the lungs without the ribs expanding and pulling the lungs. In such a situation a CPAP would be less effective than otherwise. There seems to be lack of study data on it.

_________________
Mask: Mirage™ SoftGel Nasal CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments:  S9 Autoset machine; Ruby chinstrap under the mask straps; ResScan 5.6
see my recent set-up and Statistics:
http://i.imgur.com/TewT8G9.png
see my recent ResScan treatment results:
http://i.imgur.com/3oia0EY.png
http://i.imgur.com/QEjvlVY.png

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kaiasgram
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Location: Northern California

Re: Sleep Apnea and an Autoimmune disease

Post by kaiasgram » Fri May 29, 2015 4:00 pm

avi123 wrote:As I understand this sentence: the stiffness of the thoracic ribs results in ventilation being mainly diaphragm-driven, so there may also be a decrease in pulmonary function, is that AS, in time, causes ossification of the rib joints and then only the diaphragm is responsible for ventilation by pushing directly against the lungs without the ribs expanding and pulling the lungs. In such a situation a CPAP would be less effective than otherwise. There seems to be lack of study data on it.
Not helping.

_________________
Machine: AirSense 10 AutoSet with Heated Humidifer + Aifit N30i Nasal Mask Bundle
Mask: Aloha Nasal Pillow CPAP Mask with Headgear
Additional Comments: SleepyHead-now-OSCAR software on Mac OSX Ventura

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avi123
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Re: Sleep Apnea and an Autoimmune disease

Post by avi123 » Fri May 29, 2015 4:04 pm

kaiasgram wrote:
avi123 wrote:As I understand this sentence: the stiffness of the thoracic ribs results in ventilation being mainly diaphragm-driven, so there may also be a decrease in pulmonary function, is that AS, in time, causes ossification of the rib joints and then only the diaphragm is responsible for ventilation by pushing directly against the lungs without the ribs expanding and pulling the lungs. In such a situation a CPAP would be less effective than otherwise. There seems to be lack of study data on it.
Not helping.
Here is some help: Nasal continuous positive airway pressure (nasal CPAP) with the use of chinstrap, but not nasal CPAP alone, dramatically decreased the patient's apnea index to 2.4/hr.

Source: from 2000

[Obstructive sleep apnea syndrome induced by ossification of the anterior longitudinal ligament with ankylosing spondylitis].

_________________
Mask: Mirage™ SoftGel Nasal CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments:  S9 Autoset machine; Ruby chinstrap under the mask straps; ResScan 5.6
see my recent set-up and Statistics:
http://i.imgur.com/TewT8G9.png
see my recent ResScan treatment results:
http://i.imgur.com/3oia0EY.png
http://i.imgur.com/QEjvlVY.png

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kaiasgram
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Location: Northern California

Re: Sleep Apnea and an Autoimmune disease

Post by kaiasgram » Fri May 29, 2015 4:19 pm

You may be satisfying yourself avi but the OP has said breathing is not restricted and is asking for info about CPAP, not for speculation and guessing about possible future problems.

_________________
Machine: AirSense 10 AutoSet with Heated Humidifer + Aifit N30i Nasal Mask Bundle
Mask: Aloha Nasal Pillow CPAP Mask with Headgear
Additional Comments: SleepyHead-now-OSCAR software on Mac OSX Ventura

KSparkles
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Re: Sleep Apnea and an Autoimmune disease

Post by KSparkles » Fri May 29, 2015 4:25 pm

Yes what you say about a was is true, that could happen however i think it takes a while for Most people to have this issue. It would be restricting breathing and movement 24/7. As mentioned that's not me.

I'm off to shops today and I'll get an SD card reader.

How many months of data will ResMed S9 Auto go back?

It would be great to compare a year ago when I felt okay on CPaP and now when I'm I'll with AS as treatment is still being adjusted

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avi123
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Re: Sleep Apnea and an Autoimmune disease

Post by avi123 » Fri May 29, 2015 4:49 pm

KSparkles wrote:Yes what you say about a was is true, that could happen however i think it takes a while for Most people to have this issue. It would be restricting breathing and movement 24/7. As mentioned that's not me.

I'm off to shops today and I'll get an SD card reader.

How many months of data will ResMed S9 Auto go back?

It would be great to compare a year ago when I felt okay on CPaP and now when I'm I'll with AS as treatment is still being adjusted
The Resmed's ResScan program in it statistics can go back one year. Here are my own one year reports:

Image

Image

But notice that it's the ResScan program and not the S9 AutoSet machine that offers this report. It means nightly recording. Once all the period data are on an SD card then Rescan could use it and provide statistical reports for about 10 different periods and the longest is one year. The S9 AutoSet can store statistical data for only one week (I think). You could also compare the treatment results in SleepyHead program, but you have not gathered the one year data in either program on an SD card, or on several cards. So you can't go back from this point.

_________________
Mask: Mirage™ SoftGel Nasal CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments:  S9 Autoset machine; Ruby chinstrap under the mask straps; ResScan 5.6
Last edited by avi123 on Fri May 29, 2015 5:54 pm, edited 2 times in total.
see my recent set-up and Statistics:
http://i.imgur.com/TewT8G9.png
see my recent ResScan treatment results:
http://i.imgur.com/3oia0EY.png
http://i.imgur.com/QEjvlVY.png

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palerider
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Location: Dallas(ish).

Re: Sleep Apnea and an Autoimmune disease

Post by palerider » Fri May 29, 2015 5:47 pm

KSparkles wrote:Yes what you say about a was is true, that could happen however i think it takes a while for Most people to have this issue. It would be restricting breathing and movement 24/7. As mentioned that's not me.

I'm off to shops today and I'll get an SD card reader.

How many months of data will ResMed S9 Auto go back?

It would be great to compare a year ago when I felt okay on CPaP and now when I'm I'll with AS as treatment is still being adjusted
ignoring avi is generally the best thing to do.

if you have a s9 AUTOSET then your card has a year of summary and statistic data, 30 days of detailed data, and 7 days of high rate flow data.

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

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kaiasgram
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Location: Northern California

Re: Sleep Apnea and an Autoimmune disease

Post by kaiasgram » Fri May 29, 2015 7:39 pm

KSparkles, ResScan does not work on Mac computers. SleepyHead will do the same job and will work on your Mac.

To clarify -- Software can only report what the machine records. The S9 holds the most detailed data for 7 days, some detailed data for 30 days and summary-only data for 12 months. Once you load your data from the SD card into SleepyHead for the first time you'll see how it all looks. Even though not all the high res data has been saved it may still be possible to see some trends over time.

_________________
Machine: AirSense 10 AutoSet with Heated Humidifer + Aifit N30i Nasal Mask Bundle
Mask: Aloha Nasal Pillow CPAP Mask with Headgear
Additional Comments: SleepyHead-now-OSCAR software on Mac OSX Ventura