Apnea surgery

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Apnea surgery

Post by Greg Riddle » Fri May 29, 2015 12:58 pm

I've been having a lot of issues with aerophagia over the last month. Every night I wake up at 2-3 am in horrible pain in my stomach. I've tried several things to stop it. I've even lost 20 lbs in the last month but it hasn't helped. My last try was to lower the epap from 18.6 to 15. Hasn't helped. I'll try limiting ipap some to do the auto increase. My AHI has gone up since lowering the epap. Went from 1 to 2 events per hour.

Went to ent Tuesday to discuss options. Short of driving to Canada to try and get the alaxostent to see if I can lower pressure, I may end up having apnea surgery. I know there is a lot of good and bad stories but I can't take waking up in pain everyday.

Any other suggestions are welcome

User avatar
knothead
Posts: 538
Joined: Fri Jan 24, 2014 8:58 am
Location: Corpus Christi, Tx

Re: Apnea surgery

Post by knothead » Fri May 29, 2015 1:09 pm

Just curious, have you been checked for a heital hernia or ulcer?

_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear
Additional Comments: BP down & in control, Resmed S9 Autoset for backup & travel.

User avatar
49er
Posts: 5624
Joined: Mon Jan 16, 2012 8:18 am

Re: Apnea surgery

Post by 49er » Fri May 29, 2015 1:27 pm

Greg Riddle wrote:I've been having a lot of issues with aerophagia over the last month. Every night I wake up at 2-3 am in horrible pain in my stomach. I've tried several things to stop it. I've even lost 20 lbs in the last month but it hasn't helped. My last try was to lower the epap from 18.6 to 15. Hasn't helped. I'll try limiting ipap some to do the auto increase. My AHI has gone up since lowering the epap. Went from 1 to 2 events per hour.

Went to ent Tuesday to discuss options. Short of driving to Canada to try and get the alaxostent to see if I can lower pressure, I may end up having apnea surgery. I know there is a lot of good and bad stories but I can't take waking up in pain everyday.

Any other suggestions are welcome
Hi Greg,

I found downloading this document very helpful:

http://doctorstevenpark.com/the-truth-a ... ea-surgery

If you decide to go that route, personally, I wouldn't have the surgery without having a nasal or sleep endoscopy of your airway to see where the obstruction is.

I would also visit this old forum:

http://www.needsleep.net/apnea/apneainf.html (non cpap forums)

There are some very helpful posts, particularly by billinseattle.

You also might visit this site:

https://www.inspiresleep.com/inspire-therapy/

Finally, if you decide to any surgery, I would ask the surgeon what the percentage of his/her patients were able to get their AHI below 5 and for how long, this lasted.

Any reason you are not considering a dental device?

Good luck with your decision.

49er

User avatar
BlackSpinner
Posts: 9745
Joined: Sat Apr 25, 2009 5:44 pm
Location: Edmonton Alberta
Contact:

Re: Apnea surgery

Post by BlackSpinner » Fri May 29, 2015 1:42 pm

Finally, if you decide to any surgery, I would ask the surgeon what the percentage of his/her patients were able to get their AHI below 5 and for how long, this lasted.
THIS is very important. The definition of success for a surgeon is very different then that of a sleep specialist. ("the operation was a success but the patient died " is an but appropriate joke)

Your definition of success is an AHI below 5, not a percentage decrease in your AHI.

_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Mask: Hybrid Full Face CPAP Mask with Nasal Pillows and Headgear
Additional Comments: Quatro mask for colds & flus S8 elite for back up
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal

musculus
Posts: 221
Joined: Tue Feb 26, 2013 8:35 am

Re: Apnea surgery

Post by musculus » Fri May 29, 2015 1:57 pm

Greg Riddle wrote:I've been having a lot of issues with aerophagia over the last month. Every night I wake up at 2-3 am in horrible pain in my stomach. I've tried several things to stop it. I've even lost 20 lbs in the last month but it hasn't helped. My last try was to lower the epap from 18.6 to 15. Hasn't helped. I'll try limiting ipap some to do the auto increase. My AHI has gone up since lowering the epap. Went from 1 to 2 events per hour.

Went to ent Tuesday to discuss options. Short of driving to Canada to try and get the alaxostent to see if I can lower pressure, I may end up having apnea surgery. I know there is a lot of good and bad stories but I can't take waking up in pain everyday.

Any other suggestions are welcome
In addition to 49er's list, this guy is great and the website is very informative as well.

http://www.sleep-doctor.com/contact/

_________________
Mask: Quattro™ Air Full Face Mask with Headgear
Additional Comments: sleepyhead

User avatar
49er
Posts: 5624
Joined: Mon Jan 16, 2012 8:18 am

Re: Apnea surgery

Post by 49er » Fri May 29, 2015 2:04 pm

musculus wrote:
Greg Riddle wrote:I've been having a lot of issues with aerophagia over the last month. Every night I wake up at 2-3 am in horrible pain in my stomach. I've tried several things to stop it. I've even lost 20 lbs in the last month but it hasn't helped. My last try was to lower the epap from 18.6 to 15. Hasn't helped. I'll try limiting ipap some to do the auto increase. My AHI has gone up since lowering the epap. Went from 1 to 2 events per hour.

Went to ent Tuesday to discuss options. Short of driving to Canada to try and get the alaxostent to see if I can lower pressure, I may end up having apnea surgery. I know there is a lot of good and bad stories but I can't take waking up in pain everyday.

Any other suggestions are welcome
In addition to 49er's list, this guy is great and the website is very informative as well.

http://www.sleep-doctor.com/contact/
I agree that is a great site.

I would also visit http://www.sleepapneasurgery.com/ which is the site of Kasey Li, who is considered to be one of the best surgeons for doing MMAs.

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Apnea surgery

Post by Greg Riddle » Sat May 30, 2015 7:51 pm

Have some reading to do. Thanks all

User avatar
msla
Posts: 520
Joined: Mon Aug 30, 2010 2:10 pm

Re: Apnea surgery

Post by msla » Sun May 31, 2015 11:05 am

http://umm.edu/health/medical/reports/a ... leep-apnea You may find some useful info in this link.

As I remember the surgical definition of UPPP success is a reduction of AHI by 50%.

http://www.hindawi.com/journals/ijoto/2013/290265/ another journal article.

_________________
Mask: AirFit™ N20 Nasal CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: ResScan 3.11; The pink air is the same as the gray air.
ResMed S9 Auto set/Heated humidifier/AirFit N30i
diagnosed and began CPAP treatment 2003.

User avatar
archangle
Posts: 9294
Joined: Sun Mar 27, 2011 11:55 am

Re: Apnea surgery

Post by archangle » Sun May 31, 2015 1:03 pm

There's a link to a youtube video in the useful links in my signature line. A few people have reported it works, and it's free to try.

Also try sleeping on your left or right side. You might also try sleeping in a recliner.

These may or may not work, but they're easy to try.

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Also SleepyHead, PRS1 Auto, Respironics Auto M series, Legacy Auto, and Legacy Plus
Please enter your equipment in your profile so we can help you.
Click here for information on the most common alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check for yourself.

Useful Links.

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Apnea surgery

Post by Greg Riddle » Mon Jun 01, 2015 5:17 am

archangle wrote:There's a link to a youtube video in the useful links in my signature line. A few people have reported it works, and it's free to try.

Also try sleeping on your left or right side. You might also try sleeping in a recliner.

These may or may not work, but they're easy to try.
I tried allowing on both sides and in a recliner. On my sides the aerophagia gets worse. Recliner, I can't sleep in a recliner forever. I need to be in bed with my wife. What did help it's sleeping in my back with upper body elevated, but lately it hasn't helped much. I've been having trouble staying on my back

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Apnea surgery

Post by Greg Riddle » Mon Jun 01, 2015 5:19 am

msla wrote:http://umm.edu/health/medical/reports/a ... leep-apnea You may find some useful info in this link.

As I remember the surgical definition of UPPP success is a reduction of AHI by 50%.

http://www.hindawi.com/journals/ijoto/2013/290265/ another journal article.
I did some reading and the clinical definition is 50% reduction. Even if it was just 50% I could at least lower the pressure to a more tolerable level

Thanks for the links

User avatar
49er
Posts: 5624
Joined: Mon Jan 16, 2012 8:18 am

Re: Apnea surgery

Post by 49er » Mon Jun 01, 2015 6:25 am

Greg,

In the past, I found wearing a neck collar enabled me to lower the pressure when I needed higher pressures with full face masks. Unfortunately, I found them very uncomfortable for various reasons but many people on this board have had great success.

49er

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Apnea surgery

Post by Greg Riddle » Mon Jun 01, 2015 10:15 am

knothead wrote:Just curious, have you been checked for a heital hernia or ulcer?
no

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Apnea surgery

Post by Greg Riddle » Tue Jun 02, 2015 3:04 am

I limited the ipap to 20.6 last night. no stomach pain but AHI was 4.1

User avatar
zoocrewphoto
Posts: 3732
Joined: Mon Apr 30, 2012 10:34 pm
Location: Seatac, WA

Re: Apnea surgery

Post by zoocrewphoto » Tue Jun 02, 2015 3:19 am

Greg Riddle wrote:
msla wrote:http://umm.edu/health/medical/reports/a ... leep-apnea You may find some useful info in this link.

As I remember the surgical definition of UPPP success is a reduction of AHI by 50%.

http://www.hindawi.com/journals/ijoto/2013/290265/ another journal article.
I did some reading and the clinical definition is 50% reduction. Even if it was just 50% I could at least lower the pressure to a more tolerable level

Thanks for the links

Keep in mind that number of events has no relationship to pressure needed to prevent events. Reducing the number of events may not reduce your pressure needs. Some people have a much harder time with cpap after surgery.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Resmed S9 autoset pressure range 11-17
Who would have thought it would be this challenging to sleep and breathe at the same time?