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General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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carswell
 
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Re: Where A CPAP Newbie Should Start

Postby carswell on Thu Sep 12, 2013 9:52 am

I'm a real newbie, tonight will be my third night with the RESMED S9 Elite CPAP. I have the RESMED QUATRO full face mask. I am having issues with allergies and I am struggling to not feel like I am suffocating, tied down and quite a few other anxiety issues going on. I made it through the first night with 8 hours, but last night I couldn't manage to keep the mask on for more than an hour. Is there some technique, drug or something I can use so I don't get so anxious.

Thanks in advance for all your help

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Pugsy
 
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Re: Where A CPAP Newbie Should Start

Postby Pugsy on Thu Sep 12, 2013 10:19 am

carswell wrote:I'm a real newbie, tonight will be my third night with the RESMED S9 Elite CPAP. I have the RESMED QUATRO full face mask. I am having issues with allergies and I am struggling to not feel like I am suffocating, tied down and quite a few other anxiety issues going on. I made it through the first night with 8 hours, but last night I couldn't manage to keep the mask on for more than an hour. Is there some technique, drug or something I can use so I don't get so anxious.

Thanks in advance for all your help


This thread doesn't get much action as it is mainly a "read only" thread now. You would be better off to start a new thread on the main body of the forum with your particular issues so that people can zero in on your problems. It's going to get totally lost here in this thread.
It would be helpful if you would add your equipment to your profile..see how I have mine added. This link explains how if you don't know.
wiki/index.php/Registering_Equipment_in_User_Profile

Also it would be helpful if we knew what your pressure settings are and if you were using the ramp function because often the much lower starting pressure for ramp can make the suffocating feeling worse because there's less air movement in general. We won't suffocate but it sure feels like it. Since you are using a ResMed S9 machine...are you using EPR and if so at what setting?

There are things that can be done to lessen the sensations that you are experiencing and yes there are med that might help but sometimes all is needed is just a little adjusting of things.
One thing you can do is just sit and watch TV or read with the mask and machine on.
For stuffy nose there are other things that can be done...might be helpful to know what you have tried...meds or nasal rinses or whatever.

So with more specific information from you will help the forum members offer more specific ideas as to what you can do to help you get through this initial adjustment phase.

_________________
Machine: PR System One REMStar 60 Series BiPAP Auto with Bi-Flex
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: PR System One 60 Series Heated Tube Humidifier with Heated Tube
Additional Comments: S9 Adapt SV being tried now...not available as menu choice

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carswell
 
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Re: Where A CPAP Newbie Should Start

Postby carswell on Thu Sep 12, 2013 12:38 pm

Thank you Pugsy!

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333sps
 
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Re: Where A CPAP Newbie Should Start

Postby 333sps on Fri Oct 04, 2013 11:58 pm

Thank you for the first post. I am starting out with my CPAP machine, I have one month in today! (I have to send my SD card in tomorrow!) Before I had my sleep study, I was sitting with an OT and we were discussing my leg strain. He asked if there was anything else. I found myself telling him about my sleep problems. He reminded me that I DID NOT choose this. July and August were miserable, and I told him that I would be surprised if I had any friends left when all was said and done. I had just yelled at my daughter earlier that day. I felt and still feel miserable about that day. He said they would forgive me. I am getting better day by day, second shift is hard to adjust to, even after 15 years.

Some people think its a crutch or the fad, that we have to do this because it is popular. I wish it was true. I think sleep apnea is worse than insomnia. It was difficult to think of bed as a place to get rest when you know you are not going to get any or much sleep. One person told me to think positive about sleep and it would come. Unless, you have it some advise is worthless. I still have trouble falling asleep. But I no longer toss and turn for half an hour before sleep. I got my headgear squared away last week and I sleep straight through.

My advise to a newbie is give yourself time. to get used to your machine and try to get excited about it! I looked forward to my machine. It meant that we had an answer to my sleep problems, and that it was a fresh start. Yes I took a couple steps back last week, but I WANT to feel better!

jnc
 

Re: Where A CPAP Newbie Should Start

Postby jnc on Wed Oct 09, 2013 5:02 pm

I was a member years ago having very hard time trying to login what should I do now.

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russellms76
 
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Re: Where A CPAP Newbie Should Start

Postby russellms76 on Tue Oct 22, 2013 8:53 am

I've been using my CPAP now for a couple years. Wish I had started 5 years ago. I've gotten to know my machine inside and out including software, programming and tweaking it, and maintaining it. Take the time to research and learn. you'll be glad you did.

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Mehitabelle
 
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Re: Where A CPAP Newbie Should Start

Postby Mehitabelle on Mon Oct 28, 2013 3:37 pm

Hello! I'm completely new here, and new to using CPAP (almost 1 week!). I started on this journey about a year ago, trying to find out why I've been gaining weight in recent years (not related to diet or activity level), and why I'm having more and more health issues than in years past. A visit to my general doctor led to a visit with an allergist who diagnosed me with both food (soy, nuts, corn) and environmental (pollen/mold) allergies. I had hoped that adjusting my diet and treating my environmental allergies would help solve my weight gain problem - no dice. My allergist diagnosed me with asthma as well, so I began treating that with an inhaler. Still, my weight went up. General doc sent me to various specialists, including a pulmonologist, who suggested I wear a pulse oximeter while sleeping to see if my O2 levels were dropping at night. He said that sleep apnea could be related to my other health issues (blood pressure, blood sugar). Did my oxygen levels drop at night? Oh, yes they did - pulmonologist called in a Rx for supplemental oxygen - 2 L - at night, and wanted me to do a sleep study asap. Now, there was a huge delay in getting the sleep study scheduled, and I had to tussle with the hospital, insurance company, and the insurance company's 3rd party authorization company in order to get it. Originally, I was approved for an in-home sleep study, even though my pulmonologist had ordered an in-lab study. Finally got scheduled, got the sleep study, and had to wait to get in for pressure titration (same rigamarole as with getting initial sleep study approval - had to go through a number of checks to make sure it was absolutely necessary), did that and back to waiting, this time for the insurance company's 3rd party to approve the Rx for CPAP. It took me about 2 months from the initial order for supplemental oxygen and sleep study until I finally picked up my CPAP, with a great deal of that time spent pushing the wind, trying to get things done in a timely manner (for me, it felt urgent, especially after reading about sleep apnea and the very real dangers it poses). After a battle well-fought, I go my CPAP machine and could hardly wait to try it out. Now, this is the point where I admit to feeling like a freak - I've read a number of other forum posts from folks who had difficulty getting used to the mask. I had no problems at all, and have slept comfortably with the mask for a full 8 hours each night. Maybe because I wanted this so much (I'm all about solutions, not problems), maybe because Spouse uses a CPAP so I wasn't wigged out by it, maybe I adapt easier, I don't know. It feels comfortable to me. I'm still learning how to make sense of the data from my machine, and am trying to find little adjustments to make my overall sleep a lot better. For me, the changes I expected from the CPAP were almost immediate, starting with the pressure titration study - that was technically the first night I used the CPAP all through the night, and that morning I felt a tremendous difference in my energy level and mental clarity. I joined this group because I'd like to learn more about using a CPAP - not sure exactly what I want to learn, but I'm sure I'll find plenty of interesting information in the forums. Any general advice from anybody?
“I believe in kindness. Also in mischief. Also in singing, especially when singing is not necessarily prescribed.”
-Mary Oliver

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Pugsy
 
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Re: Where A CPAP Newbie Should Start

Postby Pugsy on Mon Oct 28, 2013 6:28 pm

Mehitabelle wrote: I joined this group because I'd like to learn more about using a CPAP - not sure exactly what I want to learn, but I'm sure I'll find plenty of interesting information in the forums. Any general advice from anybody?


Welcome to the forum. The CPAP Wiki at the top of the forum page is a good place to start for basic information.
This thread here is in the announcements section of the forum and it doesn't get much activity as it is mainly a read only thread now.
For more specific answers to any questions you may come up with the bottom section or main page of the forum would be the better place to post. Start a new Topic thread so that your questions don't get lost in a thread like this one and will get the attention of all the forum members. Most of us don't even bother to look up at this top section and will miss any questions you might have.

I have a thread at the top of this announcements section where I talked about software you can use and how to understand what you might see on the reports..when you have time you might glance at it.


Your S9 ELite is a full efficacy data machine...software is easy to get and use when you are ready to tackle that little job.

_________________
Machine: PR System One REMStar 60 Series BiPAP Auto with Bi-Flex
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: PR System One 60 Series Heated Tube Humidifier with Heated Tube
Additional Comments: S9 Adapt SV being tried now...not available as menu choice

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Luvdawgs
 
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Re: Where A CPAP Newbie Should Start

Postby Luvdawgs on Mon Jan 27, 2014 1:32 pm

I am new on the forum and am wondering where I can find the basic "female" avatar to use in my profile?

_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: PR System One 60 Series Heated Tube Humidifier with Heated Tube
Additional Comments: I also have a backup Mirage Activa LT nasal CPAP mask with Headgear

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Pugsy
 
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Re: Where A CPAP Newbie Should Start

Postby Pugsy on Mon Jan 27, 2014 1:38 pm

Luvdawgs wrote:I am new on the forum and am wondering where I can find the basic "female" avatar to use in my profile?


Go to your profile
On the left click on "edit avatar"
at the bottom next to the submit button click on "display gallery"....
Then from the local gallery open the "category" menu and you will see "female" as a choice to show different female heads.
I think the default is to show "animals"

_________________
Machine: PR System One REMStar 60 Series BiPAP Auto with Bi-Flex
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: PR System One 60 Series Heated Tube Humidifier with Heated Tube
Additional Comments: S9 Adapt SV being tried now...not available as menu choice

sleepy711
 

Re: Where A CPAP Newbie Should Start

Postby sleepy711 on Sun Feb 02, 2014 6:56 pm

Any person new or old to CPAP could use as much information as possible to sort out why CPAP can work, how to negotiate your life with it and what to expect from it. There is a book on iTunes (very reasonably priced) that answers many, many questions related to costs, companies, masks, special circumstances such as PTSD and anxiety attacks and more. It will soon be published to Kindle to make it accessible to all. I am a Respiratory Therapist, Sleep Technician and have worked years helping people with their CPAP at home. Many of the problems I heard from people were noted and addressed in this book. The sleep industry has its problems and proper support is hard to come by. Please feel free to comment on the book. I would be more than happy to address further questions and update the book.

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library lady
 
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Re: Where A CPAP Newbie Should Start

Postby library lady on Wed Feb 05, 2014 12:48 pm

I have been trying to find the place to fill out my profile; I am quite computer savvy, and have looked everywhere that I know to look.... help, please.
Now using AirFit F10 mask; Quattro Air is backup mask. RemZzzz mask liners with both.

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Lambeau
 
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Re: Where A CPAP Newbie Should Start

Postby Lambeau on Thu Feb 06, 2014 4:20 pm

library lady wrote:I have been trying to find the place to fill out my profile; I am quite computer savvy, and have looked everywhere that I know to look.... help, please.


Top left corner of the page in the pale blue bar about 1 inch wide, there is the "User Control Panel"

Click on it, and then you will see various tabs, the second one from the left says "Profile".

Click that, and you're there.

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Too tall
 
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Re: Where A CPAP Newbie Should Start

Postby Too tall on Sun Feb 09, 2014 12:26 am

I've just returned to give this forum one more try. I didn't find it so user friendly but it's probably because I'm such an idiot. There are some bullies like Black Spinner you'll probably want to ignore or block their replies so you don't have to be bothered with sarcastic replies.
System One RemStar Pro with C-Flex+ (460P)

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sleepapneasurfer
 
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Re: Where A CPAP Newbie Should Start

Postby sleepapneasurfer on Mon Feb 17, 2014 9:47 pm

Hello. I'm new.
My wife told my doctor that I snored and held my breath at night.
He said that there is very good chance that I have sleep Apnea. He briefly explained it.
I few days later I got a call from a sleep study joint. I arranged to have a sleep study.
I did not enjoy the sleep study.
I went to sleep wired up, was woken to put on a cpap mask. She started me on a nose only mask and a very short time into the attempt to go back to sleep I freaked out. I asked for a different mask she put a nose and mouth mask.
I was able to go back to sleep after a while.

Next think I know a cpap rental joint calls me up to set up delivery.
I have an unreasonable out of pocket cost so I chose to purchase a machine this pays for itself much faster than a monthly rental cost.

The cpap rental joint is going to provide me with a full face mask.

I am actually really looking forward to getting started.
I love the idea of really feeling rested. I have lots of energy while I'm going but when I stop for any length of time being active .
I'll find myself asleep.

Anyway thats my story I should receive machine in a few days and the mask setup a day or so later.

Sleepapneasurfer

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