What was your pressure setting? What was your AHI? What was your leak rate? What were your average hours of compliance per day?corky wrote:I did.
12 years on cpap and it's time to move on.
- Cereal Killer
- Posts: 228
- Joined: Tue Jan 31, 2012 1:49 pm
Re: 12 years on cpap and it's time to move on.
-
- Posts: 109
- Joined: Thu May 05, 2011 8:57 pm
- Location: Baltimore, MD
- Contact:
Re: 12 years on cpap and it's time to move on.
I just checked out their animation, studies, and looked around the site. One big thing jumped out at me: This is for tongue-based OAs only.
RERAs, CAs, and hypopneas aren't addressed. Also, if your obstructions are caused by any other means, let's say a larger then necessary uvula, this isn't useful. The lack of data capture is a little disturbing too... how do you know it's working? Is it curing your 3 OAs per night, but not the 7 CAs or 80 hypopneas? It looks like a nice idea, but it seems like you'd have to be a perfect case for this to be an improvement.
I looked into the studies, and the Hopkins study (yay Baltimore!) is available for free (http://archotol.ama-assn.org/cgi/conten ... 27/10/1216). In short, it says that 8 (very low number for a study, I'll get to that) patients were selected who had mostly OAs, and their OAs were determined to be majorly tongue-based. The candidate screening seems to rule out a lot of us. To super-summarize the results, this therapy cut their AHIs in half, on average.
That's a big consideration when you think of your treated vs. untreated AHI with CPAP. My AHI went from 29 to 0.4 (average night) with CPAP, and for a lot of us, that's a common ratio.
Anyway, this study is included is a slightly larger meta-analysis, which is also available for free. But, the sample sizes of 8 for this study, and 5 more for the meta, are enough to suggest further studies, but it's too low to say this is ready for production. It's good to know that studies to duplicate the results are taking place, but IMHO, this doesn't seem like "enough" therapy.
RERAs, CAs, and hypopneas aren't addressed. Also, if your obstructions are caused by any other means, let's say a larger then necessary uvula, this isn't useful. The lack of data capture is a little disturbing too... how do you know it's working? Is it curing your 3 OAs per night, but not the 7 CAs or 80 hypopneas? It looks like a nice idea, but it seems like you'd have to be a perfect case for this to be an improvement.
I looked into the studies, and the Hopkins study (yay Baltimore!) is available for free (http://archotol.ama-assn.org/cgi/conten ... 27/10/1216). In short, it says that 8 (very low number for a study, I'll get to that) patients were selected who had mostly OAs, and their OAs were determined to be majorly tongue-based. The candidate screening seems to rule out a lot of us. To super-summarize the results, this therapy cut their AHIs in half, on average.
That's a big consideration when you think of your treated vs. untreated AHI with CPAP. My AHI went from 29 to 0.4 (average night) with CPAP, and for a lot of us, that's a common ratio.
Anyway, this study is included is a slightly larger meta-analysis, which is also available for free. But, the sample sizes of 8 for this study, and 5 more for the meta, are enough to suggest further studies, but it's too low to say this is ready for production. It's good to know that studies to duplicate the results are taking place, but IMHO, this doesn't seem like "enough" therapy.
_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Re: 12 years on cpap and it's time to move on.
Can not remember. Sorry
- Cereal Killer
- Posts: 228
- Joined: Tue Jan 31, 2012 1:49 pm
Re: 12 years on cpap and it's time to move on.
That is not the kind of thing that happens to someone who has been using CPAP for 12 years, uses the software, and is committed to a good CPAP therapy.corky wrote:Can not remember. Sorry
Your story is suspicious to me.
Maybe you never really arrived in CPAP land, so you are not really moving out.12 years on cpap and it's time to move on.
Re: 12 years on cpap and it's time to move on.
Would you like to go with me? I've got a Dr's app. @ 10:50 tomorrow morning? Maybe he could break it down for ya.?
Re: 12 years on cpap and it's time to move on.
Corky is being incredibly vague and just posting various links about it. I would love to learn more about this and see pictures and hear all about the process and their back story, but as it stands now, this whole thing seems incredibly fake to me.Cereal Killer wrote:That is not the kind of thing that happens to someone who has been using CPAP for 12 years, uses the software, and is committed to a good CPAP therapy.corky wrote:Can not remember. Sorry
Your story is suspicious to me.
Maybe you never really arrived in CPAP land, so you are not really moving out.12 years on cpap and it's time to move on.
Re: 12 years on cpap and it's time to move on.
Seems like C killer is a hater. Don't be a hater!
-
- Posts: 109
- Joined: Thu May 05, 2011 8:57 pm
- Location: Baltimore, MD
- Contact:
Re: 12 years on cpap and it's time to move on.
A hater who makes a solid point.corky wrote:Seems like C killer is a hater. Don't be a hater!
HOWEVER, since this is just in the realm of medical studies and nobody can buy the darn thing yet, it's pretty harmless if she's right and you're just doing some ineffective marketing. Unfortunately, a clamoring public can get financial backing faster than research, and this research has been under way (in various forms) for a decade.
_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
- Cereal Killer
- Posts: 228
- Joined: Tue Jan 31, 2012 1:49 pm
Re: 12 years on cpap and it's time to move on.
Godwin needs to add "hater" to his law.corky wrote:Seems like C killer is a hater. Don't be a hater!
- Lizistired
- Posts: 2835
- Joined: Tue Dec 14, 2010 10:47 pm
- Location: Indiana
Re: 12 years on cpap and it's time to move on.
Or if she is just a troll....Kilgore Trout wrote:A hater who makes a solid point.corky wrote:Seems like C killer is a hater. Don't be a hater!
HOWEVER, since this is just in the realm of medical studies and nobody can buy the darn thing yet, it's pretty harmless if she's right and you're just doing some ineffective marketing. Unfortunately, a clamoring public can get financial backing faster than research, and this research has been under way (in various forms) for a decade.
_________________
Mask: Swift™ LT Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Swift FX sometimes, CMS-50F, Cervical collar sometimes, White noise, Zeo... I'm not well, but I'm better. |
ResScan: http://www.resmed.com/int/assets/html/s ... c=patients
ResScan Tutorial- http://montfordhouse.com/cpap/resscan_tutorial/
Machines Video: http://www.cpaplibrary.com/machine-education
ResScan Tutorial- http://montfordhouse.com/cpap/resscan_tutorial/
Machines Video: http://www.cpaplibrary.com/machine-education
- BlackSpinner
- Posts: 9745
- Joined: Sat Apr 25, 2009 5:44 pm
- Location: Edmonton Alberta
- Contact:
Re: 12 years on cpap and it's time to move on.
Well just download your data and post it.corky wrote:Can not remember. Sorry
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Mask: Hybrid Full Face CPAP Mask with Nasal Pillows and Headgear |
Additional Comments: Quatro mask for colds & flus S8 elite for back up |
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
Re: 12 years on cpap and it's time to move on.
As all trials need to be registered now, I found this one at clinicaltrials.gov:
http://www.clinicaltrials.gov/ct2/show/ ... k=118#locn
For the poster who was asking who the doc in Charleston in, that can also be found at the above link -- Principal Investigator: M. Boyd Gillespie, MD.
Amazingly, there are almost 800 clinical studies with the word "apnea" in the title upon a search at clinicaltrials.gov, some still recruiting, some completed.
Jason
http://www.clinicaltrials.gov/ct2/show/ ... k=118#locn
For the poster who was asking who the doc in Charleston in, that can also be found at the above link -- Principal Investigator: M. Boyd Gillespie, MD.
Amazingly, there are almost 800 clinical studies with the word "apnea" in the title upon a search at clinicaltrials.gov, some still recruiting, some completed.
Jason
_________________
Mask: Mirage™ FX Nasal CPAP Mask with Headgear |
Additional Comments: Alternates: S9 Autoset CPAP machine, PR System One Bipap Auto |
Re: 12 years on cpap and it's time to move on.
All is well
Re: 12 years on cpap and it's time to move on.
I have a 10:50 am app with my Dr in the morning. Fill y'all in after lunch. Night.
Re: 12 years on cpap and it's time to move on.
Why is everyone so damn suspicious about this??? Don't bother answering, I don't actually care. Corky, please keep those of us interested, posted about your progress ... hope it goes really well for you.