I found this forum while browsing google. So much of what's been said here makes sense to me, the need to tell others ifyou're comfortable, the article about CBT, some of your own experiences with adjusting to CPAP. Let me explain.
I had my first sleep study two nights ago. They did a split study, but didn't have enough data with me using CPAP. I have to go in next week to retake the test. Hopefully they'll find a good pressure then.
In my own experience, it has not been hard telling my mom or my friends-quite the opposite. I've suspected for a while now that I had some sleep problems-I'm always, always tired, and i've known for years and years that I snore.
But my doctor didn't explain details to me, not beyond the number of events (is that per hour?), and my desats (blood oxygen saturation) going down, and by how much. I called my clinic today to request another doctor. I've had several experience with this same doctor trying to tell me that I should not bring my guide dog (long story I'll tell some other time), and breezing in and then back out after talking mostly to me, or interrupting my answers to her questions. I need someone like the wonderful tech I had the other night, who will listen to my numerous questions, and go over things with me. I'm blind and cannot, that I know of at the moment, read my own report. I want to when this is all concluded and they've found what works for me.
I'm saddened to hear that so many people are having trouble and not getting the support they need. It's wrong, and health care and other organizations should be more attentive than that. Truly.
Part of me is terrified to use the mask, but part of me longs for it. There's a lot more about my story I could share, but this likely isn't the topic in which to do so. I'll just say that I'm going to look for a suupport group in my area, and I look forward to meeting people online who have struggled, and who are struggling, with this diagnosis and the changes it has and will bring.