And this is why my CPAP that I just got in July is gathering dust.
I 'm waiting to get into an ENT.
I have a very deviated septum. Once, an ER doctor looked into my nose
with a light, and said, "Wow." I also have chronic sinusitis and allergies,
AND problems on and off throughout the year with an inner ear inbalance.
I have tried my machine twice; once for a week, and I developed a severe
cough and earache that lasted for 3 weeks. Very hesitantly, I tried the
machine again for one night, and I felt like I was suffocating, and my
ears were going to blow out. My ears pop a lot throughout the day, most
of the year, worse in peak allergy seasons.
I had a really bad cold the night of my titration. They debated sending
me home, but didn't. I was really sick, and I know now that I shouldn't
have stayed. I had all hypopneas, , sleep efficiency of
94%, and 97.5% of the night, my oxygen was over 90%. Yet my
one hour of REM sleep was awful, apparently, and I had 44 hypopneas in
that one hour! So, that really bad hour made my whole study look bad.
So, I end up with a "blow your panties off" setting of 16, which makes no
sense, because I have a copy of the titration chart, and 15 was as high
as they experimented with!
This pressure of 16 is WAY too intense, and because of my problems with
my ears, I am just not going to take the risk until I see an ENT.
I don't have a lot of severe symptoms, just fatigue. I dream, I don't
ever get up to pee in the night, my husband says he has only occasionally
heard me snoring softly, no gasping, (Which I guess explains why I
showed all hypopneas, since those he wouldn't even hear)
With my problems so mild, except for REM, it seems that a variable machine
would be best for me, but I definately want to go the ENT route before
I do anything else.
Oh, and that first week with the mask, my mask (a full face Fisher/Paskal)
BURNED my face. I had a red ring of raised skin that actually scabbed
and peeled. There was no way to keep the thing on with drawing it fairly
I know that I am "on my own" in this. My sleep lab was awful, and the
DME that I was sent to told me that with a pressure "that high" I was
close to dying in my sleep. I had my 3 year old son with me at that
meeting. He also threw his head back and snorted, and said, "this machine
will stop all that." I couldn't believe it. I said "that's odd, I've been married
for seven years, I think my husband would have heard that by now."
I also sleep at my mother's house about once a week to help her with
my dad who has Alzheimer's. She said she's never heard anything like
that either, and I sleep on the couch out in the open when I'm there, at
different hours than her, so she definately would hear it.