Newbie would like to hear success stories, please.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Pat90
Posts: 1
Joined: Wed Nov 22, 2017 10:37 pm

Re: Newbie would like to hear success stories, please.

Post by Pat90 » Wed Nov 22, 2017 11:01 pm

I'm 27 years old and I was diagnosed with sleep apnea in July 2016. I started falling asleep at work and throughout the day. I would also feel like I was suffocating at night but I never thought anything of it. Then one hot summer day my feet started swelling up and hadn't gone down for a few days. That's when I got scared and went to the emergency room. The nurse saw me and checked my blood pressure as well as my CO2 and it was super high, she did it a few times to make sure it was right. After 3 times I was rushed to a room and started getting tests done. Since I was 26 this wasn't normal and they made sure to do all the tests. I won't go into all the details of that day but I was diagnosed with obstructive sleep apnea. I was assigned to a respiratory doctor who explained everything to me as well as a nurse who would come to my house to check up on me. It took me a few night and about 3 different masks to finally get comfortable with it. On top of my sleep apnea they found that since I have a small body frame that my heart beats a bit faster than regular. So I was assigned to a cardiologist and had to do more tests. My doctors told me that I will have a normal life but will have short of breath when I walk for a bit. But besides all that the CPAP has helped soo much and my doctors told me it saved my life. I had soo much CO2 in my body that I could have had a stroke or died.

But to this day the doctors still don't know how I got it and why I got it. I'm just happy they found a solution and it's helped tremendously.

raysgirl
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Joined: Tue Nov 28, 2017 8:43 pm

Re: Newbie would like to hear success stories, please.

Post by raysgirl » Tue Nov 28, 2017 10:31 pm

In the first month, I did not get that burst of energy, in fact 3 months in with new machine I still don't have a burst of energy. I started off sleeping my usual 6.5 hours. That has increased one hour each month. I am regularly achieving an average of 8 or more hours. Sometimes, they are not in a row, because I have an old ESA dog who has now reversed roles with me. I have to get up at night to put her out or I am punished by puddles. Since I prefer dry floors and furniture, I get up. But when we go back to bed, I sill get a total of 8-8.5 hours. Last nigh, I was sick and the machine registered 11.7 hours. But let me tell you the best part . I can drive confidently again without worrying about falling asleep behind the wheel. I don't even fall asleep on the sofa using the computer or watching TV, my favorite three places to nap. So no "burst" of energy, but way more energy, and no daytime sleepiness that used to dog my life. It was awful having my grandchild wake me up when I was supposed to watching her and I would nod off. This is a HUGE accomplishment for me. I also have pulmonary hypertension which has been linked to the apnea so I am hoping for an improvement there too, but I have not had any testing for that since being on a bi-pap machine which I love.

My sister won't even be tested and I know she has sleep apnea, maybe worse than me, and mine is pretty bad along with COPD (from second hand smoke, I have never been a smoker.) She drives long distances to visit us (352 miles each way) and stays for long weekends. She has had one accident a year or so ago hitting a cement wall and wrecking her car, admitting "I closed my eyes for just a second, I was so tired." Fortunately, neither she nor her two dogs were hurt, but there was a lot of broken glass. So far, those days seem to be behind me. I have been so blessed never to have had an accident asleep at the wheel, (and I should have, but I have had collisions where it is hard to gauge the effects of poor sleep) but for 10 or more years I have refused to leave my home town without another driver in the car to watch me and keep me awake. Those trips are really rare. I did recently (night before elections) drive 100 miles to meet someone with political material for Election Day and 100 miles back without even being tired let alone sleepy and that occurred late at night in a driving rain. I did have my son with me, and he could take over if necessary, but I am pleased to say it was not necessary.

I have a brother who I know uses a cpap machine as they had to bring it in for use in the ICU when he had major surgery for lower esophageal cancer which was successful treated with surgery with no treatment other than that surgery, but apparently has good results with his machine, too. There has been no evidence of the cancer with extensive testing after two years and he looks great.

Best of luck to you going forward. You will find more energy from a night of real sleep.

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eclecticmn
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Joined: Fri Jan 12, 2018 8:20 pm

Re: Newbie would like to hear success stories, please.

Post by eclecticmn » Fri Jan 12, 2018 9:04 pm

I was falling asleep at work. I was very tired. it was 8 years ago.
They woke me up about one hour into the sleep study and put a mask on me to determine the proper pressure.
They woke me up 5 hours later and kicked me out of the sleep center.
It was the best night's sleep I had had in many years.
The sky look bluer than it had before. My brain worked again. Less acid reflux. I love my machine.

When I read about a ferry crashing into a pier, a train crashing into a station, or a truck driver asleep at the wheel I think it might be OSA.

Mzdocb
Posts: 2
Joined: Mon Jan 15, 2018 2:39 pm

Re: Newbie would like to hear success stories, please.

Post by Mzdocb » Mon Jan 15, 2018 4:43 pm

I started seeing a psychiatrist who was double boarded in internal medicine and psychiatry for PTSD. I mentioned one day how late afternoon, at work or with my kids, I would get so angry, and despite going thru the steps I was taught in an anger management course, I could not control myself. She looked at me and said "Something is really wrong with you!" Thanks doc! Well what she then said was you need to be tested for sleep apnea. Which I did, was told it was mild but should try cpap. WITHIN 2 WEEKS I WAS A NEW PERSON! No losing it at work or with my kids. I realized the personality changes in me had been going on for about 8 years, and wished I was diagnosed sooner for the sake of my loved ones. She also tested my thyroid and a bunch of other things under the diagnosis of "Fatigue". Check with your doc there could be other issues. Plus, you don't know if treatment hasn't kept you from developing hypertension, heart attack etc. Also, try different masks, I went from the jumbo face triangle to the nasal pillow. Good luck!

nicholasjh1
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Re: Newbie would like to hear success stories, please.

Post by nicholasjh1 » Tue Jan 16, 2018 10:39 am

This is going to sound crazy, but I just met someone that I really like and after we slept in bed together and held each other each while sleeping during the night my machine says no apneas! (though I've been sleeping alone the last 2 nights, we haven't moved in). It could just be a crazy coincidence, but it feels good to have no apneas (still Cpap assisted).
Instead of Sleep apnea it should be called "Sleep deprivation starving of oxygen, being poisoned by high CO2 levels, damaging the body and brain while it's supposed to be healing so that you constantly get worse and can never get healthy Apnea"

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lucas7bm
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Re: Newbie would like to hear success stories, please.

Post by lucas7bm » Sun Jan 28, 2018 9:13 pm

nicholasjh1 wrote:This is going to sound crazy, but I just met someone that I really like and after we slept in bed together and held each other each while sleeping during the night my machine says no apneas! (though I've been sleeping alone the last 2 nights, we haven't moved in). It could just be a crazy coincidence, but it feels good to have no apneas (still Cpap assisted).


Are you trying to say that this person was the reason your whole body and mind worked better? That love helped you to achieve a higher state of perfection?
It's 1:10am here and after reading this I'm having this awkward feeling that I sometimes have when I need to write a song. Thank you.
"Act as if the maxims of your action were to become through your will a universal law of nature." (KANT, Immanuel)

tlohse
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Re: Newbie would like to hear success stories, please.

Post by tlohse » Sat Feb 10, 2018 9:17 pm

Just keep doing it. I’ve been on cpap non stop since 2013 and doing great. It gets better the more you use it each night.

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Additional Comments: First became a cpapper June 11, 2013 pressure setting 10cmH20. DX: Severe Sleep Apnea with Hypersomnia. REF# 450P
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