At the end
- chunkyfrog
- Posts: 34397
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: At the end
Slarty, you are so wise. I agree that Grumpy may need to see the doc again.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
- Slartybartfast
- Posts: 1633
- Joined: Wed Sep 01, 2010 12:34 pm
Re: At the end
Will you PLEASE tell my kids?chunkyfrog wrote:Slarty, you are so wise. I agree that Grumpy may need to see the doc again.
Re: At the end
Are you monitoring your therapy with software?phx1hab wrote:I have been on APAP faithfully for several months. Averaging 7 hrs of therapy a night and my AHI below 2. Every post I put up everyone says I'm doing great but I'm so much tired than I was before starting and my wife says that I'm more out of it than before. I think this will be my last night since I haven't seen the great benefit from therapy. I had hoped for a better outcome. She can't anymore of the grumpiness
What are your leakage numbers like? Could you be leaking therapy air out your mouth? (Your profile shows a nasal mask.)
Too much leakage can nullify your therapy and make the "numbers" (AHI, etc.) meaningless.
.
- Journeyman
- Posts: 43
- Joined: Wed May 16, 2012 5:59 pm
- Location: Michigan
Re: At the end
Time to go see the Doc. I wonder if we took a poll ??? Bet you know the answer to that. It could be a combination of things causing your symptoms. Would quitting pap add or subtract from the possible list? Just thinking....
_________________
Mask: Mirage™ FX Nasal CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Climateline hose, also Mirage Quattro Full Face Mask with Headgear, Swift FX Bella Gray |
- pickuptruck
- Posts: 37
- Joined: Wed Dec 29, 2010 9:57 pm
Re: At the end
Everyone must remember that cpap treatment does not make you sleep well. It only allows you to sleep well. Other conditions must be treated as well.
-
- Posts: 124
- Joined: Fri Oct 12, 2012 1:58 pm
- Location: Massachusetts
Re: At the end
I have Hashimotos Thyroiditis which is autoimmune hypo, have had it for20 yrs. Fibromyalgia dx'd in 2006 but certainly had it a lot longer. I've seen forums and read books that have told me that if my hypothyroidism was treated this way or that that fibromyalgia symptoms would go away. I have read books and been on forums that said that fibro was not real but rather a symptom of things like thydoid disease or sleep disorders. I have read that people with fibro have messed up sleep cycles Anderson that is the cause. I have tried CPAP twice before but didn't stick with it. I was told by many drs. That sleep apneaa was the pdoblem. It was pushed and pushed and that made me feel like I had no other options. Last year I lost 50 lbs. That didn't help. So I had another sleep study at the urging of my PCP. So it is categorized as mild on the cusp of moderate with an ahi of 14.Slartybartfast wrote:Will Rogers once said, "It don't take all kinds, but we get 'em."
Don't sweat it. There are often people who come on here basically saying CPAP's for the birds and they give it a half hearted try and bail at the first opportunity. But that's not you. You've stuck with it. Your numbers prove that it's not the apnea. So stay with it, but look further for your explanation. Could be low thyroid, low testosterone, one of those poorly understood malidies like fibromyalgia, or something else. The important thing is not to be passive about it. Get back to your doc and say, "this isn't it. What's next?" And if your doc puts you off with some platitude, then find one who will listen. There are a lot of people like you who give CPAP a try and find to their dismay that that wasn't "it," whatever "it" was.
Keep looking for an answer. Make your doc' earn that new Mercedes.
The truth is out there. [Cue in the theme from The X-Files]
I have been tolerating if pretty well. 7+ hours per night for 3 months. Finally got a good mask & ahi consistently 1 or below. At worst seen 1.8 in past month. Drs. Don' t know what to do with me and they really don't seem to care. Their job is done. I comply & have an excellent AHI. I'm sick of doctors and have spent so much time at diiferent specialists it's ridiculous and at my wits end. I've taken so many vitamins & supplements trying to feel better. I don't know what else I can do. I just want to give up sometimes.
Re: At the end
Well said. CPAP therapy may lay the foundation for decent sleep (keeping the O2 up, and not waking up often due to gasping for breath) but now perhaps there are other things that need attention.pickuptruck wrote:Everyone must remember that cpap treatment does not make you sleep well. It only allows you to sleep well. Other conditions must be treated as well.
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Zeo Bedside, CMS-50E Pulse Oximeter |
-
- Posts: 124
- Joined: Fri Oct 12, 2012 1:58 pm
- Location: Massachusetts
Re: At the end
Do you think it's because the wakes us up from deep sleep sometimes? I've thought maybe....Guest wrote:Set your alarm to wake you up after 5 of 6 hours or go back to sleep till you have 9 hours. I don't know why but if I only get 5 or 6 hours I feel great?? Anymore than that and I feel like sh**?? I've heard other feel this way too.
Are you sleeping all the way through the night or do you wake up from leaks and irritation ?
You can give up if you want but don't stop looking into other treatments.
Good Luck!
Re: At the end
Have you used a Digital Finger Pulse Oximeter to see what your oxygen levels are doing during the night. If it's dropping lower than it should be. Maybe you need supplemental oxygen at night while you sleep. Just a thought.
_________________
Machine: ResMed AirCurve 10 ASV Machine with Heated Humidifier |
Mask: Evora Full Face Mask - Fitpack |
Additional Comments: AirCurve 10 ASV, Oscar V1.0.1-r-1 |
US Navy Retired 1973,AirCurve 10 ASV, Mode: ASV Auto, Min EPAP: 7.2, Max EPAP: 15.0, Min PS:4.0, Max PS: 15.0, Mask ResMed Airtouch F20, Backup: (2) AirCurve 10 ASV
Re: At the end
Jen4700 has left the building....(someone deleted her post)
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: Fisher & Paykel Vitera Full Face Mask with Headgear (S, M, or L Cushion) |
Additional Comments: Back up is S9 Autoset...... |
Last edited by LSAT on Fri Dec 07, 2012 11:39 am, edited 2 times in total.
- Slartybartfast
- Posts: 1633
- Joined: Wed Sep 01, 2010 12:34 pm
Re: At the end
Ready . . . SHOOT . . . Aim.LSAT wrote:Jen4700 has left the building....(deleted her post)
Re: At the end
I could have written Snorkelpuss' post--I could have put it in a yellow box if I were more clever-- but ,hey
I'm newish; I am a retired hospice nurse and have been with a lot of families as they said forever good-by--; I'm planning on staying (on BiPAP) 'til I'm oldish-- don't care if my husband thinks I'm grumpy or not-- he's grumpy sometimes. Be peaceful.
Lynda
I'm newish; I am a retired hospice nurse and have been with a lot of families as they said forever good-by--; I'm planning on staying (on BiPAP) 'til I'm oldish-- don't care if my husband thinks I'm grumpy or not-- he's grumpy sometimes. Be peaceful.
Lynda
Alas, it's too late to be homecoming queen.
Re: At the end
I didn't know one member could delete someone else's post. How do I do that?
_________________
Mask: SleepWeaver Elan™ Soft Cloth Nasal CPAP Mask - Starter Kit |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: CPAP start date 4/20/12. BiLevel 12/8. SleepyHead for Mac. http://sourceforge.net/projects/sleepyhead/ |
ResMed S9 Settings Video http://vimeo.com/18804483
RobySue's Blog - http://adventures-in-hosehead-land.blogspot.com/p/taming-cpap-induced-insomnia-monster_19.html
Janknitz's Blog - http://adventures-in-hosehead-land.blogspot.com/
RobySue's Blog - http://adventures-in-hosehead-land.blogspot.com/p/taming-cpap-induced-insomnia-monster_19.html
Janknitz's Blog - http://adventures-in-hosehead-land.blogspot.com/
Re: At the end
You reported my post as spam just because you didn't like what I said? LSAT are you a moderator? What forum rule did I break?
I'm not going to defend what I said because I don't feel like I have to. It was my opinion. BTW all we have is our opinion on this forum.
I'm not going to defend what I said because I don't feel like I have to. It was my opinion. BTW all we have is our opinion on this forum.
_________________
Mask: SleepWeaver Elan™ Soft Cloth Nasal CPAP Mask - Starter Kit |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: CPAP start date 4/20/12. BiLevel 12/8. SleepyHead for Mac. http://sourceforge.net/projects/sleepyhead/ |
ResMed S9 Settings Video http://vimeo.com/18804483
RobySue's Blog - http://adventures-in-hosehead-land.blogspot.com/p/taming-cpap-induced-insomnia-monster_19.html
Janknitz's Blog - http://adventures-in-hosehead-land.blogspot.com/
RobySue's Blog - http://adventures-in-hosehead-land.blogspot.com/p/taming-cpap-induced-insomnia-monster_19.html
Janknitz's Blog - http://adventures-in-hosehead-land.blogspot.com/
Re: At the end
This has happened to my posts both in the near present and past and is rather disturbing. I can definitely relate to what you're feeling.jen4700 wrote:You reported my post as spam just because you didn't like what I said? LSAT are you a moderator? What forum rule did I break?
I'm not going to defend what I said because I don't feel like I have to. It was my opinion. BTW all we have is our opinion on this forum.
_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Additional Comments: SleepyHead & Encore Basic Software & a Zeo |
.....................................................Press ESC if the animations BUG you!.....................................................