General Discussion on any topic relating to CPAP and/or Sleep Apnea.
-
SimSportPlyr
- Posts: 16
- Joined: Sat Aug 18, 2012 6:13 pm
- Location: Sacramento, CA
Post
by SimSportPlyr » Sat Oct 13, 2012 4:26 pm
Xney wrote:You definitely want to get copies of your sleep studies.
Xney, absolutely!
Thx.
-
SimSportPlyr
- Posts: 16
- Joined: Sat Aug 18, 2012 6:13 pm
- Location: Sacramento, CA
Post
by SimSportPlyr » Fri Oct 26, 2012 8:46 am
There have been a lot of glitches over the past couple weeks (my MDs Rx [from sleep study #2] languished for a long time on someone's desk at the Med Equip Co; Med Equip Co sent me an SD chip with the wrong settings), but I now (finally!) have had two nights when I've slept at least 2-3 hrs at home hooked up to cpap. Progress!
I have a question for the community: I've been keeping the cpap machine on the floor beside my bed, although that leaves me with rather little loose tubing to use when I move around and roll over.
I'm reluctant to place the cpap machine on a bed-level table, because I'm afraid it will end up crashing onto the floor.
Where do you folks locate the machine?
Thanks for any tips.
-
Bon Bon
- Posts: 164
- Joined: Fri Sep 28, 2012 9:03 am
Post
by Bon Bon » Fri Oct 26, 2012 9:34 am
SimSportPlyr wrote:There have been a lot of glitches over the past couple weeks (my MDs Rx [from sleep study #2] languished for a long time on someone's desk at the Med Equip Co; Med Equip Co sent me an SD chip with the wrong settings), but I now (finally!) have had two nights when I've slept at least 2-3 hrs at home hooked up to cpap. Progress!
I have a question for the community: I've been keeping the cpap machine on the floor beside my bed, although that leaves me with rather little loose tubing to use when I move around and roll over.
I'm reluctant to place the cpap machine on a bed-level table, because I'm afraid it will end up crashing onto the floor.
Where do you folks locate the machine?
Thanks for any tips.
I have mine on the nightstand next to my side of the bed. It's blocked in on one side by the headboard, one side by the wall and the other sides by an alarm clock, lamp, etc. Otherwise I'd also be concerned about it falling off. I've read on here where some members keep theirs in a nightstand drawer, carefully protecting the hose from damage of course.
Have you seen this?
https://www.cpap.com/productpage/cpap-b ... older.html
Good luck!
-
SimSportPlyr
- Posts: 16
- Joined: Sat Aug 18, 2012 6:13 pm
- Location: Sacramento, CA
Post
by SimSportPlyr » Fri Oct 26, 2012 10:51 am
Bon bon, no, I was unaware of cpap bedside holders, but thanks very much for the link because that looks like a wonderful solution!
-
2 B Sleeping Soundly
- Posts: 822
- Joined: Sat Nov 05, 2011 2:24 pm
- Location: Southern California
Post
by 2 B Sleeping Soundly » Fri Oct 26, 2012 11:44 am
SimSportPlyr wrote:I have a question for the community: I've been keeping the cpap machine on the floor beside my bed, although that leaves me with rather little loose tubing to use when I move around and roll over.
I'm reluctant to place the cpap machine on a bed-level table, because I'm afraid it will end up crashing onto the floor.
Where do you folks locate the machine?
Thanks for any tips.
Just like Bon Bon, I keep mine on a nightstand next to the bed. I have added a couple of pieces of exercise mat material, cut slightly bigger than the PAP machine/humidifier to do a little sound insulating and also to keep the PAP machine/humidifier from sliding off (it stays put like it is glued to the nightstand ). One thing to try is to get more tubing length is to get a small extension hose to add onto the end of your 6 ft heated hose to make it a little longer. Here's a 24" hose that I use to make the 6 ft hoses from my DME 8 ft (they wont send me 8 ft hoses...<sigh>)
https://www.cpap.com/productpage/24-inc ... -ends.html and the connector I use to join the two hoses together to make a 8ft hose
https://www.cpap.com/productpage/univer ... ector.html. With the added 2 ft I find I can move around all I want and never have to worry about pulling the machine/humidifier off of the nightstand again (a story for another day ).
Hope you continue to improve and get the success that you want in your therapy!
John
One time a cop pulled me over for running a stop sign. He said, "Didn't you see the stop sign?" I said, "Yeah, but I don't believe everything I read." -- Steven Wright
-
Julie
- Posts: 19908
- Joined: Tue Feb 28, 2006 12:58 pm
Post
by Julie » Fri Oct 26, 2012 12:17 pm
You should do a forum search for a Hose Buddy - it's a thin 'stand' (similar to that used for IV bags) that hold the hose up and away - they just about all swivel of course - so you don't have to worry about pulling the machine down, but you can also rig an attachment to your headboard (or a wall hook, etc.) for the hose so it goes up and over your head (wouldn't need to be that long) and achieves the same purpose.
-
SimSportPlyr
- Posts: 16
- Joined: Sat Aug 18, 2012 6:13 pm
- Location: Sacramento, CA
Post
by SimSportPlyr » Fri Oct 26, 2012 12:18 pm
Hose Buddy sounds very useful! Yet another accessory I was unaware of.
Thanks for the suggestion.
-
jen4700
- Posts: 410
- Joined: Thu Mar 29, 2012 8:16 pm
- Location: New Mexico, USA
Post
by jen4700 » Fri Oct 26, 2012 12:45 pm
SimSportPlyr wrote:Here's an update.
I called my CPAP supplier today and explained that I'm having difficulty getting comfortable with the machine.
The person I spoke with happens to be the boss of the tech who set me up with the machine.
He suggested that I try meditation; that the shortness of breath could be due to panic or anxiety related to the mask, even though I don't feel panic or anxiety.
He also suggested that I turn off C-Flex.
He said that I am prescribed for a set pressure, and that he can't authorize me to change the pressure setting.
He also said that the compliance rate of his patients is 80%.
He's full of it. I very much doubt that with an attitude like that he has an 80% compliance rate. I think Pugsy has sent you info about how to adjust your pressure. Take control of your therapy.
I think you're asking all the right questions and - with time - you will find a therapy that is effective for you and you WILL feel better. Hang in there!
-
deerhound
- Posts: 386
- Joined: Sat Oct 18, 2008 6:15 am
- Location: Corrales, NM
Post
by deerhound » Fri Oct 26, 2012 1:35 pm
I just had a new baseline sleep test done last night. No CPAP machine. Only the 2nd time in 4 years I have slept without my machine and the 1st time in a bed, not a recliner. I don't have the other results yet , but the Tech said I had an AHI of 155.7. That is 156 events an hour. I kept waking up not breathing and I could feel my heart racing. Not much sleep. When I am using my BiPap machine, my AHI is always below 2, and normally below 1. Going from 156 events an hour to less than 1 is very effective treatment. I wouldn't dream of not using my machine except in very exceptional circumstances. Good luck and follow Pugsy's suggestions, she knows a lot.
Dale
AHI:
Untreated 156
Treated 1.1
-
SimSportPlyr
- Posts: 16
- Joined: Sat Aug 18, 2012 6:13 pm
- Location: Sacramento, CA
Post
by SimSportPlyr » Fri Oct 26, 2012 3:05 pm
Following up on my earlier comments about initially feeling a 'lack of oxygen'.
Both during my 2nd sleep lab and for the two nights I have since used cpap, I have not had the 'lack of oxygen' feeling. There are two 'before' and 'after' differences: i. I have stopped using the humidifier; and i. I have switched to a different Mirage FX masks (from a 'loaner' to a 'non loaner'). So, apparently, either the humidification was causing the 'lack of oxygen' feeling or there was something do to with the loaner Mirage FX mask.
Regarding the pressure level, both during the 2nd sleep study and now at night I was using a pressure of 5 CM H20. Previously, it was set to 'auto 6' (that is, the machine would adjust upward from 6 CM H20, if it detected apnea). So, apparently, the lack of oxygen was not due to a too-low pressure in my case.
'2 B Sleeping Soundly', thanks for your comments and suggestions. I'm learning a lot from you folks!