12 years on cpap and it's time to move on.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Cereal Killer
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Re: 12 years on cpap and it's time to move on.

Post by Cereal Killer » Tue Feb 21, 2012 3:13 pm

corky wrote:I did.
What was your pressure setting? What was your AHI? What was your leak rate? What were your average hours of compliance per day?

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Kilgore Trout
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Re: 12 years on cpap and it's time to move on.

Post by Kilgore Trout » Tue Feb 21, 2012 3:48 pm

I just checked out their animation, studies, and looked around the site. One big thing jumped out at me: This is for tongue-based OAs only.

RERAs, CAs, and hypopneas aren't addressed. Also, if your obstructions are caused by any other means, let's say a larger then necessary uvula, this isn't useful. The lack of data capture is a little disturbing too... how do you know it's working? Is it curing your 3 OAs per night, but not the 7 CAs or 80 hypopneas? It looks like a nice idea, but it seems like you'd have to be a perfect case for this to be an improvement.

I looked into the studies, and the Hopkins study (yay Baltimore!) is available for free (http://archotol.ama-assn.org/cgi/conten ... 27/10/1216). In short, it says that 8 (very low number for a study, I'll get to that) patients were selected who had mostly OAs, and their OAs were determined to be majorly tongue-based. The candidate screening seems to rule out a lot of us. To super-summarize the results, this therapy cut their AHIs in half, on average.

That's a big consideration when you think of your treated vs. untreated AHI with CPAP. My AHI went from 29 to 0.4 (average night) with CPAP, and for a lot of us, that's a common ratio.

Anyway, this study is included is a slightly larger meta-analysis, which is also available for free. But, the sample sizes of 8 for this study, and 5 more for the meta, are enough to suggest further studies, but it's too low to say this is ready for production. It's good to know that studies to duplicate the results are taking place, but IMHO, this doesn't seem like "enough" therapy.

corky
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Re: 12 years on cpap and it's time to move on.

Post by corky » Tue Feb 21, 2012 3:49 pm

Can not remember. Sorry

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Cereal Killer
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Re: 12 years on cpap and it's time to move on.

Post by Cereal Killer » Tue Feb 21, 2012 3:57 pm

corky wrote:Can not remember. Sorry
That is not the kind of thing that happens to someone who has been using CPAP for 12 years, uses the software, and is committed to a good CPAP therapy.

Your story is suspicious to me.
12 years on cpap and it's time to move on.
Maybe you never really arrived in CPAP land, so you are not really moving out.

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corky
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Re: 12 years on cpap and it's time to move on.

Post by corky » Tue Feb 21, 2012 4:05 pm

Would you like to go with me? I've got a Dr's app. @ 10:50 tomorrow morning? Maybe he could break it down for ya.?

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Re: 12 years on cpap and it's time to move on.

Post by blakepro » Tue Feb 21, 2012 4:06 pm

Cereal Killer wrote:
corky wrote:Can not remember. Sorry
That is not the kind of thing that happens to someone who has been using CPAP for 12 years, uses the software, and is committed to a good CPAP therapy.

Your story is suspicious to me.
12 years on cpap and it's time to move on.
Maybe you never really arrived in CPAP land, so you are not really moving out.
Corky is being incredibly vague and just posting various links about it. I would love to learn more about this and see pictures and hear all about the process and their back story, but as it stands now, this whole thing seems incredibly fake to me.

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Re: 12 years on cpap and it's time to move on.

Post by corky » Tue Feb 21, 2012 4:07 pm

Seems like C killer is a hater. Don't be a hater!

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Re: 12 years on cpap and it's time to move on.

Post by Kilgore Trout » Tue Feb 21, 2012 4:24 pm

corky wrote:Seems like C killer is a hater. Don't be a hater!
A hater who makes a solid point.

HOWEVER, since this is just in the realm of medical studies and nobody can buy the darn thing yet, it's pretty harmless if she's right and you're just doing some ineffective marketing. Unfortunately, a clamoring public can get financial backing faster than research, and this research has been under way (in various forms) for a decade.

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Re: 12 years on cpap and it's time to move on.

Post by Cereal Killer » Tue Feb 21, 2012 6:12 pm

corky wrote:Seems like C killer is a hater. Don't be a hater!
Godwin needs to add "hater" to his law.

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Re: 12 years on cpap and it's time to move on.

Post by Lizistired » Tue Feb 21, 2012 6:48 pm

Kilgore Trout wrote:
corky wrote:Seems like C killer is a hater. Don't be a hater!
A hater who makes a solid point.

HOWEVER, since this is just in the realm of medical studies and nobody can buy the darn thing yet, it's pretty harmless if she's right and you're just doing some ineffective marketing. Unfortunately, a clamoring public can get financial backing faster than research, and this research has been under way (in various forms) for a decade.
Or if she is just a troll....

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Re: 12 years on cpap and it's time to move on.

Post by BlackSpinner » Tue Feb 21, 2012 8:10 pm

corky wrote:Can not remember. Sorry
Well just download your data and post it.

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Re: 12 years on cpap and it's time to move on.

Post by Jason7 » Tue Feb 21, 2012 9:34 pm

As all trials need to be registered now, I found this one at clinicaltrials.gov:
http://www.clinicaltrials.gov/ct2/show/ ... k=118#locn

For the poster who was asking who the doc in Charleston in, that can also be found at the above link -- Principal Investigator: M. Boyd Gillespie, MD.

Amazingly, there are almost 800 clinical studies with the word "apnea" in the title upon a search at clinicaltrials.gov, some still recruiting, some completed.

Jason

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Re: 12 years on cpap and it's time to move on.

Post by corky » Tue Feb 21, 2012 11:57 pm

All is well

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Re: 12 years on cpap and it's time to move on.

Post by corky » Wed Feb 22, 2012 12:41 am

I have a 10:50 am app with my Dr in the morning. Fill y'all in after lunch. Night.

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Re: 12 years on cpap and it's time to move on.

Post by debtheveg » Wed Feb 22, 2012 5:32 am

Why is everyone so damn suspicious about this??? Don't bother answering, I don't actually care. Corky, please keep those of us interested, posted about your progress ... hope it goes really well for you.