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General Discussion on any topic relating to CPAP and/or Sleep Apnea.
back2collegemama
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby back2collegemama on Thu Apr 18, 2013 12:52 am

Hello, I am a new user and I wanted to read your article about coping with change but I cannot access it. Could you please help me? Thank you

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idamtnboy
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby idamtnboy on Thu Apr 18, 2013 8:05 am

back2collegemama wrote:Hello, I am a new user and I wanted to read your article about coping with change but I cannot access it. Could you please help me? Thank you

There seems to be a problem with the CableOne server. I'll check into it later today when I have time. Thanks.

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Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Hose management - rubber band tied to casement window crank handle! Hey, it works! S/W is 3.13, not 3.7

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idamtnboy
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby idamtnboy on Thu Apr 18, 2013 10:11 pm

idamtnboy wrote:
back2collegemama wrote:Hello, I am a new user and I wanted to read your article about coping with change but I cannot access it. Could you please help me? Thank you

There seems to be a problem with the CableOne server. I'll check into it later today when I have time. Thanks.

It looks like CableOne has discontinued their personal web pages, without notice to users to boot! :x

I'll have to figure what to do about file hosting and then will update the links when I get it hosted again.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Hose management - rubber band tied to casement window crank handle! Hey, it works! S/W is 3.13, not 3.7

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idamtnboy
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby idamtnboy on Fri Apr 19, 2013 5:43 pm

idamtnboy wrote:
idamtnboy wrote:
back2collegemama wrote:Hello, I am a new user and I wanted to read your article about coping with change but I cannot access it. Could you please help me? Thank you

There seems to be a problem with the CableOne server. I'll check into it later today when I have time. Thanks.

It looks like CableOne has discontinued their personal web pages, without notice to users to boot! :x

I'll have to figure what to do about file hosting and then will update the links when I get it hosted again.

The file has been relocated to another server and the link has been updated.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Hose management - rubber band tied to casement window crank handle! Hey, it works! S/W is 3.13, not 3.7

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idamtnboy
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby idamtnboy on Fri Apr 19, 2013 5:49 pm

back2collegemama wrote:Hello, I am a new user and I wanted to read your article about coping with change but I cannot access it. Could you please help me? Thank you

It's fixed now. I sent you a link in a private message, and the link that was broken now works.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Hose management - rubber band tied to casement window crank handle! Hey, it works! S/W is 3.13, not 3.7

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slickwil
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby slickwil on Mon Apr 22, 2013 1:50 pm

I finally got a call from my sleep center to come and get my machine this Friday. Does anybody have any suggestions on what
questions I should ask them? I had my sleep test a couple of months ago and have been waiting since then to get this started. I was told my ahi was 68.2. I am really hoping the cpap helps me.

Thanks

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idamtnboy
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby idamtnboy on Mon Apr 22, 2013 2:11 pm

slickwil wrote:I finally got a call from my sleep center to come and get my machine this Friday. Does anybody have any suggestions on what
questions I should ask them?

Please create a new posting in the discussion forums for your question. You will receive more attention there. This topic has very limited participation and we are trying to keep it free of general discussions about CPAP issues to keep it from becoming bloated. Thank you.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Hose management - rubber band tied to casement window crank handle! Hey, it works! S/W is 3.13, not 3.7

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Suzannaor
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby Suzannaor on Sat May 18, 2013 2:26 pm

Thank you for this well written article. I have copied it to save in my C-PAP folder. I am newly diagnosed and still haven't reach the acceptance stage. Glad to know there is hope.

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loopylooloo
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby loopylooloo on Mon Jun 17, 2013 4:18 pm

I haven't reached acceptance either. I want to know why God can't heal us? What lesson is it necessary for me to learn. I've learned a lot of them lately and quite frankly I've had enough.

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mgaggie
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby mgaggie on Mon Jun 24, 2013 11:47 pm

I'm almost 4 months of cpap therapy. I've always accepted the fact that I needed a cpap machine. My problem is that I had very high expectations eg; I would be able to keep the machine on all night every night, I would have huge amounts of energy etc. It hasn't turned out that way.

HoseCrusher
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby HoseCrusher on Tue Jun 25, 2013 4:52 pm

maggie, While you have high expectations, they are not unrealistic.

Remember that each journey begins with a single step. Many times we get caught up in figuring out how to conquer the obstacles ahead that we forget to stop and sit down and rest for awhile and look back to see how far we have come.




OK, rest period is over and to borrow a famous line "Up, UP, and Away." :)

Remember that we are here to support you in any way that we can. Most of us will trying and offering new ideas until you finally experience success.

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Mask: Nuance & Nuance Pro Nasal Pillow CPAP Mask with Gel Nasal Pillows
Humidifier: HumidAire H4i™ Heated Humidifier
Additional Comments: Retired my Swift FX
Machine is an S8 Autoset II. SpO2 96+% and holding...

mgaggie
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby mgaggie on Wed Jun 26, 2013 2:20 am

HoseCrusher wrote:maggie, While you have high expectations, they are not unrealistic.

Remember that each journey begins with a single step. Many times we get caught up in figuring out how to conquer the obstacles ahead that we forget to stop and sit down and rest for awhile and look back to see how far we have come.


OK, rest period is over and to borrow a famous line "Up, UP, and Away." :)

Remember that we are here to support you in any way that we can. Most of us will trying and offering new ideas until you finally experience success.


Thankyou HoseCrusher. 99.9% of people I've come across here have been fantastic and I've appreciated all the advice and suggestions I've been given. Success will happen, it will just take a little time :D .

trevor1
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby trevor1 on Mon Jul 08, 2013 8:47 am

Hi,

I haven't been diagnosed but it's obvious to me that I've got it. Tired all the time, waking up many times in the night. Sometimes I remember gasping after a blocked throat and sometimes not, sometimes find myself panting for a while to get oxygen back into the system. Wife always complains about my snoring and others have asked if I have sleep apnea in the past.

Anyway don't have the time or inclination to mess around with a sleep study, hospitals, doctors etc So have ordered an APAP system to give it a go. Should be able to work it out myself I'd guess. Thanks for all the good info on here. :)

keepsmyelin
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby keepsmyelin on Thu Jul 25, 2013 9:22 am

I'm a newbie and think your forum is one of the best medical forums I've visited. I have MS, and have frequented neurological boards for years, but after I was diagnosed with apnea I decided to look for a forum about the CPAP and Mr. Google directed me here. I received my CPAP yesterday and I had no problems using it last night. I sort of expected that because my sleep lab experience with the CPAP went well also. The interesting thing for me was reading the Dr.''s reports that came with the paperwork on the machine...again I used google to determine what was being reported. I was experiencing no REM and my O2 level was 84% in the original study, so I figure I've got nowhere to go but up :D (REM increased to 10% and O2 to 90% in the sleep lab with the CPAP.)

As to acceptance, the good thing about having MS is that stages of grief resulting in acceptance is a process we go through on a regular basis. Progressive diseases progress, and a new normal is constantly being redefined. I am actually looking forward to using the machine to see if it can improve my QOL. I had no idea I had a problem with sleep, so even though the diagnosis was rather unexpected, I'm anticipating good things from using this tool to improve my health.

Now to find this forum and know I can get answers and opinions from others is just "icing on the cake." Thanks to all who take the time to participate.

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Re: Especially for newly diagnosed - Dealing with Change

Postby Guest on Sat Jul 27, 2013 12:28 pm

Hello,

I want to thank you for your beautiful and inspiring essay on adjusting to change. I am new to the CPAP world and am looking for answers or just encouragement to stick with it. It has been difficult but I am willing to do what I need to do.


Thanks again,

Carole

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