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General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Mr Nifty
 
Posts: 37
Joined: Sun Jan 17, 2016 9:50 am
Gender: Male

Re: Especially for newly diagnosed - Dealing with Change

Postby Mr Nifty on Sun Jan 17, 2016 9:59 am

New to forum. Been using a BiPap since Wednesday.
Sleeping better since 01/13/2016
Masks I have tried
AirFit F10-FFM, AirFit N10-Nasal, Mirage Liberty-Hybrid FFM, Mirage Quattro-FFM, Swift FX Nano-Pillow, Mirage Activa LT-Nasal, ComfortGel Blue-FFM, Amara View -FFM, Pilairo Q -Pillow, Dreamwear -Nasal

KimDave
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby KimDave on Wed Feb 03, 2016 2:51 pm

Mr Nifty wrote:New to forum. Been using a BiPap since Wednesday.



How are you adjusting? I don't have my machine yet. I am 49 tiny female who is a fitness instructor but have been told my mouth etc are too small and that is what is causing my issues. (Nobody can tell me I have a big mouth I have doctors who can prove I don't haha) Anyway I go next Tuesday for my first night at the clinic with the machine. I am not sure what happens after that - receptionist said it will take another 2-3 weeks for results to be read and my follow up done. So I don't know how long I have to wait till I get a machine. Doctor said he will write a script for one but not sure when he will do that - after consult in a few weeks probably. I am excited to feel better during the day - so tired - hard to work somedays I just drag by evening. or sleep during day as much as I can. I hope this helps as I have felt this way for years but never thought I could have apnea till my boyfriend told me I struggle to breathe at night. Had my first test in early January and just got results yesterday (takes so long it seems here in Ontario Canada) So I am looking forward to the test on Tuesday now to see how it goes.

I Walk With You
 

Re: Especially for newly diagnosed - Dealing with Change

Postby I Walk With You on Thu Feb 04, 2016 2:21 am

I found out today I have severe sleep apnea and will have to go on the machine for the rest of my life. Actually reading through the forum made me feel a little worse. I am sleep walking through life, can't hold a job, suffering from PTSD from a shooting I was injured in 2 years ago. I am never rested and have insomnia. I went from an athletic 220 pounds to my present weight of 258. I put on 8 pounds in the last two weeks. Never have energy. Not really much of a life. I've decided tonight--not asleep of course after taking two sleeping pills-to give myself a year. I can't stand the mask, have restless legs, PTSD and feel claustrophobic with the mask. I have to wear the full face one.
I'm going to give it a year and if my quality of life hasn't improved I'm going to opt out. Guess I wanted to write it down to reaffirm it.

AuctionGuy
 
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Joined: Thu Jan 28, 2016 6:57 am
Gender: Male

Re: Especially for newly diagnosed - Dealing with Change

Postby AuctionGuy on Thu Feb 04, 2016 6:33 am

Dear I Walk With You,

Do NOT give up.

There are many more Positive things in these forums than Negative.

I'm no expert on this CPAP stuff, I just started a couple of weeks ago. There are tons of people that have been at it for a long time, and will help you thru things. I've found many things in these forums to keep my hopeful that CPAP can someday become a useful, normal way of life for me.

Please, Please start a new forum (rather than stuck at the bottom of this older one), and ask your questions, or say what your problems (like feel claustrophobic) are, and you WILL get responses.

Also update your profile with your machine, mask, pressures - the stuff the gurus want/need to know to help.

- Jeff

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cancun
 
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Location: Martinsburg WV
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Re: Especially for newly diagnosed - Dealing with Change

Postby cancun on Mon Feb 08, 2016 1:23 am

I Walk With You wrote:I found out today I have severe sleep apnea and will have to go on the machine for the rest of my life. Actually reading through the forum made me feel a little worse. I am sleep walking through life, can't hold a job, suffering from PTSD from a shooting I was injured in 2 years ago. I am never rested and have insomnia. I went from an athletic 220 pounds to my present weight of 258. I put on 8 pounds in the last two weeks. Never have energy. Not really much of a life. I've decided tonight--not asleep of course after taking two sleeping pills-to give myself a year. I can't stand the mask, have restless legs, PTSD and feel claustrophobic with the mask. I have to wear the full face one.
I'm going to give it a year and if my quality of life hasn't improved I'm going to opt out. Guess I wanted to write it down to reaffirm it.


You have come to the right place to find support, pretty much all of us will be on the CPAP for the rest of our lives, sorry that reading made you feel worse, try reading the success stories to give you a little more positive feed back. It can take some time once you get your machine but you can feel rested and there are a lot of people on this forum that can help you thru it and have a lot of knowledge as they are going thru the same thing and have for a long time. Is there a specific reason you have to wear the full face mask? Some of the full face masks really aren't as claustrophobic as you might think. You might have to thru a few masks before you find the one that is right for you.

If you could re post this under Post a New Topic at the top of the forum you will get a lot more responses as this area is more informative than interactive.
Hang in there, the help is here.

_________________
Machine: AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier
Mask: AirFit™ F10 Full Face Mask with Headgear
Additional Comments: FlexiFit HC431 FFM with Headgear

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Becky at RemZzzs
 
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Joined: Wed Jun 20, 2012 3:15 pm
Location: Jackson, MI
Gender: Female

Re: Especially for newly diagnosed - Dealing with Change

Postby Becky at RemZzzs on Fri Feb 12, 2016 10:55 am

Hey everyone, I work at RemZzzs and we offer a totally FREE sample of our CPAP Mask Liners. The liners help with irritation, pressure marks and leaking. Just pm and I can send you a free sample! :D
Becky Bennett
RemZzzs Personal Customer Care Rep & Social Media Consultant
Naturs Design, Inc - the makers of RemZzzs

RemZzzs... Let yourself dream again
Prouldy Made in the USA

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K5MOW
 
Posts: 73
Joined: Mon Oct 04, 2010 9:50 am
Location: Friendswood TX
Gender: Male

Re: Especially for newly diagnosed - Dealing with Change

Postby K5MOW on Fri Feb 12, 2016 11:10 am

Becky at RemZzzs wrote:Hey everyone, I work at RemZzzs and we offer a totally FREE sample of our CPAP Mask Liners. The liners help with irritation, pressure marks and leaking. Just pm and I can send you a free sample! :D


I sent you a PM

Roger
Moderate to Severe Sleep Apnea

Airsense 10 Autoset

Mirage Quattro Full Face Mask

Roger

Snoopchic
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(Snoopchic)
 

Re: Especially for newly diagnosed - Dealing with Change

Postby Snoopchic on Sat Feb 27, 2016 2:42 pm

I have tried several times to open this, but it won't open? How do I read it!?!

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idamtnboy
 
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Location: Idaho
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Re: Especially for newly diagnosed - Dealing with Change

Postby idamtnboy on Tue Mar 01, 2016 8:28 pm

Snoopchic wrote:I have tried several times to open this, but it won't open? How do I read it!?!

It works when I checked it just now. What kind of error are you getting? It's an ordinary PDF file. When you click on the link it gives you the option to download. When you click on that it should download and open up in Adobe Reader.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Hose management - rubber band tied to casement window crank handle! Hey, it works! S/W is 3.13, not 3.7

nvanderhoeven
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby nvanderhoeven on Mon Mar 14, 2016 12:50 am

My story is a little different, because I don't have sleep apnea. My husband does. However I'm finding it really hard to deal with, whereas my husband seems pretty matter-of-fact about it and is more relieved at the prospect of better sleep.

The reason I'm finding this so difficult to digest is that my father died a few years ago from complications caused by sleep apnea. We had known for decades that he had sleep apnea, but none of us really realised how dangerous it could be. I lost a younger brother to a car accident that happened when my father fell asleep at the wheel despite having had 7 hours of sleep the night before. I'm putting this, and little things like seeing him fall asleep over dinner while growing up, together, and realising just how much of our entire family's lives have been negatively affected by sleep apnea.

When Dad died a few years ago, I became hypervigilant and told my husband I had seen him stop breathing in his sleep, too. He said that I was just imagining things because of my dad, and I believed him because I WAS extremely emotional at the time. Four years and a confirmed diagnosis of sleep apnea later and I'm kicking myself for not pushing to get my husband checked earlier. I'm afraid that I'll lose a third family member to this disease, and I can't help but think about the damage that has already been caused. Who knows how long he has been suffering from sleep apnea? It could have been decades, too.

I'm also frustrated because while I'm devouring all the information I can find, I have to push and prod my husband to do anything. He says he is committed to making the CPAP work, and to be fair to him I think he's doing what he can, but every time he removes the mask now because it's uncomfortable, I lie awake listening to him breathe. My quality of sleep has never been worse. I lie next to him thinking of settings I could tweak that might allow him to wear the mask longer, and there are a LOT of settings. I feel like I have sleep apnea too from how little I sleep.

Thanks for listening.
Machine: ResMed Air Sense 10 Autoset
Mask: ResMed AirFit P10 Nasal Pillow
Settings: Auto, 6-20 cmH20, auto temperature and humidity.
Diagnosed: March 10th, 2016

peridotjude
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby peridotjude on Wed Mar 30, 2016 3:05 pm

nvanderhoeven wrote:My story is a little different, because I don't have sleep apnea. My husband does............ I lie awake listening to him breathe. My quality of sleep has never been worse. I lie next to him thinking of settings I could tweak that might allow him to wear the mask longer, and there are a LOT of settings. I feel like I have sleep apnea too from how little I sleep. Thanks for listening.



My advice is only from a long-married and 60-something perspective; I am in no way a medical person. IMO you need to take care of yourself and let your husband be a grown up and take care of HIMself. I'm not telling you that you're wrong for caring about him, only that you need to be careful not to go down the tubes with him! This is true for all caregivers everywhere; they have to take care of themselves first, otherwise they'll have nothing to give to the ones they are trying to care for. So. I guess I'd start in two places-- first, I'd find a talk therapist I could be honest with, someone to listen and act as a sounding board. And second (and maybe this should be #1, actually), separate bedrooms; that lying awake listening to him not breathe is for the birds!! And serves nothing useful. Good luck.

Violet West
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby Violet West on Tue Apr 19, 2016 12:24 pm

I like this "dealing with change" idea. Change can be hard, but ultimately rewarding.

My biggest "dealing with change" annoyance is that I resent having to do a nighttime "routine." Always before when I was ready for bed, I just --- went to bed. Now, I have to top off my humidifier reservoir; wipe down my nasal pillows; take out my medications; take my medications; use some type of nasal irrigation (neti pot, saline spray, or Dymista). Doesn't sound like a lot, but it's a lot more than I did before -- never even washed my face before bedtime.

So, I'm irritated and resentful. But . . . I suppose that's the least of my worries.

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vader06
 
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Location: Grand Rapids, MI
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Re: Especially for newly diagnosed - Dealing with Change

Postby vader06 on Mon May 02, 2016 1:02 pm

I was just diagnosed with Sleep Apnea just last Friday. Now I am waiting to get my CPAP machine. I have always struggled with change always and that article was a great read that will help me out. Thank you.

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Fireblade69
 
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Location: DUBAI, UNITED ARAB EMIRATES
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Re: Especially for newly diagnosed - Dealing with Change

Postby Fireblade69 on Sat May 21, 2016 4:02 am

Hello all.

I have been struggling for a while and was diagnosed with high blood pressure, bronchitis, pneumonia and acid reflux to name a few and to top it off I could sleep almost anywhere (with the exception of when I'm driving). There didn't seem to be any progress but my internal medicine doctor sent me to a specialist after I had a CT scan to seek further assistance.

The doctor took one look at me and said... "You are not being treated for the underlying problem which I'm certain is sleep apnea and this is leading to your problems". Like many I'm sure, I had never heard of sleep apnea and had no idea what it was all about so my wife and I started to trawl the internet in the search of more information. In the meantime, however, a sleep study was carried out and yes, it confirmed that I was experiencing central apneas, obstructive apneas, mixed and hypopnea with the longest event lasting 60 seconds. Worse still the report identified that I was snoring for 41% of the duration, which confirmed my wife's worst nightmare. She'd been telling me for years but I told her it was in her head! :D

The specialist told me that I need a Dreamstation Auto BIPAP with humidifier which is going to set me back about AED 11,500 and I'm awaiting for this to be provided early next week but there are very limited options to distributors in the UAE, i.e. one! I've looked online and although there are a number of suppliers in the US, they do not ship to UAE because of licensing agreements and lack of what would be considered an acceptable prescription.

Having read other posts, there seems to be a light at the end of the tunnel and hopefully this new machine will give me a new lease of life.

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Bobbo
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby Bobbo on Tue May 24, 2016 2:35 pm

Hi!

New guy here. After months & months of tests and consultations, I finally was approved for a CPAP.

Started using it last Thursday.

I guess, after being on it for a few days, I thought, based on the doctors and the CPAP people, that I would be feeling great. I was always fatigued and would eat 24/7 for energy.

Now, I honestly think I'm more tired now than I was before. Nothing else has really changed. Was I expecting too much too soon? I'm trying to be optimistic, but I dunno...

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