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General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Noctuary
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby Noctuary on Fri Dec 26, 2014 4:14 am

I had no resistance to using the machine; I was desperate to be cured of chronic fatigue. Alas, its not that simple.

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echo_ohce
 

Re: Especially for newly diagnosed - Dealing with Change

Postby echo_ohce on Wed Dec 31, 2014 5:48 am

I am 56 and recently diagnosed with severe sleep apnea. I came online to see if watery eyes was a consequence of the machine, and was surprised but delighted to find a support group.

I'm kind of surprised though, that it is so difficult for some people to accept. Although I do look like Darth Vader at night, I am over joyed to be able to breathe easily and not fear dying in my sleep.

I actually have an APAP machine.

Delilah
 

Re: Especially for newly diagnosed - Dealing with Change

Postby Delilah on Thu Jan 15, 2015 3:48 pm

Thank you so much for this, I too, thought as soon as I lose weight that thing (Cpap mask) can come off. Big error. I got a great deal from your post and have posted a reply today. Didn't even think about the denial, anger think etcetera. It all starts to make sense now. I know there's a reason for the weight gain, irritability, tiredness and shortness of breath. I guess I have a partner, albeit a mechanical one, in bed with me for life now.

Johnny Bravo
 

ON CPAP FOR A WEEK WITH REFLUX, RHINITIS AND INSOMNIA

Postby Johnny Bravo on Thu Jan 29, 2015 1:00 pm

Hi:

I just found this forum and i found it awesome. I'm always wondering where i can find not only technical, but emotional support for my untreated sleep apnea. I feel shame writing this, but i'll give it a shot.

So after several years of being diagnosed with complex severe sleep apnea, and not using my cpap cause neither do i tolerate it nor it makes me sleep any better, I've come back to using it again out of desperation.

I've had all sorts of issues from leaks to mask too tight to feeling choked to finally finding i'm a full face mask user to not finding the right full face mask for me to not being able to fall asleep with it.

Now that i've come back to cpap and accepting i have to use it to save my life cause that's how bad and worse i am, i've managed to be able to use the mask, but i'm not sleeping any better with it. Maybe i've gone from feeling suicidal to not.

So, what do you do at this point? I've only gone for a week with cpap. Do i give it a long while like everyone says or do i go back to my doctor, or do i adjust the settings in the machine?

I have chronic acid reflux and an untreated stuffy nose (rhinitis, deviated septum, big turbinates. Doctors don't agree if i need surgery or not). I know these both need to be treated in order for cpap therapy to work, but with all i've done i just haven't been able to address these 2 issues. Oh and I also have terrible sleep delayed phase symptom. I have on a high dose of sleep aids every night.

It's been like that for years and now i'm just basically spending all day in bad. Not cause i don't wanna live, but because i feel so sleepy and mentally i feel it's hard to move when i wake up in the morning and it takes hours to get up from bed. I feel like i'm way past the point of looking for help with a psyquiatrist, but i haven't found one and i'm even too tired to go look for one. I don't have the emotional support from my family.

I use a RESMED VPAP ADAPT SV (servo). I don't remember the settings right now but i can post them later. It's not like i haven't done anything for my sleep apnea or help myself. I do sleep with an oral device (and cpap at the same time) that helps a little and i've looked for help here in my country and in the US both. I'm scheduled for MMA surgery later on this year.

So, what should i do at this point (sleeping with cpap for a week with reflux, rhinitis and sleep delayed phase syndrome)?

Thanks for any help and sorry for this depressing post.

John.

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Pugsy
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby Pugsy on Thu Jan 29, 2015 1:17 pm

Johnny Bravo wrote:I use a RESMED VPAP ADAPT SV (servo). I don't remember the settings right now but i can post them later. It's not like i haven't done anything for my sleep apnea or help myself. I do sleep with an oral device (and cpap at the same time) that helps a little and i've looked for help here in my country and in the US both. I'm scheduled for MMA surgery later on this year.

So, what should i do at this point (sleeping with cpap for a week with reflux, rhinitis and sleep delayed phase syndrome)?


Welcome to the forum.
This thread where you posted is mainly a read only thread and not much for interaction.
My suggestion is to copy what you posted here and create a new thread of your own so that you can get the attention that you need and your problems won't get lost in this thread.
Please take the time to register and post your equipment in your profile like I have mine.
Your listed machine is a machine designed especially for central sleep apnea and centrals are an entirely different beast to deal with so please don't just give up and not use the machine. Mouth guards and all that don't help with centrals where the airway is open.
Mouth guards do sometimes help with obstructive sleep apnea though.
So if centrals are a problem in your situation....let's try harder to make cpap work for you.

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Re: Especially for newly diagnosed - Dealing with Change

Postby Guest on Fri Mar 06, 2015 7:44 pm

It's been a couple months on the machine and it's getting worse each night. I wake up about 1-2 hours after falling asleep and usually my mask is off. I struggle with it throughout the night and can never seem to get comfortable so I can get a good nights sleep. I was using a Resmed S8 autoset and had constant rainout which caused dry skin around my nose (Respironics Wisp mask). I've been on my new Airsense 10 the past 2 nights and only got 4 hours usage total. I also bought a Quattro air FF with M and L cushion sizes as well as experimented with a L and XL cushion on my Wisp mask.

JV1967
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby JV1967 on Wed Mar 11, 2015 10:14 am

Delilah wrote:Thank you so much for this, I too, thought as soon as I lose weight that thing (Cpap mask) can come off. Big error. I got a great deal from your post and have posted a reply today. Didn't even think about the denial, anger think etcetera. It all starts to make sense now. I know there's a reason for the weight gain, irritability, tiredness and shortness of breath. I guess I have a partner, albeit a mechanical one, in bed with me for life now.


I have recently lost a lot of weight, and I went for my titration study last night; second visit. The lab tech told me that he has seen some with barely any body fat, totally fit people, on all sorts of machines.
AirCurve10 ASV Bilevel, with Humidifier. F&P Simplus FFM. Using Sleepyhead software.

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Re: Especially for newly diagnosed - Dealing with Change

Postby gasin4air on Mon Mar 23, 2015 11:57 pm

Hi everyone, I just recently found out that I have sleep apnea and am kinda bummed out. I started researching by checking out cpap websites (reading spec's on machines) and youtube recordings. I see its gonna take a lot of time just to learn a fraction about what sleep apnea does to the body. If there is any information of certain sites to check out, please let me know. I did find out by watching youtube that you some cpap's can be adjusted and you may need to make those adjustments to be able to sleep a full nite. I guess that comes with time.

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runnerpaul
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby runnerpaul on Thu Apr 09, 2015 10:28 am

Great article thanks for writing and posting it.

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<Marine>>Mom
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby <Marine>>Mom on Wed Apr 29, 2015 1:24 am

I wanted to share one thought. I have been a type one diabetic since age 13. I am now 57. I was diagnosed with sleep apnea in May 2014. To me, with my lifelong health issues, this is just another issue. I can choose to either manage it or ignore it at my own peril. I think living with a chronic disease for years made it easier to adjust to the mask ( and the diagnoses). I was not happy to have a new issue but there are far worse issues than sleep apena. My goal is to die with both my kidneys, my eyes and my feet. Those are big goals for a type one diabetic. The only way I will get there is to be in charge of my issues. I look at sleep apnea the same way. I manage it not the other way around. My two grandsons, ages 8 and 6 love my cpap. When I visit they wake me by taking off the hose and blowing it at each other. I have to admit it is fun.

My spouse has been very supportive. His wife sleeps with an insulin pump attached to my shirt and a sleep mask on my face. He told me no more equipment.

Do I sound to blunt? I do not mean to criticize anyone who finds the mask difficult. it is difficult. It took a month before I could sleep through the night without pulling it off and dropping it on the floor. Now I sleep well but have a new problem which I will find the right forum to discuss. This site is wonderful. It is good to read from other people and learn from their experiences. Good luck to everyone who is still adjusting.

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mattymcmatt
 

Re: Especially for newly diagnosed - Dealing with Change

Postby mattymcmatt on Wed Jul 29, 2015 7:23 pm

Hi all, I just got my first sleep study done, after my own spouse telling me for YEARS that I had a problem. She even stopped sleeping in the same room... but only now have I done my initial consult and first study.. which showed, yep, I have a problem. So they are going to do a second study using the CPAP thing, which I'm not crazy about...
If I may, let me share a video I made of my first experience... I'll do another of the second study, using the CPAP. They were pretty cool about me filming the first one, very nice lady. Here's the link, check it out if you want: on YouTube it's called, My Sleep Study: what to expect at sleep apnea test
Both my folks have sleep problems, too... guess maybe it actually is genetic, I don't know. I'm not overweight (too much) but I do have a noticeable 'double chin' that may be impacting my sleep. Having said that, per my wife I had the issue long before I gained the weight I'm currently carrying... so heck, I don't know.

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Re: Especially for newly diagnosed - Dealing with Change

Postby rachelp on Tue Aug 11, 2015 7:17 pm

I was diagnosed in early July and I'm going on almost a month with apap. I resisted getting tested for so long because I didn't want to deal with the machine. It's a hard thing to accept. Once I realized my health WAS being affected and it's not just a little snoring or sleepiness I changed my attitude. I honestly couldn't be happier with apap therapy. I don't even dread going to bed. My nasal pillows are great, I love my machine, and with the aromatherapy I find it to actually be pleasant. I regained my life back, and because of that you couldn't pry the machine away from me.

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idamtnboy
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby idamtnboy on Tue Aug 11, 2015 8:45 pm

The positive attitudes that are being shared are absolutely great. A positive attitude makes everything easier, not necessarily easy, but easier to handle. Keep it up! :)

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stepyou
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby stepyou on Tue Dec 08, 2015 4:26 am

mattymcmatt wrote:
Both my folks have sleep problems, too... guess maybe it actually is genetic, I don't know. I'm not overweight (too much) but I do have a noticeable 'double chin' that may be impacting my sleep. Having said that, per my wife I had the issue long before I gained the weight I'm currently carrying... so heck, I don't know.


I've slept badly for years (thought it was related to depression!) even when I was nearly underweight. Even now my BMI is around 22 which is in the 'healthy weight' range but I still need CPAP. I have also always had a small double chin caused by an underdeveloped jaw which causes a very small airway. Have your doctors looked at your jaw? I'm not sure the normal way of going about this as my orthodonist was the one who noticed it and then referred me to the sleep clinic. I'm kind of lucky in that CPAP is just temporary until my jaws are broken as this will make my airway bigger. May be worth bringing it up with your sleep doctors?

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urn357
 
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Re: Especially for newly diagnosed - Dealing with Change

Postby urn357 on Mon Jan 04, 2016 10:57 am

Thanks for this. Just found this forum, I think yesterday, and that helps me relate and be even more happy that I found it. Thanks again!

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