Especially for newly diagnosed - Dealing with Change

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Putnams

Re: Especially for newly diagnosed - Dealing with Change

Post by Putnams » Thu Aug 18, 2016 8:28 am

Hi!

I was wondering if you were interested in writing a guest post to our blog?

We are a mobility company that sell a lot of CPAP and Sleep Apnoea products.

If you are interested, please can you contact me on 01752 345678

It would be much appreciated.

Kindest Regards

Putnams

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0dodo
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Re: Especially for newly diagnosed - Dealing with Change

Post by 0dodo » Tue Aug 30, 2016 11:35 am

idamtnboy wrote:In response to the discussion in the thread about an unsupportive spouse I felt prompted to revise a write up I have concerning dealing with change. We encounter changes of all sorts through life, including the one when we received the diagnosis of sleep apnea. How we respond is almost always the same, albeit in different degrees and intensity. The emotional phases we go through are shock, denial, depression, and acceptance.

The information I share is derived from a work seminar on the subject and my own experiences of life. I trust it will be of benefit to some.

Coping with Change for CPAP Patients


Thank you so much for this beautiful writing!
It is so true, and let me tell you that I know what you’re talking about.
I went thru a lot these past 15 years…the lost of my father, my husband, my job after almost 10 years, new job, been diagnosed with severe osteoarthritis and now, severe sleep apnea, so...
Also, yes, we are going thru all these phases and yes, it's very, very hard sometimes. But, also we get thru it if we WANT to, that is also very important I think.
I’m starting with the CPAP soon; I know that I will probably go thru rough times, but I will do everything to make it work because I WANT to fell better :D But also, I hope that it's going to be OK :wink:

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AmyR
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Re: Especially for newly diagnosed - Dealing with Change

Post by AmyR » Sun Nov 06, 2016 9:00 pm

I don't consider the diagnosis to be earth-shattering. It is something I didn't know was wrong with me and now I have a treatment for it. It was a surprise because my husband has severe apnea he has been reluctant to get help for. So I did the test hoping for some help with my insomnia and ended up being the test case for CPAP in our family. I wish it was going smoother because I know my husband probably sees what I am coping with and might not be encouraged to do his sleep test in January (not enough doctors doing it in our area.) Hopefully, as I sleep better he will be encouraged to at least to the 30-day trial on one. It's important to get the cleaning and other routines down quickly so that working with the machine is less of an issue and things go smoothly.

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austinn
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Re: Especially for newly diagnosed - Dealing with Change

Post by austinn » Thu Dec 08, 2016 9:09 pm

Really nice!!! Thanks..!!

Tdiguy

Re: Especially for newly diagnosed - Dealing with Change

Post by Tdiguy » Sat Dec 17, 2016 4:45 pm

My wife was very sceptical at first about cpap and honestly thought me going back into the bedroom even with the machine would likely mean her moving out to the couch to sleep.
I can gladly report she was wrong on this one. Not only does the machine not make enough noise to bother her but when i am using it I make virtually no noise. I also sleep FAR more soundly so when she tosses and turns i stay fast asleep oblivious to her movement.

Although now knowing what i know about sleep disorders and after listening to her sleeping i am trying to talk her into getting checked out also. She never seems to feel rested after sleeping and wakes up multiple times per night, much like i used to. Her snoring is just less audable where i used to nearly shake books off the shelf.

KRissyclarkmckee

Re: Especially for newly diagnosed - Dealing with Change

Post by KRissyclarkmckee » Sun Feb 05, 2017 3:05 pm

I hate hate HATE my husband's CPAP machine! The noise of it keeps me awake far more than the noise of his intermittent snoring ever did. He has been fitted for several different masks, has had them adjusted, but at some point during the night, the noise ALWAYS wakes me up. Although the air is supposed to go out of a vent on the top of his head, whenever he tucks his chin down while sleeping on his side, it blows on me and, you guessed it, wakes me up. I used to sleep snuggled up next to my husband, and we had a pretty good sex life. Now, it is virtually nonexistent. Because of the tube and the noise and the air, I sleep at the very opposite end of our king sized bed. As of last night, I have started sleeping in a different room. His sleep Doctor, who sells these machines by the way, won't even explore any options which may be available and implies to my husband that I am being silly. I wish I had NEVER suggested he go see a sleep specialist!

HoseCrusher
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Re: Especially for newly diagnosed - Dealing with Change

Post by HoseCrusher » Sat Feb 11, 2017 10:26 pm

Krissy, every tried ball room dancing with your husband?

When he steps on your toes you are just a little out of sync. A little practice will help smooth things out.

The mechanics of the xPAP mask is that it has to vent in order to avoid build up of CO2. With some practice and some ingenuity you and your husband can "dance" with the mask in a way that avoids having the air blow on you. Think of it as learning a new dance step. It will take effort and practice but before long you will be back in sync with each other while you sleep.

Then sex will follow...

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Tdobyns

Re: Especially for newly diagnosed - Dealing with Change

Post by Tdobyns » Tue Mar 21, 2017 7:07 pm

Hi there. Thanks for the post. I am having trouble pulling up your "Dealing with Change" write-up. Is there another way you can post it so it is more easily accessible? Thank you.

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idamtnboy
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Re: Especially for newly diagnosed - Dealing with Change

Post by idamtnboy » Tue Mar 21, 2017 10:08 pm

Tdobyns wrote:Hi there. Thanks for the post. I am having trouble pulling up your "Dealing with Change" write-up. Is there another way you can post it so it is more easily accessible? Thank you.

What kind of problem are you having? The linked page to the storage folder should open up with a button that says Download File. Click on that and it should download or open up for you.

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Apneanoob

Re: Especially for newly diagnosed - Dealing with Change

Post by Apneanoob » Mon Mar 27, 2017 11:11 am

The problem with downloading your writeup is that it just shows 1 page...

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idamtnboy
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Re: Especially for newly diagnosed - Dealing with Change

Post by idamtnboy » Mon Mar 27, 2017 1:01 pm

Apneanoob wrote:The problem with downloading your writeup is that it just shows 1 page...

I don't know what to say. When I click on the download button the complete document comes down.

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Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Hose management - rubber band tied to casement window crank handle! Hey, it works! S/W is 3.13, not 3.7

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Cwire
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Re: Especially for newly diagnosed - Dealing with Change

Post by Cwire » Mon May 08, 2017 9:10 am

Greetings all, My name is Mark and I'm a new CPAP user. Have had sleep apnea for many years and was finally tired of being tired. The lack of energy, the falling asleep at my desk at work and not having the fun with my family like I used to finally drove me over the edge to get help. I'm getting used to my CPAP machine, only 4 night in. Haven't slept a full 8 hours yet and still wake up a couple times a night but after reading on the forums here, that is kind of normal. Glad to be here and am glad to see so many in my situation.

KevinG

Re: Especially for newly diagnosed - Dealing with Change

Post by KevinG » Sat May 20, 2017 12:37 pm

Hi, I was diagnosed in 2014 but it took 3 years to clear insurance and get an APAP. Been using it for a week, very frustrating experience (ResMed chose nasal pillows). I found the headstrap, nasal pillows, and long hose very cumbersome and could only get through 3-4 hours per night. Last night I got 8 hours in (according to the ResMed app). It also said I only had 5 apnea events overnight (I was diagnosed with 18/hour, which I know is moderate). My question is, I feel really tired today - once you get through full evenings, is there a period of "sleep hangover"? I don't know if I didn't really sleep or I did like the app suggests but now I have to adjust to that?

Thanks,
KG

Night Warrior
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Re: Especially for newly diagnosed - Dealing with Change

Post by Night Warrior » Wed Jun 14, 2017 11:16 pm

Thank you for this honest, inspiring, and heartfelt writing that is helping me to work through my OSA diagnosis. You are a talented healer. Like many of the members who responded, I'm new to CPAP and the early days of CPAP can be dark times.

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patriot1405
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Re: Especially for newly diagnosed - Dealing with Change

Post by patriot1405 » Wed Jul 12, 2017 3:59 am

Hey everyone, I just had the sleep study done last Saturday. Waiting now for my cpap machine. Still feeling a little uncomfortable with it. I'm sure there's an adjustment period. Looking forward to finally getting a good night's sleep and maybe some much needed energy.

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