Why is it necessary to have a support team?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
roggey
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Joined: Mon Jul 18, 2011 8:17 am
Location: Iowa

Re: Why is it necessary to have a support team?

Post by roggey » Tue Jul 19, 2011 12:29 pm

As a counselor, I find this community to be an extremely valuable resource for those going through CPAP treatment.

I am quite dismayed at how little instruction is given to clients dealing with CPAP and OSA. As someone who was recently diagnosed, I feel I can help change some procedures and protocol from the inside out with my experiences. There's an excellent article on Cognitive Behavior Therapy and dealing with OSA: CBT and CPAP Compliance (http://respiratory-care-sleep-medicine. ... iance.aspx).

Besides missing the valuable training for therapists dealing with clients and compliance with their treatment, is basic understanding of what resources can be accessed when the therapists and medical/health professionals aren't available. I will certainly add this online support group to the list I'm compiling to help those in my community with OSA and working with CPAP treatments.

_________________
Mask: Optilife Nasal Pillow and CradleCushion CPAP Mask with Headgear
Humidifier: PR System One 50 Series Heated Humidifier
Additional Comments: 10 cm pressure

Mergierbine

tres bon

Post by Mergierbine » Mon Aug 01, 2011 12:28 am

Merci d'avoir un blog interessant

dhasenan
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Re: Why is it necessary to have a support team?

Post by dhasenan » Mon Sep 05, 2011 8:43 pm

I'm not sure what a support team should do for me besides issue me the device, answer any questions I have, and ensure that the device is working for me periodically. In all, a doctor, an online retailer, and a manual. Not getting open hostility from my sleep partner is nice. Beyond that, why should anyone else ever know that I have a CPAP device? What benefit could I get from it?

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Re: Why is it necessary to have a support team?

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Ineedanap
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Location: Midwest

Re: Why is it necessary to have a support team?

Post by Ineedanap » Sun Oct 09, 2011 8:46 am

From what I can tell, compliance in the general population is less than 50%. It seems everyone you talk to says they have a machine but don't use it. Is it any wonder when they hand you the same equipment they've handed everyone else and send you out the door? The nurse I saw kept reiterating how important compliance is but never gave me much as far as instruction on how to do it or how much work was going to be involved. I think the only real advise she gave was to use Ayr gel in my nose. They give you a number to call with questions but my experience with a DME that doesn't return calls is not unusual based on what Ive seen in this forum. Without being able to come to this forum and find the answers to my questions and see that other people have struggled with the same issues I have, I never would have gotten this far. I was determined to make this work but without this forum I just might have given up like everyone else. Even if I didn't, I would be woefully in the dark about my own treatment and the options available.
I never would have made it without this forum.

williams_john
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Re: Why is it necessary to have a support team?

Post by williams_john » Thu Oct 20, 2011 2:08 am

Hello,
Great i no have any experience of any forum. today i just go here to time pass..... but the information i get from here really great..... i just became fan of this community....
All reply's of this thread so good ... thanks

williams_john
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Re: Why is it necessary to have a support team?

Post by williams_john » Sat Oct 22, 2011 5:39 am

Hello,
Thanks really great information here....... i have no idea before about sport team....... now i refresh my mind and save all these information.......

amyandtoby2011
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Joined: Sat Jan 01, 2011 12:00 am
Location: Missouri, USA

Re: Why is it necessary to have a support team?

Post by amyandtoby2011 » Thu Oct 27, 2011 9:35 am

I found this forum while browsing google. So much of what's been said here makes sense to me, the need to tell others ifyou're comfortable, the article about CBT, some of your own experiences with adjusting to CPAP. Let me explain.
I had my first sleep study two nights ago. They did a split study, but didn't have enough data with me using CPAP. I have to go in next week to retake the test. Hopefully they'll find a good pressure then.
In my own experience, it has not been hard telling my mom or my friends-quite the opposite. I've suspected for a while now that I had some sleep problems-I'm always, always tired, and i've known for years and years that I snore.
But my doctor didn't explain details to me, not beyond the number of events (is that per hour?), and my desats (blood oxygen saturation) going down, and by how much. I called my clinic today to request another doctor. I've had several experience with this same doctor trying to tell me that I should not bring my guide dog (long story I'll tell some other time), and breezing in and then back out after talking mostly to me, or interrupting my answers to her questions. I need someone like the wonderful tech I had the other night, who will listen to my numerous questions, and go over things with me. I'm blind and cannot, that I know of at the moment, read my own report. I want to when this is all concluded and they've found what works for me.

I'm saddened to hear that so many people are having trouble and not getting the support they need. It's wrong, and health care and other organizations should be more attentive than that. Truly.

Part of me is terrified to use the mask, but part of me longs for it. There's a lot more about my story I could share, but this likely isn't the topic in which to do so. I'll just say that I'm going to look for a suupport group in my area, and I look forward to meeting people online who have struggled, and who are struggling, with this diagnosis and the changes it has and will bring.

_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Diagnosed 10/25/11; sleep studies on 10/24/11 and 10/31/11; CPAP received on 11/3/11. Set to ramp from 12-16. Climateline and small quattro.

xliang
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Re: Why is it necessary to have a support team?

Post by xliang » Mon Nov 07, 2011 4:26 am

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ahmadbhai14
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Re: Why is it necessary to have a support team?

Post by ahmadbhai14 » Tue Nov 08, 2011 6:31 am

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kick phil
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Re: Why is it necessary to have a support team?

Post by kick phil » Wed Nov 16, 2011 3:49 am

Very useful discussion here.

mickle_john
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Re: Why is it necessary to have a support team?

Post by mickle_john » Wed Nov 16, 2011 4:26 am

The sleep lab then obtains the authorization from the insurance company to bill your insurance for the study..

The sleep lab will call you to schedule a time to come in for a consultation..

artertend

What do you mean by saying it?

Post by artertend » Tue Nov 22, 2011 9:02 pm

What do you mean by saying it?

kick phil
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Re: Why is it necessary to have a support team?

Post by kick phil » Wed Nov 30, 2011 3:54 am

Very informative about topic. I like it.

Guest

Re: Why is it necessary to have a support team?

Post by Guest » Thu Dec 22, 2011 12:29 pm

I'm feeling like this whole experience is a sham! Especially when I went to the homecare equipment people this AM, got their quote, came home and price checked online - I can order the same darn thing online for 2/3 LESS than what they could "lease to own" including the co-pay from my insurance company! I'm a reasonably intelligent person and think that I'm best off relying on myself! (buy it online and set it up myself) I'd appreciate comments/opinions/advice