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General Discussion on any topic relating to CPAP and/or Sleep Apnea.
madisonmama
 
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Re: Where A CPAP Newbie Should Start

Postby madisonmama on Tue Aug 19, 2014 8:04 am

Thanks! FYI first link ,to resmed Understanding OSA, is broken

dannythemuppet
 
Posts: 4
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Location: California
Gender: Male

Re: Where A CPAP Newbie Should Start

Postby dannythemuppet on Sun Oct 12, 2014 4:04 pm

Hey all,

Just signed up, after reading the info here for the past week or so. Like many others, I have a story that's varied, and indicative of the terrible health care system here in the USA.

I've had sleep issues dating back to my childhood, but only in the last decade or so have they really impacted my life, so I started looking into it. Originally, diagnosed 6 or 7 years back with moderate sleep apnea. I was sold over $2k (out of pocket) studies, equipment, and all the other stuff they say you need. I ended up with a Remstar M-Series A Flex machines. Hated every second of it.

I was also told (of course after they sold me everything) that I should check with an ENT for allergies to see if that would help me breathe. Of course I followed through, and the first ENT I saw was all "Hey, you have a badly deviated septum, we could fix that and possibly fix your sleep apnea!" I'd had my nose broken on more than one occasion, but figured because I don't look like I belong in the ring, my nose was fine, guess not.. The doc was honest about the possible outcomes of the surgery, and I trusted him so I did the surgery. I never realized how bad I was until after the packing came out and the doc told me to inhale, it felt like I had two massive gaping holes in my nose, not nostrils.

I got the boost in energy levels that people talk about, but I'd still fall asleep during the middle of the day and have other weird things going on, so went back for more studies. Sleep apnea was gone (over multiple sleep tests) so they told me I had hypersomnia, weaksauce. Insurance companies don't really recognize hypersomnia (nor does autocorrect it seems), which meant all the doc could do was give me speed AKA amphetamine salts, to try to stop me falling asleep in the middle of the day/while driving. I later learned that doc probably should have ordered the MSLT for me, but not until years later.

Fast forward to this year, and I finally get a great doctor, and do the MSLT, and confirmed that I have narcolepsy. However, while I was doing the MSLT (worst sleep study ever, be prepared to want to kill the guy waking you up), my apnea reemerged. My insurance refuses to take the numbers from the doc since I wasn't being tested for sleep apnea (months of fighting this). This means I'd probably have to do another sleep study specific to sleep apnea, which I'm just not sure I can handle right now.

I think the return of the sleep apnea is my own fault, lack of exercise and poor diet. I broke my hand and tore ligaments while playing ultimate Frisbee just over a year ago which stopped me from being able to lift anything properly with my hand so I stopped lifting weights, and then a further groin injury stopped me running, so I put on about 25lbs, which I'm pretty sure is why the sleep apnea is back. At 167 my sleep study showed no apnea, less than a year later, at 192 I'm at the mild/moderate level. My goal is to lose the weight again, and ultimately laugh derisively at my Remstar as it sits on the shelf gathering dust.

I found out that my machine was set to ramp over an hour and the basic setting wasn't powerful enough, which meant I was ripping the mask off after 15 minutes. Although because of the narcolepsy, I was out like a light and didn't know this until I figured out how to read the settings on the machine. This went on for weeks until I decided to turn to the internet and find this site. I found a thread from 2012 here that had instructions on how to change the settings on the Remstar. I honestly believe that it was probably badly programmed right from the start so I'd have to pay more money to the sleep center to keep going back and have it adjusted, they did sell me 3 different masks, which was nice of them (is the sarcasm obvious?). Thanks to this site, I made adjustments, and instantly went from 15 minutes, to 2.5 hours a night, and with some more tweaking (and probably getting used to it) I am now up to 7 hours a night, hooray!

That brings me to now, once again I am here I am with my horrible machine, contemplating whether to throw down on a newer machine, or suffer with what I have. Anyone make a jump similar? Was it worth it? I've been looking and there are definitely advancements since I got my machine, I'm just not sure if it's that much of a difference. I'm more than happy to spend money, I'd rather live healthy and poor, than die rich and young, but I'd also like to not throw money away (tell that to the 3D TV mocking me). I'm finally able to run again after 8 months of injury, and my hand has sufficiently healed enough to be able lift weights again so my hope is that in 3-4 months I may not need the machine again..

Danny

TL;DR Used to have sleep apnea, surgery fixed, put on weight, it's back. Should I upgrade my aging Remstar, which I hate with a passion?

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Pugsy
 
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Location: Missouri, USA
Gender: Female

Re: Where A CPAP Newbie Should Start

Postby Pugsy on Sun Oct 12, 2014 4:48 pm

dannythemuppet wrote:once again I am here I am with my horrible machine, contemplating whether to throw down on a newer machine, or suffer with what I have. Anyone make a jump similar? Was it worth it?


First...you will get more responses if you copy this post you just made and start a new topic/thread in the main body of the forum so that it is devoted to you. This thread and where it is at doesn't get much traffic.
You will have more people see your post if it is in it's own thread instead of buried deep in this old thread.

Now...about your main question...what specifically do you hate about the M series AFlex Auto machine?
My very first machine was that same machine 5 plus years ago....and I have used pretty much every model since that M Series was discontinued. There are some differences but I don't know if the differences or improvements are related to what you hate about it.

This would be comparable to your M series APAP. This is the latest version.
If one of your "I hate it" things was condensation in the mask or hose..the optional heated hose makes it worth it.
It is quieter...it does have easy access to the data and software to see what is going on is also free (links in my signature line)...the data is more comprehensive.

http://www.cpap.com/productpage/pr-syst ... chine.html

http://www.cpap.com/productpage/respiro ... ifier.html

edgonzalez75
 
Posts: 2
Joined: Tue Oct 21, 2014 10:57 am
Location: So Cal
Gender: Male

Re: Where A CPAP Newbie Should Start

Postby edgonzalez75 on Tue Oct 21, 2014 11:08 am

I too was just diagnosed with severe sleep apnea.

I just received a call from my DME for a machine and was offered the Remstar Plus. He referred to it as EO601. I googled it and I believe it is their System One machine.

My insurance will supposedly cover 50% of the cost and I will need to pay $550 in payments. I asked if I could pay it up front at a discount and was told it will be the same.

I get the machine on Friday.

My question to the group is that a good machine and price?

I tried at home a Resmed S9 and was fine with that one but I would like something a little more portable as I travel alot.

Thank you very much in advance for your help.

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Pugsy
 
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Location: Missouri, USA
Gender: Female

Re: Where A CPAP Newbie Should Start

Postby Pugsy on Tue Oct 21, 2014 11:32 am

edgonzalez75 wrote:I just received a call from my DME for a machine and was offered the Remstar Plus. He referred to it as EO601. I googled it and I believe it is their System One machine.


Don't accept it. That's the basic model 260 that doesn't offer any useful data beyond hours of use.

With your limited insurance coverage you would be better buying a better machine that offers full data for essentially the same amount of money.

This is what they are offering
http://www.cpap.com/productpage/pr-syst ... chine.html

and this would be a much better machine and is full efficacy data machine
http://www.cpap.com/productpage/pr-syst ... chine.html

both would use this humidifier for $229 (and includes the heated hose in that price)
http://www.cpap.com/productpage/pr-syst ... ifier.html

or if gently used doesn't bother you...secondwindcpap.com offers gently used at a discount.

You can still use that DME for masks and other supplies if you wish even if you don't get a machine from them.
They might not like it but tough...they want to sell you a cheaper basic machine so that they make the most money.
Read this
http://maskarrayed.wordpress.com/

If you want to spend a little more money you can get a full data ResMed machine like this one
http://www.cpap.com/productpage/resmed- ... chine.html
humidifier extra

or this which is the latest model from ResMed and includes humidifier
http://www.cpap.com/productpage/resmed- ... idair.html
http://www.cpap.com/productpage/resmed- ... idair.html

edgonzalez75
 
Posts: 2
Joined: Tue Oct 21, 2014 10:57 am
Location: So Cal
Gender: Male

Re: Where A CPAP Newbie Should Start

Postby edgonzalez75 on Tue Oct 21, 2014 11:44 am

Pugsy wrote:
edgonzalez75 wrote:I just received a call from my DME for a machine and was offered the Remstar Plus. He referred to it as EO601. I googled it and I believe it is their System One machine.


Don't accept it. That's the basic model 260 that doesn't offer any useful data beyond hours of use.

With your limited insurance coverage you would be better buying a better machine that offers full data for essentially the same amount of money.

This is what they are offering
http://www.cpap.com/productpage/pr-syst ... chine.html

and this would be a much better machine and is full efficacy data machine
http://www.cpap.com/productpage/pr-syst ... chine.html

both would use this humidifier for $229 (and includes the heated hose in that price)
http://www.cpap.com/productpage/pr-syst ... ifier.html

or if gently used doesn't bother you...secondwindcpap.com offers gently used at a discount.

You can still use that DME for masks and other supplies if you wish even if you don't get a machine from them.
They might not like it but tough...they want to sell you a cheaper basic machine so that they make the most money.
Read this
http://maskarrayed.wordpress.com/

If you want to spend a little more money you can get a full data ResMed machine like this one
http://www.cpap.com/productpage/resmed- ... chine.html
humidifier extra

or this which is the latest model from ResMed and includes humidifier
http://www.cpap.com/productpage/resmed- ... idair.html
http://www.cpap.com/productpage/resmed- ... idair.html



Pugsy,

Thank you very much. I appreciate your help. This is exactly what I needed. I will cancel my appointment and discuss with my doctor to specifically ask for the Airsense 10.

If I do get one of these online, I assume it has everything I need other than a mask?

Thanks again.

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Pugsy
 
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Location: Missouri, USA
Gender: Female

Re: Where A CPAP Newbie Should Start

Postby Pugsy on Tue Oct 21, 2014 12:19 pm

edgonzalez75 wrote: discuss with my doctor to specifically ask for the Airsense 10.

If I do get one of these online, I assume it has everything I need other than a mask?


Yes, everything you need except the mask.

Be sure to know the AirSense models.

AirSense CPAP Elite...full data
AirSense AutoSet ...either of them...full data

AirSense CPAP (without the mention of Elite)...not full data near as we can tell....looks like AHI only and no event category break down and no leak data...and knowing if leaks are an issue is pretty darn important because if there are big leaks going on then the AHI can be inaccurate.
It is cheaper but avoid it any way.

Margaret_Yakoda
 
Posts: 4
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Gender: None specified

Re: Where A CPAP Newbie Should Start

Postby Margaret_Yakoda on Sat Nov 22, 2014 8:16 pm

edgonzalez75 wrote:
Pugsy wrote:
edgonzalez75 wrote:I just received a call from my DME for a machine and was offered the Remstar Plus. He referred to it as EO601. I googled it and I believe it is their System One machine.


Don't accept it. That's the basic model 260 that doesn't offer any useful data beyond hours of use.

With your limited insurance coverage you would be better buying a better machine that offers full data for essentially the same amount of money.

This is what they are offering
http://www.cpap.com/productpage/pr-syst ... chine.html

and this would be a much better machine and is full efficacy data machine
http://www.cpap.com/productpage/pr-syst ... chine.html

both would use this humidifier for $229 (and includes the heated hose in that price)
http://www.cpap.com/productpage/pr-syst ... ifier.html

or if gently used doesn't bother you...secondwindcpap.com offers gently used at a discount.

You can still use that DME for masks and other supplies if you wish even if you don't get a machine from them.
They might not like it but tough...they want to sell you a cheaper basic machine so that they make the most money.
Read this
http://maskarrayed.wordpress.com/

If you want to spend a little more money you can get a full data ResMed machine like this one
http://www.cpap.com/productpage/resmed- ... chine.html
humidifier extra

or this which is the latest model from ResMed and includes humidifier
http://www.cpap.com/productpage/resmed- ... idair.html
http://www.cpap.com/productpage/resmed- ... idair.html



Pugsy,

Thank you very much. I appreciate your help. This is exactly what I needed. I will cancel my appointment and discuss with my doctor to specifically ask for the Airsense 10.

If I do get one of these online, I assume it has everything I need other than a mask?

Thanks again.


And thanks you from me also!

I just got my machine yesterday. I did exactly what I've read one should never EVER do. I walked into the DME supplier. They'd scheduled me an appointment. And the man told me "This is your machine" almost like he was handing over a Christmas puppy. AND he measured my face and brought me ONE mask. I was ... skeptical. :)

But he answered all my questions. We kept the mask on for a long time, and he showed me everything and made sure I was comfortable with it. Not only all that, but he went through the charges and why it's billed the way it is (responding to one of my questions)

Anyhow, what I was given was the ResMed AirSense 10 For Her Autoset that you linked to. And the heated hose, and an Airfit F10 (large) which fit MUCH better than whatever it was they used in the sleep study. I used it last night and slept until nearly 11! Which isn't so unusual, but I didn't have to drag myself out of bed. That WAS unusual. 8)

gudhkarh
 
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Re: Where A CPAP Newbie Should Start

Postby gudhkarh on Mon Dec 22, 2014 8:34 pm

Thanks

billbaggins
 
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Re: Where A CPAP Newbie Should Start

Postby billbaggins on Wed Mar 18, 2015 6:25 am

Wow, this is a good place for a newbie to start :wink: Thanks!

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Gaspin4Air
 
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Re: Where A CPAP Newbie Should Start

Postby Gaspin4Air on Tue Mar 24, 2015 1:22 am

Hi everyone, I just recently found out that I have sleep apnea and am kinda bummed out. I started researching by checking out cpap websites (reading spec's on machines) and youtube recordings. I see its gonna take a lot of time just to learn a fraction about what sleep apnea does to the body. If there is any information of certain sites to check out, please let me know. I did find out by watching youtube that you some cpap's can be adjusted and you may need to make those adjustments to be able to sleep a full nite. I guess that comes with time.

alan2938
 

Re: Where A CPAP Newbie Should Start

Postby alan2938 on Tue Apr 28, 2015 5:15 am

I was diagnosed with sleep apnea about 5-6 weeks ago, I have been issued a RESMED H5i + hydration system + F10 face mask, a few days ago.
What I want to know is as follows.

1. I am getting a better nights sleep, but only for about 2 hours or less at a time, I get up in between times & have a cup of coffee, slice of toast before going back to bed 1-2 hours later. This continues to a lesser extent during the day time.



3. Will I eventually be able to sleep normally, if so an estimated time period?

4. It has been suggested that as I am overweight, by loosing weight, I should be able to come off the CPAP machine?

Any advice would be appreciated.

HoseCrusher
 
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Gender: None specified

Re: Where A CPAP Newbie Should Start

Postby HoseCrusher on Tue Apr 28, 2015 12:06 pm

Alan, let's take a look at these issues...

1. Interesting sleep schedule. You need to work on this.

2. Oops, 2 seems to be missing... :D

3. Yes, you will eventually be able to sleep normally. It takes about 200 nights with a standard deviation of + or - 197. This means that if you adapt quickly and have a mask that fits well you can see improvements almost immediately. On the other hand if you have problems it can take longer.

4. It is not impossible to no longer need xPAP therapy after weight loss. It is highly unlikely though. Out of 100000 people with sleep disordered breathing that lose weight and keep it off for an extended period of time, a couple may no longer need to use their xPAP machine. After losing weight have another sleep study done to see if it has helped.
SpO2 96+% and holding...

Momoiro
 
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Gender: None specified

Re: Where A CPAP Newbie Should Start

Postby Momoiro on Tue May 26, 2015 7:33 pm

I just started CPAP and My pressure is set at 10. I use ramp but when I get to a certain pressure I wake up immediately, it's annoying to the point I just take it off to sleep better.

tedburnsIII
 
Posts: 354
Joined: Sat Feb 28, 2015 4:49 pm
Location: San Diego
Gender: Male

Re: Where A CPAP Newbie Should Start

Postby tedburnsIII on Sun Jul 05, 2015 1:22 am

Momoiro- Stop deceiving yourself.
Last edited by tedburnsIII on Sun Jul 05, 2015 11:34 pm, edited 2 times in total.
Machine - http://www.cpap.com/productpage/resmart ... ducts.html
Setting: APAP, 10.5-14cm
Software: Proprietary
Mask- PR Wisp nasal (large); ResMed FX Nasal (wide);
Oximeter: CMS50D+

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