Where A CPAP Newbie Should Start

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
tlohse
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Re: Where A CPAP Newbie Should Start

Post by tlohse » Sat Jul 02, 2016 4:03 pm

A good place for a cpap newbie to start is forums like this one and the sleep apnea associations website and also your sleep specialist (Doctor) and maybe your DME.

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gudhkarh
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Re: Where A CPAP Newbie Should Start

Post by gudhkarh » Sun Aug 07, 2016 9:43 am

I have been suffering from somnolence since 2004. My sleep study was done in 2010 and after 6 yrs use of ACPAP without any significant relief and was prescribed Tablet Modafil 100mgs to take Care of residual somnolence with some ray of hope. My. Weight in 2004 increased from 78 kg to 101 kg in January 2016 with height of 5 ft 10 inch. Information about interpretation of sleep study report's with and without. ACPAP and causes of residual somnolence to understand the problem and plan of long term management

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Pugsy
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Re: Where A CPAP Newbie Should Start

Post by Pugsy » Sun Aug 07, 2016 9:48 am

gudhkarh wrote:I have been suffering from somnolence since 2004. My sleep study was done in 2010 and after 6 yrs use of ACPAP without any significant relief and was prescribed Tablet Modafil 100mgs to take Care of residual somnolence with some ray of hope. My. Weight in 2004 increased from 78 kg to 101 kg in January 2016 with height of 5 ft 10 inch. Information about interpretation of sleep study report's with and without. ACPAP and causes of residual somnolence to understand the problem and plan of long term management

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Please start a new thread of your own totally devoted to your problem or questions. Posting in this thread or someone else's thread will mean your problems get lost and you won't get the attention you deserve.
So...use the "Post a New Topic" feature and create a thread of your own.
I may have to RISE but I refuse to SHINE.

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ckeith
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Re: Where A CPAP Newbie Should Start

Post by ckeith » Fri Sep 02, 2016 11:07 am

Right now I feel the only place I can start with my New CPAP machine is on Ebay and see if I can't sell the THING :(

People who know me say they appreciate me as a nice calm fellow, nice to be around
I have never been one who is susceptible to temper tantrums or Irrational Rage - at least - NOT until now !

I have recently had a heart valve job and I presently suffer from Atrial Fibrillation and so have been prescribed Apixaban, a blood thinner
I have recently been enduring Chronic Insomnia that seemed to be quickly worsening, so the Doctor recommended a sleep study
The diagnosis was a "Severe Sleep Apnea" Ox level drops to 78%, and so a CPAP machine was prescribed

I can't stand it ! - The damded thing sends me into a RAGE ! - I can hardly refrain from jumping up and down on the OFFENCE
I can feel the adrenalin surge, Blood Pressure and Heart Rate go through the roof ! - I'll end up in an ambulance to get
Zapped by the Paddles again, in order to DeFib me at this rate!

I can't sleep Now ! - I get about two hours a night - How in HELL can I be expected to sleep with an INVASIVE Appliance
strapped to my head, that is constantly Blowing AIR up my nose ! - NO WAY on God's Blue Marble !!! -
How can anybody adapt to this THING! - I feel myself incapable. It's like asking me to climb a mountain with roller skates on !

It seems so bloody Stupid to me - So counter intuitive !!! -
"Here clamp this thing on, let it blow air up your nose - pleasant dreams !" HA HA HA :evil:

I sleep on my side and move around a lot - It blows air all over my face :( - I can't endure it let alone sleep with it !
I have an appointment with the Sleep Specialist - I expect he will recommend a different mask - I am skeptical

I KNOW I need to control this Apnea - I can't see how it is possible with THAT #@*!%^& THING - getting desperate

.




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LSAT
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Re: Where A CPAP Newbie Should Start

Post by LSAT » Fri Sep 02, 2016 11:48 am

ckeith wrote:Right now I feel the only place I can start with my New CPAP machine is on Ebay and see if I can't sell the THING :(

People who know me say they appreciate me as a nice calm fellow, nice to be around
I have never been one who is susceptible to temper tantrums or Irrational Rage - at least - NOT until now !

I have recently had a heart valve job and I presently suffer from Atrial Fibrillation and so have been prescribed Apixaban, a blood thinner
I have recently been enduring Chronic Insomnia that seemed to be quickly worsening, so the Doctor recommended a sleep study
The diagnosis was a "Severe Sleep Apnea" Ox level drops to 78%, and so a CPAP machine was prescribed

I can't stand it ! - The damded thing sends me into a RAGE ! - I can hardly refrain from jumping up and down on the OFFENCE
I can feel the adrenalin surge, Blood Pressure and Heart Rate go through the roof ! - I'll end up in an ambulance to get
Zapped by the Paddles again, in order to DeFib me at this rate!

I can't sleep Now ! - I get about two hours a night - How in HELL can I be expected to sleep with an INVASIVE Appliance
strapped to my head, that is constantly Blowing AIR up my nose ! - NO WAY on God's Blue Marble !!! -
How can anybody adapt to this THING! - I feel myself incapable. It's like asking me to climb a mountain with roller skates on !

It seems so bloody Stupid to me - So counter intuitive !!! -
"Here clamp this thing on, let it blow air up your nose - pleasant dreams !" HA HA HA :evil:

I sleep on my side and move around a lot - It blows air all over my face :( - I can't endure it let alone sleep with it !
I have an appointment with the Sleep Specialist - I expect he will recommend a different mask - I am skeptical

I KNOW I need to control this Apnea - I can't see how it is possible with THAT #@*!%^& THING - getting desperate
.


If you really want help, please start a new post below explaining exactly what your problems are. Now that you have registered, fill your equipment in the control panel. Giving up will only add to your health problems. E-bay will not allow sales of medical equipment. If your insurance paid for your machine, they expect you to use it or they may want it back.

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ckeith
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Re: Where A CPAP Newbie Should Start

Post by ckeith » Fri Sep 02, 2016 1:34 pm

Sorry if I Faux-Pas
But I thought the place to start would be the thread Titled:
"Where A CPAP Newbie Should Start" it seemed obvious to me at the time

I finally found the Control Panel and my Profile & entered what I could
Please bear with me, I am suffering some confusion due to severe Fatigue as a result of Chronic Insomnia

During my sleep study I was allowed a Sleeping Pill and still only managed to get 1 1/2 - 2 hrs sleep
That seemed to give them enough Data to prescribe this CPAP Machine

I can't see that the machine issued me is listed on the Profile entry page

"ResMed AirSense 10 Autoset" is titled on the Instruction Manual
The Mask issued me has "Philips Respironics" printed on the back

The Humidifier is part of the machine
Nowhere can I see what Software is installed


I have no ICQ , AOL etc etc
I have nothing suitable as an Avatar at the moment

I will do as you ask & post down below

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palerider
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Re: Where A CPAP Newbie Should Start

Post by palerider » Sun Sep 04, 2016 11:56 am

ckeith wrote:Sorry if I Faux-Pas
But I thought the place to start would be the thread Titled:
"Where A CPAP Newbie Should Start" it seemed obvious to me at the time\


start LEARNING not start BITCHING.

for other newbies.... this poster turned out to just be a troll, and thankfully left after a brief pollution of the forum.

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MarkCPAPguy
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Re: Where A CPAP Newbie Should Start

Post by MarkCPAPguy » Wed Sep 21, 2016 9:13 am

Dear Newbie - I've had two doctors tell me that I have one of the worst case of sleep apnea that they've ever seen! Newbie - be patient. I've been on a CPAP for almost a year, and though the progress has been slow,it has definitely improved my quality of life. For the first three months I cussed the mask out every night! Any mask on your face is not natural - and' yes 'it's uncomfortable... But you can get used to it - especially if you realize that it will promote your overall health and well-being. (in fact I think CPAP saved my marriage).

So,make "friends" with the CPAP and the stupid face mask... I finally made peace with it - knowing that my health - and my mood would improve. And they have. Is it weird? Yes. Is it uncomfortable? Yes. Is it worth it? OH YES!!!

The discomfort of using the CPAP and the stupid mask is absolutely worth it.
Stick with it, and you will see results. Also, if you don't have a doctor that specializes in sleep disorders - please find one. Good luck to you, newbie.

ma

Re: Where A CPAP Newbie Should Start

Post by ma » Fri Sep 30, 2016 9:24 am

Hello Newbie - Yeah, it is uncomfortable, but you/ll get used to it. • Face itching? Heard that - but, again, you'll get used to it ... just learn to ignore it. (easy to say, hard to do). • I tried the nasal mask, which was nice and way more comfortable. But I'm using 18 out of 20 pressure on my ResMed CPAP,which is way too much pressure for the little nasal mask. (darn it). • I allow myself one time a night to take the face mask off, scratch my nose, eyes, face, get a drink of water, etc. • Using a humidifier on the CPAP helps with itching and dry mouth - I have mine cranked up to 70% now - helps. • The best advice I can give is just stay with it - do not give up on it. It is an advocate for your health. I had a long hard first three months, but I have come to terms with it. CPAP is truly a life-saver. Make it your friend.

movingon
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Re: Where A CPAP Newbie Should Start

Post by movingon » Tue Dec 13, 2016 1:50 pm

Hi,
I'm new to cpap, Nov. 2016. Still learning what its all about and what questions to ask. I fly rc gliders and helicopters and belong to several rc forums. There are many wonderful people out there who put in the extra time and effort to help noobs get started in the hobby. I have found this site to be more of the same! Thanks to all of the forum members who have contributed their experiences to make this process less confusing! I had a bunch of questions just prior to becoming a member, now not so much. Thanks for the wealth of information that you have all contributed. :D `

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NorthTexas_CPAP
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Re: Where A CPAP Newbie Should Start

Post by NorthTexas_CPAP » Fri Apr 21, 2017 1:36 pm

Noobie here - Just got my machine yesterday, so I have a lot of adjustments to make in my life. Got diagnosed about a month ago (home study), then got sent in for a overnight study a week later where they put the machine on me to determine the setting. To be honest ever since the diagnosis I have been anxiously awaiting the machine and the HOPE that I will feel rested when I wake up - I know it will take some time, but I am so ready for it.

I went with a full-face mask as it felt the most comfortable, but it was difficult sleeping with it and my machine was unhappy with the amount of air leakage.

I intend on reading thru all the good material out here, but I do have one question. Do others with full face mask now sleep on their backs to prevent it from moving? I have been a side sleeper for a long time but kept running into the pillow :)

Thanks again for having this forum

HoseCrusher
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Re: Where A CPAP Newbie Should Start

Post by HoseCrusher » Sat Apr 22, 2017 9:02 am

A key to adapting to xPAP use is to be comfortable using the equipment. Stomach sleeping with a mask requires some creative approaches to your pillow.

Some people use a foam pillow and cut out areas where the mask touches. This allows them to stomach sleep without the pillow moving the mask. Others use a buckwheat hull pillow that tends to keep its form when you punch an indent for your mask.

Put your creativity to work. If nothing seems to work out you can always adjust to sleeping on your side.

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this15me
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Re: Where A CPAP Newbie Should Start

Post by this15me » Thu May 25, 2017 10:03 am

Greetings from Alabama,
I'm a 55 year old woman who in the past 9 years have struggled with a variety of health issues, starting on May 20, 2008 they found cancer in both tonsils and the back of the base of my tongue, went through 8 weeks 5 days of radiation plus 8 weeks 1 day of chemo which all ended up being 12 weeks. My last chemo was on September 3,2008 on my 47th birthday, then following that I had to go have my throat dilated every week and still to this day every 6 weeks now have my throat dilated so I can continue to eat, although I can only eat certain things, no more steaks, hamburgers, steamed veggies no coarse type foods it has to be soft and even then I must have something to drink to make sure it goes down. Then a few years later they found an infection in my jawbone, so they went and remove top half of my right side jawbone, oh and I have no teeth nor dentures. Doctors told me that my jaw could fracture or break even with the slightest yawn, but thank the great Lord I've done well thus far. Then 2 years ago they discovered I have scarring around the airway causing me to have difficulty breathing. A year ago they made me take a sleep test after they diagnosed me with COPD and further said I have sleep apnea, woke up 14 times in an hour, so now I have a CPAP "Dreamer" machine, that I have used off and on, just can't seem to get use to the mask. I know it is good for me and will benefit me in the long but how do you get by the feeling of suffocating? :D :D

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Pugsy
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Re: Where A CPAP Newbie Should Start

Post by Pugsy » Thu May 25, 2017 11:07 am

this15me wrote:how do you get by the feeling of suffocating? :D :D


Welcome to the forum.
May I suggest that you start a new thread with your questions so that we can devote attention directly to your problems.
This thread is an old thread and your issues won't be seen here by many people. You will get more help in a thread devoted to you alone.

So start a new topic of your own with your problems and please include the pressures you are using (and if you are using ramp), along with which machine and mask you are trying to use.
I suspect that the suffocation feeling very well could be related to the pressures used starting out (especially if you are using the ramp feature) and/or mask you are using.
Sometimes when the pressures are low we feel like we are suffocating...we aren't but it sure feels like it.
And sometimes with some masks (particularly the nasal pillow type of mask and the size) we can also feel like not enough air is moving.
I may have to RISE but I refuse to SHINE.

this15me
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Re: Where A CPAP Newbie Should Start

Post by this15me » Fri May 26, 2017 9:16 am

this15me wrote:Greetings from Alabama,
I'm a 55 year old woman who in the past 9 years have struggled with a variety of health issues, starting on May 20, 2008 they found cancer in both tonsils and the back of the base of my tongue, went through 8 weeks 5 days of radiation plus 8 weeks 1 day of chemo which all ended up being 12 weeks. My last chemo was on September 3,2008 on my 47th birthday, then following that I had to go have my throat dilated every week and still to this day every 6 weeks now have my throat dilated so I can continue to eat, although I can only eat certain things, no more steaks, hamburgers, steamed veggies no coarse type foods it has to be soft and even then I must have something to drink to make sure it goes down. Then a few years later they found an infection in my jawbone, so they went and remove top half of my right side jawbone, oh and I have no teeth nor dentures. Doctors told me that my jaw could fracture or break even with the slightest yawn, but thank the great Lord I've done well thus far. Then 2 years ago they discovered I have scarring around the airway causing me to have difficulty breathing. A year ago they made me take a sleep test after they diagnosed me with COPD and further said I have sleep apnea, woke up 14 times in an hour, so now I have a CPAP "Dreamer" machine, that I have used off and on, just can't seem to get use to the mask. I know it is good for me and will benefit me in the long but how do you get by the feeling of suffocating? :D :D


"If you want to keep getting what you are getting then keep giving what you are giving".

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Machine: DreamStation CPAP Machine
"If you want to keep getting what you are getting then keep giving what you are giving...what are you giving?"

Many Blessing,
Tammy Hall