Trelawney finally called

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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MaxINTJ
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Trelawney finally called

Post by MaxINTJ » Thu Nov 16, 2017 2:46 pm

"Oh, we have classes for meditation, relaxation, and yoga."

WTF did I say it was going to be? Huh? Airy fairy crap.

Trelawney: "We can make your breathing better and get you more relaxed."

Me: "My breathing is fine when I'm awake and I don't need to relax any more - I already drink 10-12 cups of coffee per day just to stay awake."

Trelawney: "Our exercise classes leave you refreshed and energized."

Me: "How does this help my (explanation of my SDB)"?

Trelawney: "We can help you sleep."

Me: "I don't have insomnia, I have no trouble falling asleep. (try to explain again)"

Totally pointless. I have never had any desire to do yoga or tai chi, and now, I couldn't do them even if I wanted to (not going to explain here).

I don't do "spiritual" either and I have no energy or desire to relax.

It's EXACTLY what I said it would be, and as useless as I said it would be.
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Julie
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Re: Trelawney finally called

Post by Julie » Thu Nov 16, 2017 3:31 pm

Why are you taking up forum time with all that?

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Marillion
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Location: BC, Canada eh!

Re: Trelawney finally called

Post by Marillion » Thu Nov 16, 2017 3:36 pm

Potterisms nothwithstanding, I think he just needs to vent. If it makes him feel better, I'm ok with that.

Lucyhere
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Re: Trelawney finally called

Post by Lucyhere » Thu Nov 16, 2017 4:16 pm

Marillion wrote:Potterisms nothwithstanding, I think he just needs to vent. If it makes him feel better, I'm ok with that.


So am I! We aren't paying for the space he takes up, so why should it matter.
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Julie
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Re: Trelawney finally called

Post by Julie » Thu Nov 16, 2017 5:44 pm

I should have said patience instead of time.

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chunkyfrog
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Re: Trelawney finally called

Post by chunkyfrog » Thu Nov 16, 2017 6:45 pm

Just another example of the incompetence with which we are all inflicted.
Tunnel vision--if all you have is a hammer, you only see nails.

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Lucyhere
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Re: Trelawney finally called

Post by Lucyhere » Thu Nov 16, 2017 6:58 pm

Julie wrote:I should have said patience instead of time.

I still would have said the same thing. I'd so much rather read Max's posts than xx's garbage.
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chunkyfrog
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Re: Trelawney finally called

Post by chunkyfrog » Thu Nov 16, 2017 7:02 pm

.

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grayghost4
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Re: Trelawney finally called

Post by grayghost4 » Thu Nov 16, 2017 7:42 pm

chunkyfrog wrote:Xx wrote something?
I am less and less tempted to peek.
It just makes me want to log out and cruise Instructables.
Someone will quote it and you will get to see it
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Rainmom17
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Re: Trelawney finally called

Post by Rainmom17 » Thu Nov 16, 2017 11:18 pm

I know you said you don't have insomnia and don't like airy-fairy mumbo-jumbo stuff. So maybe you won't like this idea. But a friend of mine went to a CBT sleep specialist to tackle the mental aspects of a sleep disorder. (CBT is Cognitive Behavioral Therapy.). So instead of just a numbers-oriented sleep doctor, she had someone who helped her reframe her thinking and, in her case, help her overcome her insomnia.

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49er
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Re: Trelawney finally called

Post by 49er » Fri Nov 17, 2017 3:31 am

Rainmom17 wrote:I know you said you don't have insomnia and don't like airy-fairy mumbo-jumbo stuff. So maybe you won't like this idea. But a friend of mine went to a CBT sleep specialist to tackle the mental aspects of a sleep disorder. (CBT is Cognitive Behavioral Therapy.). So instead of just a numbers-oriented sleep doctor, she had someone who helped her reframe her thinking and, in her case, help her overcome her insomnia.
Rainmom17,

As one who has similar type problems to Max, I have had two professionals also suggest CBT which I feel is a one size fits all solution. Reframing my thinking isn't going to help when I feel drugged for example when eating a can of sardines for dinner. Or I feel like falling asleep at an event like a playoff baseball game or an event I went to the other night where if I had, it would have been quite embarrassing.

What has helped in my case is to approach the problem as a matter of curiosity. For example, many people have suggested light therapy which I have tried many times. Tried it again last night and felt extremely drugged again. So I have ditched this for good.

Interestingly, playing my favorite soft rock music yesterday got me through that bad spell I always go through after eating a light dinner when I feel so drugged. Unfortunately, even though I am tapering the Temazepam I take for sleep, it has messed up my quality big time and at this point is only giving me five hours as you can tell from this posting. But that is better than the previous 3 or 4 hours I was getting.

My next goal is to see if there is something I can take with Temazepam that might enhance my sleep quality. Won't be an easy task but I will see what I can do. By the way, for you folks who suggest magnesium, I can barely tolerate 60mg. Just saying.

If you're wondering why I haven't consulted a sleep doctor, the doctors I saw could only suggest that I take meds to stay awake. Before I was diagnosed with lymphoma this year, I tried a very small dose of Provigil and got extremely agitated. Now that I have had chemotherapy, my body is even more med sensitive.

Unlike Max, I am willing to investigate the possibility of Integrative Doctors being helpful. After ruling out many of them as they sounded like they were offering a bunch of BS, I found one who may be a possibility. I am going to call his office to get a better sense of whether I am right or now.

Forgot to mention that two sleep docs ruled out narcolepsy which I agree with. One doc called my condition idiopathic hypersomnia which definitely didn't fit.

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MaxINTJ
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Re: Trelawney finally called

Post by MaxINTJ » Fri Nov 17, 2017 7:17 am

Rainmom17 wrote:I know you said you don't have insomnia and don't like airy-fairy mumbo-jumbo stuff. So maybe you won't like this idea. But a friend of mine went to a CBT sleep specialist to tackle the mental aspects of a sleep disorder. (CBT is Cognitive Behavioral Therapy.). So instead of just a numbers-oriented sleep doctor, she had someone who helped her reframe her thinking and, in her case, help her overcome her insomnia.
I had to waste nearly 2 months going through CBT-I before they would give me a sleep study. I don't even come close to having insomnia and my sleep hygiene was excellent before even starting it - because all the relevant information is available on the internet. The only change I made for CBT-I was to stop drinking coffee after 2:00 in the afternoon, and that made no difference. I had already been doing 99% of CBT-I for months before I sought medical help for my extreme tiredness - I just didn't know they has a special name for what I was doing.

The experience just added to my dislike of "airy fairy" crap.
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MaxINTJ
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Re: Trelawney finally called

Post by MaxINTJ » Fri Nov 17, 2017 7:25 am

49er wrote:Unlike Max, I am willing to investigate the possibility of Integrative Doctors being helpful. After ruling out many of them as they sounded like they were offering a bunch of BS, I found one who may be a possibility. I am going to call his office to get a better sense of whether I am right or now.

Forgot to mention that two sleep docs ruled out narcolepsy which I agree with. One doc called my condition idiopathic hypersomnia which definitely didn't fit.
Firstly, when someone can explain to me how meditation and yoga can help with SDB, I will consider it.

Secondly, that word (idiopathic) should be banned from the medical community.

I now have 3 conditions and I don't have risk factors for any of them other than age, and all three have been diagnosed as idiopathic.

I like how doctors can get away with tossing out the laws of chemistry and physics. There IS a reason something happens, idiopathic is just their "out" when they don't have a frickin clue.
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Madalot
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Re: Trelawney finally called

Post by Madalot » Fri Nov 17, 2017 7:54 am

MaxINTJ wrote:
49er wrote:Unlike Max, I am willing to investigate the possibility of Integrative Doctors being helpful. After ruling out many of them as they sounded like they were offering a bunch of BS, I found one who may be a possibility. I am going to call his office to get a better sense of whether I am right or now.

Forgot to mention that two sleep docs ruled out narcolepsy which I agree with. One doc called my condition idiopathic hypersomnia which definitely didn't fit.
Firstly, when someone can explain to me how meditation and yoga can help with SDB, I will consider it.

Secondly, that word (idiopathic) should be banned from the medical community.

I now have 3 conditions and I don't have risk factors for any of them other than age, and all three have been diagnosed as idiopathic.

I like how doctors can get away with tossing out the laws of chemistry and physics. There IS a reason something happens, idiopathic is just their "out" when they don't have a frickin clue.
Unfortunately Max, this post struck quite the nerve with me this morning. I've been in a mood the last 24-36 hours and your post has me pretty irked.

You think you are the only person on this planet that has issues? Cut me a fricking break. I spent 40+ years of my life being blamed for what now is known as an EXTREMELY rare genetic defect causing a Congenital Myasthenic Syndrome (only 5 other known people with this genetic defect). I spent the first 40 years of my life being teased and ridiculed over my weakness. I've been a weakling my entire life, TIRED ALL MY DAMNED LIFE, and even now, there's only so much they can do. I need two hands to lift a water glass, coffee mug and can only walk/stand a tiny amount. I need a wand to wipe my ass for goodness sakes!

I get more challenges every year than most people get in a lifetime. I'll do something fine one day (like squeeze a shampoo bottle) and the next day, BAMMO! I can no longer squeeze it. I have to adapt. And that's exactly what I do. I do not sit here crying about how awful it is and how nothing works. I find a way to make something work. Because I HAVE to.

I think it's time you got off your pity pot and instead of focusing on nothing but negativity and "nothing works" start focusing on what can and will work. If nothing else, a better attitude will make you feel better. Because your attitude truly sucks.

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MaxINTJ
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Re: Trelawney finally called

Post by MaxINTJ » Fri Nov 17, 2017 8:32 am

Madalot wrote:I think it's time you got off your pity pot and instead of focusing on nothing but negativity and "nothing works" start focusing on what can and will work. If nothing else, a better attitude will make you feel better. Because your attitude truly sucks.
I know you have more issues and they have much more impact on your daily life than most people - however, I'm betting your attitude has sucked a lot in your lifetime, and I bet you also have days when it still does.

My hope is that my sucky attitude is transient.

And actually, I don't usually have a negative attitude until after I try something and it fails. The exception to that is airy fairy stuff which I have never believed in, and the few times I've been forced into it, were completely pointless.
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Diagnosis of crappy sleep, desats under 80, maybe UARS