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General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Re: What caused you to seek medical help,....

Postby SunnyBeBe on Sun Nov 05, 2017 10:44 am

I have had 2 sleep studies. My first one was done about 15 years ago, due to my frequent arousals. I had mild snoring, but, no indication of Apnea or Hypopneas. They weren't sure why I had the arousals, but, suspected stress. I just learned to deal with it, without meds and it did get a little better.

Fast forward to a couple of years ago. I started getting up to urinate multiple times during the night. It was very annoying, however, I seemed to get my rest and I had no sleepiness nor did I feel tired during the day. THEN, I suddenly started waking up during the night feeling like I was dying. It wasn't that I had trouble breathing. I wasn't gasping for breath, or anything like that. It was just like terror. I still wonder if it was a panic attack. I was undergoing a lot of heavy stress at that time due to a thing in my family. SO, awaking that way scared me so much that I couldn't sleep, due to fear of it happening, so, that caused me to not sleep and therefore, I was then tired and sleepy. I actually looked forward to this sleep study, so I could get some sleep without feeling like I was dying. This study showed some hypopneas, but, it wasn't a severe case. I can't recall the numbers now. I do recall that it was mild, but, cpap recommended. It has worked wonderfully for me. I took to it quite well. I certainly needed it, because the nighttime urination stopped and so did the panic events.

I feel much better physically, and I have lost 45 pounds!

Oh, forgot to mention that I had a lot of brain fog during that time when I got my second sleep study. I was quite worried about my memory and ability to focus. But, that went away too and my focus and memory returned. I think that I'm stronger than ever. I actually took on a new career opportunity and got my Real Estate license! It was a cram class (75 hours) and then national and state tests. It was a bear, but, I hung in there and surprised myself passing on the first try! Not too shabby for a person over 50! lol
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Re: What caused you to seek medical help,....

Postby SewTired on Sun Nov 05, 2017 1:37 pm

I am affected by continual cloudy weather and will tend to be rather sleepy during that period . It's a version of Seasonal Affective Disorder (sleepy instead of depressed).

What drove me to get help was suddenly needing 2 naps a day despite 8-9 hours of sleeping like the dead. This occurred very rapidly after having surgery, so I can't discount that anesthesia didn't make bradycardia worse (it had been diagnosed only 3 months prior). My primary problem is the slow heart rate rather than RERAs. The apap is a stop gap to delay needing a pacemaker, but once I have a pacemaker, I may not need a machine at all.
Diabetes 2, RLS & bradycardia
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Re: What caused you to seek medical help,....

Postby Mark55 on Sun Nov 05, 2017 5:57 pm

It's amazing what some of us have gone through before the light bulb went off in a Docs head. I actually mentioned sleep apnea in passing not long after this first started, but my GP said since I wasn't overweight, didn't snore, and my neck size was not abnormally large that he didn't feel the very low odds were worth a sleep study.

Being totally honest here,....I pretty much agreed with him.

Off topic, but I had a horrible 6.5 hours on the machine last night. I think it's the worst night since I started trying to adapt to this thing. I'll skip the details, and simply hope for a better night tonight.

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Re: What caused you to seek medical help,....

Postby Cardsfan on Sun Nov 05, 2017 6:43 pm

I told my PCP that I snore that's it. He sent me home with an at home sleep test kit. - I had all the typical symptoms, heart palpitations, needed naps, tired all the time, brain fog, dizzy spells, peeing 5-6 times a night, etc, but I never put it all together as symptoms of sleep apnea. My biggest complaint was that I "never got any sleep". My husband would say "yes you do sleep, you were snoring all night". I'd tell him, no I didn't get any sleep because I felt like I was awake all night. Thank goodness my PCP jumped on the fact that I snore.

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Re: What caused you to seek medical help,....

Postby nickdanger1 on Sun Nov 05, 2017 8:12 pm

I changed doctors. In my first meeting with my new doctor we started talking about what was going on with me. He said, "Hmmm... you fall asleep in movies, you're sleepy during the day, you're always tired, you fall asleep immediately upon going to bed, you've gained weight, you're depressed, you have high blood pressure, you snore, and you seem to have a hard time breathing through your nose. Let's check for obstructive sleep apnea." It amazed me that in our very first meeting, this guy put it together and the other doctor I had been seeing for several years didn't come close...

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Re: What caused you to seek medical help,....

Postby bwexler on Mon Nov 13, 2017 8:36 pm

I went in for my first physical on Social Security. The doctor provided 2 diagnosis that visit, sleep apnea and AFIB.
He sent me to the hospital immediately for the AFIB and ordered a overnight pulse Ox test as the first step to confirm apnea.
I had never heard of Apnea at the time. I appeatently got great restful sleep between my 84 events per hour.

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Re: What caused you to seek medical help,....

Postby TBonz on Tue Nov 14, 2017 12:51 am

I have fibromyalgia, so I'm always tired anyway. But in July or August, things got worse. I felt like a zombie and was having to nap a bit, in spite of 8-9 hours of sleep a night. I went to my husband's doctor who listened to my explanation. My husband told him that I evidently would stop breathing every now and then. Who knew?

The doc checked my throat, said "sleep apnea" and sent me off for a home study (which didn't seem all that swift, to be honest). The verdict - severe sleep apnea.

Ironically, I've used the thing for almost a month now. In 5 days, I've had to nap twice. So I'm not sure if it's working for me. I'll never be sure due to the fibromyalgia.

Guess it can't hurt me.

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Re: What caused you to seek medical help,....

Postby Newbie312 on Tue Nov 14, 2017 1:08 am

Still waiting on official diagnosis....
I have been complaining about being tired for a long time to my doctor. My primary actually is being promoted to acting chief of the medical facility. Because of this I was assigned a PA. When I met with the PA among other things she suggested I get a sleep study. Honestly I have no idea why unless she saw my previous complaints or fact that I have never had hypertension under control and keep having to switch meds.
She suggested I get the study done and initially I said no because Veterans Choice funding ran out and I didn't want to have to wait months to get in and have to drive an hour each way. A week or two later I had open muscle biopsy done and anesthesiologist said I had sleep apnea. I then researched it and found that SA would explain so many issues of mine. I called up doctors after that and said sign me up. So hopefully soon I'll get my results from sleep study last week.

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Re: What caused you to seek medical help,....

Postby Sigridonocturna on Tue Nov 14, 2017 2:00 pm

More than 3 years ago, I asked another physician if I had Sleep Apnea. Categorically said no. Fast forward and new group noted slightly high Red Blood count, not alarming, but off and odd. So Hematology started looking for potential cancer causing blood to make more RBC than normal. (Had just stopped donating blood once a quarter.) So after all those tests came back normal, she suggested sleep apnea. Home test was only significant for less than 80% oxygenation for less than 5 minutes, not much more useful data, as it kept falling apart when I attempted to sleep. (Even woke up with a new bruise from where machine landed!) So off to a sleep lab, which went well considering sleep wise (Outside conditions) were among the worst, warm, windy etc. Next day filled with multiple power outages. So within one week, they said yes I needed a machine. Hoping to have the doc explain the sleep lab results. Returned to hematologist, who said RBC count was better, but still high, and when was I getting the approved machine "in-house"? It turns out my one donation in Oct lowered RBC count, DR didn't want count to fall even more by another donation at the same time as cpap started. I donated on a Monday, and my machine arrived the following Saturday. Been using it 5 Nov. just working through the learning curve. Thanks. :D

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Re: What caused you to seek medical help,....

Postby MoodyMolly on Tue Nov 14, 2017 2:26 pm

I was seeing a pulmonologist (who also happened to be a sleep specialist) for unrelated breathing issues. And in case it was relevant to my breathing issues, I told him how I would wake up suddenly in the night, with a racing heart, gasping for breath, and feeling light-headed as though my brain wasn't getting oxygen. Right away he said that he could order me a sleep study if I wanted, even though I didn't have the markers for sleep apnea, as I'm not overweight, male, have a large neck, nor was I over 40. But my dad, aunt and 2 uncles all have sleep apnea, so it was likely that I could anyway. I declined because I wanted to figure out my other breathing issues first before adding another reason for doctor visits (and no insurance...) But a few weeks later, I was taking muscle relaxers for a back problem, and my husband noticed as I was falling asleep, that I stopped breathing every 30 seconds for about 14 seconds, until he woke me up to tell me that I wasn't breathing. I called the doctor, and told him I wanted the sleep study after all, and I had an study scheduled for 2 weeks later. 4 weeks after the sleep study, (and 6wks after my request for a sleep study) I had my diagnosis of moderate sleep apnea and got an APAP machine, and here I am 1.5 weeks into my therapy. Luckily for me, my doctor and clinic were proactive and worked fast, it looks like it took a lot of you months before you got answers and treatment.

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Re: What caused you to seek medical help,....

Postby nicholasjh1 on Tue Nov 14, 2017 2:47 pm

Julie wrote:Never sleepy for a minute, but my now ex told me I stopped breathing, only eventually giving a big gasp, plus had little a.m. headaches, and wild dreams just in the last couple of mos. before dx'g. Also had little night sweats though I was recently over otherwise uneventful menopause.

Interesting to hear someone else have that... I never had much falling asleep issues either... at least not unless I was sick, just constantly fatigue, nocturia, foggy thinking. I was diagnosed with sever apnea, but I believe that may only have been "some" nights... (I had a cold during my diagnosis.) but I felt immediate relief the first night of treatment. I also live in a high altitude, so I think the lower pressure may have been causing desats with hypopnea.

Edit: oh, and it was on a regular checkup for depression, My doc had mentioned apnea before, and my x girlfriend had mentioned not breathing. I just finally gave in and took the home test (or maybe I had to convice my doc the home test was where it was at.) I had been balking at the sleep study for almost a year due to the cost. Wish I had just pushed for the home study sooner.
Instead of Sleep apnea it should be called "Sleep starving of oxygen, being poisoned by high CO2 levels, damaging the body and brain while it's supposed to be healing so that you constantly get worse day over day and can never get healthy Apnea"

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Re: What caused you to seek medical help,....

Postby Muse-Inc on Tue Nov 14, 2017 2:50 pm

I felt so bad I thought I was on my way to dying. Exhausted for many years, doc didn't catch apnea because...well, woman HAHAHAHAHA -- idiot. Changed docs and first visit, my BP was 215/110 (usually 65-70/55 runs in family), queries me re exhaustion, big black undereyes -- says he suspects sleep apnea. Asks if I know what it is, I say I know how to spell it LOL. Given name of sleep doc to get scheduled with, great doc. Started sleeping with baby monitor and on side, 4 mos later sleep study shows severe & I become a hosehead -- that was Aug 2007. Have not intentionally slept without equipment sInce then. Yearly AHI is 0.1. I remember how exhausted I was, incredible I was functional. Too, I discovered how compromised my thinking had been and how that compromised my verbal fluency (not good in a user liaison & design meeting moderator). BP mostly normal now, stress shoots systolic up. I can exercise now, before I couldn't. Seldom get sleepy in daytime unless stressed. No more short term memory problems.

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