Newbie would like to hear success stories, please.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
Sleepysuz
Posts: 165
Joined: Thu Jul 31, 2014 9:31 pm

Re: Newbie would like to hear success stories, please.

Post by Sleepysuz » Wed Oct 21, 2015 5:12 pm

Have had my APAP 14 months now. I suspect I needed it since I was a teen 45 years ago. Have always snored and woken suddenly with heart racing and having to get up to pee even if I didn't drink much. Was thin woman, but have a small mouth and overbite. Both set you up for apnea. Have been sleepy in movies and waiting rooms all my life. What a waste! Cpap Changed my life. A friend had to get a pacemaker when apnea messed up their heart. Glad mine was caught in time

One advice. Don't give up. I had to try almost every mask and pillow to find what worked for me. It took a couple of months. My DME had a box of sample masks to try to fit. I ordered ones you could return from our host. There is a mask for you. Your health is worth the work to find it

_________________
MaskHumidifier
Additional Comments: CozyHose Boss with clip modified on APAP, Sleepyhead

Pinky

Re: Newbie would like to hear success stories, please.

Post by Pinky » Thu Oct 22, 2015 2:54 pm

Hi Newbie. Some encouragement and a tad of advice. I have had my full face mask for about 5 weeks now but needed it years a go. For my first two weeks, I got almost zero rest (almost like my apnea caused) but, determined to make it work, my husband was online and found the full face and nasal cotton liners from RemZzzs. I have been using them every night and have got such great rest that I stay alert and have energy now!! I very seldom have a leak anymore. I would highly recommend them to anyone who is having the frequent leak problem.

turtle

Re: Newbie would like to hear success stories, please.

Post by turtle » Sat Oct 24, 2015 8:01 am

I'm a newbie with a success story already. I completed two sleep studies in June and July 2015. Dx with severe apnea and now wear a bipap every night. I tried 2 other masks -- nasal, partial face and now full face. For me, full face turned out to be the best. I had trouble with the chin strap I needed to wear to keep my mouth closed. The full face (which is just really the nose and mouth) does not require me to wear the chin strap. I sleep deeply and am not ravenous throughout the day. Bipap has stabilized my metabolism, and I've lost 13 lbs without hardly trying. I am refreshed in the morning and require only 6 hours of deep bipap sleep. I work with a nurse practitioner. I will remain dedicated to this process because of the quality of life and reduction of risk factors.

User avatar
sparkgaps
Posts: 3
Joined: Wed Nov 04, 2015 2:13 pm
Location: North Carolina

Re: Newbie would like to hear success stories, please.

Post by sparkgaps » Wed Nov 04, 2015 2:48 pm

Newest of all "newbies" here.

I finally bit the bullet and had a sleep study done. Dr. immediately put me on CPAP. And I finally got it today. (ResMed 10 Autoset/Pillow)

While trying to learn more about the ResMed and looking for other user experiences, I ran across this forum/post.

While reading everyone's stories, I didn't know if I wanted to laugh, cry, or puke. I have been searching for the cause of my demons for the last 8 years... And I have read every one of my symptoms in this post!

Many years ago, I was at work... I felt like I blacked out for a second and my heart rate was through the roof. I went to an urgent care and my BP was at 200/110... After about 10 minutes it rested back to a normal place. Dr.'s wanted to put me on BP meds but I never took them because it was an isolated incident. After this ordeal, I've felt cloudy ever since...

Between EKG, MRI, Sinus Surgery, BP Meds, Allergy treatment, ENT evals, mucho weight loss, caffeine/nicotine free... I am still spiraling down... Lack of energy, cloudy, reflexes gone, memory shot... Nothing seems to be working...

About 6 months ago I was traveling overseas. I woke up at midnight with my heart about ready to jump out of my chest. Luckily, I was traveling with an MD, and 4hrs later I was back to normal... But concluded that I need to change my life and health...

So I came home and lost 50 lbs and really changed my diet. Not feeling any better, but work must go on... I traveled overseas again... In a taxi ride on the way to the office and I felt like I was going to pass out... By time I made it to the office, my heart rate was going crazy and I was shaky/weak. Rushed to the hospital and EKG/blood work was normal...

When I got back from that trip, I went to see a Neurologist. And of course he put me on a CPAP... Which is where I am starting my journey today...

While this is not a success story... YET... I found a glimmer of hope and excitement from reading other peoples stories... I've read so many stories that sound just like mine!

Thanks so much for taking the time to share your stories!!!!! And I will definitely share mine in time!

_________________
MachineMask
Additional Comments: Use ResMed myAir and SleepyHead

NightAir
Posts: 1
Joined: Mon Sep 05, 2011 6:35 am
Location: Rochster, Minnesota
Contact:

Re: Newbie would like to hear success stories, please.

Post by NightAir » Sat Nov 28, 2015 3:27 pm

turtle wrote:I'm a newbie with a success story already. I completed two sleep studies in June and July 2015. Dx with severe apnea and now wear a bipap every night. I tried 2 other masks -- nasal, partial face and now full face. For me, full face turned out to be the best. I had trouble with the chin strap I needed to wear to keep my mouth closed. The full face (which is just really the nose and mouth) does not require me to wear the chin strap. I sleep deeply and am not ravenous throughout the day. Bipap has stabilized my metabolism, and I've lost 13 lbs without hardly trying. I am refreshed in the morning and require only 6 hours of deep bipap sleep. I work with a nurse practitioner. I will remain dedicated to this process because of the quality of life and reduction of risk factors.


Find the right BiPap or BiLevel and right mask! Then watch your life change! Stick with it! Do not give up!

User avatar
bro5mo
Posts: 4
Joined: Mon Dec 07, 2015 10:01 am

Re: Newbie would like to hear success stories, please.

Post by bro5mo » Tue Dec 08, 2015 11:21 am

First post for me...

I wore my full mask with air/gel seal last night for the first time. Once I fell asleep I was surprised to only wake up twice. I slept in four hour blocks and needed a break from the mask. I have suspected apnea for years because I sleep with a nurse (my wife). She said She also had the best nights sleep in a while.

I am a pilot so when not at work I would sleep in till 1000 then wake up tired and ready to sleep again. This morning I was up around 0730 ready to go. I worked out and still have most of my day left!! I feel great. In my sleep study I was having events every minute and they woke me up at 2400 to put a mask on me. I feel this is the best nights sleep I have had since I was in my 20's.

I have a lot to learn. I travel six months out of the year, so I need to get into a routine for this stuff.

Hang in there and keep on using the mask. You'll get there!

Rick

_________________
Mask: Simplus Full Face CPAP Mask with Headgear
Humidifier: 60 Series Heated Humidifier (Non-Heated Tube)
Additional Comments: Using "Sleepmapper" software with SYS One

User avatar
bpathakis
Posts: 11
Joined: Mon Nov 16, 2015 11:42 am

Re: Newbie would like to hear success stories, please.

Post by bpathakis » Tue Dec 15, 2015 4:12 pm

Hi,

I'm relatively new to cpap therapy. I've been using my cpap for just under a month, but I already have some positive results.

First, I'm getting more sleep, and better quality sleep. For me, that means about 5-6 hours of sleep a night, which is much better than I was getting before (2-4 hours).

Second, my wife and co-workers commented that I'm much more cheerful and less grumpy than before.

It has taken some adjustment using a cpap, but for me it's been worth it.

_________________
Machine

tr women

Re: Newbie would like to hear success stories, please.

Post by tr women » Wed Dec 16, 2015 9:50 am

I have had my CPAP machine for 3 years now. I use it every night. Before I never felt rested. I would fall asleep anywhere Is sat down at. believe me it was enbarresing to say the least. I would fall asleep during at a meeting and everyone would watch me. Even my boss. Now I feel well rested and I stay awake !!!!! I would'nt do without it.

zaria37

Re: Newbie would like to hear success stories, please.

Post by zaria37 » Thu Dec 17, 2015 4:50 pm

Hi, I was diagnosed with acute osa, and have had a cpap machine since 2008. I have to say I consider it a lifesaver. While it took a while to feel more energy, I started sleeping through the night immediately. When before it looked like someone had attacked me during the hight, now I wake up in the same position I fell asleep in. I haven't been able to sleep well without it, evevthough the mask took some getting used to. The newer, nose only models with the thinner straps are much more comfortable. I haven't seen much of a weight loss, but the rest of the benefits are worth it.

User avatar
Cindiwa
Posts: 5
Joined: Sat May 30, 2015 12:36 pm

Re: Newbie would like to hear success stories, please.

Post by Cindiwa » Mon Jan 04, 2016 3:27 pm

I have had my CPAP for about 4 years and I love it so much (Its a system one 460 now that I got used to have a heated hose, I get rain out from keeping my bedroom so cold)! When I did my sleep study and was hooked up to those electrodes, I kept apologizing in advance to the Drs that I would have to wake up and pee every half hour or more and those electrodes would be coming off and on all night. They woke me up at the 2 hour mark and stuck a mask on me. It was awful at first, felt like I was not getting enough air but after I relaxed, I slept for 5 straight hours!!!!!!!!!!!!! No getting up to pee. I felt rested, for the first time in who knows how long? I have snored my whole life, I have a small mouth and small sinuses and have had friends make me sleep in the hotel bathrooms on trips. My husband kept telling me that I was choking in the night and I asked him how much and he told me every few minutes! My Dr sent my butt right to the sleep study and and my whatever that number that counts how often you quit breathing was 117 (I think?). They told me I was one of the worst they'd seen in awhile.

If I fall asleep without the mask (like for a nap in the afternoon) my throat and head hurts so much from snoring. I have lost a little weight but still have sleep apnea. I think I have to stay friends with my machine for the rest of my life but I don't feel right without it. I love the masks I have had since the beginning (Mirage FX for her) and I can sleep on my side with them. I am a light sleeper so haven't had problems with pulling the mask off or anything. I read these forums (I don't post much) but saw some ideas on ways to hook my hose to go up through a hook in the ceiling and that is what I do. Its comfortable and I was able to get rid of the big ole hose stand thing. I get checked yearly to keep my prescription updated and my number thing is 2.5 a night(I think its how much I slip in an apnea) I'm not very technical, but I have had much success with my machine and tell anybody who asks. So far 2 people I know got CPAP and won't use it and I actually feel bad for them because of how much it changed my life once I was able to sleep at night and not feel like I need to sleep all day.

Night Ranger
Posts: 24
Joined: Sun Jan 10, 2016 10:19 am

Re: Newbie would like to hear success stories, please.

Post by Night Ranger » Sun Jan 10, 2016 4:11 pm

18 years this May. Took a while but my apnea and subsequent fatigue made qujring impossible. Last sleep study in 2010 -- had to do it for medicare. The lab was kind enough to let me lay in the bed for 2-3 hours gasping, choking and suffocating to make sure I qualified. I'd been 100% compliant since 1997 but no matter. Put on my mask and had the titration. Next day was bad. Doing fine -- living in the present -- bought my own auto cpap -- insurance wouldn't pay -- need to get it set up and off I go.

User avatar
oncomingspork
Posts: 31
Joined: Mon Dec 14, 2015 9:13 pm

Re: Newbie would like to hear success stories, please.

Post by oncomingspork » Mon Jan 11, 2016 11:56 pm

It's been a week and I feel pretty good. My only quibble is the pillows are a tiny bit large, but the next smaller size goes whistly with leaks. So I put lotion on my nose before bed, and that seems to help.

AHI went from 18 down to like...2ish. I'll take it! I went 5 days without a nap! And I only took one today because I think I'm coming down with something. (Wore the mask during the nap, too.)

docanddeb
Posts: 2
Joined: Tue Dec 15, 2015 11:12 am

Re: Newbie would like to hear success stories, please.

Post by docanddeb » Tue Jan 19, 2016 2:23 pm

3 months in now. Took me 3 weeks to get used to it, but soooo worth it! I've had insomnia my whole adult life. I still wake up more than most, but my sleep quality has improved and I fall asleep MUCH faster than I used to. I really feel this great machine has improved my quality of life... husband got one at the same time and he is better too. I even made some great cotton covers for the full masks that helped with my skin irritation. My brother and his wife are getting machines too. Amazing how many people are affected and don't know it! Keep at it and get something that works, your life depends on it!

Debbie
Debbie & Jim
CPAP for LIFE!

dianeroblinsharp

Re: Newbie would like to hear success stories, please.

Post by dianeroblinsharp » Thu Jan 21, 2016 5:38 pm

I was diagnosed in 2006, just after my divorce, so it was double devastation. The strap marks left from the mask in the morning were the worst part because I looked like I'd been hit by a train for the first few hours of every day. So - I designed a mask that would interface between the CPAP mask and the skin and it worked! No more strap marks! So I thought if it helped me, it could help other people too. I started to make them and the first sleep clinic bought my entire stock! I called it the Face Cozy because it makes the CPAP experience a little cozier! If you go to Face Cozy dot com, you can see a video that shows how it works.
SO now that my strap issues are fixed, I get a much better sleep and snoring is a thing of the past. I know I'm not going to have a stroke in the middle of the night. My health is generally greatly improved and, at 70 years of age, I feel great!

User avatar
Mr Nifty
Posts: 37
Joined: Sun Jan 17, 2016 9:50 am

Re: Newbie would like to hear success stories, please.

Post by Mr Nifty » Sun Jan 24, 2016 11:10 pm

No one could figure out why I had to urinate 3 to 4 times a night. They did a bunch of tests of me and none provided the answer. Recently after a colonoscopy a anesthesiologist recommended I have a sleep test because I may have sleep apnea. As it turns out I have severe sleep apnea. With my bipap I now do not need to urinate most nights. I get a decent 8 hour sleep. Still waking up some and getting used to mask. Been sleeping better since January 13th 2016.

But I am really struggling with finding a mask that does not leak. Due to my high pressure they all seem to leak.

I have tried the following masks.ng
ResMed-FFM
AirFit F10-FFM
Swift FX Nano-Pillow
AirFit N10-Nasal
Mirage Liberty-Hybrid FFM
Mirage Quattro-FFM

Have two more masks on order. ResMed Mirage Active LT Nasal and Respironics ComfortGel Blue
Sleeping better since 01/13/2016
Masks I have tried
AirFit F10-FFM, AirFit N10-Nasal, Mirage Liberty-Hybrid FFM, Mirage Quattro-FFM, Swift FX Nano-Pillow, Mirage Activa LT-Nasal, ComfortGel Blue-FFM, Amara View -FFM, Pilairo Q -Pillow, Dreamwear -Nasal