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General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Re: Newbie would like to hear success stories, please.

Postby Ilikecpap on Wed May 20, 2015 2:38 pm

I posted here before but it was a long time ago so I'll post again. I had a terrible time at the sleep study; not only because of the mask but the whole experience. I got very little sleep and it felt like none but the tech said he got some data. The first night at home with my machine went great though. I slept 8 hours with it and had no trouble at all and not much since then. For the first year leaks bothered me a lot; even small leaks would wake me up especially in the first 6 months. It's been nearly 3 years now and I'm not good about bothering to replace cushions on the Respironics True Blue mask that I use (I started out with that one, tried others and always returned to it and now I wouldn't change) so I often get some serious leaks but after this amount of time I don't even notice them or the mask. I don't use humidity much anymore either. I leave the tank empty and the heat turned off. My doctor isn't happy with how slack I am about maintenance lol, but I'm slack about many other things so yeah... I haven't slept a night without CPAP since I got it and I doubt I could now. I use the Respironics System One RemStar Auto at 13 cm pressure in CPAP mode and never use ramp. My AHI is around 1.4 and I don't need as much sleep as I did before. It took a year before I noticed my memory getting better and other things improving but it's working for me. I've always thought that part of the reason some people have trouble getting used to it may be because they anticipate that they will. Try to think positive and never mind all the horror stories and maybe it will go better for you. My experience shows that it doesn't have to be a bad experience. Ilikecpap!

Mask Humidifier 
Additional Comments: I also use SleepyHead software
Yes the pic in my avatar is really me.

bird dog
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Re: Newbie would like to hear success stories, please.

Postby bird dog on Sat May 30, 2015 12:42 pm

Second night with new machine, slept for over 8 hours feel awesome.

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Re: Newbie would like to hear success stories, please.

Postby nlamb75216 on Sun May 31, 2015 7:39 pm

I can get up after 8 hours of sleep
my mind is beginning to clear up after 40 years of anxiety,depression and obsessive compulsive behaviour
I don't get as jittery as I used to around people
I would become confused and thought I was having a stroke

I dont have the same recurring nightmares of a tornado threatening death (as a sidebar, I spoke with another CPAP user and he used have tornado dreams too

I went from 28 events to 6 per hour

I dont need to drink alcohol to feel better

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Re: Newbie would like to hear success stories, please.

Postby ZZzseekerREM on Mon Jun 01, 2015 11:50 am

I love and cherish good, quality sleep. I would wear scuba gear to bed if I thought that it would help me sleep better. But alas, I don't have to- just a small APAP machine and nasal pillow mask works for me. After 3 weeks I am feeling better day by day. It is not like one day after I felt I could conquer the world- just small increments in noticing how I had physical and mental energy during parts of the day when I normally didn't before. It is amazing how your body and mind get used to small changes (positive and negative) and then they just become the "norm". The negative side being evident by how most of us had undiagnosed OSA and then it gradually just got worse until the point of seeking treatment/help. That period of time could be days, weeks, years, or decades.

I like that my wife can sleep with me undisturbed and without ear plugs. I like the fact that I am trying to get better for her and my family. I want to hold her hand when we are old and gray and see my kids grow up to have their own kids. We all must do what we have to do to get better and never stop trying.


Re: Newbie would like to hear success stories, please.

Postby Prismatic on Fri Jun 05, 2015 10:54 am

I may qualify as a success story. I have been using a CPAP (now an APAP) machine for nine years. I took to it rather easily and the major problem I have had is itching from the mask. I sue a full face mask since I am a mouth breather. I turn 80 next month and CPAP therapy has kept me healthy. Over time the incidence of apneas during the night has been greatly reduced, probably due to losing weight in addition to the therapy. I have travelled to Europe with the machine and all over the United States.

Over time the effects have diminished quite a bit and I think that was due to the machine wearing out. Recently I got a new machine and the difference is amazing. It has been particularly helpful with nocturia—getting up in the night to urinate because of prostate enlargement. I now sleep through the night without interruptions. That alone is enough to justify its use, but the consequent improvement in my mood and ability to deal with difficulties has been a bonus.

Another way in which CPAP therapy has helped is in reducing and all but eliminating night terrors. Every once in a while I used to wake up yelling and flailing about. That has been improved enormously. I also had great anxiety when waking up in the morning and none of my doctors could even suggest a remedy, but the CPAP machine has helped with that too.

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Re: Newbie would like to hear success stories, please.

Postby englandsf on Sun Jun 14, 2015 12:48 am

Tonight is my 366th night on CPAP. One year down. Changed my life for sure... and for the good. Thanks to all, especially Pugsy, for all the help along the way. Without you folks I would not have made it into CPAP land.

Machine: S9 AutoSet™ CPAP Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Sleepyhead SW. NeilMed and Alkalol Nasal rinses. Veramyst. AutoPAP 11-20 cms. Started June '14, untreated AHI 31-38, with PAP around 1.

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Re: Newbie would like to hear success stories, please.

Postby sleepysonya on Wed Jun 24, 2015 6:04 pm

My story is a bit different than most. Growing up I was guilty of horrible snoring! Everyone said I sounded like a giant man when I slept. This had been the case since I was a young girl. I also always suffered from nasal congestion and got colds a lot. Nothing that really caused any real concerns, but when I was 17 and in my first year of grade 12 I got really sick. It started with what they thought was strep throat, then Mono, and then sinus infections. I was constantly on antibiotics. I completely lost my appetite which resulted in me losing 40lbs in two months. I went from straight A's to failing all of my classes. I had no ability to retain any information, I spent all my class time just trying to stay awake. I would fall asleep through any exams and the minute I had to look at any paper I couldnt read it, because I could not focus my eyes. I became extremely depressed and spent all my time in bed trying to rest with no results. I was scheduled to get my wisdom teeth out, and even though I was sick they decided to do it anyway. I was put under as I was getting all four out at once. when I woke up the dentist asked if I had sleep apnea as they said my tougne would fall into my throat and would cause me to choke and stop breathing. My parents took me to a specialist, I took the test and was diagnosed with severe obstructive sleep apnea. A few days later a woman came over with a machine for me and one of the full face masks. I found it extremely uncomfortable and had diffuctly sleeping. After a few horrible nights I develope blisters on my face from where the mask sat. ( AWFUL! ) The woman came back and fitted me for a new mask that was just the nasal pillows. I was able to sleep with it the first night. When I woke up I was a completely different person. I had so much energy, was absoluting starving and ate everything in sight ( sure gained that weight back ) and couldnt stop smiling.
Now I'm 24 and feel like I have my apnea under control. I seriously can not function without my CPAP machine. I have no idea why I went so long without any major effects, but after those horrible 4 months in grade 12 I cant imagine my life without it.

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Re: Newbie would like to hear success stories, please.

Postby SunnyBeBe on Thu Jun 25, 2015 9:45 am

It's nice to see so many positive and encouraging stories. I have one too.

I had trouble staying asleep many years ago and in 1999 had a sleep study that supported that, but showed no breathing issues, no apnea, no hypopnea, etc. I just dealt with it.

Fast forward to one year ago when I started getting up to use the bathroom several times during the night. My doctor reduced my blood pressure meds, but it didn't help. I'm a Type I diabetic, but my blood sugars were good and not the culprit. Months later when I was going through a personal crisis and under stress, I would suddenly awake from my sleep with the feeling that I was dying. It was horrible. I was not gasping for air, but had the feeling I was almost dead. I saw an ENT and GP and had a sleep study. I did have breathing issues this time.

I think I took to the cpap pretty well. I had to switch to a medium nasal pillow and use a little gel on my nose, but the soreness left and I sleep like a baby. It's only been about 3 weeks! I still have a little arousal, but I no longer have to go to the bathroom during the night and I get solid 8-9 hours of sleep.

After a couple of days, I spontaneously danced around the house for no particular reason! I've gotten my spunk back. It's not a huge difference, but there is some difference. I now feel like I CAN accomplish tasks and enjoy doing them.

Now I find myself being concerned about others who I suspect have this condition. But, what can you do when a person refuses to explore that possibility? It's their business, but if they only knew how serious it can be.........I'm not sure why some people are so afraid to check it out. Our health and family is all we really have in this world. If we can protect it, then why not give it a try.
Machine: ResMed AirSense 10 AutoSet (contains humidifier)
Nuance Pro Gel Pillow and headgear

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Re: Newbie would like to hear success stories, please.

Postby BananaTree on Thu Jul 02, 2015 4:24 am

Amazingly positive stories!

I don't have mine to add yet, as I just did my first night last night, and had about 1 1/2 hours sleep. But I remain positive, an hope that I can add my own success story to this list. in a few weeks time! :D

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Re: Newbie would like to hear success stories, please.

Postby Gasper62 on Mon Jul 20, 2015 2:35 pm

Last night's stats were an AHI of 0 and a 95% leak rate of 16.8 L/min.! My AHI hasn't gone over 1 since I changed to a data capable APAP machine back in April. I don't feel exhausted all the time anymore and I can now watch a TV show all the way through without nodding off. I'm considering mine a "success story" :D


Re: Newbie would like to hear success stories, please.

Postby Justin3 on Mon Jul 27, 2015 1:35 pm

I've had a CPAP machine for about 3 weeks now and I already noticed a huge difference.

A little back story, I was always on the heavier side, walking around at 210ish. Before I went to college, I ended up training Mixed Martial Arts and ended up walking around at 175. I started going to college and the stress and late nights stopped me from working out and eating healthy. Fast forward to this year, I weighed 238 and my girlfriend was the one who pointed out my sleep apnea.
After I got my sleep test and got my CPAP, my life changed drastically.
I'm down to 228 right now, I've been exercising and making the attempt to eat healthy(Although school makes it difficult) but most importantly, I am getting real sleep. My sleep was so messed up before the CPAP that I literally was a zombie for morning classes and dosed off once it was noon and without naps, I was dead. Driving on the freeway was bad because I would get drowzy.
Now, I wake up early, usually around 6:30 and I haven't used my alarm clock since and I feel refreshed and I haven't dosed off in class and my grades are improving and so is my quality of work.

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Re: Newbie would like to hear success stories, please.

Postby Nosleep4me on Thu Aug 27, 2015 9:57 pm

I'm a cdl driver and was forced into this scam after a bunch of lobbiests paid off politicians to force us(cdl drivers) into the sleep clinics. I have never had a problem sleeping and didnt feel tired on my long days of work. I lost 2 weeks pay just going into to do the stupid studies and fitting for the elephant mask. This doesn't count what I will be stuck with on my insurence deductable and having to pay for this overpriced humidifier with a fan on it. I even told the con artist that scheduled the testing I didnt understand why they bothered with the test because they already knew they were going to sell me the piece of chit machine and ruin my life. Sometimes i hate being right. Now that I have been using the snake oil I get no sleep and and suffer with headaches and a nasal congestion for most of the day. I'm tired all day and feel like kicking someones teeth in. Mostly the corrupt sob's in Washington for making me give my money to people who couldn't earn an honest living. I'm sure there are some people who have a problem but that doesn't mean everyone does and now unless I give up my license and quit my job I'm pretty much screwed. Madder than hell dont begin to cover it

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Re: Newbie would like to hear success stories, please.

Postby HoseCrusher on Fri Aug 28, 2015 12:18 am

The question comes down to what did your sleep study show?

You should get your results and review them.

If your data shows problems during sleep you should be thankful that they were found early and you may be able to repair any damage that has been done.

If your data doesn't show any issues, your anger is justified.

Mask: Nuance & Nuance Pro Nasal Pillow CPAP Mask with Gel Nasal Pillows
Humidifier: HumidAire H4i™ Heated Humidifier
Additional Comments: Retired my Swift FX
Machine is an S8 Autoset II. SpO2 96+% and holding...

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Re: Newbie would like to hear success stories, please.

Postby Jan63 on Tue Sep 01, 2015 9:56 pm

Best thing I ever did!!! I felt better after I worked out the migraines...
Had to change mask! I feel better have more energy!!!
Love my cpap!!! Only had it since March!!! Best thing I ever did!!

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Re: Newbie would like to hear success stories, please.

Postby the_nap_ster on Sat Sep 12, 2015 2:09 am

Hey all!

This forum helped me SO MUCH during my rough beginning, thought I'd post a happy update/success story!

I'm coming up on 3.5 years of xPAP therapy, and those first few months, I had a lot of doubts about whether I could make this work. In addition to OSA, I am a terrible sleeper, easily disturbed by noise and things on my face. I tried approximately a million masks, and each one felt not quite right.

Until I found one that was. I am still using the Mirage Liberty, years later, and it just *works* for me. I played with hose management, chin straps, hose covers, mask liners -- you name it, I played with it (and still do play with it), and pretty soon, all the pieces started to fall into place.

Now, I can't tell you how much I love this thing. My sleep is awesome, and I need less of it. My memory has increased and my blood pressure has decreased. This last year, in addition to my regular day job, I completed a 200 hour yoga teacher training, because why the hell not? I've got the energy/stamina for it. I could not have said that five years ago. I feel like this therapy has made me younger.

It was not an easy go for me, and I thought about quitting A LOT. But now, looking back, I am so grateful I didn't. And I owe so much gratitude to the kind people on this forum who helped me through my dark nights. If you're having a rough time, please know how great it looks on the other side. Much luck and affection! xo
PS: I am usually browsing this forum on my phone during boring meetings, so please forgive my thumb-driven typos!
My husband is also a PAPster, and he uses: S9 Autoset/Bella Loops/Sleepyhead.


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