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General Discussion on any topic relating to CPAP and/or Sleep Apnea.
rapadron
 
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Re: Newbie would like to hear success stories, please.

Postby rapadron on Sat Jun 18, 2016 11:59 am

ratcfc wrote:I had very severe OSA , and the situation got much worse approx 15 months ago. I noticed that I had lost a lot of stamina, was putting on weight, and was just struggling to get through a full day of work. I used to get up on weekends and do things in the morning...and in the last 6 months I have basically been unable to wake up on saturday mornings, and have needed naps all through the weekend just to recover from the lack of sleep during the week.

I finally got on CPAP using the FP Ikon+ and Resmed nose only mask this monday. I felt immediate improvement in my energy, ability to concentrate, and general wakefulness. After the fourth day, I noticed a transformation in my mood and energy, and also noticed that my senses were sharper. Food tasted better. Music sounded better. Exercise was easier and the endorphins felt stronger. I was...happier. My acid reflux has reduced significantly as well

It's early days so I dont want to jinx anything but I am very greatful,

I do still wake up a couple of times when the air pressure gets a little too much and I have to press the bridge button, and I seem to be grinding my teeth a little, but I am going to monitor this over the next few weeks to see how it goes.



This is my very first post. This is definitely a new chapter in my life. however, like ratcfc here. I felt a huge improvement to my overall feeling and wakefulness. I had difficulty waking up in the morning, my wife used to get so annoyed and I kept telling here that I really could not get up and she thought I was making it all up...

After only 2 days I feel amazing and like many posters here in this thread feel like crap because they let their OSA ride for so long. I'm truly amazed at how different I feel from 2 days ago. I truly felt like a zombie compared to how I feel now. All I can comment on now is the difference of how I feel. Im will be checking back to report after a month or so regarding the acid reflux and such. so far my wife says I haven't snored in 2 days. my AHI went from 63 to 2.5 the first night to .5 the second night.

Arlene1963
 
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Re: Newbie would like to hear success stories, please.

Postby Arlene1963 on Mon Jun 20, 2016 2:17 am

Honestly, I fought XPAP at first. Maybe it's because I never felt unwell or tired from OSA and was very angry about having been diagnosed with it ... I follow a fairly healthy lifestyle and so it was a shock.

The way that OSA is presented by the medical community definitely implies that OSA is partly controllable with lifestyle changes, and there is a strong undercurrent of blaming the patient for this condition.

Even though I wasn't overweight at the time of diagnosis, the very first recommendation in my sleep report stated unequivocally that " weight loss is the best way of controlling OSA and reducing AHI."

So, I lost about 5kg over a few months, which reduced my weight by about 10%, and I added additional exercise to my already fairly active life.

Even bought a didgeridoo for Pete's sake (only frightened the cats!) ....now this I regret! :lol:

But eventually I decided to just "do it" and literally suck it up.

Some nights I only wore the mask for 4 hours, other nights for longer. I decided not to make it any harder than I needed to, so I didn't punish myself with angry recriminations if I didn't do the full 7 or 8 hours per night.

Ironically this made me use the machine for longer and longer each night, and with greater success.

ETA: I'm updating this again several months forward to add that the most important thing I learned here is to take control of my own therapy, not to rely on anyone else to do this, and to make changes to my entire life. This doesn't just involve a magic AHI number, but sleep hygiene, stress management, a healthy diet, exercise and weight management. But CPAP enables all this.

So stick with it if you can because it isn't always an overnight process but with time it gets easier.

Be gentle on yourself and know that XPAP is the one of the best gifts you can give your health (emotional and physical) in the long run.
Last edited by Arlene1963 on Tue Sep 20, 2016 4:54 am, edited 3 times in total.

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Caymangirl
 
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Re: Newbie would like to hear success stories, please.

Postby Caymangirl on Tue Jul 05, 2016 6:48 pm

I would say "on my way to success" since I have only been using my CPap for 10 months. In that 10 months I have never missed a night, simply because for me I know it's life with the CPap or the alternative. As I read these stories I can see so much of my own pre and post CPap life reflected in them. But I know I am getting better, BP is lower, depression is better more energy, etc. The support of forums like these is very important, before I found these forums I really felt isolated, uneducated and alone. In two days I have learned so much, including that I needed to replace some parts and filters! Now I need to learn the terms like AHi and how to read my machine.

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jaw
 
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Re: Newbie would like to hear success stories, please.

Postby jaw on Thu Jul 21, 2016 10:56 pm

3 months 21 days here on CPAP, pressure around 8.

Visible: less sleepy around noon.
Less visible: feeling of brain fogginess / weirdness at 10:00 AM.

_________________
Mask: Mirage™ FX Nasal CPAP Mask with Headgear
Humidifier: PR System One 50 Series Heated Humidifier
Additional Comments: > 15 years of Apnea, discovered in 2016 with AHI = 50
> 15 years of Apnea, discovered in 2016 with AHI = 50
using PR System One REMstar Pro CPAP Machine with C-Flex Plus, PR System One Heated Humidifier, Mirage FX Nasal CPAP Mask with headgear.

radiowriter
 
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Re: Newbie would like to hear success stories, please.

Postby radiowriter on Tue Jul 26, 2016 7:32 pm

I guess I'm lucky, in that adapting to the mask was no trouble. And though I've been called a "mouth-breather," I think that was a comment on my basic intelligence; I seem to sleep with my mouth closed.
Diagnosed a couple of years ago. Using a ResMed S9...and I was amazed at how much better I felt the very first morning of use.
Now, if I forget to 'strap up' and doze off while reading...I wake up a few hours later tired and achy.
Again, I guess I'm lucky because whatever the damn machine was set on when delivered worked for me. It was SO worth it.

Pixelgrower
 
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Location: Calgary, AB Canada
Gender: Male

WOW! All I can say is WOW!

Postby Pixelgrower on Thu Jul 28, 2016 11:25 am

First day with my rented Panasonic DreamStation. And it lives up to it's name! 13 HOURS OF SLEEP!

I haven't slept like that since I was in my early 20's... My daughter had to wake me up. I'm ALWAYS up before her.

Not even a wake up for a bathroom visit!! (I use to go 4-6 times a night)

WOW!!

_________________
Machine: DreamStation Auto CPAP Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Temporary Trial rental until Aug 25
--

Gil Tennant

grizfan
 
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Re: Newbie would like to hear success stories, please.

Postby grizfan on Sat Aug 06, 2016 4:15 pm

So, a little more than 5 months in, and I thought I'd post an update. Like a lot of people, I had a bit of a rough start, but reading through these success stories really helped for me, so hopefully, others might get a bit of encouragement from my experiences.

A few tips. First, set small, realistic goals for yourself. Adjusting to your new machine will take time. For me, It was a few days before I even moved my CPAP machine into my bedroom. First steps were to just get used to the mask and the pressure, so I kept it at my home office desk. Started with a goal of 20 minutes wearing my mask, and worked my way up to 30 minutes, an hour, etc...
I started to feel more comfortable with my mask, but still had a hard time falling asleep. I was just too 'aware' of the mask and machine, and couldn't relax. So, my sleep doc prescribed some Ambien. After that, things got a lot easier. I also read up on sleep hygiene. This really helped me. I no longer try to read or have any screen time in bed. I'm also more mindful of when I eat, and try not to eat at least an hour before bedtime. Also, over time as I've grown more comfortable with my mask, I've been able to slowly work my way off of the sleep meds, now only using 1/2 a pill if I'm having problems falling asleep.

I do find it strange that I'm able to precisely measure my sleep, but that has proven helpful. Anything less than 6.5 hours, and I'll definitely be dragging the next day, while 7 to 7.5 is the ideal. But, even 5 hours is manageable with my machine.

Generally speaking, things keep getting easier, and my machine and mask are becoming more normal. I didn't experience the overnight miracle, but over time, I'm doing a LOT better. I used to have a lot of sinus infections, colds, etc... those are a thing of the past. My energy levels are much better, I can stay up with the family until 10 or 11 on work nights, get a good 7 or so hours of sleep and wake up around 5:30 to 6:00 feeling ready for the day. My blood pressure has improved a lot (had been creeping up over time) and I'm now at 100/70, and my weight is starting to drop as well.

So, please be patient with yourself. Keep chipping away at using your machine; try to get a little better each night. Having problems? Talk to your sleep doc. Keep pushing on that until you start to see the results you want.

_________________
Machine: DreamStation CPAP Machine
Mask: DreamWear Nasal CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: DreamStation Auto CPAP DSX500H11
DreamStation Auto CPAP DSX500H11 with humidifier, DreamWear nasal pillow mask

Truckman
 

Re: Newbie would like to hear success stories, please.

Postby Truckman on Tue Aug 16, 2016 9:36 pm

I was in my late teens or so when I discovered I had a severe snoring issue - my friends told me about it - I admit I was living a very unhealthy lifestyle - excessive drinking, eating, partying, etc but by my mid twenties when I was married that all tapered off.
My wife at the time was always disturbed by my snoring because she could not sleep, I found that I would get tired more easily at times but did not associate that issue with snoring. Ten years later and the marriage was over, snoring and fatigue were worse partially because of stress.
By that time I could not drive anywhere for more than 30 minutes or I needed a nap, basically during the day whenever I stopped moving or sat down I would fall asleep. Sleeping at night was always a struggle to get air no matter what position I slept in, I would wake up just exhausted. My dentist fitted a mouthpiece which repositions the jaw while sleeping but that did nothing for me at all
That was in the late 90's and I watched a news report on tv one day that explained what sleep disorders were and immediately related with my own struggle. At that time they referenced a ear, nose, and throat specialist in Edmonton offering lazer surgery to remove the uvula and increase air volume while breathing (similar to Uvulopharyngopalatoplasty). This was a two part procedure where the Uvula was first removed then after a healing period of months or a year would be repeated to remove extra tissue.
During the first few minutes of the procedure, which was performed with local anaesthetic while I was totally alert I immediately noticed my breathing was easier. The procedure was quite uncomfortable and at a certain point he had to stop. That is why there was a two part surgery. Recovery was very difficult because of pain and inflamation and it took about three weeks before I had some level of relief even with prescribed painkillers and antiseptic mouthwash. Eventually a huge improvement in my sleep was noted and my snoring disappeared. I felt very much alive and alert and generally well. In time I returned for the second stage of treatment and suffered through the recovery in the same way again but noted a further improvement.
For the next ten years I was exercising regularly and was generally in very good physical condition but after getting married again my priorities changed and I gained some weight. That and reaching about 45 years old seemed to hit me at the same time and my snoring eventually returned as severe or more as ever. Blood pressure, blood sugar, and cholesterol levels all were elevated and my doctor initiated tests to diagnose root causes. I had various blood tests, a heart ultrasound, then visited a heart and lung specialist for a lung capacity test, then took the CPAP system test machine home for evaluation. I should also say that I tried the head strap available which holds your mouth closed while sleeping but it did absolutely nothing for me. My wife of course had a difficult time sleeping because of the noise and worrying that I might stop breathing altogether.
The results revealed that I was having more than one obstruction per minute and my blood oxygen was dropping to less than 60% multiple times per night. My doctor explained that it was known for people to die in their sleep as a result. The respiratory center rep was amazed at the data and used my results to explain worst case scenarios to other patients.
I was next sent to the sleep lab in Edmonton for further evaluation and even after only sleeping with the CPAP test machine for 5 hours I felt revigorated. When I received my machine from our local respiratory center I was given two masks to try - the nasal mask and a full mask. I did not like the nasal mask because I am a mouth breather and my nose felt dried out in the morning. Also, if my mouth fell open while sleeping the air rushing down my throat sounded like a jet plane. So for me the full mask was the answer.
Getting used to the mask was the next hurdle and difficulties are common with people because the mask is not natural for the human body. I fought with the mask for two months before I could sleep a full 7 or 8 hours, but I persevered because I was determined to gain the benefits. I have met numerous people who gave up because they could not used to the mask. My wife also had more sleepless nights because I was absolutely quiet sleeping and that frightened her after years of noise. But getting up three or four times to urinate a night reduced to almost none.
After some months I noticed that I was gasping with the mask on and realized that my lung capacity had improved and I needed more pressure to sleep comfortably. The respiratory center advised that another sleep test would have to be performed before adjustments to air pressure could be done which I did not agree with even though that is normal procedure. After some Google searches I found the secret handshake that CPAP machines have to adjust pressures which I studied carefully and bumped my pressure up until I slept comfortably again with no ill effects.
I have had my machine for over 5 years now and eventually stopped taking my blood pressure and cholesterol meds as my levels and blood sugar dropped to normal. I should say that my sleep apnea condition has a genetic factor as my father suffered with the same symptoms for years also but I could not convince him to be diagnosed and treated as he thought he was used to it and was not motivated to address the problem. I know several people who claim genetic factors in the issue, a coworker who is 20 years old and not overweight who has recently been diagnosed - his father has had a CPAP machine for some time.

satansoft
 
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Re: Newbie would like to hear success stories, please.

Postby satansoft on Thu Oct 06, 2016 12:42 pm

Catnapper wrote:I believe it would help me, and maybe other newbies, to hear the success stories. Something along the lines of before and after would be great. I would particularly like to hear about the moment that made you realize that you were better.

I want to write my own success story one day soon.

Joanie - Catnapper


I'm sure that success is just round the corner for you Joanie...

Quick version of my story - I was fit and healthy, and cycled to work, and played regular sports until around 2000, then I started to feel lethargic and the cycling and sports fell by the wayside, friends noticed that I would nod off mid conversation while sat having a cup of tea. I could have 12-15 hours sleep and then still feel tired all day. It got to the point where I was hallucinating, trying to put cups down on invisible coffee tables etc. I got to the point where I decided enough was enough, I thought I had Yuppie Flu (M.E.) so visited my doctor, and the hospital got me to wear a Pulse Oximeter overnight, and an overnight hospital sleep study followed, I was diagnosed with Sleep Apnoea and was informed that I had stopped breathing approximately 88 times overnight, although the bed being as comfortable as a concrete slab didn't help... I was diagnosed with Atrial Fibrillation around the same time.I was set up with a home CPAP machine and after a week or two the difference was amazing. I felt lots better through the daytime, so much so that I could embark on a fitness regime to take off the weight I gained due to lack of exercise caused by the A.F. It's now 15 years on, and I wouldn't be without my CPAP machine now... I sincerely hope it will change your life Joanie like it did mine...

...Dave

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Additional Comments: Not sure if my model is the Elite or the Escape, they both look the same, I need to dig out my documentation.

tphi31
 
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Re: Newbie would like to hear success stories, please.

Postby tphi31 on Sat Oct 15, 2016 3:34 am

reading everyones stories is very encouraging

for me getting diagnosed was the hard part...my mind was so foggy i had a hard time even explaining my symptoms to the doctor, i didnt think that it was anything sleep related...my doctor did a complete blood count and saw my white blood cells, red blood cells, and hematocrit were all high so he referred me to a hematologist...the hematologist decided to do a bone marrow biopsy which, to say the least, isnt a pleasant procedure to have done..the bone marrow biopsy came back normal so he referred me to a pulmonologist who referred me to have a sleep study where i found out i had osa...im only on my 3rd day using the cpap machine, but i can already tell the difference when i wake up, i didnt realize how tired my body was...getting to sleep is an adventure in itself, but once i fall asleep i wake up refreshed and dont feel as foggy as a did a few days ago...still feel drained at the end of the day, but i guess thats because i have a lot of sleep to catch up on

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amyfb
 
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Re: Newbie would like to hear success stories, please.

Postby amyfb on Mon Oct 17, 2016 5:58 pm

I'm three days in with my machine and sleeping like a baby!

It's a dream come true - I've been sleeping poorly for nearly ten years and wish someone had suggested a sleep study nine years ago.

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Catnapper
 
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Re: Newbie would like to hear success stories, please.

Postby Catnapper on Thu Oct 20, 2016 7:59 am

I started this topic 10 years ago today. I want to thank everyone who responded with success stories. I love to hear them. I believe lots of people have been helped by reading them, including myself.

Catnapper - Joanie

_________________
Machine: PR System One REMStar 60 Series BiPAP Auto + Heated Tube Humidifier Core
Humidifier: PR System One 60 Series Heated Tube Humidifier with Heated Tube
Additional Comments: Encore Pro Analyzer, Padacheeks, ComfortSleeve

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ckeith
 
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Re: Newbie would like to hear success stories, please.

Postby ckeith on Thu Oct 20, 2016 1:17 pm

Success ! :)

Intractable Insomnia - Now under control & getting better
I awaken around 5am and can get back to sleep around 7am
I can now get 8-9 hrs of broken sleep - Way better the 1 or 2hrs I use to get

No more Hallucinations
No more Atrial Fibrillation
No more Acid Reflux attacks

Incidents down from 41 to 1.5
Oxygen Saturation up from 78% to near normal
Blood Pressure average down from 185 to 130


Thank You CPAPtalk !

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SpartanBert
 
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Re: Newbie would like to hear success stories, please.

Postby SpartanBert on Fri Oct 21, 2016 11:42 am

My first post...I am about 7 weeks in. Looking back, for about the last 3 years I was having a gradual decline in sleep quality, with the last 6 months being really bad. The typical waking up and gasping for air, going to the bathroom 3 times a night, occasional heart racing and anxiety too. Felt exhausted all day. Since starting, so far so good, I am having many of the usual issues with the mask at night, getting used to it being on my face. Some nights I will wake up and the mask is off, hung up on my bedpost, the machine turned off and I have no recollection of doing any of that. When that happens, I put the mask back on and turn on the machine to get back to it. Other times I just can't get comfortable with trying to sleep on my side and the mask leaks, but I am working on that with different pillows, trying to find the right combination. I had a hard time falling to sleep early on, but that is starting to get better. I still haven't slept through the entire night, but I am starting to get 4 hour strethces more consistently. Even with all the adjusting I am going through, the worst night sleep with the machine is WAY better than what I was getting before cpap. I have more energy, don't feel exhaused in the afternoon, and not nearly as grumpy at the end of the workday. No more racing heart rate, no more bathroom visits, no more anxiety at night when gasping for air. Almost immediate improvement in blood pressure as well.

I use the dreammapper app for the smartphone, and my next step will be to use the sleepyhead software. I have embraced this as what I need to do to live a healthy and productive life. If using the machine is what makes me feel better, then I am going to do it. I can't wait for when I get a full night in!

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CDG
 
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Re: Newbie would like to hear success stories, please.

Postby CDG on Fri Oct 21, 2016 5:43 pm

I have had one wonderful improvement: my emotional outbursts have quieted, and I am so grateful for that. I'm only into therapy just over two weeks, and some days have been better than others. One day, about one week ago, I felt as if my mind and body were rewired and ready to take flight. It was a great feeling. On most of the other days, however, I'm still struggling with mental & physical fatigue to varying degrees. My AHI is bouncing around, averaging close to 20. (Sleep study measured 29.) I had hoped for more improvement by now, but I understand it can take some time.
One of the things I believe about my struggle is that stress is impacting everything about sleep, especially my breathing. I will be adding acupuncture to help with this, which in turn will hopefully help me to have much better sleep.

_________________
Machine: AirSense™ 10 AutoSet™ For Her CPAP Machine with HumidAir™ Heated Humidifier
Mask: DreamWear Nasal CPAP Mask with Headgear
Additional Comments: Sleep study in done 8/2016, AHI 29. Got equipment 10/5. Changed to Dreamware nasal mask on 10/31

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