CPAP newbie

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Pugsy
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Re: CPAP newbie

Post by Pugsy » Sat Mar 04, 2017 2:53 pm

Guest wrote: You have got to wonder why any reputable seller would harass someone who posted as a "Guest" just because they posted as a "Guest" but not have anything positive to contribute to the subject.
Hmm.. I think you started the harassing with this comment below that you made...up to this point he never said so much as boo to you and I don't remember his even mentioning anything about what he might have to sell in this thread.
If you throw shit around you shouldn't complain if shit comes back in your face. Quit your whining.
You started it bucko.
Guest wrote: Whatever you newbies do - do NOT by any equipment from anyone with a ghost in their username or a pumpkin for an avatar. It could be the ghost of hell-o-ween past and then you are really stuck.

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Re: CPAP newbie

Post by Guest » Sat Mar 04, 2017 3:11 pm

Pugsy wrote:Hmm.. I think you started the harassing
Hmmm... here is where it started bucko...
it has nothing to do with the subject this OP posted about bucko.
grayghost4 wrote: I see you are having trouble signing in with you idenity also .... could it be OSA .
Pugsy wrote:If you throw shit around you shouldn't complain if shit comes back in your face. Quit your whining.

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Pugsy
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Re: CPAP newbie

Post by Pugsy » Sat Mar 04, 2017 3:27 pm

Guest wrote:it has nothing to do with the subject this OP posted about bucko.
Ahh...he might have been referring to you and he might not have (I looked everywhere in the quote below and I can't find you mentioned anywhere)...but you just had to make your little piss ant dig didn't you? I didn't see him quote you or say "guest asshole" or whatever.
Are you sure he was talking to you? Guilty conscience maybe?

It's okay for you to be an ass but not someone else???
Go crawl back under your rock.
And yeah...I know I am being an ass. At least I readily admit it and don't make excuses and blame my bad behavior on someone else.

My apologies to OP Clarkycat for making a mess of your thread. I promise if you start another one with a different question or problem I won't be ugly again. I am done here with this jerk.
grayghost4 wrote: clarkycat wrote:
Somehow managed to post as a guest instead of under my username -doh! (I do know how to computer, honest)

Could it be the untreated sleep apnea?


I see you are having trouble signing in with you idenity also .... could it be OSA .
[/quote]

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palerider
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Re: CPAP newbie

Post by palerider » Sat Mar 04, 2017 3:36 pm

Pugsy wrote:
Guest wrote:it has nothing to do with the subject this OP posted about bucko.
Ahh...he might have been referring to you and he might not have
who can tell? shithead guest his whoever s/he wants to pretend to be at that moment.

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Re: CPAP newbie

Post by Guest » Sat Mar 04, 2017 3:54 pm

Pugsy wrote:My apologies to OP Clarkycat for making a mess of your thread.
And yeah...I know I am being an ass.
It all starts with a little too much gray ghost, then before you know it turns to bottoms up, with a whole cult of characters.

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crestifer
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Re: CPAP newbie

Post by crestifer » Sat Mar 04, 2017 4:31 pm

Guest wrote:Hi there,

I was diagnosed yesterday morning with mild/moderate OSA, with an AHI of 15. I'm a 31 y/o male and in very good health otherwise (6', 70kg, BMI 22, fat % 5%), I ran a sub 4-hour marathon last year and am now a dedicated distance runner working towards Boston in the next 2 years or so. But despite this, it looks like I'll be needing one of these machines - something I guess my rather bruised ego will have to get used to. However, since I have spent the best part of the last 5-6 years watching this movie of my life play by, fatigued, depressed (and especially suicidal) and with memory problems so bad they're threatening my career and my relationships with friends and colleagues I am happy to accept whatever will help me out of this.

I've had an initial sleep study which produced my AHI. However, the Dr has left me with a prescription for a CPAP machine which I'm told I should pick up before I go back for my second study (where they will work out what pressure I need). I've generally read on the internet people picking up machines after they've had a second study, so to me this felt a little weird. Is this something to be concerned about? It was all a bit of a rush job at the doctors post-diagnosis, and since big news tends only to sink in a few hours later for me I knew I wasn't going to make any rash decisions - but they were keen on my to setup consultations with CPAP suppliers in the area there and then.

Secondly, I'm still thinking I'll be picking up this machine, using it for 5 minutes, finding out I don't really need it then being stuck with a rather expensive specialist bit of equipment I'll need to sell online. This could quite easily just be me in denial now, but should I not like...hire one of these first and try it out? Is it worth picking up second hand? (the idea of buying a machine second hand that I know nothing about sounds even worse)

Lastly, will I ever be able to unsee reading CPAP as CRAP? I'm finding it really distracting looking up CRAP machines, and to be fair it doesn't sound like the sort of thing you want pumping air down your throat through the night.

Hey all, hope the shock goes away soon - that's it for now!
well. it does sound like denial....but that's ok. we've likely all been there.

look at this way. you could have spent 10-15 years or more going from doctor to doctor to doctor trying to find out what is wrong with you. you could have lost everything in your life, your marriage, your career, your house, all of your possessions, perhaps even most of your friends, as you struggled to find something medically wrong with you all the while suffering with increasingly more frustrating and life changing symptoms. you could still be suffering and not have any idea what is wrong with you, or what you could do about it.

many people face such...and even worse.

i've been there over the last 10 years. i finally found out i have OSA in december of last year after literally a decade of going from doctor to doctor, with zero help or relief...and in the process i literally lost all of the things i mentioned. i'm 45, 6'2 200lbs. in pretty good shape...but my life has been hell for going on a decade.

i feel incredibly lucky that i found out i have sleep apnea and that it is something i can easily address. for the first time in 10 years i am truly excited and looking forward to feeling better. at least now i have something tangible i can address directly.

you are lucky. you found something that likely can help you feel better....and it's a relatively simple solution. CPAP is really not that big of a deal. sleep apnea is something that can be easily treated. sure it takes some getting used to...but you CAN do it. especially if it can make you feel better.

it may seem rather daunting at first, but it's really not. you will find many people here who have adjusted quite well to CPAP treatment. it's really not all that complicated once you really get into it.

one of the most difficult parts for many, including me..is just finding a mask that works well, and getting your pressure set in the most effective manner to treat your issues.

you can find machines used if you look hard enough. lots of sources out there. i found a basically brand new resmed autosense 10 on craigslist. it cost me $250. the masks i've sunk another $500 into because i've been trying a bunch. a few retailers offer insurance where you can return a mask if it does not work. i wish i had known that. it is something i learned here on this board.

i've spent literally my entire life savings over the last 10 years on doctors, MRIs, tests, etc. etc. the money doesn't matter if you can get you life back.

i've learned so much on this board. get a machine. get a mask. download the sleepyhead software and read this board. people will help you with any questions.

there are some trolls. ignore them. they'll go away.

there are many more people here who are experienced and knowledgeable and they will help you.

once you start using the machine, you can upload your data here and people will help you sort it out, as well as help you determine what steps you can take to optimize your treatment.

i wish you luck.

this isn't that huge of a deal. you can do it.

get better. feel better.

i for one, am right there with you.

cheers.

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clarkycat
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Re: CPAP newbie

Post by clarkycat » Sat Mar 04, 2017 6:05 pm

Wow, quite an introduction!

Thanks all for the kind words. I managed to pick up a rental machine today, which I can have up until after my next study is done. Should be enough to tide me over, get me used to trying different masks etc. Kind of looking forward to trying it out tonight, we'll see how long the novelty lasts though!

I have a nasal mask, and not sure if anyone else has discovered this fantastic alternative use, but if you switch the machine on and open your mouth you can play woodwind / reed instruments using the air cycled through your nose. I took the time to annoy my wife with 10 minutes of melodica and a couple of shrill goes on a slide whistle.

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Hannibal 2
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Re: CPAP newbie

Post by Hannibal 2 » Sun Mar 05, 2017 3:28 am

Hi clarkycat, welcome to the forum!
You sound like a pretty intelligent, fit and enthusiastic guy with a great sense of humour! You're already taking steps to take control of your own therapy with the help and wisdom of the 'good' people on this board.

Many here including myself wish they had taken these steps early on in their diagnosis rather than putting complete faith in medical personnel.

I spent a 2.5 years using a fixed CPAP machine with no humidifier and no data card - a brick basically! but of course better to have something than nothing at all.

I recently decided to purchase my own APAP machine with humidifier and heated hose (as shown in my equipment profile below) and downloaded the free SleepyHead Software to monitor my progress (people here will help you interpret data). I can honestly say that I am feeling consistently so much better now than I have for years! But we all still have the odd bad night as there are so many variables that can contribute towards that, many of which are no different to anyone else regardless of having a sleep disorder or not.

Now, you may well have issues getting used to the therapy, we've all been there, but there are techniques to help with that, you'll quickly adjust and hopefully start reaping the benefits of therapy very soon.

One bit of advice, whatever you set your machine to, your body may take a few nights to adjust, so don't go chasing numbers daily, if things aren't working for you after a few nights then post your data here and someone will help to get your settings right, but only change one thing at a time.

One more thing, please add your equipment details in your profile so that people can see what your using and advise accordingly.

Good luck and keep us updated.

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Re: CPAP newbie

Post by zonker » Sun Mar 05, 2017 5:12 pm

clarkycat wrote:Wow, quite an introduction!

Thanks all for the kind words. I managed to pick up a rental machine today, which I can have up until after my next study is done. Should be enough to tide me over, get me used to trying different masks etc. Kind of looking forward to trying it out tonight, we'll see how long the novelty lasts though!

I have a nasal mask, and not sure if anyone else has discovered this fantastic alternative use, but if you switch the machine on and open your mouth you can play woodwind / reed instruments using the air cycled through your nose. I took the time to annoy my wife with 10 minutes of melodica and a couple of shrill goes on a slide whistle.
that's hilarious! actual laugh out loud funny. i have no doubt that with your excellent attitude, you'll have this xpap thing figured out in no time.
people say i'm self absorbed.
but that's enough about them.
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Re: CPAP newbie

Post by clarkycat » Fri Mar 10, 2017 7:20 am

So, I've had a few days with it. So far, no change really. However, it seems I'm now getting constant back / neck pain (unrelated to the CPAP / OSA I guess) and the lymph node under my jaw on my right side is noticeably swollen.

The fatigue was so bad yesterday I couldn't make my training. I'm supposed to be racing in 2 weeks (I've been training for the last 6 months) so this better start working soon.

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Re: CPAP newbie

Post by OvelhaNegra » Wed Mar 15, 2017 4:59 pm

Image
Image
Image
Image

http://imgur.com/a/rHQ03

Any tips to lower the AHI

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Re: CPAP newbie

Post by palerider » Wed Mar 15, 2017 7:32 pm

OvelhaNegra wrote:Any tips to lower the AHI
start your own thread, don't hijack someone else's.

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SleepyEyes21
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Re: CPAP newbie

Post by SleepyEyes21 » Wed Mar 15, 2017 8:47 pm

Excuse me, Pugsy, but I take offense with this post, and your verbally attacking another member. I'd like to suggest you take your problem(s) with Thumper to the 'OT: Time out and/ or Duke it out thread,' which you yourself created on 10/26/16 I believe. In the Time out/ Duke it out thread, you asked ALL forum members NOT to hijack helping threads (especially with newbies so as not to alienate them), and you called out several members at the time for doing so.

I do recall in that OT thread you indicated you yourself had hijacked helping threads in the past, but that 'it takes a lot' to get you to that level. I don't see where in this thread Thumper's reactions could be considered 'a lot,' not to mention he/she was not originally directing comments towards you. Just apologizing to the OP for hijacking his thread isn't enough, in my opinion, and asking him to 'start another' is not a responsible resolution for your inappropriate behavior.

I think you owe all members an apology here, and should continue your disagreement with Thumper elsewhere. Thank you.
Pugsy wrote:
Guest wrote:it has nothing to do with the subject this OP posted about bucko.
Ahh...he might have been referring to you and he might not have (I looked everywhere in the quote below and I can't find you mentioned anywhere)...but you just had to make your little piss ant dig didn't you? I didn't see him quote you or say "guest asshole" or whatever.
Are you sure he was talking to you? Guilty conscience maybe?

It's okay for you to be an ass but not someone else???
Go crawl back under your rock.
And yeah...I know I am being an ass. At least I readily admit it and don't make excuses and blame my bad behavior on someone else.

My apologies to OP Clarkycat for making a mess of your thread. I promise if you start another one with a different question or problem I won't be ugly again. I am done here with this jerk.
grayghost4 wrote: clarkycat wrote:
Somehow managed to post as a guest instead of under my username -doh! (I do know how to computer, honest)

Could it be the untreated sleep apnea?


I see you are having trouble signing in with you idenity also .... could it be OSA .
[/quote]

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SleepyEyes21

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SleepyEyes21
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Re: CPAP newbie

Post by SleepyEyes21 » Wed Mar 15, 2017 9:03 pm

Correction: the Time out and/ or Duke it out thread was started by Pugsy on 10/27/16.

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Re: CPAP newbie

Post by nanwilson » Thu Mar 16, 2017 11:42 am

SleepyEyes21 wrote:Excuse me, Pugsy, but I take offense with this post, and your verbally attacking another member. I'd like to suggest you take your problem(s) with Thumper to the 'OT: Time out and/ or Duke it out thread,' which you yourself created on 10/26/16 I believe. In the Time out/ Duke it out thread, you asked ALL forum members NOT to hijack helping threads (especially with newbies so as not to alienate them), and you called out several members at the time for doing so.

I do recall in that OT thread you indicated you yourself had hijacked helping threads in the past, but that 'it takes a lot' to get you to that level. I don't see where in this thread Thumper's reactions could be considered 'a lot,' not to mention he/she was not originally directing comments towards you. Just apologizing to the OP for hijacking his thread isn't enough, in my opinion, and asking him to 'start another' is not a responsible resolution for your inappropriate behavior.

I think you owe all members an apology here, and should continue your disagreement with Thumper elsewhere. Thank you.
Pugsy wrote:
Guest wrote:it has nothing to do with the subject this OP posted about bucko.
Ahh...he might have been referring to you and he might not have (I looked everywhere in the quote below and I can't find you mentioned anywhere)...but you just had to make your little piss ant dig didn't you? I didn't see him quote you or say "guest asshole" or whatever.
Are you sure he was talking to you? Guilty conscience maybe?

It's okay for you to be an ass but not someone else???
Go crawl back under your rock.
And yeah...I know I am being an ass. At least I readily admit it and don't make excuses and blame my bad behavior on someone else.

My apologies to OP Clarkycat for making a mess of your thread. I promise if you start another one with a different question or problem I won't be ugly again. I am done here with this jerk.
grayghost4 wrote: clarkycat wrote:
Somehow managed to post as a guest instead of under my username -doh! (I do know how to computer, honest)

Could it be the untreated sleep apnea?


I see you are having trouble signing in with you idenity also .... could it be OSA .
[/quote]


Hmmmm Sleepyeyes, you must also be guest/thumper, since you were not even mentioned in this thread but took it upon yourself to take offense at what someone else said or did. "Verrrry Interesting" yes.
Started cpap in 2010.. still at it with great results.