Sleep apnea patient abandonment? Anyone experienced it?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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palerider
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by palerider » Thu Feb 11, 2016 4:35 pm

Stormynights wrote:I can learn what I need to know here and then go tell my doctor.
and that, boys and girls, is how one takes control of one's own health.

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

MrGrumpy
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by MrGrumpy » Thu Feb 11, 2016 7:07 pm

Do you and other forum members realize what is being described from so many sleep apnea patients here is called? Its called FRAUD.

Holding oneself out as a sleep medicine specialist MD, accepting you as a patient, billing your health insurance and charging copays and then doing little to nothing to periodically adjust things as they should...thats a form of fraud. Which is a crime, not a tort.

Patient abandonment...whether official or just "done" on the sly

Billing patients and then doing little to nothing to periodically tweak CPAP or BiPap therapy...FRAUD

Patients being driven to Internet forums to seek help from strangers on the net because people are desperate and many of the offline, IRL doctors are committing FRAUD.

There is a four letter word in Kansas for what the above is called. Starts with the letter s.

chunkyfrog wrote:There are a lot of people on the forum BECAUSE it happened;
(or something similar) and "the system" has failed to address it.
Support groups exist for many disorders that are not yet recognized or poorly treated.
As long as we are an income source for the suppliers of our equipment,
I feel there is no reason we can't get our money's worth.
Getting money from a court of law is likely to be an exercise in frustration.
Id be dead by now if I didn't use my CPAP gear every night.

MrGrumpy
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by MrGrumpy » Thu Feb 11, 2016 7:11 pm

but unlike you, most of the forum posters here go to sleep doctors and pay good money to see them. Yet dont sound like they are getting their money's worth. I dont think many would be on this forum if there IRL sleep doctors were doing their jobs. Or if health insurance companies were doing their job. I know I would not be on here if mine had been doing their jobs.

I dont appreciate paying people good $$$ and then being blown off. Maybe you do, but you appear to be a weirdo who actually enjoys playing around with these devices. Me, I want mine set right and just go to sleep on it, get good quality sleep, feel good during the day and go to work. And forget about my health problems.

palerider wrote:
Stormynights wrote:I can learn what I need to know here and then go tell my doctor.
and that, boys and girls, is how one takes control of one's own health.
Id be dead by now if I didn't use my CPAP gear every night.

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Stormynights
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by Stormynights » Thu Feb 11, 2016 7:16 pm

I don't think the doctors are trying to do anything wrong. I think they just don't know any better. They probably don't get trained on how to use the masks and machines.

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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by MrGrumpy » Thu Feb 11, 2016 7:19 pm

And thats not right and should not be tolerated. Going by what you are saying, there are probably posters on here who could treat sleep apnea better than many licensed MDs holding themselves out as sleep specialists. Thats an abomination...thats like what goes on in third world countries.

Stormynights wrote:I don't think the doctors are trying to do anything wrong. I think they just don't know any better. They probably don't get trained on how to use the masks and machines.
Id be dead by now if I didn't use my CPAP gear every night.

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archangle
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by archangle » Thu Feb 11, 2016 8:04 pm

This all sounds like page one of the Medical Mafia's current Code of Conduct Manual. The Kleptocratic Oath.

Welcome to corporate medicine. Or government medicine.

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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by MrGrumpy » Thu Feb 11, 2016 8:41 pm

It sounds like...bullshit medicine. To me at least.

archangle wrote:This all sounds like page one of the Medical Mafia's current Code of Conduct Manual. The Kleptocratic Oath.

Welcome to corporate medicine. Or government medicine.
Id be dead by now if I didn't use my CPAP gear every night.

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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by chunkyfrog » Thu Feb 11, 2016 9:18 pm

Many commonly known diseases/disorders were once in the "orphan" category,
where guerrilla treatment was all that was available.
Lyme disease, gluten intolerance, etc. required patient activism to gain recognition,
research, and medical coverage. Apnea is still largely misunderstood by the very people
whose help is needed for useful treatment of many patients.
If you care to wait, the system should eventually work as intended (and represented).
Some of us suspect that after all these years, "in my lifetime" might not happen.

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Lucyhere
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by Lucyhere » Thu Feb 11, 2016 9:23 pm

MrGrumpy wrote:Going by what you are saying, there are probably posters on here who could treat sleep apnea better than many licensed MDs holding themselves out as sleep specialists.

You are correct... which is why many knowledgeable people pay it forward and support new people that come here.

There really is no point in concerning yourself with why sleep specialists don't know more about sleep apnea/machines than they do. You're just spinning your wheels and aren't going to change anything. Maybe 50 years from now this will change; won't be in my life time though, and screaming about it won't change anything.
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by MrGrumpy » Thu Feb 11, 2016 9:25 pm

I have decided the "apnea cause" needs formal legal help. Legal advocacy. It is needed...badly.

chunkyfrog wrote:Many commonly known diseases/disorders were once in the "orphan" category,
where guerrilla treatment was all that was available.
Lyme disease, gluten intolerance, etc. required patient activism to gain recognition,
research, and medical coverage. Apnea is still largely misunderstood by the very people
whose help is needed for useful treatment of many patients.
If you care to wait, the system should eventually work as intended (and represented).
Some of us suspect that after all these years, "in my lifetime" might not happen.
Id be dead by now if I didn't use my CPAP gear every night.

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chunkyfrog
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by chunkyfrog » Thu Feb 11, 2016 9:46 pm

I believe that giving more money to more lawyers will accomplish very little
compared to the impact of good publicity. It's about money--not health.
There is too much bad info (lies) being spread for the express purpose of selling
cpap alternatives to people who buy the lies.
"A mask that makes you look old"; "noisy machines"; and "inconvenient".
Educating the masses will be a huge task.

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Mudrock63
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by Mudrock63 » Thu Feb 11, 2016 9:53 pm

MrGrumpy wrote:I have decided the "apnea cause" needs formal legal help. Legal advocacy. It is needed...badly.

Write your Congressman. But the odds are they know and care less about it than the sleep doctors. Plus they are all in bed together anyway. But at least you can say you did something.

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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by Krelvin » Thu Feb 11, 2016 10:25 pm

What sleep doctor? Seriously I had to pressure my PCP at the time to get me into a sleep study.

I never saw a sleep doctor until almost 9 years later of successful therapy that I managed on my own with the help of this forum way back then.

Only saw a sleep doctor about a year ago because I needed a new machine and the insurance required another sleep study which results BTW was almost exactly the same as the original one 9 years before.

I fired my sleep doctor when I found out all he was interested in was compliance. I am way beyond what the insurance company defined as compliant.

If all you are is compliant, you are not really getting the therapy you need. That is FRAUD!

My therapy has been very successful, with about the only time not using my machine has been when I was in the hospital using a machine that they provided.

If you don't take personal responsibility for your own care you get what you leave to others.

Interesting, a diabetic can monitor and dose themselves with much more risk that can easily kill themselves, but nobody has any issue with that.

Hard to kill yourself by upping your pressure too high on your cpap, just makes it harder to sleep.
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chunkyfrog
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by chunkyfrog » Thu Feb 11, 2016 10:29 pm

Facts are confusing.
Logic is hard.

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palerider
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Re: Sleep apnea patient abandonment? Anyone experienced it?

Post by palerider » Thu Feb 11, 2016 10:36 pm

Krelvin wrote:If all you are is compliant, you are not really getting the therapy you need. That is FRAUD!
I think it's more an issue of incompetence, not fraud... certainly a poor standard of care.

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.