and that, boys and girls, is how one takes control of one's own health.Stormynights wrote:I can learn what I need to know here and then go tell my doctor.
Sleep apnea patient abandonment? Anyone experienced it?
Re: Sleep apnea patient abandonment? Anyone experienced it?
Get OSCAR
Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.
Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.
Re: Sleep apnea patient abandonment? Anyone experienced it?
Do you and other forum members realize what is being described from so many sleep apnea patients here is called? Its called FRAUD.
Holding oneself out as a sleep medicine specialist MD, accepting you as a patient, billing your health insurance and charging copays and then doing little to nothing to periodically adjust things as they should...thats a form of fraud. Which is a crime, not a tort.
Patient abandonment...whether official or just "done" on the sly
Billing patients and then doing little to nothing to periodically tweak CPAP or BiPap therapy...FRAUD
Patients being driven to Internet forums to seek help from strangers on the net because people are desperate and many of the offline, IRL doctors are committing FRAUD.
There is a four letter word in Kansas for what the above is called. Starts with the letter s.
Holding oneself out as a sleep medicine specialist MD, accepting you as a patient, billing your health insurance and charging copays and then doing little to nothing to periodically adjust things as they should...thats a form of fraud. Which is a crime, not a tort.
Patient abandonment...whether official or just "done" on the sly
Billing patients and then doing little to nothing to periodically tweak CPAP or BiPap therapy...FRAUD
Patients being driven to Internet forums to seek help from strangers on the net because people are desperate and many of the offline, IRL doctors are committing FRAUD.
There is a four letter word in Kansas for what the above is called. Starts with the letter s.
chunkyfrog wrote:There are a lot of people on the forum BECAUSE it happened;
(or something similar) and "the system" has failed to address it.
Support groups exist for many disorders that are not yet recognized or poorly treated.
As long as we are an income source for the suppliers of our equipment,
I feel there is no reason we can't get our money's worth.
Getting money from a court of law is likely to be an exercise in frustration.
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Id be dead by now if I didn't use my CPAP gear every night.
Re: Sleep apnea patient abandonment? Anyone experienced it?
but unlike you, most of the forum posters here go to sleep doctors and pay good money to see them. Yet dont sound like they are getting their money's worth. I dont think many would be on this forum if there IRL sleep doctors were doing their jobs. Or if health insurance companies were doing their job. I know I would not be on here if mine had been doing their jobs.
I dont appreciate paying people good $$$ and then being blown off. Maybe you do, but you appear to be a weirdo who actually enjoys playing around with these devices. Me, I want mine set right and just go to sleep on it, get good quality sleep, feel good during the day and go to work. And forget about my health problems.
I dont appreciate paying people good $$$ and then being blown off. Maybe you do, but you appear to be a weirdo who actually enjoys playing around with these devices. Me, I want mine set right and just go to sleep on it, get good quality sleep, feel good during the day and go to work. And forget about my health problems.
palerider wrote:and that, boys and girls, is how one takes control of one's own health.Stormynights wrote:I can learn what I need to know here and then go tell my doctor.
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Id be dead by now if I didn't use my CPAP gear every night.
- Stormynights
- Posts: 2273
- Joined: Wed Mar 10, 2010 7:01 pm
- Location: Oklahoma
Re: Sleep apnea patient abandonment? Anyone experienced it?
I don't think the doctors are trying to do anything wrong. I think they just don't know any better. They probably don't get trained on how to use the masks and machines.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV |
Re: Sleep apnea patient abandonment? Anyone experienced it?
And thats not right and should not be tolerated. Going by what you are saying, there are probably posters on here who could treat sleep apnea better than many licensed MDs holding themselves out as sleep specialists. Thats an abomination...thats like what goes on in third world countries.
Stormynights wrote:I don't think the doctors are trying to do anything wrong. I think they just don't know any better. They probably don't get trained on how to use the masks and machines.
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Id be dead by now if I didn't use my CPAP gear every night.
Re: Sleep apnea patient abandonment? Anyone experienced it?
This all sounds like page one of the Medical Mafia's current Code of Conduct Manual. The Kleptocratic Oath.
Welcome to corporate medicine. Or government medicine.
Welcome to corporate medicine. Or government medicine.
_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Also SleepyHead, PRS1 Auto, Respironics Auto M series, Legacy Auto, and Legacy Plus |
Please enter your equipment in your profile so we can help you.
Click here for information on the most common alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check for yourself.
Useful Links.
Click here for information on the most common alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check for yourself.
Useful Links.
Re: Sleep apnea patient abandonment? Anyone experienced it?
It sounds like...bullshit medicine. To me at least.
archangle wrote:This all sounds like page one of the Medical Mafia's current Code of Conduct Manual. The Kleptocratic Oath.
Welcome to corporate medicine. Or government medicine.
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Id be dead by now if I didn't use my CPAP gear every night.
- chunkyfrog
- Posts: 34378
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: Sleep apnea patient abandonment? Anyone experienced it?
Many commonly known diseases/disorders were once in the "orphan" category,
where guerrilla treatment was all that was available.
Lyme disease, gluten intolerance, etc. required patient activism to gain recognition,
research, and medical coverage. Apnea is still largely misunderstood by the very people
whose help is needed for useful treatment of many patients.
If you care to wait, the system should eventually work as intended (and represented).
Some of us suspect that after all these years, "in my lifetime" might not happen.
where guerrilla treatment was all that was available.
Lyme disease, gluten intolerance, etc. required patient activism to gain recognition,
research, and medical coverage. Apnea is still largely misunderstood by the very people
whose help is needed for useful treatment of many patients.
If you care to wait, the system should eventually work as intended (and represented).
Some of us suspect that after all these years, "in my lifetime" might not happen.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
Re: Sleep apnea patient abandonment? Anyone experienced it?
MrGrumpy wrote:Going by what you are saying, there are probably posters on here who could treat sleep apnea better than many licensed MDs holding themselves out as sleep specialists.
You are correct... which is why many knowledgeable people pay it forward and support new people that come here.
There really is no point in concerning yourself with why sleep specialists don't know more about sleep apnea/machines than they do. You're just spinning your wheels and aren't going to change anything. Maybe 50 years from now this will change; won't be in my life time though, and screaming about it won't change anything.
Resmed AirSense 10 Autoset for her w/humid air/heated Humidifier
Bleep/P10
Bleep/P10
Re: Sleep apnea patient abandonment? Anyone experienced it?
I have decided the "apnea cause" needs formal legal help. Legal advocacy. It is needed...badly.
chunkyfrog wrote:Many commonly known diseases/disorders were once in the "orphan" category,
where guerrilla treatment was all that was available.
Lyme disease, gluten intolerance, etc. required patient activism to gain recognition,
research, and medical coverage. Apnea is still largely misunderstood by the very people
whose help is needed for useful treatment of many patients.
If you care to wait, the system should eventually work as intended (and represented).
Some of us suspect that after all these years, "in my lifetime" might not happen.
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Id be dead by now if I didn't use my CPAP gear every night.
- chunkyfrog
- Posts: 34378
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: Sleep apnea patient abandonment? Anyone experienced it?
I believe that giving more money to more lawyers will accomplish very little
compared to the impact of good publicity. It's about money--not health.
There is too much bad info (lies) being spread for the express purpose of selling
cpap alternatives to people who buy the lies.
"A mask that makes you look old"; "noisy machines"; and "inconvenient".
Educating the masses will be a huge task.
compared to the impact of good publicity. It's about money--not health.
There is too much bad info (lies) being spread for the express purpose of selling
cpap alternatives to people who buy the lies.
"A mask that makes you look old"; "noisy machines"; and "inconvenient".
Educating the masses will be a huge task.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
Re: Sleep apnea patient abandonment? Anyone experienced it?
Write your Congressman. But the odds are they know and care less about it than the sleep doctors. Plus they are all in bed together anyway. But at least you can say you did something.MrGrumpy wrote:I have decided the "apnea cause" needs formal legal help. Legal advocacy. It is needed...badly.
Re: Sleep apnea patient abandonment? Anyone experienced it?
What sleep doctor? Seriously I had to pressure my PCP at the time to get me into a sleep study.
I never saw a sleep doctor until almost 9 years later of successful therapy that I managed on my own with the help of this forum way back then.
Only saw a sleep doctor about a year ago because I needed a new machine and the insurance required another sleep study which results BTW was almost exactly the same as the original one 9 years before.
I fired my sleep doctor when I found out all he was interested in was compliance. I am way beyond what the insurance company defined as compliant.
If all you are is compliant, you are not really getting the therapy you need. That is FRAUD!
My therapy has been very successful, with about the only time not using my machine has been when I was in the hospital using a machine that they provided.
If you don't take personal responsibility for your own care you get what you leave to others.
Interesting, a diabetic can monitor and dose themselves with much more risk that can easily kill themselves, but nobody has any issue with that.
Hard to kill yourself by upping your pressure too high on your cpap, just makes it harder to sleep.
I never saw a sleep doctor until almost 9 years later of successful therapy that I managed on my own with the help of this forum way back then.
Only saw a sleep doctor about a year ago because I needed a new machine and the insurance required another sleep study which results BTW was almost exactly the same as the original one 9 years before.
I fired my sleep doctor when I found out all he was interested in was compliance. I am way beyond what the insurance company defined as compliant.
If all you are is compliant, you are not really getting the therapy you need. That is FRAUD!
My therapy has been very successful, with about the only time not using my machine has been when I was in the hospital using a machine that they provided.
If you don't take personal responsibility for your own care you get what you leave to others.
Interesting, a diabetic can monitor and dose themselves with much more risk that can easily kill themselves, but nobody has any issue with that.
Hard to kill yourself by upping your pressure too high on your cpap, just makes it harder to sleep.
Current Settings PS 4.0 over 10.6-18.0 (cmH2O) - Resmed S9 VPAP Auto w/h5i Humidifier - Quattro Air FFM
TNET Sleep Resource Pages - CPAP Machine Database
Put your equip in your Signature - SleepyHead v1.0.0-beta-1
Kevin... alias Krelvin
TNET Sleep Resource Pages - CPAP Machine Database
Put your equip in your Signature - SleepyHead v1.0.0-beta-1
Kevin... alias Krelvin
- chunkyfrog
- Posts: 34378
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: Sleep apnea patient abandonment? Anyone experienced it?
Facts are confusing.
Logic is hard.
Logic is hard.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
Re: Sleep apnea patient abandonment? Anyone experienced it?
I think it's more an issue of incompetence, not fraud... certainly a poor standard of care.Krelvin wrote:If all you are is compliant, you are not really getting the therapy you need. That is FRAUD!
Get OSCAR
Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.
Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.