CPAP USAGE, LONG TERM.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
gregzeng
Posts: 33
Joined: Sat Nov 21, 2015 11:19 pm

CPAP USAGE, LONG TERM.

Post by gregzeng » Sun Nov 22, 2015 12:04 am

"CPAP F.A.Q."
https://www.respshop.com/faq.php
... really upset me.

Here are some of my suggestions for improvements.

1) Technology and market places change very rapidly. Old technology people are not fully aware of the newer technologies. These youngsters, such as AUTO CPAP, ... might seem dangerous, unreliable, unpredictable, etc. Or they could save you so much money, time, learning .... and give you unexpected good health as well. The established "professionals" are old, old, old. And out of date.
So see (2) next.

3) As the years move on, the manufacturer's instructions will become lost, wrong, changed, etc. Visit this CPAP forum (or similar), yearly, as a birthday present to your good health.

3) Over the years ahead, the measurements set now will be changing, according to:
air temperature, air humidity, air-pressure, stretchability of the straps, medical conditions changing, body health changes, etc.
Learn about these, before you are shown to be very ignorant, stupid and wasteful of money, time and health.

4) Have spare parts. Those parts which are regularly cleaned, tiny, soft, invisible to the eye,... will disappear first. (The silicon plastic emergency air-expiration fiction-fitted plugs on my full face mask).

In this nursing home stage of my life, in the Australian Capital Territory, these are my closing comments from the god(s)' waiting rooms.

User avatar
Krelvin
Posts: 1977
Joined: Tue Jun 06, 2006 5:23 pm
Location: Metro Phx Area - Dry Heat!

Re: CPAP USAGE, LONG TERM.

Post by Krelvin » Sun Nov 22, 2015 5:40 pm

gregzeng wrote:"CPAP F.A.Q."
https://www.respshop.com/faq.php
... really upset me.

Here are some of my suggestions for improvements.
Suggestion, send your complaints to THAT website which has nothing to do with this site.
Current Settings PS 4.0 over 10.6-18.0 (cmH2O) - Resmed S9 VPAP Auto w/h5i Humidifier - Quattro Air FFM
TNET Sleep Resource Pages - CPAP Machine Database
Put your equip in your Signature - SleepyHead v1.0.0-beta-1
Kevin... alias Krelvin

User avatar
chunkyfrog
Posts: 34377
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nebraska--I am sworn to keep the secret of this paradise.

Re: CPAP USAGE, LONG TERM.

Post by chunkyfrog » Sun Nov 22, 2015 6:42 pm

I don't believe I have ever heard of that site.
That was a very odd ad, if it was one at all.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

User avatar
Minnie Maunder
Posts: 27
Joined: Sun Jul 12, 2015 2:54 pm

Re: CPAP USAGE, LONG TERM.

Post by Minnie Maunder » Sun Nov 22, 2015 6:56 pm

How often do you get newbies that think they are instant experts?

gregzeng
Posts: 33
Joined: Sat Nov 21, 2015 11:19 pm

Re: CPAP USAGE, LONG TERM.

Post by gregzeng » Mon Nov 23, 2015 1:19 am

Krelvin wrote:
gregzeng wrote:"CPAP F.A.Q."
https://www.respshop.com/faq.php
... really upset me.

Here are some of my suggestions for improvements.
Suggestion, send your complaints to THAT website which has nothing to do with this site.
I am very sorry that you did not like the insights that I added on CPAP machine usage. What is wrong with my insights, please?
Seems to me that you do not understand what CPAPTALK.COM might be?
The commercial site, RESPSHOP.COM is a seller of CPAP hardware, selling to both old & new CPAP users all over this planet.
The "advice" it gives is "expert", "professional".

These forums are not for "experts", not for "professionals", and I think, can be more useful, more relevant than unchanging experts all over this planet. All of my careers, vocations and professions in past decades have been anti-corruption, anti-abuse, anti-ignorance. In a democratic mass market, the correct treatment for mis-information is forums like this.
You may like throwing sticks at all the very, very many multitudes of "experts".
Good for you. Hopefully these forums are forums, not only by experts, for experts only.

gregzeng
Posts: 33
Joined: Sat Nov 21, 2015 11:19 pm

Re: CPAP USAGE, LONG TERM.

Post by gregzeng » Mon Nov 23, 2015 1:22 am

chunkyfrog wrote:I don't believe I have ever heard of that site.
That was a very odd ad, if it was one at all.
I am so sorry that your access to the internet is so very crippled.
If you use Google, the site is one of the few commercial sites that is attached to searches for CPAP machines.
I suggest you try using Google, with the adblockers turned off, if you know someone who can tun them off for you.

User avatar
Julie
Posts: 19898
Joined: Tue Feb 28, 2006 12:58 pm

Re: CPAP USAGE, LONG TERM.

Post by Julie » Mon Nov 23, 2015 5:29 am

Greg, you've gotten off all on the wrong foot here and maybe should step back and start over... you're targetting the most respected and one of the longest running Cpap forums around, also one that's had the least oversight by uptight mods over the years. There are amazingly knowledgable people here, both of OSA and Cpap technology, whether or not you've met them yet, and people who've come here consistently come back from the brink of quitting Cpap once their issues are sorted out. We're made aware daily of what equipment is new and why it's terrific or not, but don't find it amusing for a total newbie to come waltzing in as you have, telling us all kinds of stuff we're already well aware of, or have possibly rejected long ago for good reason after lots of research.

We welcome newbies of all kinds, but someone with no knowledge of this forum as such, and what it is (and isn't) who shows up with handfuls of assumptions and random 'advice' without being aware of what we already know, is not going to be welcomed with open arms, but sarcasm (see note previous to this one), impatience and derision. Which is sad, because it doesn't have to be that way. It's always best to listen in new places, rather than pushing personal agendas before learning anything about the places. Learning goes both ways.

User avatar
Minnie Maunder
Posts: 27
Joined: Sun Jul 12, 2015 2:54 pm

Re: CPAP USAGE, LONG TERM.

Post by Minnie Maunder » Mon Nov 23, 2015 6:28 am

A little caution about new member gregzeng. He is likely mentally unstable, and you should not provoke him.

Here is some of his background which you can find in his posts:
I have traumatic brain injury (TBI, also known as ABI, or CHI): car accident 30 years ago, Sydney, Australia.

In this nursing home stage of my life, in the Australian Capital Territory, these are my closing comments from the god(s)' waiting rooms.

my many medical specialists

In my case: old age & moderate Traumatic Brain Injury, leading to hemiparesis. Luckily I have never been stupid and suicidal (ethanol, nicotine, sucrose, etc). If ever you have been a drugee, like most western people, then you should of course expect to have these headaches.

My CPAP usage, etc is solely due to that traffic accident on December 31st, 3pm, 1984. Headaches, oximeters, etc are automatic results of that spilt second.

User avatar
Julie
Posts: 19898
Joined: Tue Feb 28, 2006 12:58 pm

Re: CPAP USAGE, LONG TERM.

Post by Julie » Mon Nov 23, 2015 6:41 am

Yes, it actually seemed pretty obvious that he has problems, but we are not therapists and reminding anyone to listen first, speak later is not provocation, and in fact might save him from putting his other foot in it, open to other remarks.

User avatar
Pugsy
Posts: 63941
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: CPAP USAGE, LONG TERM.

Post by Pugsy » Mon Nov 23, 2015 8:15 am

Perhaps OP doesn't know that cpap.com (online retailer just like respshop) pays the bills for this forum and the same information that respdhop is posting in their Q & A section is available also at cpap.com in a similar Q & A section at cpap.com.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

If you want to try the Eclipse mask and want a special promo code to get a little off the price...send me a private message.

Mynah
Posts: 16
Joined: Thu Jun 18, 2015 1:16 pm

Re: CPAP USAGE, LONG TERM.

Post by Mynah » Mon Nov 23, 2015 8:29 am

Pugsy wrote:cpap.com pays the bills for this forum
Yes, I continue to be amazed at newbies coming here who are totally oblivious to the time, effort and money that cpap.com has to expend to make this forum available. These newbies have an entitlement mentality that is unhealthy for our society.

This forum could cease to exist some day. How would any of us like that?

User avatar
LSAT
Posts: 13229
Joined: Sun Nov 16, 2008 10:11 am
Location: SE Wisconsin

Re: CPAP USAGE, LONG TERM.

Post by LSAT » Mon Nov 23, 2015 8:52 am

Looks like Greg went to the chat room for advice.

_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier
Mask: Fisher & Paykel Vitera Full Face Mask with Headgear (S, M, or L Cushion)
Additional Comments: Back up is S9 Autoset...... Buckwheat hull pillow

User avatar
49er
Posts: 5624
Joined: Mon Jan 16, 2012 8:18 am

Re: CPAP USAGE, LONG TERM.

Post by 49er » Mon Nov 23, 2015 9:44 am

Minnie Maunder wrote:A little caution about new member gregzeng. He is likely mentally unstable, and you should not provoke him.

Here is some of his background which you can find in his posts:
I have traumatic brain injury (TBI, also known as ABI, or CHI): car accident 30 years ago, Sydney, Australia.

In this nursing home stage of my life, in the Australian Capital Territory, these are my closing comments from the god(s)' waiting rooms.

my many medical specialists

In my case: old age & moderate Traumatic Brain Injury, leading to hemiparesis. Luckily I have never been stupid and suicidal (ethanol, nicotine, sucrose, etc). If ever you have been a drugee, like most western people, then you should of course expect to have these headaches.

My CPAP usage, etc is solely due to that traffic accident on December 31st, 3pm, 1984. Headaches, oximeters, etc are automatic results of that spilt second.
Minnie,

I would be careful about diagnosing someone online, particularly as mentally unstable, when healthcare professionals don't even do that.

Otherwise, Julie's points are very well taken about gregzeng needing to learn how thing work first before making the comments that he did.

User avatar
Minnie Maunder
Posts: 27
Joined: Sun Jul 12, 2015 2:54 pm

Re: CPAP USAGE, LONG TERM.

Post by Minnie Maunder » Mon Nov 23, 2015 11:31 am

49er wrote:I would be careful about diagnosing someone online, particularly as mentally unstable, when healthcare professionals don't even do that.
You think that is a diagnosis?
Minnie Maunder wrote:He is likely mentally unstable

gregzeng
Posts: 33
Joined: Sat Nov 21, 2015 11:19 pm

So many off-topic, "shoot the messenger" posts.

Post by gregzeng » Mon Nov 23, 2015 9:55 pm

Minnie Maunder wrote:
49er wrote:I would be careful about diagnosing someone online, particularly as mentally unstable, when healthcare professionals don't even do that.
You think that is a diagnosis?
Minnie Maunder wrote:He is likely mentally unstable
I love this term: "mentally unstable". Perhaps I should be mentally stable, like the next Republican President of the USA, who has strong opinions/"facts" on the Mexicans and Muslims in the USA? Or next year's Democratic President of the USA, who would like to create newer, more powerfully funded organizations like the ISIS one she created in the Middle East?

My mental and emotional stability is not the focus of the topic of the OP (original post). Nor am I a noobie to CPAP. Nor am I new to medical & mental health, Internet forums; nor to self-help organizations, funding non-profit organizations. Search Google under "gregzeng" to get an insight into one per cent (1%) of my interests, skills, productivity, track records, etc. Obviously some "experts" here seem not to be able to Google, in the messages in this thread. This is NOT SARCASM, nor off-topic. Read the messages, and on-topic replies, carefully.
https://www.google.com.au/search?client ... 8&oe=UTF-8

It should be obvious from the original post that I am accurate, experienced, valid in all my opinions and facts. Seems that so many people here are objecting to my message:
"The Emperor is not wearing any clothes at all!"

My academic interests are in Human Factors Engineering (also known as Ergonomics). CPAP research, publishing, teaching, applications, discourses, etc ... are a tiny aspect of our ergonomics. It includes the creations, spread, discussions, archiving, and trashing of many ideas.

My opinion is that computers enable the replacement of all primitive ways. Here, I am referring to single-mode, bi-modal CPAP machinery, to be replaced by auto-cpap machines. This auto-technology is moving into most machines today, including CPAP tools. Soon, all publically purchased CPAP machines will be AUTO.

My past roles include being a consultant to just one of the very, very many sub-committees of the ISO (International Standards Organization). They do things like standardizing the CPAP hose sizes, defining voltages used in our equipment, creating control-switch-standards, etc. All manufacturers, suppliers and sellers are dependent on our expert judgements. Most end-users, including nearly everyone on the internet, do not know we expert puppeteers are "controlling" their choices available to them.

Unknown to most junior people, our "world's best" puppeteering is not always correct. History into our decisions shows how inadequate, wrong, silly, shortsighted, etc were so many of our expert decisions. These are obvious to those of us who know about CPAP machinery.

On the funding of services to this forum, and other services for CPAP users. The funding bodies like the free expert, friendly information that will be shown or given to them. Junior people think that offending the older, senior benefactors is wrong and dangerous. What we capable senior people prefer is honest, direct, clear, "FRANK & FEARLESS" advice (words popular in Australia).
https://www.google.com.au/search?client ... 8&oe=UTF-8

If this forum has a financial benefactor who prefers the USA approach to "freedom of speech", then the internet often finds non-USA ways of financing. Perhaps moving to Ireland (Apple's financials, etc) or the Isle of Man for Ubuntu) might be better?

In the "land of the free", they do not like the "Edward Snowden" advice.
https://www.google.com.au/search?client ... 8&oe=UTF-8
https://www.google.com.au/search?client ... 8&oe=UTF-8

Sorry that I needed to add the url's above. It is obvious from some comments in this thread, that rather than using the Internet, many people like the "Edward-Snowden" hunt, with off topic comments, rather than staying on topic.

If there is a moderator here, perhaps they could let the off-topic comments be warned? Please stay on topic. Do not read into any messages, the existence of any emotions you might like to be inserted into the messages. The insertion of emotions into written messages is the expertise of University-educated literary critics only, IMHO.

Sorry about my Australian "Frank & Fearless". But I cannot be Edward Snowden.
Last edited by gregzeng on Mon Nov 23, 2015 11:49 pm, edited 1 time in total.