Noob to CPAP and Group. AHI in the 50's...

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
metsfan302
Posts: 687
Joined: Fri Oct 09, 2015 9:44 pm
Location: Dewey Beach, Delaware

Noob to CPAP and Group. AHI in the 50's...

Post by metsfan302 » Sat Oct 10, 2015 8:54 pm

I want to start this off by saying from the posts I have gone thru, this seems to be an amazing group, very helpful and supportive! I actually feel comfortable talking about everything with you guys. That being said here it goes..
I thru the advise of my Wife and family DR. 3 years ago went to a sleep dr who sent me for a sleep study. I did the study over night at some sleep center and the Dr with those results prescribed me an Auto-Cpap etc. I went to the local medical supply and they gave me a PR System One Auto Cpap machine with a humidifier, and I choose the ComfortGel Blue Nasal CPAP, but about a month later went back and for a Full face mask as sometimes I cant breath thru my nose (I have a deviated septum it turns out) and sometimes mouth breath. I used it non stop for the first 6 months or whatever till i became compliant or whatnot then just stopped using it as often till i stopped all together. It just felt like i was not getting enough air and I would wake up multi times thru the night either with dry mouth or the machine blasting air at me.
About a month ago I decided this is stupid, I need to do this for me, my wife, my future family etc and use this CPAP and deal with it. I went and got a new mask a Wisp Nasal as I thought it was light and real nice, well I cant get thru the entire night without waking up like 3-4 times either from the air blasting at me, or I feel I am not getting enough air or oxygen. I feel its oxygen as a lot of the time I don't feel like I am getting enough. I just got the SleepyHead software on my computer and have inported the data to my comp and well it to me dosnt look good but then again I am just starting to read the Pugsy's Pointers Post.
I'd be willing to post my data or share it, ill look for the link as to how to do that so I am ready if anyone cared to look at it for me. My AHI is way up there like 50-70 and I am not sure if its because I wake up a few times a night or something else.
I am going to be going this week to get a S9 machine with heated tubing etc from a friend who got a new machine, maybe that will help or be better then my current machine - PR System One Auto Cpap machine with a humidifier. I also have a new appt with an new sleep specialist who works at a sleep center in our area so I think going to her on a reg will def help me. That Appt. is Dec 22nd so I hope I can get her some real good info/data whatever to help her out.
So sorry for the epic post, did not realize I was going on and on.
I have been spinning the dial to to speak till I learned thru a few threads that I shouldn't as I really don't know what I am doing lol.

_________________
Machine: DreamStation BiPAP® Pro Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Prior - ResMed AirCurve ASV User
This is my Orig Post "The start of my venture to find proper therapy" - http://www.cpaptalk.com/viewtopic.php?f ... &sk=t&sd=a

User avatar
BlackSpinner
Posts: 9745
Joined: Sat Apr 25, 2009 5:44 pm
Location: Edmonton Alberta
Contact:

Re: Noob to CPAP and Group. AHI in the 50's...

Post by BlackSpinner » Sat Oct 10, 2015 9:14 pm

Welcome and yes post your graphs because that AHI is crazy.

You upload to a site like Flickr or photo bucket and paste the link with the "[IMG]" (if you hover your mouse over it, it will show you instruction)

_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Mask: Hybrid Full Face CPAP Mask with Nasal Pillows and Headgear
Additional Comments: Quatro mask for colds & flus S8 elite for back up
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal

User avatar
Julie
Posts: 19898
Joined: Tue Feb 28, 2006 12:58 pm

Re: Noob to CPAP and Group. AHI in the 50's...

Post by Julie » Sat Oct 10, 2015 9:23 pm

What are your pressure settings - sounds like you're not getting any effective therapy and may need to raise the pressure.

User avatar
metsfan302
Posts: 687
Joined: Fri Oct 09, 2015 9:44 pm
Location: Dewey Beach, Delaware

Re: Noob to CPAP and Group. AHI in the 50's...

Post by metsfan302 » Sat Oct 10, 2015 10:11 pm

I'll check and post when I get home, what exactly am i posting a screenshot of? and or is there a place I could upload my imported data too like dump something? would that help or just a screen? thanks in advance!!!

_________________
Machine: DreamStation BiPAP® Pro Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Prior - ResMed AirCurve ASV User
This is my Orig Post "The start of my venture to find proper therapy" - http://www.cpaptalk.com/viewtopic.php?f ... &sk=t&sd=a

User avatar
Pugsy
Posts: 63941
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Noob to CPAP and Group. AHI in the 50's...

Post by Pugsy » Sat Oct 10, 2015 10:20 pm

This thread has examples of what we need to see in your reports.
We don't need all those graphs...just the main ones.

viewtopic/t103468/Need-help-with-screen-shots.html

Imgur seems easier to manage than Photobucket and instructions on how to use it can be found here
https://sleep.tnet.com/reference/tips/imgur

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

If you want to try the Eclipse mask and want a special promo code to get a little off the price...send me a private message.

User avatar
metsfan302
Posts: 687
Joined: Fri Oct 09, 2015 9:44 pm
Location: Dewey Beach, Delaware

Re: Noob to CPAP and Group. AHI in the 50's...

Post by metsfan302 » Sun Oct 11, 2015 7:11 am

Sorry such a noob, I am not sure what screenshot or section etc i should share from sleepyhead. I just did download - Dropbox how would i share that and also from sleepyhead is .csv file i am sharing?

_________________
Machine: DreamStation BiPAP® Pro Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Prior - ResMed AirCurve ASV User
This is my Orig Post "The start of my venture to find proper therapy" - http://www.cpaptalk.com/viewtopic.php?f ... &sk=t&sd=a

User avatar
metsfan302
Posts: 687
Joined: Fri Oct 09, 2015 9:44 pm
Location: Dewey Beach, Delaware

Re: Noob to CPAP and Group. AHI in the 50's...

Post by metsfan302 » Sun Oct 11, 2015 7:16 am


_________________
Machine: DreamStation BiPAP® Pro Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Prior - ResMed AirCurve ASV User
This is my Orig Post "The start of my venture to find proper therapy" - http://www.cpaptalk.com/viewtopic.php?f ... &sk=t&sd=a

User avatar
metsfan302
Posts: 687
Joined: Fri Oct 09, 2015 9:44 pm
Location: Dewey Beach, Delaware

Re: Noob to CPAP and Group. AHI in the 50's...

Post by metsfan302 » Sun Oct 11, 2015 7:37 am

Image

_________________
Machine: DreamStation BiPAP® Pro Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Prior - ResMed AirCurve ASV User
This is my Orig Post "The start of my venture to find proper therapy" - http://www.cpaptalk.com/viewtopic.php?f ... &sk=t&sd=a

User avatar
metsfan302
Posts: 687
Joined: Fri Oct 09, 2015 9:44 pm
Location: Dewey Beach, Delaware

Re: Noob to CPAP and Group. AHI in the 50's...

Post by metsfan302 » Sun Oct 11, 2015 7:37 am

Image

_________________
Machine: DreamStation BiPAP® Pro Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Prior - ResMed AirCurve ASV User
This is my Orig Post "The start of my venture to find proper therapy" - http://www.cpaptalk.com/viewtopic.php?f ... &sk=t&sd=a

User avatar
metsfan302
Posts: 687
Joined: Fri Oct 09, 2015 9:44 pm
Location: Dewey Beach, Delaware

Re: Noob to CPAP and Group. AHI in the 50's...

Post by metsfan302 » Sun Oct 11, 2015 7:40 am

Hope this is what I was to post, new to all this

Image

......

Image

......

Image

.......

_________________
Machine: DreamStation BiPAP® Pro Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Prior - ResMed AirCurve ASV User
This is my Orig Post "The start of my venture to find proper therapy" - http://www.cpaptalk.com/viewtopic.php?f ... &sk=t&sd=a

User avatar
Pugsy
Posts: 63941
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Noob to CPAP and Group. AHI in the 50's...

Post by Pugsy » Sun Oct 11, 2015 8:50 am

Wow....what a mess.
Do you know the exact ResMed model machine that you will be getting from your friend?
I can see why the pressure wakes you up.
Are you using the AFlex exhale relief? If so at what setting? If not, turn it on and set it to 2 or 3 which ever is more comfortable while awake.

Your pressure needs are quite high and I am concerned about the Clear Airway events.
I don't know if those CA events (centrals) are because of the pressure, because of the arousals from the OA events or because you might have had them without any pressure at all.
There's a lot we don't know and there's a lot that needs fixing to have any hope of your feeling any decent results.

My first thought was "see a doctor" and you will be doing that in a couple of months.
We can try fiddling with some stuff in the mean time to see if we get lucky but with this number of centrals I really encourage follow up with a doctor.

Did you ever have a sleep study done with the cpap mask and machine being used?
Or were you given the machine as a result of just the diagnostic sleep study?
Do you take any meds of any kind?...especially pain meds?

People are going to tell you that the minimum pressure of 7.5 isn't enough and that's true but even when it goes up to around 18 and stays there it isn't doing a good job preventing anything and might be making those centrals worse.

I gotta get some coffee in me and once you tell me what ResMed machine I will try to come up with some ideas to try. Bear in mind that I still want you to keep that appointment in December with the new doctor....I feel pretty sure you are really going to need it. We can maybe try a few things to see what happens but I don't want you to give up that appointment.

Oh...one other question...you don't by chance have a copy of that first sleep study from 3 years ago do you?

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

If you want to try the Eclipse mask and want a special promo code to get a little off the price...send me a private message.

User avatar
metsfan302
Posts: 687
Joined: Fri Oct 09, 2015 9:44 pm
Location: Dewey Beach, Delaware

Re: Noob to CPAP and Group. AHI in the 50's...

Post by metsfan302 » Sun Oct 11, 2015 10:53 am

Pics of machine friends going to be giving me tomm. I actually go see my family dr tomm too.
Setting are A-Flex 3, the resistance is x1 to match my mask. When I did the sleep study I do belive I was hooked up to a cpap machine, I do remember air going into my nose and a ton of wires on my head, body was weird.
I can get a copy of that orig report this week for sure.


URL=http://imgur.com/txJ7ilL]Image[/URL]

......

Image

_________________
Machine: DreamStation BiPAP® Pro Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Prior - ResMed AirCurve ASV User
This is my Orig Post "The start of my venture to find proper therapy" - http://www.cpaptalk.com/viewtopic.php?f ... &sk=t&sd=a

User avatar
Pugsy
Posts: 63941
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Noob to CPAP and Group. AHI in the 50's...

Post by Pugsy » Sun Oct 11, 2015 11:19 am

I can't see what the model name is on the ResMed machine.
Choices will be
Escape
Escape Auto
Elite
AutoSet
VPAP...with several possible things after VPAP

Above the on/off button on the left it will say S9 and above the other button on the blower is the model name.

Get a copy of whatever sleep studies you had if you can.
Both with and without cpap (if you had one with cpap).

Since you are already using Flex option set to max...I don't know if it is contributing to the centrals or not.
A very small percentage of people using exhale relief which creates a sort of bilevel pressure situation will find that bilevel can make centrals worse. The thing is that with the PR S1 APAP the very most you can possibly get with it is a 2 cm reduction upon exhale and that is only if you are a forceful breather.

Your waking often noticing the pressure...it could be the pressure or it could simply be the truckload of events you are having. You do spend an hour or so often at the higher pressures. It's not like it goes to 17 and bam you wake up within 5 minutes...you spend some time up there before you wake up.
So it's not impossible for the wake ups to be related more to the apnea events than the pressure.

If you didn't have any centrals on your prior sleep studies then it is possible that the centrals (CAs) shown are post arousal centrals from the OAs and maybe if we could reduce the OAs the centrals would reduce.
If you had centrals without cpap...you likely have a machine that simply can't deal with the centrals.
If you had centrals without cpap but they pop up with cpap...then we may be looking at complex sleep apnea and in that case you may need another type of machine and apap mode isn't such a good mode to use.
There's a lot we don't know and can't know at this point.

All I know to do is try to address the known problem that can be addressed with the current machine and see what happens.
Knowing what your sleep studies originally said at least gives us somewhere to start.

Oh...the meds question? Any chance you are taking any meds that might suppress respiration?
Do you have any other known health issues?
Lung or heart problems...shallow breather?

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

If you want to try the Eclipse mask and want a special promo code to get a little off the price...send me a private message.

User avatar
metsfan302
Posts: 687
Joined: Fri Oct 09, 2015 9:44 pm
Location: Dewey Beach, Delaware

Re: Noob to CPAP and Group. AHI in the 50's...

Post by metsfan302 » Sun Oct 11, 2015 6:16 pm

will know the model type later this eve or tomm at latest.

meds that might suppress breathing - I do take a narcotic for pain mgt / sleep meds (ambian) as needed usually when I switch from day shift to overnight weekends.
Prior to taking meds for pain I was always told by my wife I would stop breathing thru the night and snore alot if that means anything at all

I have high blood pressure.

That's about all I can think of. Ill ask my family DR tomm if he has a copy of the sleep study or go to the sleep study place for a copy. Anything I should be asking my family dr about all this etc? Like I said I wont be able to go to the new sleep dr till shes back from maternity leave dec 22 but I hear shes well worth the wait!

I was thinking of getting one of those recording Oxygen readers from amazon they are under $50 that I could review the nightly data etc on the computer and import into sleepyhead?

_________________
Machine: DreamStation BiPAP® Pro Machine
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Prior - ResMed AirCurve ASV User
This is my Orig Post "The start of my venture to find proper therapy" - http://www.cpaptalk.com/viewtopic.php?f ... &sk=t&sd=a

User avatar
Pugsy
Posts: 63941
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Noob to CPAP and Group. AHI in the 50's...

Post by Pugsy » Sun Oct 11, 2015 6:24 pm

metsfan302 wrote:I was thinking of getting one of those recording Oxygen readers from amazon they are under $50 that I could review the nightly data etc on the computer and import into sleepyhead?
Make sure you get at least the CMS 50 D Plus model...so you know it records all night.
I think it would be a good idea to have it if it doesn't take food off the table to buy it.
I hear the CMS 50 F wrist model is a little more comfortable and not a whole lot more than the 50 D+.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

If you want to try the Eclipse mask and want a special promo code to get a little off the price...send me a private message.