Beginning to think this is pointless...
Beginning to think this is pointless...
Hello,
Yes, I know last night was only my 4th night on Cpap, but I swear it feels like I'm getting worse still cognitively. I am having such a hard time thinking clearly, my memory is shot, I don't know where my vocabulary went, and now I keep getting messages that my leaks are getting higher each night.
Apparently Wednesday my leak rate was 16L/MN with an AHI of 0.1, and last night the leak rate increased to 18L/MN, but my AHI dropped to zero. I know I should download sleepyhead, and I will at some point today. That is if I can get my brain to function.
I am not expecting complete relief of all of my symptoms, but why are things seemingly worse? Shouldn't they stay at the same level? I am not sleeping well still, maybe 4-5 hours with multiple awakenings. Could that be the reason? Are the leaks I'm having causing this further decline? I don't want to give up, but after all I've been through over the last 4 years, I'm beginning to feel like this isn't going to work like the whole "depression" treatment didn't work.
I don't know what to do...
Yes, I know last night was only my 4th night on Cpap, but I swear it feels like I'm getting worse still cognitively. I am having such a hard time thinking clearly, my memory is shot, I don't know where my vocabulary went, and now I keep getting messages that my leaks are getting higher each night.
Apparently Wednesday my leak rate was 16L/MN with an AHI of 0.1, and last night the leak rate increased to 18L/MN, but my AHI dropped to zero. I know I should download sleepyhead, and I will at some point today. That is if I can get my brain to function.
I am not expecting complete relief of all of my symptoms, but why are things seemingly worse? Shouldn't they stay at the same level? I am not sleeping well still, maybe 4-5 hours with multiple awakenings. Could that be the reason? Are the leaks I'm having causing this further decline? I don't want to give up, but after all I've been through over the last 4 years, I'm beginning to feel like this isn't going to work like the whole "depression" treatment didn't work.
I don't know what to do...
_________________
Machine: AirSense™ 10 Elite CPAP Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Last edited by mzdawn74 on Fri Jul 03, 2015 12:04 pm, edited 1 time in total.
Re: Beginning to think this is pointless...
Yes leaks can wake you up no doubt about it. I noticed in one of your other threads you also mention you had dry mouth; which means your therapy is going out of your mouth.
You may want to consider changing to full face mask, and getting some type of liners to go with it. The liners work wonders for controling leaks.
I wish you well...
You may want to consider changing to full face mask, and getting some type of liners to go with it. The liners work wonders for controling leaks.
I wish you well...
_________________
Machine: DreamStation BiPAP® Auto Machine |
Mask: Zzz-Mask Full Face CPAP Mask with Headgear |
Humidifier: DreamStation Heated Humidifier |
Additional Comments: Settings are IPap 23 EPap 19 |
- chunkyfrog
- Posts: 34377
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: Beginning to think this is pointless...
There is nothing wrong with your leak rate, because anything at or below 24 is OK with Resmed machines.
Four days is really not enough time to see mental improvement. I took maybe 3 or 4 months.
For now, you just need to relax and enjoy this oxygenated sleep. Get used to therapy, and let your body heal.
Try a full face mask if you like, but it is not for everyone, you choose what works for YOU.
Four days is really not enough time to see mental improvement. I took maybe 3 or 4 months.
For now, you just need to relax and enjoy this oxygenated sleep. Get used to therapy, and let your body heal.
Try a full face mask if you like, but it is not for everyone, you choose what works for YOU.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
Re: Beginning to think this is pointless...
Took me 3 months to get it settled... 4 days is not enough time for most (If any).
You might need to try different masks, mask liner, I used a neck tie for a couple days (long story)...
You do the best you can as best as you can until you work it out. Everyone is different.
BTW it helps if you stay to one running topic rather than creating new ones all the time. A lot easier to follow.
You might need to try different masks, mask liner, I used a neck tie for a couple days (long story)...
You do the best you can as best as you can until you work it out. Everyone is different.
?? You have the info at your fingertips to show you what is happening in detail but you have not tried. Nobody can do this for you.I know I should download sleepyhead, and I will at some point today.
BTW it helps if you stay to one running topic rather than creating new ones all the time. A lot easier to follow.
Current Settings PS 4.0 over 10.6-18.0 (cmH2O) - Resmed S9 VPAP Auto w/h5i Humidifier - Quattro Air FFM
TNET Sleep Resource Pages - CPAP Machine Database
Put your equip in your Signature - SleepyHead v1.0.0-beta-1
Kevin... alias Krelvin
TNET Sleep Resource Pages - CPAP Machine Database
Put your equip in your Signature - SleepyHead v1.0.0-beta-1
Kevin... alias Krelvin
Re: Beginning to think this is pointless...
I'm one of those who, without a rational explanation, chooses to ignore how the machines score leak rates on occasion. If you feel leaks are a problem, try on some FF masks, you might feel more comfortable (as I do) wearing one, rather than less. There's another factor too, some people don't do well with Apap as the changes in pressure waken them... so you might also try straight Cpap at the pressure you used for 90-95% of the time. Again, nothing to lose by a short trial!
_________________
Mask: Ultra Mirage™ Full Face CPAP Mask with Headgear |
Humidifier: IntelliPAP Integrated Heated Humidifier |
Re: Beginning to think this is pointless...
My first couple of weeks were awful. Tears, yelling, cursing the machine, sleepless, crabby, mental fog. Ugh! Hang in there, it does get better.
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Mask: AirFit™ N10 Nasal CPAP Mask with Headgear |
- chunkyfrog
- Posts: 34377
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: Beginning to think this is pointless...
OP lists an Elite, so no auto.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
Re: Beginning to think this is pointless...
Oops, thank you CF!
_________________
Mask: Ultra Mirage™ Full Face CPAP Mask with Headgear |
Humidifier: IntelliPAP Integrated Heated Humidifier |
- BlackSpinner
- Posts: 9745
- Joined: Sat Apr 25, 2009 5:44 pm
- Location: Edmonton Alberta
- Contact:
Re: Beginning to think this is pointless...
In four days do you expect to heal? Would you insist on taking off a cast?
Suppose you had a hysterectomy, it would take 6 - 8 weeks to recover your energy from the cost of healing. Sure the incision is closed in a couple of weeks but you won't be doing a big shopping trip or running your usual lap. Why the hell do you think 4 days does anything? Did you learn to walk in 4 days? Did the newborn sleep through the night in 4 days?
Suppose you had a hysterectomy, it would take 6 - 8 weeks to recover your energy from the cost of healing. Sure the incision is closed in a couple of weeks but you won't be doing a big shopping trip or running your usual lap. Why the hell do you think 4 days does anything? Did you learn to walk in 4 days? Did the newborn sleep through the night in 4 days?
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Mask: Hybrid Full Face CPAP Mask with Nasal Pillows and Headgear |
Additional Comments: Quatro mask for colds & flus S8 elite for back up |
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
-
- Posts: 354
- Joined: Sat Feb 28, 2015 4:49 pm
- Location: San Diego
Re: Beginning to think this is pointless...
Obviously, OP has not yet adapted to the therapy. She states she only sleeps maybe 4-5 hours with frequent awakenings.
It may help to take a mild sedative during the adaptation process.
Give it TIME, OP! You won't regret it! It works 100% of the time if you do your part, and have patience!
Don't expect to see dramatic results in how you feel with SWJ (sleep/wake junk). This is without much doubt contributing to the 'fog' you seem to
experience. Perhaps you may want to discuss your current symptoms with your physician, though, because the description appears to be a bit extreme.
You'll get to a very good, healthful place if you stick with it.
It may help to take a mild sedative during the adaptation process.
Give it TIME, OP! You won't regret it! It works 100% of the time if you do your part, and have patience!
Don't expect to see dramatic results in how you feel with SWJ (sleep/wake junk). This is without much doubt contributing to the 'fog' you seem to
experience. Perhaps you may want to discuss your current symptoms with your physician, though, because the description appears to be a bit extreme.
You'll get to a very good, healthful place if you stick with it.
Last edited by tedburnsIII on Fri Jul 03, 2015 1:22 pm, edited 2 times in total.
Machine - https://www.cpap.com/productpage/resmart ... ducts.html
Setting: APAP, 10.5-14cm
Software: Proprietary
Mask- PR Wisp nasal (large); ResMed FX Nasal (wide);
Oximeter: CMS50D+
Setting: APAP, 10.5-14cm
Software: Proprietary
Mask- PR Wisp nasal (large); ResMed FX Nasal (wide);
Oximeter: CMS50D+
Re: Beginning to think this is pointless...
I do not expect to heal in 4 days. But, what I don't understand is why my symptoms keep getting worse? I would think they would stay the same. I know this is not going to be a quick fix, but it is very scary feeling the way I do. Each day I wonder, is this it? Is this what my life is going to be like? It's torture on a daily basis not being able to do all of the simple things I used to. Like reading a paragraph, and actually understanding and comprehending what I read. To be able to have a conversation and not have to stop mid-sentence because I can't recall the word I want to use. To drive down the freeway I've been down 1000's of times, and know the exit names that are coming up from memory. To complete daily routines without having to think the process out in depth, and still make mistakes. These are the types of things I struggle with each day, and it's getting worse. I want this therapy to work, but just feel hopeless. I'm sorry if you are losing patience with me, but it's my life at stake here. I don't want to end up in some hospital a complete vegatable.BlackSpinner wrote:In four days do you expect to heal? Would you insist on taking off a cast?
Suppose you had a hysterectomy, it would take 6 - 8 weeks to recover your energy from the cost of healing. Sure the incision is closed in a couple of weeks but you won't be doing a big shopping trip or running your usual lap. Why the hell do you think 4 days does anything? Did you learn to walk in 4 days? Did the newborn sleep through the night in 4 days?
_________________
Machine: AirSense™ 10 Elite CPAP Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Last edited by mzdawn74 on Fri Jul 03, 2015 1:17 pm, edited 1 time in total.
Re: Beginning to think this is pointless...
Thank you.Bill44133 wrote:Yes leaks can wake you up no doubt about it. I noticed in one of your other threads you also mention you had dry mouth; which means your therapy is going out of your mouth.
You may want to consider changing to full face mask, and getting some type of liners to go with it. The liners work wonders for controling leaks.
I wish you well...
_________________
Machine: AirSense™ 10 Elite CPAP Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Re: Beginning to think this is pointless...
chunkyfrog wrote:There is nothing wrong with your leak rate, because anything at or below 24 is OK with Resmed machines.
Four days is really not enough time to see mental improvement. I took maybe 3 or 4 months.
For now, you just need to relax and enjoy this oxygenated sleep. Get used to therapy, and let your body heal.
Try a full face mask if you like, but it is not for everyone, you choose what works for YOU.
Thanks. I didn't know that anything under 24 was OK with Resmed. I got alarmed when they sent me an email yesterday informing of the leaks. I don't really expect to see mental improvements, but I do expect not to continue to decline. If I'm getting treatment, shouldn't it stay basically the same?
_________________
Machine: AirSense™ 10 Elite CPAP Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Re: Beginning to think this is pointless...
Hi Dawn -- I'm guessing things are worse right now because sleeping with a mask on your face and air blowing into you is a whole new deal and for most it takes patience and a lot of getting used to. Your sleep was messed up before you started this, and now you've added another challenge to the mix -- long-term you will be better off for it, but for some people it gets worse before it gets better. I was one of those people.
I suggest you forget about myair because it's causing you unnecessary stress. The "do not cross" leak number on your machine is 24. So not only are your highest leaks already below that number, but you may only have hit your max leak rate once or twice for a second or two. Not significant. You'll be able to look at a leak graph for the whole night when you start using SleepyHead -- then you can see the whole story re leaks. Sometimes the highest leak number was just a blip or two on the whole graph, and the rest of the night leaks were minimal. Wait and see when you have all the info and in the meantime just rely on the green smiley face.
I know from your previous threads that you're scared and having a very difficult time. But try not to take these first few nights with cpap as an indication of how it will be for you indefinitely. It's just not time to make that assessment.
Forum help -- sometimes it comes with empathy and patience, and sometimes not. Feel free to PM for a little extra support if you need it.
I suggest you forget about myair because it's causing you unnecessary stress. The "do not cross" leak number on your machine is 24. So not only are your highest leaks already below that number, but you may only have hit your max leak rate once or twice for a second or two. Not significant. You'll be able to look at a leak graph for the whole night when you start using SleepyHead -- then you can see the whole story re leaks. Sometimes the highest leak number was just a blip or two on the whole graph, and the rest of the night leaks were minimal. Wait and see when you have all the info and in the meantime just rely on the green smiley face.
I know from your previous threads that you're scared and having a very difficult time. But try not to take these first few nights with cpap as an indication of how it will be for you indefinitely. It's just not time to make that assessment.
Forum help -- sometimes it comes with empathy and patience, and sometimes not. Feel free to PM for a little extra support if you need it.
_________________
Machine: AirSense 10 AutoSet with Heated Humidifer + Aifit N30i Nasal Mask Bundle |
Mask: Aloha Nasal Pillow CPAP Mask with Headgear |
Additional Comments: SleepyHead-now-OSCAR software on Mac OSX Ventura |
Re: Beginning to think this is pointless...
I feel your pain girl, I feel your struggle
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching