Getting set up with my CPAP machine

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Enchanter
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Re: Getting set up with my CPAP machine

Post by Enchanter » Tue Jun 30, 2015 8:09 pm

Postitnote what do you mean? Tired behind the eyes comes from lack of sleep or lack of oxygen at night. Why do we pretend like it's something else? There is nothing medically wrong with me.
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching

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Julie
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Re: Getting set up with my CPAP machine

Post by Julie » Tue Jun 30, 2015 8:10 pm

Enchanter - do you think you could lay off the weights (at least) for now, until you are on Cpap properly (after MD's script, machine setting, etc.)? Weights can lead to problems with blood vessels, etc. and I'm not sure it's the best thing for you to be doing now, same for e.g. running, etc., maybe anything that goes beyond floor mat exercise without equipment (well, maybe a ball, etc.). Especially if you have those headaches. NOT trying to scare you, but maybe a little common sense at the moment might be an idea... considering your worry about 02, etc. You're not operating on all cylinders yet. There is something wrong with you - you have obstructive (?) sleep apnea and it's not yet being treated optimally.
Last edited by Julie on Tue Jun 30, 2015 9:27 pm, edited 1 time in total.

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Enchanter
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Re: Getting set up with my CPAP machine

Post by Enchanter » Tue Jun 30, 2015 8:12 pm

Julie wrote:Enchanter - do you think you could lay off the weights (at least) for now, until you are on Cpap properly (after MD's script, machine setting, etc.)? Weights can lead to problems with blood vessels, etc. and I'm not sure it's the best thing for you to be doing now, same for e.g. running, etc., maybe anything that goes beyond floor mat exercise without equipment (well, maybe a ball, etc.). Especially if you have those headaches. NOT trying to scare you, but maybe a little common sense at the moment might be an idea... considering your worry about 02, etc. You're not operating on all cylinders yet. There is something wrong with you - you have obstructive (?) sleep apnea and it's not yet being treated optimally.

Julie my oxygen is 97 percent. Remember though, my headaches have changed. It's sort of morphed into just tiredness in that same spot, but it's not crushing. Now I'm just tired in that spot.
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching

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postitnote
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Re: Getting set up with my CPAP machine

Post by postitnote » Tue Jun 30, 2015 8:16 pm

Enchanter wrote:Postitnote what do you mean? Tired behind the eyes comes from lack of sleep or lack of oxygen at night. Why do we pretend like it's something else? There is nothing medically wrong with me.
I was just asking. I knew someone who took a lot some stuff that has been banned that was for energy. It was sold in a health food store. It made him very sick!
Morbius, are you bored?

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Tatooed Lady
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Re: Getting set up with my CPAP machine

Post by Tatooed Lady » Tue Jun 30, 2015 8:21 pm

postitnote wrote:
Tatooed Lady wrote: And if he tells you what he eats, drinks, can bench, how many times he uses the bathroom per day...then what? are you a dietician? a specialist that can tell him what to do to magically fix things? His issues are obviously outside the ability to fix online. He needs face to face counseling, medical care, whatever. To act like YOU will "save" him is NOT going to help. MAYBE if his mother was on the forum to directly communicate with, since she was apparently the one to fix the mask...but this is a losing battle, and you're doing him a disservice by insinuating that you will make him better by him telling you what he does each day.
Isn't your 34 hours about up?
Really? you want to try and suggest you're a miracle worker, and when called on it, you respond with THAT? wow. Witty. Or something. You SHOULD realize by now that Enchanter takes a lot of things VERY literally. And once something gets in his head, even if wrong, it's all but impossible to put him on a better path. So, unless you're a DOCTOR, or can go sit by his side, you should keep your little tattooed digits from putting it in his head that you're his savior.

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Enchanter
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Re: Getting set up with my CPAP machine

Post by Enchanter » Tue Jun 30, 2015 8:25 pm

postitnote wrote:
Enchanter wrote:Postitnote what do you mean? Tired behind the eyes comes from lack of sleep or lack of oxygen at night. Why do we pretend like it's something else? There is nothing medically wrong with me.
I was just asking. I knew someone who took a lot some stuff that has been banned that was for energy. It was sold in a health food store. It made him very sick!

Thank you for caring. I don't take any workout supplements. Just fish oil, etc..
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching

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Julie
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Re: Getting set up with my CPAP machine

Post by Julie » Tue Jun 30, 2015 8:34 pm

You don't get it - it's not all about 02, but you could burst a blood vessel or something... how's your BP these days? Cpap can lower BP, but you're not 'there' yet and may well be pushing too hard, 02 or no 02.

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zoocrewphoto
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Re: Getting set up with my CPAP machine

Post by zoocrewphoto » Tue Jun 30, 2015 9:09 pm

Enchanter wrote:
Julie wrote:Enchanter - do you think you could lay off the weights (at least) for now, until you are on Cpap properly (after MD's script, machine setting, etc.)? Weights can lead to problems with blood vessels, etc. and I'm not sure it's the best thing for you to be doing now, same for e.g. running, etc., maybe anything that goes beyond floor mat exercise without equipment (well, maybe a ball, etc.). Especially if you have those headaches. NOT trying to scare you, but maybe a little common sense at the moment might be an idea... considering your worry about 02, etc. You're not operating on all cylinders yet. There is something wrong with you - you have obstructive (?) sleep apnea and it's not yet being treated optimally.

Julie my oxygen is 97 percent. Remember though, my headaches have changed. It's sort of morphed into just tiredness in that same spot, but it's not crushing. Now I'm just tired in that spot.
Sounds like your oxygen saturation was at 97 while you were at the allergy doctor. That does not mean that it is 96 all night, especially if you were only able to sleep with the mask for 3 hours. You are not getting full treatment yet. This will not be an overnight fix. Don't expect instant results.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Resmed S9 autoset pressure range 11-17
Who would have thought it would be this challenging to sleep and breathe at the same time?

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postitnote
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Re: Getting set up with my CPAP machine

Post by postitnote » Tue Jun 30, 2015 9:28 pm

Tatooed Lady wrote:
Really? you want to try and suggest you're a miracle worker, and when called on it, you respond with THAT? wow. Witty. Or something. You SHOULD realize by now that Enchanter takes a lot of things VERY literally. And once something gets in his head, even if wrong, it's all but impossible to put him on a better path. So, unless you're a DOCTOR, or can go sit by his side, you should keep your little tattooed digits from putting it in his head that you're his savior.
I don't claim to be anyone's savior! I am someone trying to help a person who needs help and has asked for help. You on the other hand are a bitch who is more concerned about chiming in on a thread for no other reason but to cause a ruckus. You don't care about Enchanter. You only care about being a PITA!

Since you're not back on the road that must mean you are a lot lizzard. They don't keep regular hours. Shoo!
Morbius, are you bored?

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Enchanter
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Re: Getting set up with my CPAP machine

Post by Enchanter » Tue Jun 30, 2015 9:52 pm

zoocrewphoto wrote:
Enchanter wrote:
Julie wrote:Enchanter - do you think you could lay off the weights (at least) for now, until you are on Cpap properly (after MD's script, machine setting, etc.)? Weights can lead to problems with blood vessels, etc. and I'm not sure it's the best thing for you to be doing now, same for e.g. running, etc., maybe anything that goes beyond floor mat exercise without equipment (well, maybe a ball, etc.). Especially if you have those headaches. NOT trying to scare you, but maybe a little common sense at the moment might be an idea... considering your worry about 02, etc. You're not operating on all cylinders yet. There is something wrong with you - you have obstructive (?) sleep apnea and it's not yet being treated optimally.

Julie my oxygen is 97 percent. Remember though, my headaches have changed. It's sort of morphed into just tiredness in that same spot, but it's not crushing. Now I'm just tired in that spot.
Sounds like your oxygen saturation was at 97 while you were at the allergy doctor. That does not mean that it is 96 all night, especially if you were only able to sleep with the mask for 3 hours. You are not getting full treatment yet. This will not be an overnight fix. Don't expect instant results.

Well the tech said my oxygen was dropping. I'm talking about my daytime oxygen.
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching

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zoocrewphoto
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Re: Getting set up with my CPAP machine

Post by zoocrewphoto » Wed Jul 01, 2015 1:20 am

Enchanter wrote:
zoocrewphoto wrote:
Enchanter wrote:
Julie wrote:Enchanter - do you think you could lay off the weights (at least) for now, until you are on Cpap properly (after MD's script, machine setting, etc.)? Weights can lead to problems with blood vessels, etc. and I'm not sure it's the best thing for you to be doing now, same for e.g. running, etc., maybe anything that goes beyond floor mat exercise without equipment (well, maybe a ball, etc.). Especially if you have those headaches. NOT trying to scare you, but maybe a little common sense at the moment might be an idea... considering your worry about 02, etc. You're not operating on all cylinders yet. There is something wrong with you - you have obstructive (?) sleep apnea and it's not yet being treated optimally.

Julie my oxygen is 97 percent. Remember though, my headaches have changed. It's sort of morphed into just tiredness in that same spot, but it's not crushing. Now I'm just tired in that spot.
Sounds like your oxygen saturation was at 97 while you were at the allergy doctor. That does not mean that it is 96 all night, especially if you were only able to sleep with the mask for 3 hours. You are not getting full treatment yet. This will not be an overnight fix. Don't expect instant results.

Well the tech said my oxygen was dropping. I'm talking about my daytime oxygen.
Your daytime oxygen has nothing to do with your sleep apnea. Most people with sleep apnea have normal oxygen saturation when upright and awake. I don't understand why you are bringing it up. It sounds like your only health problem is bad sleep. (maybe the allergies too, but that usually doesn't cause the problems you are talking about) So, once you have the cpap optimized AND you get 7+ hours a night, then you should be feeling much better. right now, it is too early to have the cpap optimized. And it will take some practice before you get enough hours of sleep. Focus on those two things and don't worry about other stuff right now.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Resmed S9 autoset pressure range 11-17
Who would have thought it would be this challenging to sleep and breathe at the same time?

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Re: Getting set up with my CPAP machine

Post by Papit » Wed Jul 01, 2015 2:05 am

zoocrewphoto wrote: Your daytime oxygen has nothing to do with your sleep apnea. Most people with sleep apnea have normal oxygen saturation when upright and awake. I don't understand why you are bringing it up. It sounds like your only health problem is bad sleep. (maybe the allergies too, but that usually doesn't cause the problems you are talking about) So, once you have the cpap optimized AND you get 7+ hours a night, then you should be feeling much better. right now, it is too early to have the cpap optimized. And it will take some practice before you get enough hours of sleep. Focus on those two things and don't worry about other stuff right now.
+1 She's saying it exactly right, Enchanter.

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Enchanter
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Re: Getting set up with my CPAP machine

Post by Enchanter » Wed Jul 01, 2015 2:07 am

zoocrewphoto wrote:
Enchanter wrote:
zoocrewphoto wrote:
Enchanter wrote:
Julie wrote:Enchanter - do you think you could lay off the weights (at least) for now, until you are on Cpap properly (after MD's script, machine setting, etc.)? Weights can lead to problems with blood vessels, etc. and I'm not sure it's the best thing for you to be doing now, same for e.g. running, etc., maybe anything that goes beyond floor mat exercise without equipment (well, maybe a ball, etc.). Especially if you have those headaches. NOT trying to scare you, but maybe a little common sense at the moment might be an idea... considering your worry about 02, etc. You're not operating on all cylinders yet. There is something wrong with you - you have obstructive (?) sleep apnea and it's not yet being treated optimally.

Julie my oxygen is 97 percent. Remember though, my headaches have changed. It's sort of morphed into just tiredness in that same spot, but it's not crushing. Now I'm just tired in that spot.
Sounds like your oxygen saturation was at 97 while you were at the allergy doctor. That does not mean that it is 96 all night, especially if you were only able to sleep with the mask for 3 hours. You are not getting full treatment yet. This will not be an overnight fix. Don't expect instant results.

Well the tech said my oxygen was dropping. I'm talking about my daytime oxygen.
Your daytime oxygen has nothing to do with your sleep apnea. Most people with sleep apnea have normal oxygen saturation when upright and awake. I don't understand why you are bringing it up. It sounds like your only health problem is bad sleep. (maybe the allergies too, but that usually doesn't cause the problems you are talking about) So, once you have the cpap optimized AND you get 7+ hours a night, then you should be feeling much better. right now, it is too early to have the cpap optimized. And it will take some practice before you get enough hours of sleep. Focus on those two things and don't worry about other stuff right now.

Can CPAP cause you to get LESS sleep? I think that's happened to me. And the way I see it is all my health problems are coming from bad sleep and a little of allergies. Sure, the anxiety doesn't help either. But now that I know it's not daytime oxygen, I know I don't have hypoxia. But the bottom line is that getting CPAP to work in of itself is not easy.
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching

User avatar
Enchanter
Posts: 715
Joined: Thu Apr 16, 2015 4:34 am

Re: Getting set up with my CPAP machine

Post by Enchanter » Wed Jul 01, 2015 2:08 am

Papit wrote:
zoocrewphoto wrote: Your daytime oxygen has nothing to do with your sleep apnea. Most people with sleep apnea have normal oxygen saturation when upright and awake. I don't understand why you are bringing it up. It sounds like your only health problem is bad sleep. (maybe the allergies too, but that usually doesn't cause the problems you are talking about) So, once you have the cpap optimized AND you get 7+ hours a night, then you should be feeling much better. right now, it is too early to have the cpap optimized. And it will take some practice before you get enough hours of sleep. Focus on those two things and don't worry about other stuff right now.
+1 She's saying it exactly right, Enchanter.

Papit, the machine doesn't seem to allow me to adjust the cm to lower than 13. I pressed every button.
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching

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zoocrewphoto
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Re: Getting set up with my CPAP machine

Post by zoocrewphoto » Wed Jul 01, 2015 2:22 am

[quote="Enchanter"

Can CPAP cause you to get LESS sleep? I think that's happened to me. And the way I see it is all my health problems are coming from bad sleep and a little of allergies. Sure, the anxiety doesn't help either. But now that I know it's not daytime oxygen, I know I don't have hypoxia. But the bottom line is that getting CPAP to work in of itself is not easy.[/quote]

In some ways, yes, but those can be corrected. For example, if the pressure is not optimized, it could be too low and you can't sleep well. Or it could be too high, and you can't sleep well. It could be changing too much, which causes some people to wake up. Some people have trouble with leaks disturbing their sleep. All of these can be corrected. Most people experience at least one of these, if not more. That is normal. It won't be perfect in one night. It took me 6 weeks to master the leaks from my mask.

Another issue that can happen (and will resolve itself) is that we are used to crappy sleep. So, when we suddenly get good sleep, we can be fooled into thinking we got more sleep than we did. My first night at home, I jumped out of bed after 4 hours, looked around, and realized it was nowhere near time to get up. I did go back to sleep and slept pretty well. But my brain was confused as it was not used to getting that much good sleep in such a short time. This may have happened to you. It will go away as you get used to it.

Another issue is that we are not used to sleeping with an alien on our face, so we are more aware of the sensations, the sounds, our own breathing, etc. This can take several weeks to get used to. Nobody said this was an easy treatment to get used to. I threw my mask a few times. I swore at it many times. But that titration night was an awesome night of sleep for me. So, I knew that it was possible to sleep really well if I just kept working at it.

You have already felt the improvement of reduced or no headache. So, you have had a small taste of success. It gets better with practice.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Resmed S9 autoset pressure range 11-17
Who would have thought it would be this challenging to sleep and breathe at the same time?