Diagnosed with Severe at 21 and 15% bodyfat

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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LibbyLou
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by LibbyLou » Fri Apr 17, 2015 11:52 am

ChicagoGranny wrote:
40% of people with sleep apnea are slim. Another segment was slim until sleep apnea developed and caused them to gain weight.
*waving*
You should always waste time when you don't have any. Time is not the boss of you. Rule 408.

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ChicagoGranny
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by ChicagoGranny » Fri Apr 17, 2015 12:05 pm

robysue wrote: You're being overly harsh on Yub Yub in my opinion.
Oh for goodness sakes. Yub Yub is a big boy and can speak for himself.

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archangle
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by archangle » Fri Apr 17, 2015 2:54 pm

Welcome. Sorry you need to join us.

First thing, read the Useful Links in my signature line at the bottom of this post for hints on how to not get screwed as badly by the system and the DME (CPAP salesman). It's very important to get a good, fully data capable machine. A little preparation and fighting for your rights up front will help you a lot later.

I don't think they get false diagnoses of sleep apnea in a lab test very often. The signs are pretty clear and objective. If anything, they tend to miss people who DO have sleep apnea.

As others have said, some thin and young people do get apnea.

Apnea could be a large part of your problems. However, remember that you can still have the same medical problems that non-apneacs have.

Be prepared to do a lot of your own management of your apnea. The standard of care in the current big box store assembly line medicine system is pretty bad. However, CPAP is THE treatment for apnea.

If you don't like CPAP, yes, you probably are doomed to a lot of misery. Learn to make it work. The alternatives to CPAP are not very effective, and have a lot of side effects.

BTW, get a copy of your full sleep study. You need it to manage your own therapy, and you may need it in the future. HIPAA says you have a right to the study.

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KillingMe
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by KillingMe » Fri Apr 17, 2015 3:10 pm

Screw this.
Last edited by KillingMe on Tue Dec 13, 2016 10:08 am, edited 1 time in total.

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robysue
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by robysue » Fri Apr 17, 2015 6:25 pm

KillingMe wrote:
archangle wrote:get a copy of your full sleep study.
Don't you mean the two or three page summary? The full study is hundreds of pages and useless to patients.
As used around here, the phrase "full sleep study" usually means the full condensed report. It includes the overall doctor's summary (usually a page or two), along with the numerical data for the night (another page or two), and the summary graphs that give the overall picture of the whole night's sleep (another page or two). The summary graphs typically include a hypnograph along with an events table and a O2 saturation graph, which are correlated to the hypnograph. There are occasionally other graphs included as well. On a titration study, there will be a pressure setting graph.

The whole condensed report usually is about 3-5 pages in length, but it can run to be as many as 7-10 in some labs.

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KillingMe
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by KillingMe » Fri Apr 17, 2015 6:28 pm

Why are you answering? My question was addressed to Archangle.

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Julie
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by Julie » Fri Apr 17, 2015 6:38 pm

Because on this forum everyone is always welcome to contribute... it's a good way to get a consensus on things rather than just one person's take, and it gives you more help.

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BlackSpinner
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by BlackSpinner » Fri Apr 17, 2015 7:06 pm

KillingMe wrote:Why are you answering? My question was addressed to Archangle.
Then you should have made it a pm(private message)

The person you want an answer from is the one who can give you the best answer, not just the one you responded too. That is the biggest benefit of a forum like this.

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JustinD9
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Diagnosed with Severe at 21 and 15% bodyfat

Post by JustinD9 » Fri Apr 17, 2015 10:22 pm

Can someone please explain? Do some sleep Studies look at the AHI during each of the phases of sleep? I know my sleep study looked a how much each phase was and whether the amount % was off compared to normal but not an AHI for each phase. If this is the case my study was pretty different.

Also, given each phase is your sleep is defined by your comparative brain waves, wouldn't apnea events during the phase 3-4 and rem actually prevent you from being in those phases. I hope people feel this is on-topic with the OP as it is germane to his diagnosis.

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ChicagoGranny
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by ChicagoGranny » Sat Apr 18, 2015 6:06 am

JustinD9 wrote:not an AHI for each phase
Your sleep study recorded it. It may not have been in your summary report, but it is available. Ask your medical professionals about it.
JustinD9 wrote:wouldn't apnea events during the phase 3-4 and rem actually prevent you from being in those phases.
Bad events during stages 1 and 2 might prevent you from getting to the other stages. Most people get some sleep in all stages. Of course sleep apnea wrecks sleep, so many people's studies look like a disaster.

Curiosity about your sleep study is natural. But instead of worrying about the way things were, get a good CPAP therapy going and then get a good night's sleep every night.

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Hosehead4ever
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by Hosehead4ever » Sat Apr 18, 2015 7:37 am

Don't worry about your age. I was only 26 with a 22 BMI when I was first diagnosed. OSA has to do with the size of your airway and whether your airway relaxes and closes off during sleep. It isn't a disease of fat and old people. It's just that many aren't diagnosed until they are fat or old or both. That's not to mention the children that have OSA. Be glad you have been diagnosed so young and are going to get treatment!

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Yames1

Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by Yames1 » Sat Apr 18, 2015 3:29 pm

Since you are thin, it may be Central Sleep Apnea, not obstructive. Central Sleep Apnea is a brain stem dysfunction. You should ask your doctor, cause is different treatment similiar, use an ASV. See a doctor that specializes in sleep medicine, not a general practitioner. .

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archangle
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by archangle » Sat Apr 18, 2015 3:48 pm

Yames1 wrote:Since you are thin, it may be Central Sleep Apnea, not obstructive. Central Sleep Apnea is a brain stem dysfunction. You should ask your doctor, cause is different treatment similiar, use an ASV. See a doctor that specializes in sleep medicine, not a general practitioner. .
There's no reason to suspect Central Apnea just because he's thin. Plenty of thin people have normal obstructive sleep apnea.

No need to scare ambidex unnecessarily about central apnea.

If he were having central apneas during his sleep study, they would have noted it if it's an in-lab study. Yet another reason to get a copy of your sleep study.

Ambidex, was it an in-lab study?

This is also a good reason to be sure you get a good fully data capable machine and check your own data. A good machine will probably detect central apnea if you develop it. Check the links in my signature line for the right machine to get.

By the way, an AHI of 36 does mean you clearly have apnea, but it's not "record setting" apnea by any means. We've had quite a few people post here with AHI over 100.

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ChicagoGranny
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by ChicagoGranny » Sat Apr 18, 2015 3:52 pm

archangle wrote:There's no reason to suspect Central Apnea just because he's thin. Plenty of thin people have normal obstructive sleep apnea.

No need to scare ambidex unnecessarily about central apnea.
Thanks for saying it.

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palerider
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Re: Diagnosed with Severe at 21 and 15% bodyfat

Post by palerider » Sat Apr 18, 2015 4:59 pm

Yames1 wrote:Since you are thin, it may be Central Sleep Apnea, not obstructive. Central Sleep Apnea is a brain stem dysfunction. You should ask your doctor, cause is different treatment similiar, use an ASV. See a doctor that specializes in sleep medicine, not a general practitioner. .
well, that's just *stupid*

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