Accident prone (please read please)

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Sat Feb 28, 2015 6:43 pm

postitnote wrote:
Punchyandtired wrote:
Krelvin wrote:Not really clear what you are asking for.
Does anyone have an opinion on any of this? Like does any of this scream to you that something is very very wrong with me? Or does it sound like par for the course for severe OSA?
My first reaction is you are scared and stressed out. So long as you have no other pressing illnesses just deal with the SA for now. Focus on getting that part under control and then see how you feel. I took the outside of my toes off a month ago and then a few days later cut the bottom of my foot from walking barefoot due to having a huge bandage on toe. When it rains it pours sometimes.
Yikes, that sounds painful!!! Yea, I'm really scared about this because I used to be so on point about things. Now, I have to learn what my new choices in flooring are-- the carpet was 15 years old and long needed to be replaced. But I'm not in the mood to choose carpet and have workers in the house. Oh well.

It looks like this cold weather has worked in my favor in terms of slowing mold, etc. In the end, this is probably a very convoluted way of getting new carpet.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Sat Feb 28, 2015 6:52 pm

kteague wrote:
Punchyandtired wrote: ...The second sleep study on Feb 2/3 (negative MSLT) is when I was titrated...
I don't understand the rationale of doing the MSLT when one has a diagnosed sleep disorder that's untreated. Guess if it's negative it rules out narcolepsy, but if positive I would be suspect of its accuracy. Did your reports make any mention of limb movements?
I'm not clear on this either (limb movements) and I need to double check on this when I go back to sleep doc.

Original MSLT was dec 15 but we found severe sleep apnea, so MSLT was cancelled. Insurance wouldn't approve split study. After not feeling better at monthly check up, doc ordered second sleep study with MSLT. I slept 3.5 hours in all 24 hours. I don't know what happened other than I couldn't sleep. I went in and out of level 1 and 2 before she did a "REM assist" at pressure of 13 and I was able to hit REM.

The next morning, the RT said I had limb movements and something about how I may have to go back to neurologist. I met the doc at the sleep center and we went over the second study together and he said no significant limb movements.

He said according to the data, I do not have other sleep disorders.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

User avatar
Julie
Posts: 19898
Joined: Tue Feb 28, 2006 12:58 pm

Re: Accident prone (please read please)

Post by Julie » Sat Feb 28, 2015 7:23 pm

I'd listen to the MD before the tech... unless you have other evidence that he doesn't know what he's doing.

User avatar
SleepDisturbed
Posts: 276
Joined: Thu Apr 25, 2013 1:52 pm
Location: East Texas

Re: Accident prone (please read please)

Post by SleepDisturbed » Sat Feb 28, 2015 7:38 pm

I am the sole caregiver for my mother, 87 years old and in stage six of Alzheimer's, and nothing you have described seems like Alzheimer's. I am not a doctor, just someone who has been living with an Alzheimer's patient for over a decade now, so I think I have a little knowledge! Forgetting where you put your keys is probably not dementia. Forgetting what keys are FOR may be.

But if you are concerned, do get tested, if for nothing else to set your mind at ease. Your PCP can do a simple screening test, and determine if you need to go to a specialist.

Otherwise, give yourself a break!! Sounds like you are being WAY too hard on yourself!

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: 9.6 - 15 Pressure on APAP. EPR 2 / Sleepyhead software
What I lack in verbosity, I make up in brevity.

User avatar
kteague
Posts: 7768
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: Accident prone (please read please)

Post by kteague » Sat Feb 28, 2015 8:24 pm

Punchyandtired wrote: I'm not clear on this either (limb movements) and I need to double check on this when I go back to sleep doc. The next morning, the RT said I had limb movements and something about how I may have to go back to neurologist. I met the doc at the sleep center and we went over the second study together and he said no significant limb movements. He said according to the data, I do not have other sleep disorders.
Do yourself a favor and get copies of your detailed reports for your own personal records. You are at a handicap having to wait for appointments to get information. Maybe you did have limb movements, but they could have been related to respiratory effort and were resolved by CPAP use. Or maybe you did have limb movements but they didn't cause arousals so were not deemed significant. Too many maybes. You need hard facts, numbers to compare between studies - especially where limb movements are concerned as they can easily be devastating to sleep but elusive to diagnose. I can't say enough about seeing information for yourself. I had numerous sleep docs, techs, and RTs who may have been good with sleep apnea but not so much when a limb movements disorder was present with the OSA.

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Mon Mar 02, 2015 1:59 pm

I will be sure to get a copy at my appt next week, thanks.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Mon Mar 02, 2015 2:02 pm

Now my mother has jumped into the fray now:

Mom: "do you think you need to see a psychologist to help deal with the problems in your life?"

Me: "what are the problems in my life?"

Mom: "you know... The incidents last week..."



BTW, i have sleep doc's permission to crank up pressure to see if I'm still somehow underpressured.....
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

User avatar
palerider
Posts: 32300
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: Accident prone (please read please)

Post by palerider » Mon Mar 02, 2015 2:15 pm

Punchyandtired wrote:BTW, i have sleep doc's permission to crank up pressure to see if I'm still somehow underpressured.....
have you pulled the data and fed it into sleepyhead to see if you're underpressured? or is this just wagging?

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Mon Mar 02, 2015 2:24 pm

AHI is under 1 and 95% pressure is 14.

What does wagging mean in this context? Thanks.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

User avatar
palerider
Posts: 32300
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: Accident prone (please read please)

Post by palerider » Mon Mar 02, 2015 3:03 pm

Punchyandtired wrote:AHI is under 1 and 95% pressure is 14.

What does wagging mean in this context? Thanks.
wild ass guessing.

you didn't answer the question, though.

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Mon Mar 02, 2015 3:37 pm

My imac has a virus/trojan, so i am working on getting some screen shots up. It takes a very long time and last time i tried, the imac screen shots came out blurry and unreadable.

I have a bunch of kids and am running errands right now. On ipad in parking lot of orthodontist office.

Last night my AHI was .69

My 95% pressure was 15.10

Max pressure was 16.30
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Mon Mar 02, 2015 3:39 pm

Saturday night my AHI was .78

Ill work on uploading screen shots when I get home.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Mon Mar 02, 2015 3:57 pm

It does appear my 95% pressue has been going up over the last month.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Mon Mar 02, 2015 5:24 pm

After spending a good hour on trying to upload sleephead screen shots on to imgur from my malware infected imac, I give up for today.

Saturday night, my 95% pressure was 16.90.

I'm cranking the pressure up to 16 tonight.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

User avatar
Pugsy
Posts: 63941
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Accident prone (please read please)

Post by Pugsy » Mon Mar 02, 2015 5:29 pm

Are you aware of the definition of the 95% numbers? It means that we were at OR BELOW that number for 95% of the night.
It doesn't mean that you were at that number for 95% of the night. People often forget or don't realize that part of the definition is "OR BELOW".
Now is that 95% pressure what a person would or should use if using cpap mode? Maybe yes and maybe no.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

If you want to try the Eclipse mask and want a special promo code to get a little off the price...send me a private message.