It seems to me that's nearly a dead board. Activity is like at a crawl.49er wrote:Regarding the ASAA forum...
myapnea dot org
Re: myapnea dot org
You Kids Have Fun!!
Re: myapnea dot org
Interesting, thanks Sludge.
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Re: myapnea dot org
I noticed too. Very slow.Sludge wrote:It seems to me that's nearly a dead board. Activity is like at a crawl.49er wrote:Regarding the ASAA forum...
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Re: myapnea dot org
But "IMHO" I don't think that 's the underlying issue. Getting AHI to to <5.0 is not a big deal (I mean, you got your CompSAS and some other stuff, but for the most part, these days a 4.0 - 20.0 machine will work just fine).
I think the real problem is continued symptoms DESPITE acceptable AHI, and all these people here now will still be here because they:
I think the real problem is continued symptoms DESPITE acceptable AHI, and all these people here now will still be here because they:
- Have the wrong diagnosis
- Have co-morbidity
- Have the wrong interface (comfort +/- leakage)
- Have poor sleep hygiene
- Medication conflicts
- Have an ineffective medical team
- More stuff..
You Kids Have Fun!!
Re: myapnea dot org
Hi Kaiasgram,
I didn't see it. Perhaps I didn't look in the right place? When you get a chance, let me if I missed it so I can vote for your question.
49er
I didn't see it. Perhaps I didn't look in the right place? When you get a chance, let me if I missed it so I can vote for your question.
49er
kaiasgram wrote:I tried submitting my research question idea on the myapnea.org website again and this time it went through and got posted. This is the question I posted:
I know some of us hate the word "compliance" but in the medical research world it's the right word to use.Does educating sleep apnea patients about how to monitor and manage their treatment, including how to use and adjust their PAP machines, affect sleep apnea treatment outcomes (AHI, subjective reporting of symptoms, and compliance rates)?
You would have to register on the myapnea.org website to vote for research questions and I know most don't want to bother. To be honest I don't think much will come from the whole enterprise, but since it didn't cost me anything except a few minutes of my time I decided to go for it.
Also, if you're registered on the ASAA forum and haven't been there for a while, you might want to revisit -- there does seem to be a little bit of forward movement there now. A little. But it's better than no forward movement.
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Re: myapnea dot org
Noticed that my AHI was higher than normal Thanksgiving night and this morning, after going back to sleep after I had eaten a light snack, it was very high. The issue of food and AHI hadn't been a previous issue that I was aware of but thanks to being able to monitor my data, I see that it is now and have to adjust accordingly.Does educating sleep apnea patients about how to monitor and manage their treatment, including how to use and adjust their PAP machines, affect sleep apnea treatment outcomes (AHI, subjective reporting of symptoms, and compliance rates)?
49er
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- Joined: Sun Jul 11, 2010 9:06 am
Re: myapnea dot org
This is exactly what PCORnet and its 29 networks will theoretically once and for all be able to learn from each other. A so called learning healthcare system. Having a computable phenotype for OSA will help us identify so many patients that are already in the medical system being treated for other comorbidities.Sludge wrote:But "IMHO" I don't think that 's the underlying issue. Getting AHI to to <5.0 is not a big deal (I mean, you got your CompSAS and some other stuff, but for the most part, these days a 4.0 - 20.0 machine will work just fine).
I think the real problem is continued symptoms DESPITE acceptable AHI, and all these people here now will still be here because they:
- Have the wrong diagnosis
- Have co-morbidity
- Have the wrong interface (comfort +/- leakage)
- Have poor sleep hygiene
- Medication conflicts
- Have an ineffective medical team
- More stuff..
Re: myapnea dot org
Yeah, well I ain't holding my breath (so to speak) waiting for that to happen.asleep@thewheel wrote:This is exactly what PCORnet and its 29 networks will theoretically once and for all be able to learn from each other. A so called learning healthcare system. Having a computable phenotype for OSA will help us identify so many patients that are already in the medical system being treated for other comorbidities.Sludge wrote:But "IMHO" I don't think that 's the underlying issue. Getting AHI to to <5.0 is not a big deal (I mean, you got your CompSAS and some other stuff, but for the most part, these days a 4.0 - 20.0 machine will work just fine).
I think the real problem is continued symptoms DESPITE acceptable AHI, and all these people here now will still be here because they:
- Have the wrong diagnosis
- Have co-morbidity
- Have the wrong interface (comfort +/- leakage)
- Have poor sleep hygiene
- Medication conflicts
- Have an ineffective medical team
- More stuff..
You guys have been screwing around with this for nearly a year and so far only have a barely-functional website to show for it.
[Insert laundry list of excuses why little has been done here.]
You Kids Have Fun!!
Re: myapnea dot org
So why not give an update on the progress of the initiative and where that million dollars is going.
How many people you got signed up?
How many people you got signed up?
You Kids Have Fun!!
Re: myapnea dot org
Temper, temper there, Porky!
Fortunately, I happen to have an eidetic memory...
Fortunately, I happen to have an eidetic memory...
You Kids Have Fun!!
Re: myapnea dot org
Yeah, well I ain't holding my breath (so to speak) waiting for that to happen.asleep@thewheel wrote:This is exactly what PCORnet and its 29 networks will theoretically once and for all be able to learn from each other. A so called learning healthcare system. Having a computable phenotype for OSA will help us identify so many patients that are already in the medical system being treated for other comorbidities.Sludge wrote:But "IMHO" I don't think that 's the underlying issue. Getting AHI to to <5.0 is not a big deal (I mean, you got your CompSAS and some other stuff, but for the most part, these days a 4.0 - 20.0 machine will work just fine).
I think the real problem is continued symptoms DESPITE acceptable AHI, and all these people here now will still be here because they:
- Have the wrong diagnosis
- Have co-morbidity
- Have the wrong interface (comfort +/- leakage)
- Have poor sleep hygiene
- Medication conflicts
- Have an ineffective medical team
- More stuff..
You guys have been screwing around with this for nearly a year and so far only have a barely-functional website to show for it.
[Insert laundry list of excuses why little has been done here.]
Didn't miss a letter, did I?
You Kids Have Fun!!
Re: myapnea dot org
So why not give an update on the progress of the initiative and where that million dollars is going.
How many people you got signed up?
How many people you got signed up?
You Kids Have Fun!!
- chunkyfrog
- Posts: 34394
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- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: myapnea dot org
Imagine if this forum had some control over what were to constitute a poll,
or if there were at least some oversight as to construction, relevance, and input time parameters.
--or even intent. (How is cpap "torture")
or if there were at least some oversight as to construction, relevance, and input time parameters.
--or even intent. (How is cpap "torture")
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Re: myapnea dot org
It's there in the Research Questions section. Very last question, or if you click "Newest" it will pop up to the top. Looks like you may have found it and voted already, or else someone else did.49er wrote:I didn't see it. Perhaps I didn't look in the right place? When you get a chance, let me know if I missed it so I can vote for your question.
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