lurker coming out

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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palerider
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Re: lurker coming out

Post by palerider » Thu Oct 23, 2014 6:18 pm

js12278 wrote: I have never woke up from my sleep ever gasping for air. I know what it is and what it looks like, I've seen it in someone else, NOT ME. If I did I would use cpap therapy, trust me. .
*most* people with sleep apnea don't wake up gasping for air.... they don't rouse enough to wake up, the only times I'd *remember* wakeing up when I was having *severe* sleep apnea, was when I'd have to get up to pee multiple times a night.

I told myself "well, I'm getting rest, I guess my kidneys are catching up!" and think I was doing well...

the truth of the matter is that when you're choking in your sleep, your brain starts to get starved for oxygen, it sends panic hormones to your heart, which causes your pulse to spike up, raising your blood pressure, then your kidneys get the message 'BP too high! get rid of excess fluid' and they kick into overdrive, and you get a full bladder.

since starting cpap, the many trips to the bathroom have stopped, because I'm no longer choking *in my sleep*

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Re: lurker coming out

Post by js12278 » Thu Oct 23, 2014 6:53 pm

Can I ask you Wulfman and Palerider are you both using cpap? are either of you employed in the health industry in the field of Sleep Disorders or Respiratory therapy?

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Re: lurker coming out

Post by palerider » Thu Oct 23, 2014 7:16 pm

js12278 wrote:Can I ask you Wulfman and Palerider are you both using cpap? are either of you employed in the health industry in the field of Sleep Disorders or Respiratory therapy?
all you have to do is look at our signatures to answer the first part, as to the second, I believe wulfie's retired, and as you would see were you to check my profile, I'm in the computer biz.

so, I've got no profit based interest in putting, or keeping people in cpap.

I personally think people should be able to off themselves in any manner they wish, though their dependents may not appreciate having to change diapers should the person in question just stroke out in their sleep, instead of having a fatal heart attack...

now, when the person in question is shuffling 80,000lbs around on the streets and highways, then they'd better be awake and alert, and if that means cpap or get a different job, .... I really have no sympathy, because their failure to take care of themselves could kill me, or my loved ones...

was that what you were looking for?

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Re: lurker coming out

Post by Wulfman... » Thu Oct 23, 2014 7:18 pm

js12278 wrote:Can I ask you Wulfman and Palerider are you both using cpap? are either of you employed in the health industry in the field of Sleep Disorders or Respiratory therapy?
As in my profile, I've been using CPAP therapy since May 14, 2005. Not now or ever have been employed in the health industry AT ALL.
Spent over 40 years working in banking, insurance and (mostly) computers and software (mainframes and micros)......I'm now retired.

May I inquire as to why you ask?


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Re: lurker coming out

Post by js12278 » Thu Oct 23, 2014 7:19 pm

I understand the trip to the bathroom event. I sleep in a truck most of the week. In the winter it's cooler and I wake up ONCE in the night because my feet get a little cold under the sheet and I put on socks. ONCE IN A WHILE. I do not wake up to go to the bathroom in the middle of my sleep to urinate on a regular basis or nightly or weekly. It's sporadic to rarely ever. I sort of get the feeling here that you folks feel offended in some manner that I don't embrace the same feelings you all have with your cpap machine. With 134 hrs on my new machine I have an index of .6. For me to stand up and say I feel great because of cpap I would feel I was not being honest since I have not ever had events that would need for me to be on a cpap machine. Before I used the machine I feel great in the morning and all day long, I am not tired or desiring a nap mid day. I never fall asleep in the middle of a conversation or while I was driving. I don't snore enough to alarm anyone. I have good blood ox levels 92+ I don't have high blood pressure and I quit smoking cold turkey 8 years ago.

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Re: lurker coming out

Post by js12278 » Thu Oct 23, 2014 7:29 pm

Wulf, Because I wanted to make sure I was talking to people that were speaking from personal experience and not highly trained medical specialists in the field of sleep disorders.

Palerider. nevermind.

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Re: lurker coming out

Post by library lady » Thu Oct 23, 2014 7:36 pm

js12278 wrote:My appointment the first time was for 10am. sleep wasn't gonna happen that time. I would schedule it for later in the day/night. I could sleep if I was able to get in a bed around 11 or 12, I won't take meds for inducing sleep. I don't do chemicals. I will have to see what comes out of asking for the follow up. until thenI will do 4-5 hrs a night as much as I have to to maintain compliance.
Many in-lab sleep studies are done at night. My clinic does them at night in the sleep lab - didn't get charged as hospital overnight, only as "in-lab sleep study"... it was a split-study, meaning that the first part was diagnostic, and if apnea was determined then they put you on a machine, to determine the pressures you need to bring the AHI to an acceptable level, which would be less than 5. You might consider looking for a lab that does overnight studies.

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Re: lurker coming out

Post by js12278 » Thu Oct 23, 2014 7:46 pm

Yes the lab I was sent to does them there. They have pretty nice accommodations. I will likely go back to them for the in lab study. A little more knowledge under my belt though.

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Re: lurker coming out

Post by OkyDoky » Thu Oct 23, 2014 8:01 pm

I can understand being angry with the system that brought you to this point. You were forced to do something that you didn't see a need for and that began a negative experience.
If you question your home study results and repeat with an in lab study are you ready to accept the treatment prescribed?
I too felt I slept soundly at night. So soundly that my O2 dropped to 79% on my sleep study. If I saw that level in someone else I would quickly do something because I know brain cells are starting to die along with other complications.
You have your machine why not use it until you can get your 2nd study? If there is a problem using it ask questions and there will be help from others.
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Re: lurker coming out

Post by js12278 » Thu Oct 23, 2014 8:27 pm

Oh I am using the machine. I am collecting all the data that the compliance company doesn't even look at. I am obviously keeping them happy, I have had no calls about my usage. Not a single follow up call to see how I am doing. All I got from the guy was him telling me How I been sleeping all wrong for 50 years. oh ok. I will be scheduling the in lab in the near future. I will be using their equipment as well as my own. They'll have their oximeter and I will have mine. mine matches the hospital's oximeter so I feel it will be accurate. If I have the in lab and get back negative test results and it dictates I must use the cpap I would be foolish not to. Of course, I have said that already.

Btw, just got a copy of a co=worker's ResScan compliance, his first given to him in six months, he has similar numbers as I do. He feels the same about this as I do. He took his in lab 2 weeks ago and the doctor hasn't got back to him yet. BUT they told him the doctor would call in 3 days to discuss the results. Bet he is upset he may be losing a customer that pays full price for anything he needs since the company pays, not the employee. OR just MAYBE he wants to be sure he doesn't prescribe something to someone that doesn't need such an expensive experience. Like I said, if we need it, we'll do it. If we don't we shouldn't be forced to do it.

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Re: lurker coming out

Post by palerider » Thu Oct 23, 2014 8:39 pm

js12278 wrote:Palerider. nevermind.
if you don't actually need it, clinically, that's great, and I hope for you, that you end up being proven to not need it.

if you *DO* need it, I hope you can accept it.

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Re: lurker coming out

Post by OkyDoky » Thu Oct 23, 2014 8:46 pm

I'll agree we shouldn't be forced to but I am thankful that I found a problem that I didn't know I had before the heart failure, stroke, or any of the other complications became a reality for me. And really the only thing they can force you to do is to be minimally compliant or no longer drive. I really can't see how the minimal compliance can be therapeutic but I guess they think some is better than none.
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Re: lurker coming out

Post by js12278 » Thu Oct 23, 2014 8:51 pm

Enough with the drama. I said early on, If I need it I will use it. You make accepting this crap out to be some boogie man event. enough already. You had me turned on it the minute you brought up your denial remark. I can tell you this, NOBODY likes a person that assumes anything about individuals, show some respect already. You will regret your smartalec remark about drivers if one of your loved ones causes an accident because of distracted driving and THAT is way more likely to happen than a professional driver falling asleep while driving. But know this Pr, I won't support any law or criteria or experiment that infringes on your right to do what you want when you want, but when you do enter my rights, prepare to be responsible for your actions as I would be for mine. If I am tired driving, I guarantee you, I am parked on the side of the road. I got way to much to live for to be that damn stupid. You live your life and I'll watch my health without you having to worry about it. trust me on that.

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Re: lurker coming out

Post by palerider » Thu Oct 23, 2014 11:06 pm

js12278 wrote:But know this Pr, I won't support any law or criteria or experiment that infringes on your right to do what you want when you want, but when you do enter my rights, prepare to be responsible for your actions as I would be for mine. If I am tired driving, I guarantee you, I am parked on the side of the road. I got way to much to live for to be that damn stupid. You live your life and I'll watch my health without you having to worry about it. trust me on that.
and, if every professional driver were as conscientious as you, there would be no need of laws regulating the trucking industry, or the current crackdown by the DOT...

unfortuately, they aren't, and you're getting swept up in the tide.

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Re: lurker coming out

Post by kaiasgram » Fri Oct 24, 2014 1:22 am

Hi js, I just caught up with your thread again.
js12278 wrote:1. Does the machine's air flow respond to the lack of back pressure from my breathing? If I am breathing fine the pressure is at 5 (just an example) and I have an event and then pressure rises since it senses a stop of my breathing, is this correct?
Pretty much yes but it also increases pressure in response to snores and flow limitations. You would be able to see this on your SleepyHead graphs if it's going on. This is an example from my SH files where you can see pressure increasing in response to flow limitations :

Image
2. I read about successes with cpap therapy. Does that mean that people have actually stopped using the machine or they just achieved an acceptable AHI number and they continue on the machine?
Generally it just means the apnea is effectively controlled on the machine.
I have been using SleepyHead and checking my data every morning. Reading the stories of others compared to mine I almost feel like I am trespassing in an environment I do not even belong my events are so insignificant.
I understand. I went from a "moderate-to-severe" diagnosis (home test) to ridiculously good SleepyHead reports. My AHI is always less than one, usually .1 or .2, and I hardly ever have an obstructive event. I've seen maybe a dozen total obstructive apneas in the two and a half years I've been using the machine. I've had to assume that my therapy is just really successful, but I admit that I still sometimes wonder about the accuracy of the home sleep test results. My home test was not even as thorough as yours was. So for what it's worth, I think it's a reasonable plan to do an attended overnight sleep study for clarification. I haven't had one yet.

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