Apparently you weren't very persuasive or instructional towards her knowledge about her therapy.CPAPlady76 wrote:Not at all. Would you rather someone bump their pressure up, begin to have centrals and die? This is a very real possibility and it scares me to think so many people on here are doing this. I would rather tell someone the truth than sugar coat what can happen.Drowsy Dancer wrote:Don't you think this overstates the case just a bit?CPAPlady76 wrote:chunkyfrog wrote:I will say that some of the things I have read on here have been truly disturbing but I understand the "why" of why people are doing what they are doing. Things such as adjusting their pressure on their own without discussing it with a doctor. Folks, if you are doing this, PLEASE STOP. You could send your body into central apnea nightmare and you can die...
One of my friends passed for this very reason. I told her to stop adjusting her own pressure and just get a re-titration but she felt she knew what was best for "her body". I lost someone who meant a great deal to me.
If someone reading this will stop adjusting their own pressure and realize there is danger in doing this maybe they will consult with their doctor then perhaps I have helped to save a life.
And now you're trying to "advise" others about this therapy? Yeeeaaah, RIGHT!
I personally know of someone who was a CPAP user but died because he DIDN'T use his machine ONE night. I also suspect there have been many people I've known who died because they had undiagnosed OSA. I've seen their obituaries in the papers for years.
Then, there are the multitudes of people who had doctors and DMEs who offered piss-poor support and decided to park their machines (many of which were non-data-capable) in their closets......and died from non-use. Or, worse yet, fell asleep at the wheel and killed other, innocent folks.
Everybody's going to die of something, someday. We just try to make them more knowledgeable about their own therapy.
Doctors and DMEs are basically ignorant and all they care about is the cash flow.
I can't begin to count the number of people who came to this forum for help because the DME had incorrectly configured their machines.
Nobody is going to care more about their therapy then the users, themselves. An "enlightened" user is going to be a more dedicated user.
Den
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