General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Kody
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by Kody » Sun Jan 15, 2012 11:38 am
Been almost 6 months since I started with my ASV machine and last night my best report ever, AHI of 1.
The numbers have been coming down under 5 since my last setting changes, and sleeping on my side as long as possible has really made a difference. The other factor I think was just taking a lot of time to get used to the machine and breathing with it. The last part has been trying to get about 7 hours sleep, and when I do I'm really feeling excellent, quite a big change from when I started!

Complex Sleep Apnea
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Pugsy
- Posts: 65137
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- Location: Missouri, USA
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by Pugsy » Sun Jan 15, 2012 12:09 pm
WTG Kody. Good job and congratulations on reaching this milestone.
I may have to RISE but I refuse to SHINE.
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jamiswolf
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by jamiswolf » Sun Jan 15, 2012 1:58 pm
Hi Kody,
Looking good and good for you. After all, you've put in the work needed for this success. I've been a bit of a skeptic regarding auto BPM settings vs manual...but I can see that auto is working out great for you with near 100% PTBs. I may have to change my tune.
Cheers,
Jamis
Last edited by
jamiswolf on Sun Jan 15, 2012 9:02 pm, edited 1 time in total.
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JohnBFisher
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by JohnBFisher » Sun Jan 15, 2012 6:04 pm
Patient triggered breathing of over 99% ... Way to go !! May you have many more happy nights like that.
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
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teknomom
- Posts: 242
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- Location: Colorado
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by teknomom » Sun Jan 15, 2012 6:17 pm
Congratulations! I envy you your PTBs. My first and last hour of sleep are always a mess with PTBs dipping pretty low. The machine kicks in and does great. I guess I'm dozing and cycling through wake/sleep transitional centrals. At least they're being treated! I hope your numbers can stay this low forever!!
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ameriken
- Posts: 1294
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- Location: Colorado
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by ameriken » Sun Jan 15, 2012 8:25 pm
I'm envious too...those PTB's are huge. That means that you're body is trying to breathe on its own. Good job, I know that sometimes we have to tweak our original settings in order to find what really works. With our breathing issues it's almost impossible to really get the right settings in one titration since our breathing can be far different from one night to the next.
Thinking of quitting CPAP?
No problem, here's the first thing to do when you quit:
Advanced funeral planning. When you give up CPAP, you'll probably need it.
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Mr Bill
- Posts: 532
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- Location: Grand Junction, CO
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by Mr Bill » Sun Jan 15, 2012 11:47 pm
Good to see you having success.
EPAP min=6, EPAP max=15, PS min=3, PS max=12, Max Pressure=30, Backup Rate=8 bpm, Flex=0, Rise Time=1,
90% EPAP=7.0, Avg PS=4.0, Avg bpm 18.3, Avg Min vent 9.2 Lpm, Avg CA/OA/H/AHI = 0.1/0.1/2.1/2.3 ... updated 02/17/12
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xm41907
- Posts: 68
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- Location: Baltimore, MD
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by xm41907 » Mon Jan 16, 2012 8:12 am
Congrats! I foresee an ASV in my future. I have been on a cpap for a little over a week and my AHI is between 30-50, nearly all centrals. I'm waiting to hear back from doctor if they'll be switching me to a bipap. I'm curious how your progression to an ASV went. Did you have high numbers with a cpap? Do you mostly have centrals of obstructives? How does an ASV machine feel compared to a cpap? Thanks, and again congrats!
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teknomom
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- Location: Colorado
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by teknomom » Mon Jan 16, 2012 9:09 am
xm41907 wrote:Congrats! I foresee an ASV in my future. I have been on a cpap for a little over a week and my AHI is between 30-50, nearly all centrals. I'm waiting to hear back from doctor if they'll be switching me to a bipap. I'm curious how your progression to an ASV went. Did you have high numbers with a cpap? Do you mostly have centrals of obstructives? How does an ASV machine feel compared to a cpap? Thanks, and again congrats!
Good Luck with your transfer to an ASV. It sounds like you might need some help with those centrals. I started directly on an ASV so I can't compare Cpap to ASV. Some others may chime in with their experiences.
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ameriken
- Posts: 1294
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by ameriken » Mon Jan 16, 2012 9:54 am
xm41907 wrote:Congrats! I foresee an ASV in my future. I have been on a cpap for a little over a week and my AHI is between 30-50, nearly all centrals. I'm waiting to hear back from doctor if they'll be switching me to a bipap. I'm curious how your progression to an ASV went. Did you have high numbers with a cpap? Do you mostly have centrals of obstructives? How does an ASV machine feel compared to a cpap? Thanks, and again congrats!
When they put me on cpap during my first sleep study, I had the same thing....lotsa centrals that the cpap didn't handle. They had me back the 2nd time for another titration, but this time on an ASV. Actually, the doctor ordered a bipap, but the RT who did the titration changed the order to an ASV.
They're great machines....they're so smooth and adjust to your breathing so well that sometimes you can't even tell it's on.
Thinking of quitting CPAP?
No problem, here's the first thing to do when you quit:
Advanced funeral planning. When you give up CPAP, you'll probably need it.
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Kody
- Posts: 336
- Joined: Mon Sep 05, 2011 5:18 pm
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by Kody » Mon Jan 16, 2012 10:19 am
Thanks everyone, I appreciate the encouragement and hope all you guys can get to where you need to be if you haven't already done so.
xm41907 wrote:Congrats! I foresee an ASV in my future. I have been on a cpap for a little over a week and my AHI is between 30-50, nearly all centrals. I'm waiting to hear back from doctor if they'll be switching me to a bipap. I'm curious how your progression to an ASV went. Did you have high numbers with a cpap? Do you mostly have centrals of obstructives? How does an ASV machine feel compared to a cpap? Thanks, and again congrats!
xm41907 I was diagnosed with obstructive's only at first then put on cpap. They had to keep increasing the pressure to clear the obstructive's which then caused me to have centrals, aka "complex sleep apnea". They ended up putting me on the ASV back in July. I like the ASV machine much better than on cpap because I feel I can breath much better and easier as american pointed out too. The only thing was getting all the settings dialed in as I never was titrated with it in the sleep lab. Sounds like you will be on the ASV soon and I wish you luck with it taking care of your situation with the centrals. Nobody wants to have to go the ASV route, but if you need it, you need it and they are good at what they do for us.
Complex Sleep Apnea
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JohnBFisher
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by JohnBFisher » Mon Jan 16, 2012 2:03 pm
Kody wrote:... Nobody wants to have to go the ASV route, but if you need it, you need it and they are good at what they do for us. ...
Well said. I agree with both of you about making it easier to breathe. It is VERY strange to have the pressure change as much as these machines do, but there is no doubt that my ASV units helped me save my life. I was in *really* bad shape (getting less than one hour of sleep per night) when I first got my ASV machine. I now happily get 6 to 10 hours of sleep without problem.
xm41907, do keep us updated. We're here to help you as you continue your journey.
Kody, it's really great to see your progress. Hope you continue to see good progress.
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński