Has been an interesting year, with some changes, lots of learning, some fun....though not all the issues are gone. In fact, sadly, I still have the main symptoms that prompted to push my doctor to find me answers....the two symptoms that eventually lead to the sleep study, etc. EDS and the unexpectedly falling asleep during the day.
Some of the changes have been good, like not having to get up to go every 2-3 hours (or some nights where it seems I'm just going and going....) Other changes I'm not so sure about....I can no longer fall asleep at the drop of a hat, or sleep through anything. I live on the same street as the hospital...so things with sirens go by a lot. And, the guy above seems to jump out of bed every couple of hours...loudly.
Also I keep spending money I don't have on all sorts of stuff....some of which I never thought I'd ever get....even stuff related to CPAP.... like pillows and other masks....and supplies....
The water distiller was one of those first purchases....I'm still probably a couple years away from breakeven...but it certainly has been nice having versus the challenge of walking the 1.5 miles back from the grocery store with a jug now and then....its up hill coming back from the grocery store too. Plus its been a few weeks since I've been....
Actually, it was only the one symptom that lead me to push hard to get an answer instead of the brush off.....the unexpectedly falling asleep during the day....for as long as I remember, I've always had the tired all the time and falling asleep under certain situations....like in a cars and airplanes. And, some years ago...I'd let myself fall asleep during the day at work....I learned how to stay sitting at my computer, etc. And, I always felt way better a <5 minute snooze. But, it became a problem when those little naps were happening out of my control....and despite all the effort I was putting into not falling asleep....
Well, still tired at times during the day, and still nod off (sometimes inappropriately or unexpected)....so I guess its something to bring up when I have my one year follow up appointment. Which I should probably get to making.....
Meanwhile something strange happened last night. I filled the water distiller like I normally do...and ran it over night. I expected to at least see a gallon of distilled water in the morning...sometimes it does a little more and overflows a bit. What I found was only an inch of water in the jug. First thought was it cut out early for some reason, but the water distiller was empty.
Guess that explains why it wasn't so dry in my condo this morning....the hydrometer was reading 5% last night....this morning it was reading 15%. Filled it up and left it running this morning....let's see how that goes.
The Dreamer
