My oral appliance adventure

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Snoredog
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Post by Snoredog » Mon Jun 11, 2007 9:21 pm

socknitster wrote:
Can you describe what a spontaneous arounsal or plm is? I am still trying to get my report. All I know is that I had an AHI of 30, most of which were hypopneas and just a couple of apneas. Thank you for your thoughtful comments, snoredog. I appreciate you watching out for my wallet. I know it is easy to give in to desperation and want to try everything no matter the cost.
actually I can't, spontaneous arousal are arousal's of an "unknown" origin, meaning while they can be seen on your EEG possibly found to interrupt the quality of the sleep you get, their exact cause is unknown reason they are referred to as spontaneous. But just like when you have an apnea event that arouses you from sleep, these other type of arousal's can also interrupt your sleep quality, leaving you tired the next day which is the bottom line. They can cause you to leave or prevent you from ever reaching REM sleep. So that means you may spend more time at Stage2 which should be around 50%.

This is why so many people with untreated OSA don't have very much (if any) Stage 3/4 (deep sleep) or very little REM.

If you have a PSG these non-OSA arousal's should be noted on that report. The point here is however, if you eliminate all the "obstructive" events with a CPAP machine, dental device or TRD, you can still be left fatigued during the day just as andyo has found out.

While andy's dentist might have looked at his PSG and came to the conclusion he was a good candidate anatomically, he may have had no idea how those arousal's may impact one's sleep. I don't think they teach you that in Dental School. I'll talk to my daughter tonight, I'll ask her, but my guess is no.

PLM's are Periodic Limb Movement Disorder (PLMD). They are like they hypnic jerks you get while transitioning from wake-to-sleep but they happen after you have gotten to sleep. The associated "jerk" or twitch of the leg startles or arouses you from sleep. You can do that a hundred times per night. You can see the PLM's by the physical movement of the limb/leg as you sleep.

SO it does no good to go on CPAP for PLM's or spontaneous arousals. Spontaneous arousals are thought to be caused by almost anything even some by snoring. When you think about all the noise and vibrations that come from vibratory snores and how close your base of the brain is above the palate you can almost guess as to what they can be from. It is even thought medications and muscle-skeletal pains can cause them.

If you had AHI=40 during your diagnostic study and you had 20 spontaneous per hour, you might as well have a AHI=60. The difference however is they interrupt sleep quality but the don't have the associated drop in oxygen like the obstructive events do.

someday science will catch up to what I'm saying...

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socknitster
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Post by socknitster » Tue Jun 12, 2007 7:41 am

Once again, snoredog, I have to thank you for a very thoughtful and thorough answer to a newbie question. There is so much to learn here! Supposedly I will be getting my report in the next few days so I'll be able to check for those things myself!

Jen


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oldgearhead
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Post by oldgearhead » Tue Jun 12, 2007 8:13 am

socknitster - I see you have a bi-pap and a Hybrid. I don't think there
is any better combination available to prevent trapping air in you mouth.

1) With the Hybrid, if trapping air is a problem, just leave your mouth open a bit.

2) If you're wearing the Hybrid, who can see your "unattractive puffed lips?

If you want to learn about "puffy lips" just try a nasal-pillow-only mask,
plus some mouth tape. ..

_________________
Mask: Hybrid Full Face CPAP Mask with Nasal Pillows and Headgear
Additional Comments: 8-12cm/H2O--AHI 1.6
+ Aussie heated hose.
....................................................................

People have more fun than anybody..

Arkanoid
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Post by Arkanoid » Tue Jun 12, 2007 8:18 am

Arkanoid said:
Quote:
I bought an pulse ox to watch what was happening the best I could with it. My oxygen level during my sleep study dropped to 73.

socknitster said:
Very interesting story. I didn't know you could just buy a pulse ox. Are they expensive? Where do you get one?
I got it at my favorite shopping place to find about anything - E-Bay. I have found other links on this board also. Google found some also. There are two basic types that I know of. A machine similar to what is used in hospitals that have a lead that attaches to the finger, which is what I have. The other type I have seen was more like a wrist band that had a lead for your finger.

I am not an expert, but the things I looked for was one that would record what happened (trend data). Without that, you can't get the data to know what really happened. Then it depends on how accurate you want. Like most things the more expensive generally the better. I have seen them from about $200 - $500 depending. By accurate I am refereing to the number of seconds in a group that it trends. If I am wrong on any of this, feel free to correct me. My wife is a nurse and she was happy with what I got and how it reads. She looks at them all day, every day in the OR.

oceanpearl
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Post by oceanpearl » Tue Jun 12, 2007 8:34 am

socknitster wrote:Arkanoid said:
I bought an pulse ox to watch what was happening the best I could with it. My oxygen level during my sleep study dropped to 73.
Very interesting story. I didn't know you could just buy a pulse ox. Are they expensive? Where do you get one?

GeneS wrote:
I wear a http://www.snorban.com along with my cpap. I think it helps.


This looks interesting and it does the same thing that my dentist wants to make for $400. He said it would hold my teeth out edge to edge like that. And does it make it possible for you to use a nasal-only interface without mouth leaks? Considering my facial structure, the ff masks just don't work, so this looks like it could be an alternative for me and easier (and less scary for my son) than tape on my mouth.

Jen
I just want to go back to sleep!

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socknitster
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Post by socknitster » Tue Jun 12, 2007 9:02 am

oldgearhead said:
If you want to learn about "puffy lips" just try a nasal-pillow-only mask,
plus some mouth tape. ..
Actually I tried that the last two nights and it wasn't too bad. I don't like the tape and my son is a sensitive child, so I'm trying to make sure he doesn't see me with it because at age 3 he will surely get some strange ideas. I did still swallow some air but it wasn't as bad as some nights.

Either it (aerophagia) is getting better because the gerd is getting better or this is a better option for me than the hybrid. That said, my skin around my mouth is feeling a little rough and irritated so I'll be back to the hybrid tonight. This is why I am thinking a mouth piece would help. I have sensitive skin and can't see taping as a long term option.

There is no way I could sleep with my mouth open with the hybrid on! It is like opening your mouth with your head hanging out of a speeding car. It is an effort just to close the mouth! Umm. Not pleasant!

Arkanoid: Thank you so much for the pulse ox info. I would very much like to track that myself to see definitively how my therapy is working. The whole goal of treatment is to keep o2 sats high at all times. I'm very analytical so I want to KNOW. Thanks!

Glenice
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Mandibular advancement splint

Post by Glenice » Mon Jun 25, 2007 6:39 am

A couple of years ago, I was diagnosed with Severe Obstructive Sleep Apnoea. I had no idea what this meant- I just thought I was really a Ducati Motor bike like my husband accused me of being. We were both in denial re the diagnosis. However after an RDI reading of 64.5 per hour, I was told I had no choice but to use a cpap machine. I lugged the beast around the world for 3 1/2 months, after which I decided I couldn't stand it any longer and looked for alternatives.
I already had he UPPP op on my palette with absolutely no difference in the noise decibels.
A different specialist suggested I try this splint. I deferred as I thought being on the severe end of the scale made it impossible to consider.
Today, I received the test results. The CPAP result was 7.5 RDI and the splint is now 6.2 RDI.
The mandibular splint is a 2 piece, specially fitted one and it only took me about a week or two to become used to it. I was ablet to get a refund so the gap cost me about $150. Maybe this is because it is in Australia? Anyway, I certainly am one who can sing it's praises! I am 67yo (and did a Skydive to celebrate!)


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snork1
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Somnogard AP

Post by snork1 » Mon Jun 25, 2007 3:17 pm

I have been using a TAP-T dental device for my apnea, along with Hylands Restful Legs for RLS, after CPAP was just not working WELL for me. This combo is extremely effective for me, based on pulse ox readings, dream tracking and daytime observations AND I have been LOSING weight, since my all time HIGH weight ON CPAP.
But I am always careful to point out this approach WILL NOT work for everyone. Its a gamble. Going through a certified sleep dentist helps.

I also suggest to people that are leary of dropping the major investment in a gamble (cost to me was $1700, and all but $800 was eventually reimbursed) would be to try something like the Somnogard AP which is bulkier and not quite as adjustable but otherwise VERY similar to "true" dental devices and can be bought for $160 without a prescription.
http://nosnorezone.com/order.html

Still a gamble but more in the price range of a good CPAP mask at least and the payoff is HUGE IF it works....IMHO.

Remember:
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.

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socknitster
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Post by socknitster » Mon Jun 25, 2007 3:39 pm

Snork,

So good to hear about your success with TAP. Mine is being made now. I hope it will help. My dentist is only charging me about $900, but I don't think he is planning to get the Tap-T--I think that one is more expensive of the three and perhaps the more durable?

I was shocked that my insurance reimbursed my for part of the TAP fitting. I have paid the dentist about $600 so far and they reimbursed me about $250. I don't know what they will do when the rest is billed. I'm lucky enough to have a flexible spending account I can use for this, but would be willing to pay out of pocket for it.

I'm hoping that my severe osa will be decreased by getting TAP and having my xl tonsils out so that my bipap pressure of 16/12 can at the very LEAST be decreased to a lower pressure and at the very MOST get me off cpap. I'm trying not to get my hopes up too much and I'm not desperate enough to try anything but the most minor of surgeries (that I should have had done as a kid, no less!) and other non-invasive means.

I'm only 35 and planning on getting pregnant again soon, so I feel I have to take this seriously and explore every possibility asap so I can get my fertitily back on track--eveything was on hold due to severe "depression" and high blood pressure, both of which are magically disappearing now that I'm on cpap.

Anyway, thanks for your report Snork and keep coming back and telling us about TAP! People need to know there is more out there than up3 and xpap.

Jen


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snork1
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Post by snork1 » Mon Jun 25, 2007 3:53 pm

Jen,
I will be lazy and not sift throuh ALL the previous.
I can't remember if you mentioned getting your nose "working".
While I was dialing in my CPAP, I finally went in to see an ENT about my severely restricted breathing through my nose. The ENT found all sorts of blockage and impacted sinuses that made it amazing ANY air was getting through. I had a pile of surgery done on my nose and sinuses and continue doing a twice a day sinus saline flush to this day. My CPAP pressure dropped from about 16cm to about 9cm after the surgery.
So thats something to consider as in investment in your health too, before getting pregnant.

Good luck on your quest for good sleep!

Remember:
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.

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socknitster
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Post by socknitster » Mon Jun 25, 2007 5:34 pm

Snork,

Thank you for your comments. I had turbinate reduction/septoplasty and adenoids removed about a year ago. So, that isn't my issue. Goodness knows what my pressure would have been had I been diagnosed then! I'm glad to hear that you found relief in sinus surgery too!

In my case I am addressing three fronts: silent gerd now being controlled with prilosec otc, huge tonsils--out in end of July, big tongue--hopefully addressed by TAP. I have a "trim" palate according to the sleep dentist I saw and will not even entertain up3. If there is more to it than that then cpap will have to take care of the rest for the rest of my life. But I'm not going to worry too much about that. If I could get my pressure down from 16/12 to something more like 10ish I would be ecstatic.

I'm young and my biological clock is ticking--my little boy is almost 4 and I was hoping to space my children closely. My dreams of a big family are unlikely to come to fruition, so I feel a very strong urge to address this disorder aggressively so I can have another child within the next 12-18 months. Basically, once I have had the tonsilectomy, the tap should be close behind and hopefully the next titration will closely follow. During these next few months I will try to lose some weight and I hope then I will be able to become fruitful and multiply easily and with grace.

If I were in a different stage of life I think I wouldn't be nearly this aggressive about it all at once, you know? I think I would just hang out with cpap for a few years and then maybe explore other stuff. It really isn't that bad, after all!

Jen


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snork1
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Post by snork1 » Mon Jun 25, 2007 8:28 pm

[quote="socknitster"]....If I were in a different stage of life I think I wouldn't be nearly this aggressive about it all at once, you know? I think I would just hang out with cpap for a few years and then maybe explore other stuff. It really isn't that bad, after all!

Jen

Remember:
What you read above is only one data point based on one person's opinion.
I am not a doctor, nor do I even play one on TV.
Your mileage may vary.
Follow ANY advice or opinions at your own risk.
Not everything you read is true.

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jskinner
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Post by jskinner » Mon Jun 25, 2007 8:44 pm

I've had my oral device for about 5 days nows. I saw a significant difference right from the first night. Daily headaches are almost gone using the device. I need to get an oximeter to see how well its _really_ working.

I will post more on my experiences with it in another thread soon. So far I am pleased with the results because I was unsure if it would help (based on what I had read)

It appears that in some cases the dental device gamble can work.
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socknitster
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Post by socknitster » Tue Jun 26, 2007 6:47 am

James,

I'm SO HAPPY FOR YOU! That is such awesome news. I know you have been struggling and unable to use your cpap. What a relief for you that your oral appliance is working for you. I'll be really curious to hear what your O2 sats are with it.

Which one did you get, out of curiosity?

Jen


OlderNDirt

Oral appliance adventure

Post by OlderNDirt » Tue Dec 18, 2007 7:55 pm

To make you even happier, I found two boil and bite appliances at Wal Of Mart, one for $4 .99; the other for--get this!--99 cents! Bought them to see if they can cure my dry mouth and throat after a night of CPAP with CFLEX.

For others interested, look in sporting goods for mouthguards (Athletic Works Mouthguard); and in pharmacy section (for Doctor's Night Guard Dental Protector). I have yet to play with them so can't report on efficacy yet.